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Interferon alfa-2b
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4th jab booster turbo update.
Despite getting pinged when I had the 4th booster I had some very good news today after my regular blood test. My antibodies have now taken off! Also my platelets are now down below 400 for the first time since starting interferon. Win win
Despite getting pinged when I had the 4th booster I had some very good news today after my regular blood test. My antibodies have now taken off! Also my platelets are now down below 400 for the first time since starting interferon. Win win
Jonnymitts
in
MPN Voice
2 years ago
MPN and Covid vaxes
A popular question among us. This link I believe has two studies from 2021: This study may already be posted here, sorry if it's redundant. https://mpn-hub.com/medical-information/responses-to-mrna-sars-cov-2-vaccines-in-patients-with-mpn-findings-from-two-studies In the 1st study, with n=62: <<22.6%
A popular question among us. This link I believe has two studies from 2021: This study may already be posted here, sorry if it's redundant. https://mpn-hub.com/medical-information/responses-to-mrna-sars-cov-2-vaccines-in-patients-with-mpn-findings-from-two-studies In the 1st study, with n=62: <<22.6%
EPguy
in
MPN Voice
2 years ago
SIDE EFFECTS OF ANAGRELIDE
Update from previous post. Saw Haematologist yesterday, unable to have Interferon, only option open to me is Anagrelide. What are your experiences of this medication please. I'm ET JAk2, take Aspirin, 15 mg Prednisone and co codamol or similar pain relief for spinal stenosis. At present take Ruxolitinib
Update from previous post. Saw Haematologist yesterday, unable to have Interferon, only option open to me is Anagrelide. What are your experiences of this medication please. I'm ET JAk2, take Aspirin, 15 mg Prednisone and co codamol or similar pain relief for spinal stenosis. At present take Ruxolitinib
Heather270240
in
MPN Voice
2 years ago
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Interferon beta 1b
Hola alguien sabe quién me podrá ayudar a conseguir tratamiento para esclerosis múltiple interferon beta 1b soy de México y nuestro seguro tiene más de 6 meses sin otorgarlo
Hola alguien sabe quién me podrá ayudar a conseguir tratamiento para esclerosis múltiple interferon beta 1b soy de México y nuestro seguro tiene más de 6 meses sin otorgarlo
Jesusensenadamexico
in
My MSAA Community
2 years ago
Side effects of Anagrelide
A few weeks ago I posted a msg regarding side effects of Interferon and several of you very kindly replied. However today I saw my Haematologist who told me that for health reasons I could not have this medication and said the only option open to me is Anagrelide. I can't say I'm happy with this option
A few weeks ago I posted a msg regarding side effects of Interferon and several of you very kindly replied. However today I saw my Haematologist who told me that for health reasons I could not have this medication and said the only option open to me is Anagrelide. I can't say I'm happy with this option
Heather270240
in
Fight MPN
2 years ago
Two studies on INF vs Fibrosis, cellularity
A few 2017 studies I came across, likely some members have seen and posted before, here are some notes. Mostly more vagueness, but covers some of the marrow discussions we’ve recently had. -Items of note: -CMR was correlated to reduced cellularity while PMR may not be. -BM-CR or -PR helped prevent
A few 2017 studies I came across, likely some members have seen and posted before, here are some notes. Mostly more vagueness, but covers some of the marrow discussions we’ve recently had. -Items of note: -CMR was correlated to reduced cellularity while PMR may not be. -BM-CR or -PR helped prevent
EPguy
in
MPN Voice
2 years ago
Probiotics for Parkinson's disease: Current evidence and future directions 2020
So... I'm taking lactobacillus casei Shirota, which is both the probiotic used in the PD study that showed it helped with bowel movements and is also anti-inflammatory, anti-bacterial, anti-viral, and anti-fungal. It has been shown to reduce the EBV titers in your system too. If you think PD is autoimmune
So... I'm taking lactobacillus casei Shirota, which is both the probiotic used in the PD study that showed it helped with bowel movements and is also anti-inflammatory, anti-bacterial, anti-viral, and anti-fungal. It has been shown to reduce the EBV titers in your system too. If you think PD is autoimmune
Bolt_Upright
in
Cure Parkinson's
2 years ago
Side effects of Interferon
Eight months ago I started taking Ruxolitinib. Prior to that I was taking HU which made me quite ill. However Ruxolitinib is not working and rather than my platelets lowering they have gone up, were 600 now 987 and sometimes higher, also I have developed a serious skin cancer on my neck and leg. I
Eight months ago I started taking Ruxolitinib. Prior to that I was taking HU which made me quite ill. However Ruxolitinib is not working and rather than my platelets lowering they have gone up, were 600 now 987 and sometimes higher, also I have developed a serious skin cancer on my neck and leg. I
Heather270240
in
MPN Voice
2 years ago
4th jab update.
I managed to crack the enigma code and was able to book a 4th jab at a local walk in centre on Sunday 9th so I didn’t have to go down the head banging route of trying to explain to my GP why I needed a 4th jab. I thought it would be a good idea to go early and avoid the rush. I was the second person
I managed to crack the enigma code and was able to book a 4th jab at a local walk in centre on Sunday 9th so I didn’t have to go down the head banging route of trying to explain to my GP why I needed a 4th jab. I thought it would be a good idea to go early and avoid the rush. I was the second person
Jonnymitts
in
MPN Voice
2 years ago
Starting Peg and Covid boosters
ET MPL here. Probably starting Pegasys shortly. Seeing Haematologist tomorrow. Should I be pushing for a 4th Covid jab. Had 3rd one in September. Also does interferon make you more prone to infection? Thanks
ET MPL here. Probably starting Pegasys shortly. Seeing Haematologist tomorrow. Should I be pushing for a 4th Covid jab. Had 3rd one in September. Also does interferon make you more prone to infection? Thanks
Sprat19
in
MPN Voice
2 years ago
Numbing cream ?
Hi everyone, Happy New Year to you all. My husband has to give me my interferon injection as I am a bit of a wimp to do it myself :-( ( which I could)sometimes it doesn’t hurt, but other times like just now it does, never sure how much to pinch the skin or not. Has anyone used a numbing cream?
Hi everyone, Happy New Year to you all. My husband has to give me my interferon injection as I am a bit of a wimp to do it myself :-( ( which I could)sometimes it doesn’t hurt, but other times like just now it does, never sure how much to pinch the skin or not. Has anyone used a numbing cream?
Yvette49
in
MPN Voice
2 years ago
Besremi approved. Not what?
Updated: 1/27/2022: Tomorrow is the day I start Besremi. I was dx with PV 4/15 (tax day in US) in 2015. Since then I've only had phlebotomies and taken aspirin. I've had no issues or challenges other than low ferritin which I believe contributed to my fatigue. I immediately upon dx began educating
Updated: 1/27/2022: Tomorrow is the day I start Besremi. I was dx with PV 4/15 (tax day in US) in 2015. Since then I've only had phlebotomies and taken aspirin. I've had no issues or challenges other than low ferritin which I believe contributed to my fatigue. I immediately upon dx began educating
Elizka
in
MPN Voice
2 years ago
Myelofibrosis diagnosis
Hi, I'm the wife of someone who has just been diagnosed with myelofibrosis , his haematologist said its at stage 2 of 4. He will be starting Pegasys interferon on Monday at a starting dose of 45 micrograms. I've joined this forum to get as much information as possible to help us know what to expect from
Hi, I'm the wife of someone who has just been diagnosed with myelofibrosis , his haematologist said its at stage 2 of 4. He will be starting Pegasys interferon on Monday at a starting dose of 45 micrograms. I've joined this forum to get as much information as possible to help us know what to expect from
Mrswhyte2019
in
MPN Voice
2 years ago
Update 6.0
On the whole, news is quite good. Ongoing recovery from the brain surgery, resection of tumor in June 2019, is going well. The MRI on 12/15 looks really good. There is no sign of tumor recurrence. The visual symptoms post-surgery (acephalgic visual migraines/palinopsia) have been subsiding in frequency
On the whole, news is quite good. Ongoing recovery from the brain surgery, resection of tumor in June 2019, is going well. The MRI on 12/15 looks really good. There is no sign of tumor recurrence. The visual symptoms post-surgery (acephalgic visual migraines/palinopsia) have been subsiding in frequency
hunter5582
in
MPN Voice
2 years ago
How does Besremi work?
I read all the material on their website, but I'm still not sure how Besremi impacts the bone marrow in PV. Normally interferon suppress your immune system, right? Does it reduce the allele burden?
I read all the material on their website, but I'm still not sure how Besremi impacts the bone marrow in PV. Normally interferon suppress your immune system, right? Does it reduce the allele burden?
Elizka
in
MPN Voice
2 years ago
Extreme reactions to vaccines
Hello everyone, I’ve just received my flu and pneumonia vaccine and have experienced really nasty side effects. These start roughly 12 hours after the injection, feeling really unwell as well as chills and fever. I’m now almost 48hrs post vaccine and I’m still not right with my temperature spiking above
Hello everyone, I’ve just received my flu and pneumonia vaccine and have experienced really nasty side effects. These start roughly 12 hours after the injection, feeling really unwell as well as chills and fever. I’m now almost 48hrs post vaccine and I’m still not right with my temperature spiking above
JojoWonder
in
MPN Voice
2 years ago
Do I start Interferon?
Hi everyone I have always been under a certain amount of pressure to start meds for ET cMPL but have resisted up to now. I have had two high platelet counts in the last three years and my average count over the three years not including the spikes has been 590, I actually swing between 530 and 650.
Hi everyone I have always been under a certain amount of pressure to start meds for ET cMPL but have resisted up to now. I have had two high platelet counts in the last three years and my average count over the three years not including the spikes has been 590, I actually swing between 530 and 650.
Quercus53
in
MPN Voice
2 years ago
Outcomes with Interferon in Polycythemia Vera: A Systematic Review and Meta-Analysis
Conclusion Interferon shows promising results when used for the treatment of polycythemia vera with a durable hematologic and molecular response and has an acceptable side effects profile. However, large randomized clinical trials are needed to confirm these findings and to explore the dose and combination
Conclusion Interferon shows promising results when used for the treatment of polycythemia vera with a durable hematologic and molecular response and has an acceptable side effects profile. However, large randomized clinical trials are needed to confirm these findings and to explore the dose and combination
Manouche
in
MPN Voice
2 years ago
FDA Approves Ropeginterferon Alfa-2b-njft for Polycythemia Vera
Ropeginterferon
alfa
-
2b
is a novel, long-acting, mono-pegylated proline
interferon
that was designed to have an optimized profile that would allow for improved pharmacokinetic properties.
Ropeginterferon
alfa
-
2b
is a novel, long-acting, mono-pegylated proline
interferon
that was designed to have an optimized profile that would allow for improved pharmacokinetic properties.
JT_Marlin
in
MPN Voice
3 years ago
Best time of day for meds??
Is there a best time of the day to take aspirin, HU or an interferon shot?? Just wondering if anyone has found a best time of the day for these, as to be most effective with our circadian body clock. I use to take my aspirin in the evening but I find first thing in the morning, upon waking seems to work
Is there a best time of the day to take aspirin, HU or an interferon shot?? Just wondering if anyone has found a best time of the day for these, as to be most effective with our circadian body clock. I use to take my aspirin in the evening but I find first thing in the morning, upon waking seems to work
MAP44
in
MPN Voice
3 years ago
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