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Experiences with
Intravenous immunoglobulin (IVIg)
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Myasthenia Gravis ,My Dandelion ,My Life
appear, I Manage to recognize it, as a weed in my garden, that need attention and occasionally prevention from triggering factors that could cause a Myasthenia Gravis Crisis .My treatment and diagnosis ,EMG ,TENSILON TEST ,ANTIBODY TESTING ,PSYHCOTHERAPHY ,ANTI REJECTION MEDS ,MESTINON,PLASMAPHERESIS ,
IVIG
appear, I Manage to recognize it, as a weed in my garden, that need attention and occasionally prevention from triggering factors that could cause a Myasthenia Gravis Crisis .My treatment and diagnosis ,EMG ,TENSILON TEST ,ANTIBODY TESTING ,PSYHCOTHERAPHY ,ANTI REJECTION MEDS ,MESTINON,PLASMAPHERESIS ,
IVIG
faithhope421
in
Myasthenia Gravis Association
3 years ago
Sural nerve graft for ED following prostatectomy
This didn't work so surgery was postponed and I ended up with a five hour infusion of
IVIg
. A week later I had the surgery, which runs for several hours and involves an overnight stay in hospital.
This didn't work so surgery was postponed and I ended up with a five hour infusion of
IVIg
. A week later I had the surgery, which runs for several hours and involves an overnight stay in hospital.
Blackpatch
in
Advanced Prostate Cancer
3 years ago
7 Questions to Ask Your Rheumatologist If You’re Nervous About Getting the COVID-19 Vaccine
The ACR guidance states that you should keep taking the following medications as prescribed: Hydroxychloroquine (Plaquenil)
IVIG
Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran) Cyclophosphamide
The ACR guidance states that you should keep taking the following medications as prescribed: Hydroxychloroquine (Plaquenil)
IVIG
Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran) Cyclophosphamide
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
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NK cell treatment & immune conditions
Everything around NK cell treatment really worries me, just from how little published research there is and possible side effects from treatment to me and any potential baby - my doctor is suggesting
IVIg
/intralipid infusions plus steroids - both of which need panel approved given the pandemic and timing
Everything around NK cell treatment really worries me, just from how little published research there is and possible side effects from treatment to me and any potential baby - my doctor is suggesting
IVIg
/intralipid infusions plus steroids - both of which need panel approved given the pandemic and timing
Bistbee
in
Fertility Network UK
3 years ago
Getting a COVID-19 Vaccine with Autoimmune or Inflammatory Rheumatic Disease: New Guidance from the American College of Rheumatology
This applies to: Hydroxychloroquine (Plaquenil)
IVIG
Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi
This applies to: Hydroxychloroquine (Plaquenil)
IVIG
Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
IVIG: Wondering if it's right for me? Your experience?
Had anyone with CLL and on ibrutinib had
IVIG
treatment? I'm thinking about it -- but would like more information; eg side effects, duration of benefits, etc. (Iwas inthe ICU rhis summer with viral pneumonia after a trip to Israel).
Had anyone with CLL and on ibrutinib had
IVIG
treatment? I'm thinking about it -- but would like more information; eg side effects, duration of benefits, etc. (Iwas inthe ICU rhis summer with viral pneumonia after a trip to Israel).
suz02
in
CLL Support
3 years ago
Living in the USA with CLL and want to know where to sign up for your COVID-19 Vaccination? A State-by-State List
[/i] https://cllsociety.org/wp-content/uploads/2021/01/CLL-Societys-Official-Statement-Concerning-SARS-CoV-2-Vaccine-in-CLL-patients-01-04-21.pdf
If you are on
or subcutaneous IgG, Dr Furman's advice is to make no change to your infusion schedule in his post to the CLL/SLL Groups.io community
[/i] https://cllsociety.org/wp-content/uploads/2021/01/CLL-Societys-Official-Statement-Concerning-SARS-CoV-2-Vaccine-in-CLL-patients-01-04-21.pdf
If you are on
or subcutaneous IgG, Dr Furman's advice is to make no change to your infusion schedule in his post to the CLL/SLL Groups.io community
AussieNeil
Administrator
in
CLL Support
3 years ago
Flu shot ?
I was doing
IVIG
infusions until a few years later I had a bad reaction - so I stopped them. I’m a lil confused as I read different things in this site. Thank you
I was doing
IVIG
infusions until a few years later I had a bad reaction - so I stopped them. I’m a lil confused as I read different things in this site. Thank you
Youmi111
in
Hughes Syndrome APS Forum
3 years ago
Helioplex test
. 😂😫😂 Got 3
IVIG
infusions and they helped tremendously with swallowing and cranial neuropathy. However, the effects are not sustained so I’m back to square one. Neuro-optho is pushing rheum for a plan and rheum is asking neuro to manage.
. 😂😫😂 Got 3
IVIG
infusions and they helped tremendously with swallowing and cranial neuropathy. However, the effects are not sustained so I’m back to square one. Neuro-optho is pushing rheum for a plan and rheum is asking neuro to manage.
Jmiller623
in
LUPUS UK
3 years ago
Post 717 Positively is the only way to look at ms 12 Dec 2020
Infusion of
IVIG
(ask your doctor about it) I do not and do not care to, it has been a very long time, besides it is her car not mine. An attitude like this and a devil may care attitude will help “YOU” get through the ups and downs.
Infusion of
IVIG
(ask your doctor about it) I do not and do not care to, it has been a very long time, besides it is her car not mine. An attitude like this and a devil may care attitude will help “YOU” get through the ups and downs.
RoyceNewton
in
My MSAA Community
3 years ago
Splenectomy or other options?
He has been on promacta for the last several years also has had many
ivig
transfusions. He is currently at the highest dose of promacta that is FDA approved for kids which is 50mg. Insurance will obviously not cover a higher dose.
He has been on promacta for the last several years also has had many
ivig
transfusions. He is currently at the highest dose of promacta that is FDA approved for kids which is 50mg. Insurance will obviously not cover a higher dose.
RJanna
in
ITP Support Association
4 years ago
ITP cured after parasites eradicated
I got well within one month after these two treatments and never needed
IVIG
again. I am ITP free since October 2017.
I got well within one month after these two treatments and never needed
IVIG
again. I am ITP free since October 2017.
CDmom
in
ITP Support Association
4 years ago
IVIG CURE?
Is
IVIG
the magic ticket? In your opinion am I cured? I see many of you living with CLL for many years and I just seem like I have great blood work and gained too much weight. Also, does
IVIG
make anyone sick the weak after? Thank you.
Is
IVIG
the magic ticket? In your opinion am I cured? I see many of you living with CLL for many years and I just seem like I have great blood work and gained too much weight. Also, does
IVIG
make anyone sick the weak after? Thank you.
Kimsome
in
CLL Support
4 years ago
IVIg Infusion feedback
Hi everyone, I am thinking this is probably going to seem like a mild problem, and I tend to be very overly anxious about anything new, but my Immuneglobulin g is down to 245. I have had no infections, been on Imbruveca for 2.5 years and my numbers are all really very good and I feel great. My Oncologist
Hi everyone, I am thinking this is probably going to seem like a mild problem, and I tend to be very overly anxious about anything new, but my Immuneglobulin g is down to 245. I have had no infections, been on Imbruveca for 2.5 years and my numbers are all really very good and I feel great. My Oncologist
Cgolen99
in
CLL Support
4 years ago
Results after 3 months on Venetoclax, with questions?
i also found my IgG has dropped from 1000 to 422 and I have to have an infusion of
IVIG
this week. I can’t quite understand why this might have occurred. They tell me I am not hemolyzing again, but I am surely not bleeding from anywhere, and I haven’t any idea what could be going on.
i also found my IgG has dropped from 1000 to 422 and I have to have an infusion of
IVIG
this week. I can’t quite understand why this might have occurred. They tell me I am not hemolyzing again, but I am surely not bleeding from anywhere, and I haven’t any idea what could be going on.
KevinCLLITP
in
CLL Support
4 years ago
Grandchildren
Live on my own and have
IVIG
treatment. Issue is my daughter is due her 3rd baby and as it will be during half term i said I would have my grandson of 6yrs and my granddaughter of 5yrs. They live in wigan England and I live near Aberdeen Scotland.
Live on my own and have
IVIG
treatment. Issue is my daughter is due her 3rd baby and as it will be during half term i said I would have my grandson of 6yrs and my granddaughter of 5yrs. They live in wigan England and I live near Aberdeen Scotland.
Frodo21
in
Positive Wellbeing During Self-Isolation
4 years ago
CLL for 6 years, 80 years old!
So they stopped Imbruvica, and have him once a month doing infusions of
IVIG
. VERY EXPENSIVE, even with insurance , monthly it is 549 per month. We can’t afford this indefinitely! Is there any help then a foundation, someone might advise??
So they stopped Imbruvica, and have him once a month doing infusions of
IVIG
. VERY EXPENSIVE, even with insurance , monthly it is 549 per month. We can’t afford this indefinitely! Is there any help then a foundation, someone might advise??
Dummer70
in
CLL Support
4 years ago
IVIG Infusion - Patients with no masks
I attended the chemo ward today for my
IVIG
infusion, the first in 5 months. I suspended this 5 months ago in line with the CLLForum's Recommendations of reducing the risk of CLL patients contracting COVID.
I attended the chemo ward today for my
IVIG
infusion, the first in 5 months. I suspended this 5 months ago in line with the CLLForum's Recommendations of reducing the risk of CLL patients contracting COVID.
RobertCLL
in
CLL Support
4 years ago
Ivig and severe headache
Started
ivig
6 months ago.
Started
ivig
6 months ago.
Imbub
in
CLL Support
4 years ago
Gazyva and Low Platelet Count?
He immediately put me on 80mg of Prednisone last night and is looking into a potential infusion of
ivIG
, which I wasn’t familiar with. Any similar stories to share?
He immediately put me on 80mg of Prednisone last night and is looking into a potential infusion of
ivIG
, which I wasn’t familiar with. Any similar stories to share?
msccsm11
in
CLL Support
4 years ago
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