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Once I start supplementing B12, will my B12 blood tests still be accurate?
I would like to know if blood tests will still be a useful measure of my B12 levels, once I have started supplementing B12. I would be testing active B12. The reason I ask is that I have read pernicious anemia people saying that once they start injections (and supplements too maybe), that the B12 blood
I would like to know if blood tests will still be a useful measure of my B12 levels, once I have started supplementing B12. I would be testing active B12. The reason I ask is that I have read pernicious anemia people saying that once they start injections (and supplements too maybe), that the B12 blood
Carrie234
in
Thyroid UK
28 days ago
B12 ampules
Why do I have more aches and pains the closer I bring my injection together.also what is the most effective b12
Why do I have more aches and pains the closer I bring my injection together.also what is the most effective b12
Mozza127
in
Pernicious Anaemia Society
29 days ago
Wondering if iron dose age should vary depending on weight please?
Hi I usually take Ferrous fumerate to help with iron levels. I’m wondering if this should vary depending on weight please as when I was ordering Three Arrows which is on its way, it asks for weight to work out a daily dose. Mine came to needing between 20 and 40ish a day. I’ve been & until it arrives
Hi I usually take Ferrous fumerate to help with iron levels. I’m wondering if this should vary depending on weight please as when I was ordering Three Arrows which is on its way, it asks for weight to work out a daily dose. Mine came to needing between 20 and 40ish a day. I’ve been & until it arrives
Jo5454
in
Pernicious Anaemia Society
1 month ago
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B12 deficiency treated before folate deficiency
Please could someone post a link supporting the importance of this fact for PhonixGrace . Explaining B12 and folate are tested together normally for a good reason. If folate is supplemented before B12 . The b12 deficiency can be masked/ missed. Nerve/neurological damage can occur . Once B12 injections
Please could someone post a link supporting the importance of this fact for PhonixGrace . Explaining B12 and folate are tested together normally for a good reason. If folate is supplemented before B12 . The b12 deficiency can be masked/ missed. Nerve/neurological damage can occur . Once B12 injections
Nackapan
in
Pernicious Anaemia Society
1 month ago
New (to me) symptom of severe iron deficiency
I'd never heard of this before and thought it might be useful to somebody... People who are severely iron deficient can have the whites of their eyes (the "sclera") develop a blue tinge. https://www.semanticscholar.org/paper/Blue-sclera-secondary-to-severe-iron-deficiency-Hassen-Chirurgi/0ae45491752fa575014a5dce5588c7acdcd2f4a7
I'd never heard of this before and thought it might be useful to somebody... People who are severely iron deficient can have the whites of their eyes (the "sclera") develop a blue tinge. https://www.semanticscholar.org/paper/Blue-sclera-secondary-to-severe-iron-deficiency-Hassen-Chirurgi/0ae45491752fa575014a5dce5588c7acdcd2f4a7
humanbean
in
Thyroid UK
1 month ago
My doctors won’t investigate
Typically I suffer with chronic symptoms of low B12 but all my results seem to be ignored by GP. My ferritin is 35 ug/L (indeterminate), vitamin b12 is 157ng/L (low) and in my FBC my MCV is 95.5 (just below higher cut off) and MCH is 32.1 (slightly high - comment on blood test is ‘no action despite having
Typically I suffer with chronic symptoms of low B12 but all my results seem to be ignored by GP. My ferritin is 35 ug/L (indeterminate), vitamin b12 is 157ng/L (low) and in my FBC my MCV is 95.5 (just below higher cut off) and MCH is 32.1 (slightly high - comment on blood test is ‘no action despite having
Lorynne
in
Pernicious Anaemia Society
2 months ago
iron infusion + b12 injection side effects
Had my iron infusion and first B12 injection yesterday and this evening I have diarrhoea. Anyone else had this side effect after?
Had my iron infusion and first B12 injection yesterday and this evening I have diarrhoea. Anyone else had this side effect after?
Chickens44
in
Pernicious Anaemia Society
2 months ago
B12 levels advice
I have been trying to raise my B12 levels for a number of years (since i was diagnosed hypothyroid and advised B12 levels needed to be higher). I have been taking supplements since April 2022 (although slightly erratic as i sometimes forget) but my B12 levels have not significantly increased , see
I have been trying to raise my B12 levels for a number of years (since i was diagnosed hypothyroid and advised B12 levels needed to be higher). I have been taking supplements since April 2022 (although slightly erratic as i sometimes forget) but my B12 levels have not significantly increased , see
Threes
in
Pernicious Anaemia Society
2 months ago
Advice on Vitamin D, K2 and Folate
Hi Everyone I have recently had a range of blood tests done, unfortunately I don’t seem to have any results for thyroid which they were supposed to do. My GP has asked me to make an appointment to speak to her, so I’ll ask why I haven’t got any results for thyroid and whether the test was done.
Hi Everyone I have recently had a range of blood tests done, unfortunately I don’t seem to have any results for thyroid which they were supposed to do. My GP has asked me to make an appointment to speak to her, so I’ll ask why I haven’t got any results for thyroid and whether the test was done.
AlphaWolf5195
in
Thyroid UK
2 months ago
Is serum folate levels the level of b12?
I received this as a blood result 3 weeks after receiving my b12 injection but I am confused. Does this tell me the level of b12 in my blood or folate? There are no other test results that refer to b12. I am currently suffering very badly with the symptoms of low b12 despite having my 3 monthly injections
I received this as a blood result 3 weeks after receiving my b12 injection but I am confused. Does this tell me the level of b12 in my blood or folate? There are no other test results that refer to b12. I am currently suffering very badly with the symptoms of low b12 despite having my 3 monthly injections
Lynne81
in
Pernicious Anaemia Society
2 months ago
Vitamin B12 Sublingual - Why do I feel sleepy?
Hello Everyone Just took a tablet of Vitamin B12 Sublingual today morning just after breakfast and felt v sleepy and took a short nap after noon. Is this expected? Has anyone experienced this? This is the brand that I bought: https://www.cytoplan.co.uk/vitamin-b12-sublingual-as-methylcobalamin-adenosylcobalamin
Hello Everyone Just took a tablet of Vitamin B12 Sublingual today morning just after breakfast and felt v sleepy and took a short nap after noon. Is this expected? Has anyone experienced this? This is the brand that I bought: https://www.cytoplan.co.uk/vitamin-b12-sublingual-as-methylcobalamin-adenosylcobalamin
BookLover2020
in
Thyroid UK
2 months ago
Peripheral neuropathy and neurology's response
Hi. I've posted a couple of times recently so I'll start with a precise and then my ask! I was diagnosed with Vitamin B12 deficiency in 2015 - I wasn't tested for PA. I have self-injected for 4 years (hydroxocobalamin) - and got my life back by injecting every other day (sometimes increasing to daily
Hi. I've posted a couple of times recently so I'll start with a precise and then my ask! I was diagnosed with Vitamin B12 deficiency in 2015 - I wasn't tested for PA. I have self-injected for 4 years (hydroxocobalamin) - and got my life back by injecting every other day (sometimes increasing to daily
LizWilsonpa
in
Pernicious Anaemia Society
2 months ago
History of continued low and fluctuating iron levels - advice?
hi folks. Just had my latest bloods back from helpful GP (he’s actually happy for me to sort my thyroid with Roseway! TSH barely exists) My iron is pretty abysmal tho .. Last time i had my transferrin saturation index done it was 40% so bang on mid way. January I think it was. It’s now dropped to19%
hi folks. Just had my latest bloods back from helpful GP (he’s actually happy for me to sort my thyroid with Roseway! TSH barely exists) My iron is pretty abysmal tho .. Last time i had my transferrin saturation index done it was 40% so bang on mid way. January I think it was. It’s now dropped to19%
Starseed56
in
Thyroid UK
2 months ago
B12 and Folate
hi everyone I’ve now decided after lots of help from the very knowledgeable people on this forum that I need Vit supplements Can I take B12 and Folate? My folate is really quite low but also need B12 Thanks in advance
hi everyone I’ve now decided after lots of help from the very knowledgeable people on this forum that I need Vit supplements Can I take B12 and Folate? My folate is really quite low but also need B12 Thanks in advance
wolthebuilder
in
Thyroid UK
2 months ago
Active b12 versus serum b12
My Medichecks active b12 is 63.1 (range is 37.5-188) but my serum b12 tested at my gp surgery shows top of range. Should I supplement? I also have hypothyroidism. Thank you
My Medichecks active b12 is 63.1 (range is 37.5-188) but my serum b12 tested at my gp surgery shows top of range. Should I supplement? I also have hypothyroidism. Thank you
Eton
in
Pernicious Anaemia Society
2 months ago
Serum b12 V Active b12
I’ve just received my active b12 result from Medichecks. It was 63.1 yet my recent serum b12 from my GP surgery was over the top of the range. Over the years I have always had top of range serum levels . Should I supplement with vitamin b12? Thank you
I’ve just received my active b12 result from Medichecks. It was 63.1 yet my recent serum b12 from my GP surgery was over the top of the range. Over the years I have always had top of range serum levels . Should I supplement with vitamin b12? Thank you
Eton
in
Thyroid UK
2 months ago
supplements
I am on various medication and unsure when the best time to take each are, any ideas? Levothyroxine B12 injections Starting iron heme tablets shortly Vitamin d Folate
I am on various medication and unsure when the best time to take each are, any ideas? Levothyroxine B12 injections Starting iron heme tablets shortly Vitamin d Folate
Lilymayjean
in
Thyroid UK
2 months ago
low b12 - When will this improve?
I have low B12 - 188 Iron Serum- 11 ( just under normal) Folate is 3.6 Iron serum 110 Vitamin D - 65 Went to doctor due to pins and needles in feet and hands and some fatigue, some headaches and waves of sadness . Suspected it was low Vitamin d or b12 as I had low b12 back in 2021 ( 101)
I have low B12 - 188 Iron Serum- 11 ( just under normal) Folate is 3.6 Iron serum 110 Vitamin D - 65 Went to doctor due to pins and needles in feet and hands and some fatigue, some headaches and waves of sadness . Suspected it was low Vitamin d or b12 as I had low b12 back in 2021 ( 101)
Damacian
in
Pernicious Anaemia Society
2 months ago
B12 Side effects
At my last blood take the Serum & Folate B12 reading was 278 ng/L and have been prescribed Cyanoco B12 100mcg tablets one per day Since taking B12 my skin has been alive with irritation, in particular my back - is this usual?
At my last blood take the Serum & Folate B12 reading was 278 ng/L and have been prescribed Cyanoco B12 100mcg tablets one per day Since taking B12 my skin has been alive with irritation, in particular my back - is this usual?
LONGEATON
in
Thyroid UK
2 months ago
B1 Thiamine
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
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