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Is there an RLS/PLM medication suitable for Driving?
Hi. I'm a Train Operator and have suffered with RLS/PLM for many years. Until now I've been able to manage mild symptoms and only really suffered if I was over-tired or exhausted. The condition runs in my family and my Mum was prescribed Sinemet and my sister is taking Ropinirole. My symptoms have recently
Hi. I'm a Train Operator and have suffered with RLS/PLM for many years. Until now I've been able to manage mild symptoms and only really suffered if I was over-tired or exhausted. The condition runs in my family and my Mum was prescribed Sinemet and my sister is taking Ropinirole. My symptoms have recently
Josh2020
in
Restless Legs Syndrome
4 years ago
How do hormones affect PD?
I understand it affects more women than men. How we differ from women; More testosterone, less estrogen. I think maybe 10 years ago there was a book titled, The Testosterone Syndrome. The upshot was cruciferous veggies helped keep these hormones in balance. Specifically DIM was the active
I understand it affects more women than men. How we differ from women; More testosterone, less estrogen. I think maybe 10 years ago there was a book titled, The Testosterone Syndrome. The upshot was cruciferous veggies helped keep these hormones in balance. Specifically DIM was the active
kaypeeoh
in
Cure Parkinson's
4 years ago
Help! Shaking is driving me š
I have had Parkinsonās for about 20 years. Originally was given Sinemet cr. After that didnāt work anymore I was given Sinemet IR. Even though it happened at times, recently about ten minutes after I take the Sinemet I shake uncontrollably for about forty five minutes. When I finally quit shaking, I
I have had Parkinsonās for about 20 years. Originally was given Sinemet cr. After that didnāt work anymore I was given Sinemet IR. Even though it happened at times, recently about ten minutes after I take the Sinemet I shake uncontrollably for about forty five minutes. When I finally quit shaking, I
Ep0522
in
Cure Parkinson's
4 years ago
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Less sinemet more often
Has anyone tried to take less sinemet more often throughout the day? I have been experimenting with this for a few months now and it seems to keep me on a more even playing field. So, Rather than take one sinemet three times a day, I take a half a sinemet six times a day. I was getting side effects from
Has anyone tried to take less sinemet more often throughout the day? I have been experimenting with this for a few months now and it seems to keep me on a more even playing field. So, Rather than take one sinemet three times a day, I take a half a sinemet six times a day. I was getting side effects from
Kt088
in
Cure Parkinson's
4 years ago
Melatonin For Parkinson's Disease (Pt. 2)
In case you missed part 1, here is a link to it : https://healthunlocked.com/parkinsonsmovement/posts/143507411/melatonin-for-parkinsons-disease....finally Melatonin is the only naturally occurring substance in the body that I have found that can help return the body toward homeostasis through multiple
In case you missed part 1, here is a link to it : https://healthunlocked.com/parkinsonsmovement/posts/143507411/melatonin-for-parkinsons-disease....finally Melatonin is the only naturally occurring substance in the body that I have found that can help return the body toward homeostasis through multiple
chartist
in
Cure Parkinson's
4 years ago
Iām new to posting..
I have been diagnosed since June of 2019 with Parkinsonism , probable PSP by a movement disorder specialist. I cycle inside or outside daily. I still enjoy woodworking.. but I have been falling more lately , mostly backward so I now am extremely careful about even one step backward without holding
I have been diagnosed since June of 2019 with Parkinsonism , probable PSP by a movement disorder specialist. I cycle inside or outside daily. I still enjoy woodworking.. but I have been falling more lately , mostly backward so I now am extremely careful about even one step backward without holding
WoodworkerRVH
in
PSP Association
4 years ago
My Mucuna Trip. Enjoy the humor!
After reading Stevenmastās post from July titled āMucuna my natural protocolā I was very interested in trying the NutriVitaShop brand of Mucuna Pruriens with Matcha Green Tea. Previously I had used Barlowe's 40%. When my powder arrived, I eagerly whipped up a batch of tea and added Mucuna, and gulped
After reading Stevenmastās post from July titled āMucuna my natural protocolā I was very interested in trying the NutriVitaShop brand of Mucuna Pruriens with Matcha Green Tea. Previously I had used Barlowe's 40%. When my powder arrived, I eagerly whipped up a batch of tea and added Mucuna, and gulped
Cons10s
in
Cure Parkinson's
4 years ago
Severe Jaw clenching -why? And what to do?
Hi everyone, Iāve had PD for 8 years and on Sinemet 100 x6 a day for last 3 years. Over last 6 months I developed chronic anxiety and been taking Lexapro for that. Also told I am having a bad menopause and taking Livial for that. Also PD getting worse and starting in my other side too. Talking in my
Hi everyone, Iāve had PD for 8 years and on Sinemet 100 x6 a day for last 3 years. Over last 6 months I developed chronic anxiety and been taking Lexapro for that. Also told I am having a bad menopause and taking Livial for that. Also PD getting worse and starting in my other side too. Talking in my
Bbbbyyyy
in
Cure Parkinson's
4 years ago
How long for Xadago to take effect and better to take it morning or night?
I have early onset and have been taking x5 Sinemet 100 per day and a slow release at night for 3 years. I am Getting off periods now where I become very rigid and slow in movement and thinking. Specailist prescribed Xadago as an extra med to stop the off periods and make sinemet more effective. Start
I have early onset and have been taking x5 Sinemet 100 per day and a slow release at night for 3 years. I am Getting off periods now where I become very rigid and slow in movement and thinking. Specailist prescribed Xadago as an extra med to stop the off periods and make sinemet more effective. Start
Bbbbyyyy
in
Cure Parkinson's
4 years ago
Personal experience with vitamin b1, thiamine?
I was diagnosed with young onset PD IN 2010, at age 40. Then,10 years later, I found I was losing my balance and re-diagnosed as Parkinsons plus, only they don't know what the plus is. The suspicion is ataxia, of which there are over 300 varieties. All of this to say I have nothing to lose. I am trying
I was diagnosed with young onset PD IN 2010, at age 40. Then,10 years later, I found I was losing my balance and re-diagnosed as Parkinsons plus, only they don't know what the plus is. The suspicion is ataxia, of which there are over 300 varieties. All of this to say I have nothing to lose. I am trying
eemove
in
Cure Parkinson's
4 years ago
The need for sinemet/dopamine in general.
I would suggest given responses / dialogue ive seen here that if you have been on sinemet every 3rhs 24/7 ish and you can stop with little or no effect.....you might want to question an idiopathic PD diagnosis. cheers...........hang tough.
I would suggest given responses / dialogue ive seen here that if you have been on sinemet every 3rhs 24/7 ish and you can stop with little or no effect.....you might want to question an idiopathic PD diagnosis. cheers...........hang tough.
beehive23
in
Cure Parkinson's
4 years ago
Why do I fall forwards?
[i] I left Wyoming three weeks ago. Now I'm in our new home in Connecticut. [/i] I spent the past few days hiking amid myriad 300-year old fences. Three years ago I found there was a problem while attempting a marathon. My balance was off to the point of bending at the waist and falling on my hands
[i] I left Wyoming three weeks ago. Now I'm in our new home in Connecticut. [/i] I spent the past few days hiking amid myriad 300-year old fences. Three years ago I found there was a problem while attempting a marathon. My balance was off to the point of bending at the waist and falling on my hands
kaypeeoh
in
Cure Parkinson's
4 years ago
Balancing diabetes with PD
Between a rock and a hard place. My husband is 26 years into PD. He is now also pre diabetic. How can you balance what foods to eat. Too many carbs turn into sugar and too much protein stops PD meds working properly. He tried Metformin but felt it was affecting his PD. The more carbs he has the more
Between a rock and a hard place. My husband is 26 years into PD. He is now also pre diabetic. How can you balance what foods to eat. Too many carbs turn into sugar and too much protein stops PD meds working properly. He tried Metformin but felt it was affecting his PD. The more carbs he has the more
JeanieBeanie
in
Cure Parkinson's
4 years ago
RYTARY OR SINEMET, WHICH WORKS BEST AND CAUSES MILD OR NO DYSKINESIA OR DYSTONIA?
Hi Friends, Diagnosed as a Yopd patient. I need your honest opinion as regards Rytary and Sinemet,I am roughly 4yrs on this PD journey,and have been on sinemet with less severe side effects,until recently the ''on period'' of Sinemet decreased to 2hrs instead off initial 4 or 3hrs.I then had to dose
Hi Friends, Diagnosed as a Yopd patient. I need your honest opinion as regards Rytary and Sinemet,I am roughly 4yrs on this PD journey,and have been on sinemet with less severe side effects,until recently the ''on period'' of Sinemet decreased to 2hrs instead off initial 4 or 3hrs.I then had to dose
OREOLU
in
Cure Parkinson's
4 years ago
Stalevo
My doctor just changed my prescription from Sinemet to Stalevo. Does anybody have experience taking Stalevo? I am afraid to have hallucinations with Stalevo.
My doctor just changed my prescription from Sinemet to Stalevo. Does anybody have experience taking Stalevo? I am afraid to have hallucinations with Stalevo.
nourilo
in
Cure Parkinson's
4 years ago
DYSKINESIA vs DYSTONIA
i've been wondering after reading many posts here, whether I know the difference between dystonia and dyskinesia. My PD was preceded by the onset of vocal cord dystonia which means the vocal cords are very tight which makes it very difficult to speak. I get severe abdominal wall muscle tightness when
i've been wondering after reading many posts here, whether I know the difference between dystonia and dyskinesia. My PD was preceded by the onset of vocal cord dystonia which means the vocal cords are very tight which makes it very difficult to speak. I get severe abdominal wall muscle tightness when
Grasss1973
in
Cure Parkinson's
4 years ago
HOW DO I SWITCH TO RYTARY? PLEASE HELP.
Hi Friends, I am here again asking for your kind support.For you,the experienced pwp. I will like to know how to transition from sinemet IR to Rytary. I am currently on 25/100mg ,2 and half tablet at 8am,12noon,4;00pm,8;00pm and one tablet at 11;00pm bedtime. I just got Rytary 36.25mg/145mg,and my Doctor
Hi Friends, I am here again asking for your kind support.For you,the experienced pwp. I will like to know how to transition from sinemet IR to Rytary. I am currently on 25/100mg ,2 and half tablet at 8am,12noon,4;00pm,8;00pm and one tablet at 11;00pm bedtime. I just got Rytary 36.25mg/145mg,and my Doctor
OREOLU
in
Cure Parkinson's
4 years ago
Constipation - Parkinsons, Sinemet or both ? Natural ways of treating constipation?
Mom has a G tube so it limits sometimes what we can give her in terms of fibre , even though she is getting completely organic food with no preservatives etc . All clean ingredients. I might start massaging her tummy with some essential oils , dont want to give her too many laxatives. Any suggestions
Mom has a G tube so it limits sometimes what we can give her in terms of fibre , even though she is getting completely organic food with no preservatives etc . All clean ingredients. I might start massaging her tummy with some essential oils , dont want to give her too many laxatives. Any suggestions
mymomhaspd
in
Cure Parkinson's
4 years ago
Medications for cbd
What meds do you take for CBD..my mum takes sinemet 4 times a day ..betmega in the morning and stilnocht sleeping tablet at night...mirap at night and lexepro for anxiety...her right hand has totally closed into a fist..cannot open it without her roaring in pain..someone mentioned botox??..she constantly
What meds do you take for CBD..my mum takes sinemet 4 times a day ..betmega in the morning and stilnocht sleeping tablet at night...mirap at night and lexepro for anxiety...her right hand has totally closed into a fist..cannot open it without her roaring in pain..someone mentioned botox??..she constantly
Cianodude
in
PSP Association
4 years ago
Explain festination please
Can someone explain festination? Last winter I would walk on a hilly half-mile track while wearing a backpack with a 30# weight. On snowy inclines I'd get an urge to turn around or at least walk backwards. At a Zoom examination I explained this sign and the doc responded that it's festination.
Can someone explain festination? Last winter I would walk on a hilly half-mile track while wearing a backpack with a 30# weight. On snowy inclines I'd get an urge to turn around or at least walk backwards. At a Zoom examination I explained this sign and the doc responded that it's festination.
kaypeeoh
in
Cure Parkinson's
4 years ago
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