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7 weeks on Low Dose Naltrexone (LDN)
Other interactions include alcohol, narcotic medications (Ultram, Morphine, Percocet, Tramadol, Duragesic Patch or Codeine), steroids, and
interferon
(Beta Seron, Avonex or Rebif). “LDN should probably not be taken during pregnancy.
Other interactions include alcohol, narcotic medications (Ultram, Morphine, Percocet, Tramadol, Duragesic Patch or Codeine), steroids, and
interferon
(Beta Seron, Avonex or Rebif). “LDN should probably not be taken during pregnancy.
libraryannie
in
Restless Legs Syndrome
6 years ago
Change of diagnosis, previously ET - Now Post ET Myleofibrosis JAK2 Negative, CAL R positive
I also would like to know whether I should start with
Interferon
Alpha or Hydroxycarbamide. I would welcome any support, guidance and advice in my next chapter of my MPN journey. Wishing wellness to all Paul
I also would like to know whether I should start with
Interferon
Alpha or Hydroxycarbamide. I would welcome any support, guidance and advice in my next chapter of my MPN journey. Wishing wellness to all Paul
SP-2008
in
MPN Voice
6 years ago
Platelets still not reducing
I have now been on peg
interferon
for 4 months or so. First two weeks on 45 dose then 90 for two weeks and 180 every week since. Unfortunately nothing has changed apart from me being a bit more angry and a bit more down.
I have now been on peg
interferon
for 4 months or so. First two weeks on 45 dose then 90 for two weeks and 180 every week since. Unfortunately nothing has changed apart from me being a bit more angry and a bit more down.
Joerp
in
MPN Voice
6 years ago
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Showers and itching
Hydro,
Interferon
, Itch whe I have COLD showers...
Hydro,
Interferon
, Itch whe I have COLD showers...
shiftzz
in
MPN Voice
6 years ago
Grapefruit Juice and Interferon
Interferon
; grapefruit juice
Interferon
; grapefruit juice
AnitaJ
in
MPN Voice
6 years ago
Disposal of unused Pegasys Interferon
I live in the US, and am discouraged at the wastefulness that the manufacturers of Pegasys
Interferon
have shown. Each vial holds 180micrograms of medication. Without insurance, this would cost between $1100 and $1400 PER WEEK!!!
I live in the US, and am discouraged at the wastefulness that the manufacturers of Pegasys
Interferon
have shown. Each vial holds 180micrograms of medication. Without insurance, this would cost between $1100 and $1400 PER WEEK!!!
clevemic
in
MPN Voice
6 years ago
it has come to my attention
I changed once to
interferon
beta 1a (Rebif) but it hurt too much so I went back to 1b, Betaseron, but I did not stop. Disease Modifying Therapy (DMT) will not cure me but it will at least slow ms down a little.
I changed once to
interferon
beta 1a (Rebif) but it hurt too much so I went back to 1b, Betaseron, but I did not stop. Disease Modifying Therapy (DMT) will not cure me but it will at least slow ms down a little.
RoyceNewton
in
My MSAA Community
6 years ago
Pegasus interferon and chronic sore throat
Could this be related to taking
interferon
for PV? Has anyone else suffered? Perhaps I should be talking to my haematologist? Any advice much appreciated :) x
Could this be related to taking
interferon
for PV? Has anyone else suffered? Perhaps I should be talking to my haematologist? Any advice much appreciated :) x
hansyhand
in
MPN Voice
6 years ago
TAMARIN STUDY now open across the UK in 13 hospitals
Ruxolitinib and other treatments, such as
interferon
and Hydroxycarbamide, have helped people with MPNs, but some are unable to tolerate the side effects of these treatments, so researchers are looking for new treatment options.
Ruxolitinib and other treatments, such as
interferon
and Hydroxycarbamide, have helped people with MPNs, but some are unable to tolerate the side effects of these treatments, so researchers are looking for new treatment options.
Mazcd
MPNVoice
in
MPN Voice
6 years ago
None A none B and all of a sudden theirs C
My brilliant Consultant and special nurses got me through the trauma of being diagnosed and having to inject myself with
interferon
injections. I was advised by my medical care staff to claim compensation against the Shipton claim scheme as the NHS were aware of the problem but it was kept quiet.
My brilliant Consultant and special nurses got me through the trauma of being diagnosed and having to inject myself with
interferon
injections. I was advised by my medical care staff to claim compensation against the Shipton claim scheme as the NHS were aware of the problem but it was kept quiet.
stevita
in
Hepatitis C Trust
6 years ago
Worst 48 hours ever
I've been on and exhausted hydrea,anagralide,
interferon
,pegasys and now this trial, does any one know whats left to try if this don't work. Don't mean to go on I'm in bed and awake for once and wanted to tell someone.
I've been on and exhausted hydrea,anagralide,
interferon
,pegasys and now this trial, does any one know whats left to try if this don't work. Don't mean to go on I'm in bed and awake for once and wanted to tell someone.
Rastavapa
in
MPN Voice
6 years ago
Keeping Interferon cool whilst travelling
Hi all Just wondering if anyone has any tips for travelling with
Interferon
? I’m travelling to Portugal in a couple of weeks and will need to take 5 syringes - total travel time around 7 hours taking into account airport and transfer time. I was going to buy a small cool bag for hand luggage.
Hi all Just wondering if anyone has any tips for travelling with
Interferon
? I’m travelling to Portugal in a couple of weeks and will need to take 5 syringes - total travel time around 7 hours taking into account airport and transfer time. I was going to buy a small cool bag for hand luggage.
PT99
in
MPN Voice
6 years ago
Useful read for MF patients on or considering Interferon/Pegasys
Lengthy piece of research and I need to try to understand certain aspects better. It discusses impact of Inf on high risk mutations plus impact of multiple mutations re progression to AML. Of interest to Steve, INF reduces high risk mutations such as ASLX1 to same level as other non Driver mutations
Lengthy piece of research and I need to try to understand certain aspects better. It discusses impact of Inf on high risk mutations plus impact of multiple mutations re progression to AML. Of interest to Steve, INF reduces high risk mutations such as ASLX1 to same level as other non Driver mutations
Paul123456
in
MPN Voice
6 years ago
I've had ra for 26 years, now rheumy wants be to take biologic and antiviral very worried,looking for alternatives?
Hello,I haven't posted before, I have been reading everybodys posts , I was diagnosed with RA in 1994,resisted dmards ,but eventually took sulphasalazine which worked brilliantly, then in 2003 had to undergo treatment for hepatitis,with
interferon
, contraindicated when you have RA, so managed with Brufen
Hello,I haven't posted before, I have been reading everybodys posts , I was diagnosed with RA in 1994,resisted dmards ,but eventually took sulphasalazine which worked brilliantly, then in 2003 had to undergo treatment for hepatitis,with
interferon
, contraindicated when you have RA, so managed with Brufen
chavaudret
in
NRAS
6 years ago
A game changer for Aussies with MPN
Pegasys (pegylated
interferon
Alfa 2a) will be on the PBS from 1 August 2018. The Minister for Health, Greg Hunt, will make an announcement later this morning. Watch the news tonight, and see the article below on page 27 of the Melbourne Herald Sun today.”
Pegasys (pegylated
interferon
Alfa 2a) will be on the PBS from 1 August 2018. The Minister for Health, Greg Hunt, will make an announcement later this morning. Watch the news tonight, and see the article below on page 27 of the Melbourne Herald Sun today.”
CommonDaisy
in
MPN Voice
6 years ago
Pegylated Interferon available in Australia?
Can someone let me know if pegysus (pegylated
interferon
) is available in Australia? I’ve been finding conflicting information online.
Can someone let me know if pegysus (pegylated
interferon
) is available in Australia? I’ve been finding conflicting information online.
CommonDaisy
in
MPN Voice
6 years ago
Useful update on Pegasys
Of interest to all of us using Interferons or considering their use. Bottom line is that a subset of users can get significant reduction in progression and remission. There are no obvious reasons why some people get such a good response and others don’t. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5421384
Of interest to all of us using Interferons or considering their use. Bottom line is that a subset of users can get significant reduction in progression and remission. There are no obvious reasons why some people get such a good response and others don’t. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5421384
Paul123456
in
MPN Voice
6 years ago
Hep B treatment
I am worried that if i do not try
interferon
I may miss out an oportunity to get off the virus... but this possibility is very low 6%... Has anybody here managed to get rid off the virus with interferons? Thank you
I am worried that if i do not try
interferon
I may miss out an oportunity to get off the virus... but this possibility is very low 6%... Has anybody here managed to get rid off the virus with interferons? Thank you
Hidden
in
Hepatitis B Trust
6 years ago
Problems with the sun/heat
I used to love the sun when I used to live in southern Italy it got to the forty's in the summer but since I changed years ago from hydrea to
interferon
then pegasys and now jakafi, I just seem to get really sick and have really bad headaches that last for days after being out say fishing or just going
I used to love the sun when I used to live in southern Italy it got to the forty's in the summer but since I changed years ago from hydrea to
interferon
then pegasys and now jakafi, I just seem to get really sick and have really bad headaches that last for days after being out say fishing or just going
Rastavapa
in
MPN Voice
6 years ago
Anybody pregnant and on Interferon
Hello, I am Valentina, diagnosed ET, currently 10 week pregnant and just started Iterferon alpha 2b (Intron A). I am a bit scared for my baby and the side effect first time were pretty rough. I could be very happy if there are some women who went or are going thru simmilar...
Hello, I am Valentina, diagnosed ET, currently 10 week pregnant and just started Iterferon alpha 2b (Intron A). I am a bit scared for my baby and the side effect first time were pretty rough. I could be very happy if there are some women who went or are going thru simmilar...
Rani36
in
MPN Voice
6 years ago
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