Search
Search
About
Log in
Join
Experiences with
Indolar SR
Posts
Communities
1,987 public posts
Filter results
Zoladex & Fainting
I have severe endometriosis & adenomyosis, I am now on a waiting list for a full Hysterectomy but that wait is about 1 year yet. I have previously had the prostap injections & used to faint a bit when I had it. I forgot this and have stared having zoladex and have started having the dizziness & nearly
I have severe endometriosis & adenomyosis, I am now on a waiting list for a full Hysterectomy but that wait is about 1 year yet. I have previously had the prostap injections & used to faint a bit when I had it. I forgot this and have stared having zoladex and have started having the dizziness & nearly
TJ2021
in
Endometriosis UK
2 years ago
To hell and back...
I was diagnosed with endometriosis and fibroid in my late 40s. Pain was horrendous and bleeding would make its way through my clothing. The merena coil was attempted but wouldn't stay in because of my inverted womb. Fast forward a year later I started prostap which helped hugely but is only recommended
I was diagnosed with endometriosis and fibroid in my late 40s. Pain was horrendous and bleeding would make its way through my clothing. The merena coil was attempted but wouldn't stay in because of my inverted womb. Fast forward a year later I started prostap which helped hugely but is only recommended
Andi04
in
Endometriosis UK
2 years ago
First month on Xtandi - the good and the not so good
Given all the horror stories I've read on here about the SEs of Xtandi, I was very apprehensive about taking it. Notwithstanding that, I decided to go straight in at the full 4-pill, 160 mg dose from day one and see how I get on. The good news is that a month in, I've had very little in the way of detectable
Given all the horror stories I've read on here about the SEs of Xtandi, I was very apprehensive about taking it. Notwithstanding that, I decided to go straight in at the full 4-pill, 160 mg dose from day one and see how I get on. The good news is that a month in, I've had very little in the way of detectable
Benkaymel
in
Advanced Prostate Cancer
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
advice
Hi everyone I’m new here. I got diagnosed stage 4 endo in September just gone, through a laparoscopy. Thought surgery might of eased my pains, however I’ve just had a second period since my surgery and the amount of pain I was in was unbearable. I couldn’t stand up, never mind walk, screaming and
Hi everyone I’m new here. I got diagnosed stage 4 endo in September just gone, through a laparoscopy. Thought surgery might of eased my pains, however I’ve just had a second period since my surgery and the amount of pain I was in was unbearable. I couldn’t stand up, never mind walk, screaming and
Em_96
in
Endometriosis UK
2 years ago
prostap
hi, I had my third prostap injection on Friday, this time I have a real big bruise and my stomach is tender and so sore, it hurts every time I breathe in. Has anyone else had this and how long did it last? 😓
hi, I had my third prostap injection on Friday, this time I have a real big bruise and my stomach is tender and so sore, it hurts every time I breathe in. Has anyone else had this and how long did it last? 😓
Kay92jay
in
Endometriosis UK
2 years ago
Total Abdominal (Bikini cut) Hysterectomy next week..yikes!
Hi all I’m hoping someone on here is able to give me some reassurance, I’m wondering if anyone has any positive experiences of having a total hysterectomy? I keep reading about the extremely difficult recovery (which I do expect) but I’m starting to get really anxious about the whole procedure.. I
Hi all I’m hoping someone on here is able to give me some reassurance, I’m wondering if anyone has any positive experiences of having a total hysterectomy? I keep reading about the extremely difficult recovery (which I do expect) but I’m starting to get really anxious about the whole procedure.. I
Jingles11
in
Healthy Happy Woman
2 years ago
Great response in a very advanced case!
An update on my husband’s treatment and subsequent results so far. Diagnosed March 2022 with lymph nodes and bone metastases throughout the body. PSA of 1120. Late diagnosis due to NHS incompetence, so feeing truly rough. Told too late for surgery and too ill for chemo. Seven months of Prostap and
An update on my husband’s treatment and subsequent results so far. Diagnosed March 2022 with lymph nodes and bone metastases throughout the body. PSA of 1120. Late diagnosis due to NHS incompetence, so feeing truly rough. Told too late for surgery and too ill for chemo. Seven months of Prostap and
Sailing-Todd
in
Advanced Prostate Cancer
2 years ago
Prostap injection
Hey, my first post. I’m sorry to read so many people are struggling with pain. I had my first prostap injection just over a week ago and was wondering how long it takes to work. I’ve had some symptoms like head aches and woken the past 2 nights sweating, so something must be settling in. I’m due on
Hey, my first post. I’m sorry to read so many people are struggling with pain. I had my first prostap injection just over a week ago and was wondering how long it takes to work. I’ve had some symptoms like head aches and woken the past 2 nights sweating, so something must be settling in. I’m due on
AmyPeeps
in
Endometriosis UK
2 years ago
prostap injections
morning ladies, I had my second prostap injection a week ago. My first one after a week, settled down and I was okay for a couple of weeks, but this one I am struggling with. I seem to be constipated, my stomach is swollen, I keep getting sharp pains in my stomach and side. The tenderness of my stomach
morning ladies, I had my second prostap injection a week ago. My first one after a week, settled down and I was okay for a couple of weeks, but this one I am struggling with. I seem to be constipated, my stomach is swollen, I keep getting sharp pains in my stomach and side. The tenderness of my stomach
Kay92jay
in
Endometriosis UK
2 years ago
Current PCa treatment options in the UK do NOT include Triplet Therapy!
Today, I had a phone discussion with my uro-oncology support team and they told me that they NEVER give both chemo and an AR drug (e.g. abi, enza, etc) to prostate cancer patients at the same time - even if advanced. Apparently, the UK "gold standard" of treatment is to give a de novo APC patient either
Today, I had a phone discussion with my uro-oncology support team and they told me that they NEVER give both chemo and an AR drug (e.g. abi, enza, etc) to prostate cancer patients at the same time - even if advanced. Apparently, the UK "gold standard" of treatment is to give a de novo APC patient either
Benkaymel
in
Advanced Prostate Cancer
2 years ago
prostap advice
So I had gynae appt yesterday and feeling deflated she didn’t really listen to my concerns my endo may be worse and on my bowel as Iv been having trouble for few years constipation, bloating, painful bowel movement (gp just says ibs) thought she might send for mri but all she suggested was prostap and
So I had gynae appt yesterday and feeling deflated she didn’t really listen to my concerns my endo may be worse and on my bowel as Iv been having trouble for few years constipation, bloating, painful bowel movement (gp just says ibs) thought she might send for mri but all she suggested was prostap and
Kobes
in
Endometriosis UK
2 years ago
Cost of going private for a hysterectomy!!
Hi Everyone I’m currently on the waiting list for a total laparoscopic hysterectomy on the NHS but have seen a private consultant because I suspect the NHS waiting time is going to be really long and I haven’t been given a date yet although I am on Prostap injections in preparation, but as I’m constantly
Hi Everyone I’m currently on the waiting list for a total laparoscopic hysterectomy on the NHS but have seen a private consultant because I suspect the NHS waiting time is going to be really long and I haven’t been given a date yet although I am on Prostap injections in preparation, but as I’m constantly
Jingles11
in
Endometriosis UK
2 years ago
Latest Blood Test Results Good BUT ...
Having been on Prostap (ADT) now for almost 3 months (I get my second shot next week), I had another blood test today. Testosterone was down from 9.8 in July to 0.88 today. Frustratingly, my PSA from today's test won't be revealed until Nov 7th but my bone mets feel more pronounced now than 3 months
Having been on Prostap (ADT) now for almost 3 months (I get my second shot next week), I had another blood test today. Testosterone was down from 9.8 in July to 0.88 today. Frustratingly, my PSA from today's test won't be revealed until Nov 7th but my bone mets feel more pronounced now than 3 months
Benkaymel
in
Advanced Prostate Cancer
2 years ago
Still bleeding on Prostap injections!!
Hi ladies Hopefully someone can help with this,I have multiple fibroids, endometriosis,adenomyosis and adhesions which cause extremely heavy periods, flooding/clots with a lot of accompanying pain. I’ve had problems since my late 30s and now at 51 have decided to have a total hysterectomy.I saw a private
Hi ladies Hopefully someone can help with this,I have multiple fibroids, endometriosis,adenomyosis and adhesions which cause extremely heavy periods, flooding/clots with a lot of accompanying pain. I’ve had problems since my late 30s and now at 51 have decided to have a total hysterectomy.I saw a private
Jingles11
in
Endometriosis UK
2 years ago
Endometriosis in lungs, does anyone else experiencing this?
Hi everyone, I came on here hoping to find other women how have experienced endo in their lungs, i have suffered with severe pain and organs glued together for years before i had a hysterectomy 3 years ago with only 1 ovary left, for a while everything was great, but the ovary started burning and feeling
Hi everyone, I came on here hoping to find other women how have experienced endo in their lungs, i have suffered with severe pain and organs glued together for years before i had a hysterectomy 3 years ago with only 1 ovary left, for a while everything was great, but the ovary started burning and feeling
Jendn83
in
Endometriosis UK
2 years ago
Endo stage 4, Prostap & HRT
Hi, lm currently being treated with Prostap & Livial HRT & lm finding the pain is turned up to 11, l am on my 2nd injection now. I have spoken with my endo nurse & she says this is all normal & l probably wont feel relief until number 3 or 4. I guess l am looking for some advice on how to get through
Hi, lm currently being treated with Prostap & Livial HRT & lm finding the pain is turned up to 11, l am on my 2nd injection now. I have spoken with my endo nurse & she says this is all normal & l probably wont feel relief until number 3 or 4. I guess l am looking for some advice on how to get through
SarahAnne81
in
Endometriosis UK
2 years ago
First monthly Prostap injection - side effects two weeks in…
Hi lovely people! Not really a question, but let me know if your experience was similar to mine… Had my first monthly Prostap injection at my GP surgery two weeks ago. Got told I could choose between arm, thigh & buttock for an injection site, so opted for arm. Painless injection and didn’t give me
Hi lovely people! Not really a question, but let me know if your experience was similar to mine… Had my first monthly Prostap injection at my GP surgery two weeks ago. Got told I could choose between arm, thigh & buttock for an injection site, so opted for arm. Painless injection and didn’t give me
Purple_Badgers
in
Endometriosis UK
2 years ago
How much would 7 days of buserelin roughly cost?
Hello, I am potentially going to need to add Buserelin into my next cycle to keep me down regulated. It wasn't planned because my ERA is having to be repeated because there was too much tissue and not enough medium in the sample so the tissue wasn't testable when it got to the clinic... But that's
Hello, I am potentially going to need to add Buserelin into my next cycle to keep me down regulated. It wasn't planned because my ERA is having to be repeated because there was too much tissue and not enough medium in the sample so the tissue wasn't testable when it got to the clinic... But that's
JadeH92
in
Fertility Network UK
2 years ago
Endo specialist giving advice of "have a baby" or "loose weight" - SO frustrated!
Hi All, Back in April I had a very sudden laparoscopy (from the cancellation list of a
general
gynae) which resulted in no findings whatsoever, with the surgeon saying afterwards "it's probably just IBS, you don't need to see gynaecology anymore". You can imagine how much of a shock this was
Hi All, Back in April I had a very sudden laparoscopy (from the cancellation list of a
general
gynae) which resulted in no findings whatsoever, with the surgeon saying afterwards "it's probably just IBS, you don't need to see gynaecology anymore". You can imagine how much of a shock this was
honeyhills
in
Endometriosis UK
2 years ago
life after laparoscopy - expectations
i was just wondering what things are like after a laparoscopy to remove endo ? i know pain wise it takes a few months while you heal to feel the benefit of that & for the last few months i have been lucky i’ve had bareable pain (but i think this was due to a prostap injection during a round of IVF)
i was just wondering what things are like after a laparoscopy to remove endo ? i know pain wise it takes a few months while you heal to feel the benefit of that & for the last few months i have been lucky i’ve had bareable pain (but i think this was due to a prostap injection during a round of IVF)
NM19
in
Endometriosis UK
2 years ago
1
...
12
13
14
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Endometriosis UK
1626 results
Fertility Network UK
222 results
Advanced Prostate Cancer
39 results
View top 10 communities
Sort by
Most Relevant
Newest