Search
Search
About
Log in
Join
Experiences with
Interstitial lung disease (ILD)
Posts
Communities
45,250 public posts
Filter results
Mum has lung cancer stage 4 BRAF Tumour
Hello Everyone My 84 year old Mum has just had a diagnosis of Lung Cancer Stage 4. It’s a BRAF tumour which is quite unusual. She has until now been fit and healthy walking and swimming regularly and has had only problems with her Thyroid. She has been told her prognosis is 3-6 months with treatment
Hello Everyone My 84 year old Mum has just had a diagnosis of Lung Cancer Stage 4. It’s a BRAF tumour which is quite unusual. She has until now been fit and healthy walking and swimming regularly and has had only problems with her Thyroid. She has been told her prognosis is 3-6 months with treatment
Beetro84
in
The Roy Castle Lung Cancer Foundation
9 months ago
International Lung Cancer Livingroom 1400 GMT. 16th November.
Save the date- the Roy Castle Foundation and Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Copy and pasted) -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov
Save the date- the Roy Castle Foundation and Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Copy and pasted) -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov
Denzie
in
The Roy Castle Lung Cancer Foundation
9 months ago
Special time for an International Lung Cancer Livingroom. Accessible to many countries. November 16 at 12:00 eastern.
Save the date- Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Coped and pasted from email). -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov. 16* during Lung
Save the date- Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Coped and pasted from email). -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov. 16* during Lung
Denzie
Volunteer
in
Lung Cancer Support
9 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
immunotherapy damaging kidneys
hi My mother has been having successful treatment for stage 3 lung cancer, but the immunotherapy has negatively affected her kidneys, so she is having steroids and they have said they cannot continue to offer the immunotherapy. We are awaiting a scan appointment & they may then discuss radiotherapy,
hi My mother has been having successful treatment for stage 3 lung cancer, but the immunotherapy has negatively affected her kidneys, so she is having steroids and they have said they cannot continue to offer the immunotherapy. We are awaiting a scan appointment & they may then discuss radiotherapy,
SharonTan
in
The Roy Castle Lung Cancer Foundation
9 months ago
Just diagnosed scleroderma/myositis - any help or guidance appreciated
I have just been diagnosed with overlap autoimmune
disease
- systemic sclerosis/myositis - symptoms include raynauds,
interstitial
lung
disease
, (ILD), thickened fingers with pain and stiffness, achy thighs and upper arms.
I have just been diagnosed with overlap autoimmune
disease
- systemic sclerosis/myositis - symptoms include raynauds,
interstitial
lung
disease
, (ILD), thickened fingers with pain and stiffness, achy thighs and upper arms.
ruablue
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Please Join Us! Tuesday November 14th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, November 14th, at 5pm PT/8pm ET.
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, November 14th, at 5pm PT/8pm ET.
Michelezeh
Partner
in
Lung Cancer Support
9 months ago
ILD and pulmonary hypertension caused by sjogrens
sjogrens and
lung
disease
. I have alveolitis, asthma and now
interstitial
lung
disease
(ILD). My doc has now diagnosed pulmonary hypertension. My doc can find no cause for this. They did a bronchoscopy and my lungs were so inflamed they couldn’t take a sample for fear my lung would collapse.
sjogrens and
lung
disease
. I have alveolitis, asthma and now
interstitial
lung
disease
(ILD). My doc has now diagnosed pulmonary hypertension. My doc can find no cause for this. They did a bronchoscopy and my lungs were so inflamed they couldn’t take a sample for fear my lung would collapse.
Xxxxxxx
in
The Australian Sjögren's Syndrome Association
1 year ago
IPF or idiopathic ILD?
So I was diagnosed with
Interstitial
Lung
Disease
in Spring 2019. The cause however has never been found even though there were a couple of hypotheses kicking around for a while - allergy to vape or aspiration of stomach acid.
So I was diagnosed with
Interstitial
Lung
Disease
in Spring 2019. The cause however has never been found even though there were a couple of hypotheses kicking around for a while - allergy to vape or aspiration of stomach acid.
Oteneko
in
Lung Conditions Community Forum
1 year ago
Nintedanib
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Bonchops10
in
Living with Interstitial Lung Disease (ILD)
10 months ago
Waiting game
Hi everyone, I don't have the flu jab, mainly because I have so much pain in my arm and it makes me feel so unwell, doctor not happy as I have severe COPD, not had the jab for last 3 years, touch wood do not suffer from colds flu etc. No covid follow ups either. Call me stupid, but we all do what is
Hi everyone, I don't have the flu jab, mainly because I have so much pain in my arm and it makes me feel so unwell, doctor not happy as I have severe COPD, not had the jab for last 3 years, touch wood do not suffer from colds flu etc. No covid follow ups either. Call me stupid, but we all do what is
purdeyspringer
in
Lung Conditions Community Forum
10 months ago
just advice support
I don’t really know what I want from this post only that it’s nearly 2am and I feel completely broken and wanted to put it down somewhere. I feel like I am breaking and I don’t want to upset anyone else with my worries, because they are worrying to and I don’t want sympathy from people I love because
I don’t really know what I want from this post only that it’s nearly 2am and I feel completely broken and wanted to put it down somewhere. I feel like I am breaking and I don’t want to upset anyone else with my worries, because they are worrying to and I don’t want sympathy from people I love because
Helpplease_
in
ICUsteps
10 months ago
Lung Cancer Treatment
Have been diagnosed with lung cancer again (but now on the right), 6 years later, but this time they think caused by the radiotherapy I had for the breast cancer! Inoperable (have COPD), so I had the option of 'doing nothing' and was informed today may have 5 months left or agree to treatment, which
Have been diagnosed with lung cancer again (but now on the right), 6 years later, but this time they think caused by the radiotherapy I had for the breast cancer! Inoperable (have COPD), so I had the option of 'doing nothing' and was informed today may have 5 months left or agree to treatment, which
younginmind
in
Lung Conditions Community Forum
10 months ago
Lung Cancer Treatment
Have been diagnosed with lung cancer again (but now on the right), 6 years later, but this time they think caused by the radiotherapy I had for the breast cancer! Inoperable (have COPD), so I had the option of 'doing nothing' and was informed today may have 5 months left or agree to treatment, which
Have been diagnosed with lung cancer again (but now on the right), 6 years later, but this time they think caused by the radiotherapy I had for the breast cancer! Inoperable (have COPD), so I had the option of 'doing nothing' and was informed today may have 5 months left or agree to treatment, which
younginmind
in
Lung Cancer Support
10 months ago
Care oncology
Hi I have stage 4 lung cancer and today have just found out that they are going to stop my immunotherapy as I have had to many side effects anyway my choices are to go back on chemo for a bit or I might be able to go a clinical trial. I've heard and read up a bit care oncology has anyone on here had
Hi I have stage 4 lung cancer and today have just found out that they are going to stop my immunotherapy as I have had to many side effects anyway my choices are to go back on chemo for a bit or I might be able to go a clinical trial. I've heard and read up a bit care oncology has anyone on here had
Leni22
in
The Roy Castle Lung Cancer Foundation
10 months ago
Severe heartburn after lobectomy
Hello,2/14/23 I had a lower rt lung lobectomy. Since that time I have horrific heartburn. Not just a little but debilitating. Has anyone else experienced this? I have had an endoscopy done and the dr reports that he can see no reason for my symptoms. I am now being referred to other Dr's one being a
Hello,2/14/23 I had a lower rt lung lobectomy. Since that time I have horrific heartburn. Not just a little but debilitating. Has anyone else experienced this? I have had an endoscopy done and the dr reports that he can see no reason for my symptoms. I am now being referred to other Dr's one being a
MeLyndi
in
The Roy Castle Lung Cancer Foundation
10 months ago
Questions
Anyone on here lived a long life after heart surgery lung surgery?
Anyone on here lived a long life after heart surgery lung surgery?
Chaseree
in
British Heart Foundation
10 months ago
Pain after lung surgery
I was diagnosed with a lung cancer in my lower left lung late January 2023,I had a surgery to remove it on 10th February 2023 .it started off keyhole but I had a bad bleed do they ended up doing open ,all went well and I was told all cancer was removed and there was no spread, all went well with recovery
I was diagnosed with a lung cancer in my lower left lung late January 2023,I had a surgery to remove it on 10th February 2023 .it started off keyhole but I had a bad bleed do they ended up doing open ,all went well and I was told all cancer was removed and there was no spread, all went well with recovery
Cakebaker2
in
The Roy Castle Lung Cancer Foundation
10 months ago
Post Surgery Query
Hi there, I had a lap, hysteroscopy and curettage 3 days ago. Unattached ovary from back of uterus and removed the scar tissue from it, excision of 3 points of endo on other ovary, slight ablation of endo on bladder and removed a big piece of tissue from top to bottom of uterus. Reading everything
Hi there, I had a lap, hysteroscopy and curettage 3 days ago. Unattached ovary from back of uterus and removed the scar tissue from it, excision of 3 points of endo on other ovary, slight ablation of endo on bladder and removed a big piece of tissue from top to bottom of uterus. Reading everything
Oneday_
in
Endometriosis UK
10 hours ago
Circulating Lipid Profiles Associated With Resistance to Androgen Deprivation Therapy in Localized Prostate Cancer
Circulating Lipid Profiles Associated With Resistance to Androgen Deprivation Therapy in Localized Prostate Cancer Authors: Hui-Ming Lin, PhD https://orcid.org/0000-0003-4892-6008, Xiaoyu Yang, MS https://orcid.org/0009-0001-0035-9289, Margaret M. Centenera, PhD https://orcid.org/0000-0002-2206-0632
Circulating Lipid Profiles Associated With Resistance to Androgen Deprivation Therapy in Localized Prostate Cancer Authors: Hui-Ming Lin, PhD https://orcid.org/0000-0003-4892-6008, Xiaoyu Yang, MS https://orcid.org/0009-0001-0035-9289, Margaret M. Centenera, PhD https://orcid.org/0000-0002-2206-0632
podsart
in
Advanced Prostate Cancer
13 hours ago
At what PSA will a PSMA PET scan be useful?
Hi everyone My father has been on Lupron for 3 years now. We stopped Abi last year due to rising blood sugar levels. His PSA used to hover between 0.6-0.8 (with an occasional spike to 1.2). PSA in May 24 was 0.6. Today, however, his PSA came back as 2.5. Plan is to restart Abi and monitor. But I wanted
Hi everyone My father has been on Lupron for 3 years now. We stopped Abi last year due to rising blood sugar levels. His PSA used to hover between 0.6-0.8 (with an occasional spike to 1.2). PSA in May 24 was 0.6. Today, however, his PSA came back as 2.5. Plan is to restart Abi and monitor. But I wanted
Rodeoz15
in
Advanced Prostate Cancer
14 hours ago
1
...
4
5
6
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5701 results
British Liver Trust
4539 results
Advanced Prostate Cancer
4482 results
View top 10 communities
Sort by
Most Relevant
Newest