Hi everybody. I have had PV for nearly 4 years and been on HU for 18 months. My bloods are under control. I take 500 mgs HU Monday to Friday and have no problems with it. BUT, my problem is that I have repeated infections of cystitis (which is not too bad) but cellulitis on the side of my leg, which is painful and frightening when at its height. It varies between the left or right leg. I have tried various antibiotics. Flucloxicillin is the most effective but gives me awful diarrhoea. My last episode of cellulitis was over the Easter weekend, so I called the out of hours GP on Easter Sunday and he gave me a prescription of low dose Fluclox and another plain penicillin. I am on my final day of the course today and the infection is almost clear. But yesterday, I was with my GP to make sure that the cystitis which started before the cellulitis a couple of weeks ago, had cleared. - It had.
This post is a real ramble and I apologise, but I just wanted to give the picture of these repeated infections and ask if anyone else has the same. It is almost certainly the hydroxycarbamide that is reducing my resistance to infection. I have asked the haemo and my GP if they see any solution to this and there seems to be no answer other than to eat well.
Can anyone tell me if they have a similar problem with infections like this.. If so, do you have any ideas about controlling them? If it is HU that is the culprit here, should I be asking my haemo about one of the other drugs. Is Interferon better? My haemo is lovely and very knowledgeable and will probably say the my present drug is achieving the required results. But I get very fed up, and my poor GP must want to run when she sees me coming through the door YET AGAIN! I have to say that some days, when the cellulitis is really bad and is slow to respond to the antibiotics, I fear that I will end up in hospital having antibiotics intravenously. That hasn't happened, and I know that these issues of mine are minuscule compared to some of the issues that many of you have. But any experience or advice would be so appreciated. Thanks