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Interferon alfa-2b
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Interferon possible side effects
Hi all, just wondering if any one has had the experience of shortness of breath and mild intermittent chest pains when commencing interferon treatment? I am 4 weeks into treatment (after being on Hydroxy Urea for 15 years) experiencing considerable increase in fatigue shortness of breath amd have
Hi all, just wondering if any one has had the experience of shortness of breath and mild intermittent chest pains when commencing interferon treatment? I am 4 weeks into treatment (after being on Hydroxy Urea for 15 years) experiencing considerable increase in fatigue shortness of breath amd have
Stay05
in
MPN Voice
2 years ago
By 5 years, about 14% of patients have undetectable JAK2 mutations.
« Now with this interferon tolerance improved, your abilities improve, response is excellent, and there is a potential for more. I highlighted in my presentation a molecular response. Molecular response is where you are decreasing the JAK2allele burden. That's the percent of cells in a sample of the
« Now with this interferon tolerance improved, your abilities improve, response is excellent, and there is a potential for more. I highlighted in my presentation a molecular response. Molecular response is where you are decreasing the JAK2allele burden. That's the percent of cells in a sample of the
Manouche
in
MPN Voice
2 years ago
Haemolytic anaemia
Does anyone know anything about haemolytic anaemia? (It's the result of red blood cells not functioning properly). My situation is I've had ET for 6 years, hydroxy , then pegasys for the last 18 months, finally my platelets are nearly down to normal, but haemoglobin has been steadily falling, now at
Does anyone know anything about haemolytic anaemia? (It's the result of red blood cells not functioning properly). My situation is I've had ET for 6 years, hydroxy , then pegasys for the last 18 months, finally my platelets are nearly down to normal, but haemoglobin has been steadily falling, now at
Joetcalr
in
MPN Voice
2 years ago
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Recreational drugs
Does anyone use cannabis or other recreational drugs, who has PV and takes rivaroxyban and Pegasys interferon? I am curious, but think no point asking my doctor about this as they couldn't answer if it's safe or not.
Does anyone use cannabis or other recreational drugs, who has PV and takes rivaroxyban and Pegasys interferon? I am curious, but think no point asking my doctor about this as they couldn't answer if it's safe or not.
Dream23
in
MPN Voice
2 years ago
Interferon Travel Temps, Freezing Risk?
There have been discussions here of travel with INF. I recently used the ice pack that comes with Besremi in a lunch cooler for my Dr office visit. After that I placed it in my office fridge for the day. I realized a possible hazard to that: if the ice pack were below freezing temp, and the lunch
There have been discussions here of travel with INF. I recently used the ice pack that comes with Besremi in a lunch cooler for my Dr office visit. After that I placed it in my office fridge for the day. I realized a possible hazard to that: if the ice pack were below freezing temp, and the lunch
EPguy
in
MPN Voice
2 years ago
Update 6.3 - Good News
Besremi dose 3 was on March 2. Still at 100mcg, which seems to be the right dose. On March 1, HCT was back down to 42.3%. PLT stable at 406. LYMPH sill low but up a bit to 0.91. CMP numbers all look good, so kidney/liver function is fine. Iron Panel reflects iron levels coming back up. Von Willebrand
Besremi dose 3 was on March 2. Still at 100mcg, which seems to be the right dose. On March 1, HCT was back down to 42.3%. PLT stable at 406. LYMPH sill low but up a bit to 0.91. CMP numbers all look good, so kidney/liver function is fine. Iron Panel reflects iron levels coming back up. Von Willebrand
hunter5582
in
MPN Voice
2 years ago
Peg injections - two in one day
Hi all, I’m on peginterferon Alfa-2a for ET and a few weeks ago my dose was increased to 180mg. The hospital pharmacy deliver my medication and I can only assume they’ve ran out of 180mg syringes as I’ve been sent about 8 boxes of 90mg pre filled syringes meaning I’m expected to do 2 injections after
Hi all, I’m on peginterferon Alfa-2a for ET and a few weeks ago my dose was increased to 180mg. The hospital pharmacy deliver my medication and I can only assume they’ve ran out of 180mg syringes as I’ve been sent about 8 boxes of 90mg pre filled syringes meaning I’m expected to do 2 injections after
FashionLover
in
MPN Voice
2 years ago
Besremi check with RN
Hi, Today, I had a check-in with my HEM's RN because I've had two Besremi shots. While she was pleasant enough, several of her comments have continued to drag me down about taking Besremi, even having PV! Now, I'm one of two patients using Besremi in their office, but her comments such as: "let's
Hi, Today, I had a check-in with my HEM's RN because I've had two Besremi shots. While she was pleasant enough, several of her comments have continued to drag me down about taking Besremi, even having PV! Now, I'm one of two patients using Besremi in their office, but her comments such as: "let's
Elizka
in
MPN Voice
2 years ago
Stubborn platelets
At the start of treatment nearly 2 years ago my platelet count was 725, I was responding to hydroxy but struggling with side effects, the lowest they got 425, been on interferon for 9 months and last blood count was 623 . Just been on phone with haemo and she thinks the hydroxy would be better 😢. We
At the start of treatment nearly 2 years ago my platelet count was 725, I was responding to hydroxy but struggling with side effects, the lowest they got 425, been on interferon for 9 months and last blood count was 623 . Just been on phone with haemo and she thinks the hydroxy would be better 😢. We
ciye
in
MPN Voice
2 years ago
Paper on Misc Mutations
-- Another study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7465511/ <<Cytokines levels are higher in myelofibrosis compared to PV and ET, with higher IL-2, sIL-2Rα, IL-6 and tumour necrosis factor α (TNFa)>> NAC supplement improves IL-6, and TNFa in various studies. -- Triple Neg isn't: <<Previously
-- Another study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7465511/ <<Cytokines levels are higher in myelofibrosis compared to PV and ET, with higher IL-2, sIL-2Rα, IL-6 and tumour necrosis factor α (TNFa)>> NAC supplement improves IL-6, and TNFa in various studies. -- Triple Neg isn't: <<Previously
EPguy
in
MPN Voice
2 years ago
Pegasys: oxidation (dividing a dose into two)
Hi! Does anyone know if Pegasys remains stable and biologically active if you divide the contents of a single syringe into two doses (by drawing off half of it into a new empty syringe). The question is - does interferon stay stable despite contact with oxygen and remains usable within one week?
Hi! Does anyone know if Pegasys remains stable and biologically active if you divide the contents of a single syringe into two doses (by drawing off half of it into a new empty syringe). The question is - does interferon stay stable despite contact with oxygen and remains usable within one week?
Dovakin
in
MPN Voice
2 years ago
Dr Silver, interferon and possible combos
See reference to NAC and statins near the bottom https://journals.lww.com/hemasphere/fulltext/2021/12000/new_perspectives_of_interferon_alpha2_and.7.aspx
See reference to NAC and statins near the bottom https://journals.lww.com/hemasphere/fulltext/2021/12000/new_perspectives_of_interferon_alpha2_and.7.aspx
Paul123456
in
MPN Voice
2 years ago
What to Know About Polycythemia Vera and Treatment Options
« For those that have not had a chance to use interferons, this is a little different experience than those that just used interferon in the distant past. I’m mindful. I interacted with many oncologists that they have bad memories of using high-dose interferon for chronic myeloid leukemia or even for
« For those that have not had a chance to use interferons, this is a little different experience than those that just used interferon in the distant past. I’m mindful. I interacted with many oncologists that they have bad memories of using high-dose interferon for chronic myeloid leukemia or even for
Manouche
in
MPN Voice
2 years ago
4th jab booster turbo update.
Despite getting pinged when I had the 4th booster I had some very good news today after my regular blood test. My antibodies have now taken off! Also my platelets are now down below 400 for the first time since starting interferon. Win win
Despite getting pinged when I had the 4th booster I had some very good news today after my regular blood test. My antibodies have now taken off! Also my platelets are now down below 400 for the first time since starting interferon. Win win
Jonnymitts
in
MPN Voice
2 years ago
Interferon beta 1b
Hola alguien sabe quién me podrá ayudar a conseguir tratamiento para esclerosis múltiple interferon beta 1b soy de México y nuestro seguro tiene más de 6 meses sin otorgarlo
Hola alguien sabe quién me podrá ayudar a conseguir tratamiento para esclerosis múltiple interferon beta 1b soy de México y nuestro seguro tiene más de 6 meses sin otorgarlo
Jesusensenadamexico
in
My MSAA Community
2 years ago
MPN and Covid vaxes
A popular question among us. This link I believe has two studies from 2021: This study may already be posted here, sorry if it's redundant. https://mpn-hub.com/medical-information/responses-to-mrna-sars-cov-2-vaccines-in-patients-with-mpn-findings-from-two-studies In the 1st study, with n=62: <<22.6%
A popular question among us. This link I believe has two studies from 2021: This study may already be posted here, sorry if it's redundant. https://mpn-hub.com/medical-information/responses-to-mrna-sars-cov-2-vaccines-in-patients-with-mpn-findings-from-two-studies In the 1st study, with n=62: <<22.6%
EPguy
in
MPN Voice
2 years ago
SIDE EFFECTS OF ANAGRELIDE
Update from previous post. Saw Haematologist yesterday, unable to have Interferon, only option open to me is Anagrelide. What are your experiences of this medication please. I'm ET JAk2, take Aspirin, 15 mg Prednisone and co codamol or similar pain relief for spinal stenosis. At present take Ruxolitinib
Update from previous post. Saw Haematologist yesterday, unable to have Interferon, only option open to me is Anagrelide. What are your experiences of this medication please. I'm ET JAk2, take Aspirin, 15 mg Prednisone and co codamol or similar pain relief for spinal stenosis. At present take Ruxolitinib
Heather270240
in
MPN Voice
2 years ago
Side effects of Anagrelide
A few weeks ago I posted a msg regarding side effects of Interferon and several of you very kindly replied. However today I saw my Haematologist who told me that for health reasons I could not have this medication and said the only option open to me is Anagrelide. I can't say I'm happy with this option
A few weeks ago I posted a msg regarding side effects of Interferon and several of you very kindly replied. However today I saw my Haematologist who told me that for health reasons I could not have this medication and said the only option open to me is Anagrelide. I can't say I'm happy with this option
Heather270240
in
Fight MPN
2 years ago
Two studies on INF vs Fibrosis, cellularity
A few 2017 studies I came across, likely some members have seen and posted before, here are some notes. Mostly more vagueness, but covers some of the marrow discussions we’ve recently had. -Items of note: -CMR was correlated to reduced cellularity while PMR may not be. -BM-CR or -PR helped prevent
A few 2017 studies I came across, likely some members have seen and posted before, here are some notes. Mostly more vagueness, but covers some of the marrow discussions we’ve recently had. -Items of note: -CMR was correlated to reduced cellularity while PMR may not be. -BM-CR or -PR helped prevent
EPguy
in
MPN Voice
2 years ago
Probiotics for Parkinson's disease: Current evidence and future directions 2020
So... I'm taking lactobacillus casei Shirota, which is both the probiotic used in the PD study that showed it helped with bowel movements and is also anti-inflammatory, anti-bacterial, anti-viral, and anti-fungal. It has been shown to reduce the EBV titers in your system too. If you think PD is autoimmune
So... I'm taking lactobacillus casei Shirota, which is both the probiotic used in the PD study that showed it helped with bowel movements and is also anti-inflammatory, anti-bacterial, anti-viral, and anti-fungal. It has been shown to reduce the EBV titers in your system too. If you think PD is autoimmune
Bolt_Upright
in
Cure Parkinson's
2 years ago
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