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Experiences with
Intravenous immunoglobulin (IVIg)
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Glad I found this group
I have been on
IVIG
consecutively for the last year but no chemo since 2010. Numbers are going crazy now but praying they stay somewhat under control for now. So glad to be able to share with people that understand!
I have been on
IVIG
consecutively for the last year but no chemo since 2010. Numbers are going crazy now but praying they stay somewhat under control for now. So glad to be able to share with people that understand!
DRADCLIFF
in
CLL Support
7 years ago
Necrotising myopathy/myositis
I start
IVIG
treatment on 19/06. Can anyone offer advice on this illness/treatment? I am finding it difficult to cope emotionally as well as physically now.
I start
IVIG
treatment on 19/06. Can anyone offer advice on this illness/treatment? I am finding it difficult to cope emotionally as well as physically now.
Maureenhall55
in
Care Community
7 years ago
Magnetic bracelets
Hi all, I was diagnosed 4 years ago now, still on w&w + 3 weekly
IVIG
transfusions, & nave been suffering for years with arthritis in my right thumb (I am right handed, which makes this a pain). A friend tells me his arthritic pain has much reduced after using a magnetic bracelet.
Hi all, I was diagnosed 4 years ago now, still on w&w + 3 weekly
IVIG
transfusions, & nave been suffering for years with arthritis in my right thumb (I am right handed, which makes this a pain). A friend tells me his arthritic pain has much reduced after using a magnetic bracelet.
Alan20
in
CLL Support
7 years ago
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Itp
Hi I have recently been diagnosed with itp and i had the
ivig
treatment a week and half ago as my levels had dropped to 2 after the infusion levels went up to 110 now i have suddenly come out with blood blisters in my moith and have bruises on my legs with petechiae does this mean my levels have dropped
Hi I have recently been diagnosed with itp and i had the
ivig
treatment a week and half ago as my levels had dropped to 2 after the infusion levels went up to 110 now i have suddenly come out with blood blisters in my moith and have bruises on my legs with petechiae does this mean my levels have dropped
sarb30
in
ITP Support Association
7 years ago
Car-T TV special. National Geographic break through series.
On TV currently or can be watched online I think, The Show is called Breakthough on the National Geographic Channel http://channel.nationalgeographic.com/breakthrough-series/videos/using-cells-to-battle-cancer/ Does require
IVIG
after monthly I believe since all B-cells are then removed.
On TV currently or can be watched online I think, The Show is called Breakthough on the National Geographic Channel http://channel.nationalgeographic.com/breakthrough-series/videos/using-cells-to-battle-cancer/ Does require
IVIG
after monthly I believe since all B-cells are then removed.
Hoffy
in
CLL Support
7 years ago
Result bone marrow biopsy
My results for my bone marrow biopsy are fine a so a big bonus : ))) but as we know always a but it is ITP unkown my hemotologist told me my immune system is very weak I am no meds just getting monitored when I had
ivig
drip platelets went to 220 after 4 weeks now dropped to 120 not too concerned
My results for my bone marrow biopsy are fine a so a big bonus : ))) but as we know always a but it is ITP unkown my hemotologist told me my immune system is very weak I am no meds just getting monitored when I had
ivig
drip platelets went to 220 after 4 weeks now dropped to 120 not too concerned
Topography52_-
in
ITP Support Association
7 years ago
13 yr old soccer girl w/ITP
Had
IVIG
. Yesterday had more blood test and they are even lower. She's began bruising again and Tonight she has the red dots looks like a rash all over her torso and is itching. Benadryl? Or do I call the doc?
Had
IVIG
. Yesterday had more blood test and they are even lower. She's began bruising again and Tonight she has the red dots looks like a rash all over her torso and is itching. Benadryl? Or do I call the doc?
Stayinyurlane
in
ITP Support Association
7 years ago
Ibrutinib and Medicare
I am starting
IVIG
in June. I don't want to start treatment with Ibrutinib. I've so much about the cost of Ibrutinib as well as the side effects. I checked in my area of NJ with Medicare,the out of pocket cost for Ibrutinib is over $700 a month.
I am starting
IVIG
in June. I don't want to start treatment with Ibrutinib. I've so much about the cost of Ibrutinib as well as the side effects. I checked in my area of NJ with Medicare,the out of pocket cost for Ibrutinib is over $700 a month.
ReneeSusan
in
CLL America Support
7 years ago
Ivig ..... Bone marrow biopsy
Well I had my
ivig
as luck would have it I had a reaction ( HCA mentioned it was rare ) and not a good one on Thursday 2 weeks after my
ivig
came down with a rash over my face which is visible and all under my skin no doubt the rash will appear visable soon over my body I have been to local my health
Well I had my
ivig
as luck would have it I had a reaction ( HCA mentioned it was rare ) and not a good one on Thursday 2 weeks after my
ivig
came down with a rash over my face which is visible and all under my skin no doubt the rash will appear visable soon over my body I have been to local my health
Topography52_-
in
ITP Support Association
7 years ago
Does Flu and Colds makes the platelet count drops to low level?
My child was confined 2 weeks ago and he received
IvIg
for 1 day and Solumedrol 870mg for 3 days and no medication at home.....after a week his platelet went up to 359k and after a week again his platelet went low to 29.6k without any petechiae, hematoma and bleeding. ( my son is a bleeder his bleeding
My child was confined 2 weeks ago and he received
IvIg
for 1 day and Solumedrol 870mg for 3 days and no medication at home.....after a week his platelet went up to 359k and after a week again his platelet went low to 29.6k without any petechiae, hematoma and bleeding. ( my son is a bleeder his bleeding
DavieSimon
in
ITP Support Association
7 years ago
Why does the argc clinic have such a high success rate for ivf
Is it because they offer
ivig
? Is there anything else that's additional that they offer?
Is it because they offer
ivig
? Is there anything else that's additional that they offer?
Bumbo
in
Fertility Network UK
7 years ago
But You Don't Look Sick
Got my
IVIG
treatment last week so immune system is topped off . Have my Clorox wipes and masks and gloves and antibiotics ready to go. Now just have to remember to be careful of what I eat and drink, as my tummy is very prone to upset over the least little thing.
Got my
IVIG
treatment last week so immune system is topped off . Have my Clorox wipes and masks and gloves and antibiotics ready to go. Now just have to remember to be careful of what I eat and drink, as my tummy is very prone to upset over the least little thing.
BeckyLUSA
in
CLL Support
7 years ago
Skin rash
After my 5th
IVIG
infusion (Feb 1, 2017), I developed a skin rash that started on my torso and has gone all over my body. It's been 2 months and hardly abated! Dermatologists put me on Prednisone for 3 weeks, and I've been using two different kinds of steroid creams.
After my 5th
IVIG
infusion (Feb 1, 2017), I developed a skin rash that started on my torso and has gone all over my body. It's been 2 months and hardly abated! Dermatologists put me on Prednisone for 3 weeks, and I've been using two different kinds of steroid creams.
CLLBill
in
CLL Support
7 years ago
ITP and joint pain
Ive had ITP since 2004, initially treated with steroids which has left me with insomnia, apart from some
iVig
before Christmas, as my levels normally stay above 30000 (30000 - 80000) we now just monitor rather than have any treatments.
Ive had ITP since 2004, initially treated with steroids which has left me with insomnia, apart from some
iVig
before Christmas, as my levels normally stay above 30000 (30000 - 80000) we now just monitor rather than have any treatments.
catowen
in
ITP Support Association
7 years ago
IVIG
My questions are how well does
IVIG
work for others and does changing brands ever improve effectiveness? John
My questions are how well does
IVIG
work for others and does changing brands ever improve effectiveness? John
johnl
in
CLL Support
7 years ago
Chronic ITP
They've started treatment with
IVIG
, Prednisone , Dexamethasone, when rho, Cell Cept, Promacta, Rituximab, Prostate . She had good response to dex and rituximab the first time then stopped responding. Her platelets are always under 10,000 the most is 4 or 6.
They've started treatment with
IVIG
, Prednisone , Dexamethasone, when rho, Cell Cept, Promacta, Rituximab, Prostate . She had good response to dex and rituximab the first time then stopped responding. Her platelets are always under 10,000 the most is 4 or 6.
Kifah90
in
ITP Support Association
7 years ago
Fighting the unknown
I will start a regiment of
ivig
and chemo alternating. Any advice?
I will start a regiment of
ivig
and chemo alternating. Any advice?
jeepnkaren
in
CLL Support
7 years ago
CLL Treatment - Give your body a rest?
Which then may lead to
IVIG
Infusions. Chest infections - nebuliser treatment. Nasal problems. Antibiotic & Antiviral Courses. AND Now I have an appointment with an Endocrinologist - for extreme backache due to Cushing Disease caused by the drug I take for my diarrhoea.
Which then may lead to
IVIG
Infusions. Chest infections - nebuliser treatment. Nasal problems. Antibiotic & Antiviral Courses. AND Now I have an appointment with an Endocrinologist - for extreme backache due to Cushing Disease caused by the drug I take for my diarrhoea.
MartyR
in
CLL Support
7 years ago
Vasculitis
My neurologist had me on other medications including CellCept & Methetrexate and then a year into my treatment my Immunologist introduced ' Cyclophosphamide ' and monthly infusions
IVIG
which replaced the above. Prednisone remains.
My neurologist had me on other medications including CellCept & Methetrexate and then a year into my treatment my Immunologist introduced ' Cyclophosphamide ' and monthly infusions
IVIG
which replaced the above. Prednisone remains.
Vrainbird
in
Vasculitis UK
7 years ago
Newly Diagnosed
Hi there Ive just been diagnosed with ITP rushed to hospital last week with a count of 4 wow what a week its bee had an infusion last weekend if
IVIG
my levels are now up to 300 & Ive had every test known to man Im still (a bit nervously) waiting for my bone marrow biopsy test results - although one
Hi there Ive just been diagnosed with ITP rushed to hospital last week with a count of 4 wow what a week its bee had an infusion last weekend if
IVIG
my levels are now up to 300 & Ive had every test known to man Im still (a bit nervously) waiting for my bone marrow biopsy test results - although one
eveplate
in
ITP Support Association
7 years ago
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