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Deep Brain Stimulation
Study from China on Parkinson's patients with RLS showed Deep Brain Stimulation reduced RLS & helped sleep.I certainly wouldn't consider it. Seems too extreme but if the Parkinson's patients are having the treatment to help tremor, it would be sensible to see if stimulation in another area relieves RLS
Study from China on Parkinson's patients with RLS showed Deep Brain Stimulation reduced RLS & helped sleep.I certainly wouldn't consider it. Seems too extreme but if the Parkinson's patients are having the treatment to help tremor, it would be sensible to see if stimulation in another area relieves RLS
Joolsg
in
Restless Legs Syndrome
2 years ago
Go to IBS comforts
Currently in a pretty strong flare up for first time in a while and I wondered what everyones go too and when in a flare up. Mine so far: Buscopan Cold wet flannel Imodium instants (hate the taste of these!) Various layers of pillows and weighted blanket on my stomach My favourite music playlist
Currently in a pretty strong flare up for first time in a while and I wondered what everyones go too and when in a flare up. Mine so far: Buscopan Cold wet flannel Imodium instants (hate the taste of these!) Various layers of pillows and weighted blanket on my stomach My favourite music playlist
Loulabelle1709
in
IBS Network
2 years ago
Technical ability of surgeon resulted in poor outcomes in DBS patients
"[i]Electrodes have to be put in the correct place or within 1-2mm, otherwise they can damage a person's speech and balance.[/i] [i]It[/i][i] examined 22 cases involving 21 patients between 2017 and 2019 and found in only three the electrodes were placed in a good position. Five were usable and 13 were
"[i]Electrodes have to be put in the correct place or within 1-2mm, otherwise they can damage a person's speech and balance.[/i] [i]It[/i][i] examined 22 cases involving 21 patients between 2017 and 2019 and found in only three the electrodes were placed in a good position. Five were usable and 13 were
Seamus6
in
Cure Parkinson's
2 years ago
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slow release Mebeverine
Hi everyone. Just looking for some advice about slow release Mebeverine. I take the 3 times daily Mebeverine which I seem to take as and when. I don't have flares but experience loose stools and cramps about twice a week and take Imodium. I have had ibsd for the past 20yrs and gall bladder removal
Hi everyone. Just looking for some advice about slow release Mebeverine. I take the 3 times daily Mebeverine which I seem to take as and when. I don't have flares but experience loose stools and cramps about twice a week and take Imodium. I have had ibsd for the past 20yrs and gall bladder removal
Pollyboo
in
IBS Network
2 years ago
Continuous Electrical Neuromodulation of the Globus Pallidus Intern in Parkinson's Disease by the Directional Electrode
https://clinicaltrials.gov/ct2/show/NCT05626608 The hypothesis is that the efficacy of DBS in directional mode will be more effective on the motor signs of Parkinson's disease compared to omnidirectional stimulation and bipolar mode, with a better tolerance profile (fewer side effects).
https://clinicaltrials.gov/ct2/show/NCT05626608 The hypothesis is that the efficacy of DBS in directional mode will be more effective on the motor signs of Parkinson's disease compared to omnidirectional stimulation and bipolar mode, with a better tolerance profile (fewer side effects).
Hidden
in
Cure Parkinson's
2 years ago
Levothyroxine sodium loaded dissolving microneedle arrays for transdermal delivery
Have been waiting for this for, umm, years! Especially since many recent mentions of microneedle arrays for other medicines. And suddenly fell across it today. The idea that we just might have an option to avoid oral delivery of thyroid hormones is spectacularly great news. It might not be the best
Have been waiting for this for, umm, years! Especially since many recent mentions of microneedle arrays for other medicines. And suddenly fell across it today. The idea that we just might have an option to avoid oral delivery of thyroid hormones is spectacularly great news. It might not be the best
helvella
Thyroid UK
in
Thyroid UK
2 years ago
History of Epileptic Seizure
I am 60 years old male from India. I had my first onset of seizure in my youth days ( 35 years ago). Though it was not clear from EEG but I was put on Dilantin 200 mg. It was controlled for 3 years and then started again from 1990. Eptoin was started in place of Dilantin for 250mg. But the episodes
I am 60 years old male from India. I had my first onset of seizure in my youth days ( 35 years ago). Though it was not clear from EEG but I was put on Dilantin 200 mg. It was controlled for 3 years and then started again from 1990. Eptoin was started in place of Dilantin for 250mg. But the episodes
das1234
in
Epilepsy Action
2 years ago
Thybon Henning doesn’t contain acacia?!
Sharing for info but also a question around changes to formulation. I’ve recently had my T3 increased which meant moving to Thybon Henning 20s. Since I’m allergic to acacia, I set about trying to find out if it contained it. I spoke to 2 pharmacies (SmartWay and Roseseway Labs) as well as doing my
Sharing for info but also a question around changes to formulation. I’ve recently had my T3 increased which meant moving to Thybon Henning 20s. Since I’m allergic to acacia, I set about trying to find out if it contained it. I spoke to 2 pharmacies (SmartWay and Roseseway Labs) as well as doing my
hjh88
in
Thyroid UK
2 years ago
Got the Second Opinion
And I am SO glad I did! In a prior post, I had told about events leading up to a cardiologist getting snippy with me because I questioned the need for an ablation. The more research I did the more convinced I became that my gut feeling was right and I set up an appt. with a different doctor. Monday
And I am SO glad I did! In a prior post, I had told about events leading up to a cardiologist getting snippy with me because I questioned the need for an ablation. The more research I did the more convinced I became that my gut feeling was right and I set up an appt. with a different doctor. Monday
Elsie1955
in
Atrial Fibrillation Support
2 years ago
video: GNI Grand Rounds: Deep Brain Stimulation for Parkinson’s Disease: Where we are and where we’re going
https://www.youtube.com/watch?v=i5BcRkcocqY
https://www.youtube.com/watch?v=i5BcRkcocqY
Hidden
in
Cure Parkinson's
2 years ago
Depressing example of medical intransigence
For a long time, the medical world has ignored the potential effects of valproate on infant health after birth. Even though guidance commitees have cautioned against giving valproate to pregnant women. This scandal continues, and babies are still being born with serious problems. The response of the
For a long time, the medical world has ignored the potential effects of valproate on infant health after birth. Even though guidance commitees have cautioned against giving valproate to pregnant women. This scandal continues, and babies are still being born with serious problems. The response of the
diogenes
in
Thyroid UK
2 years ago
How did we arrive at Disease?
I’ve often wondered how I ended up with Parkinson’s. Well the advent of Cov-vid may have inadvertently shed a light on this question. I began reading anecdotal reports, and articles saying that some people getting the cov-vid shot were experiencing a metallic taste in their mouth immediately following
I’ve often wondered how I ended up with Parkinson’s. Well the advent of Cov-vid may have inadvertently shed a light on this question. I began reading anecdotal reports, and articles saying that some people getting the cov-vid shot were experiencing a metallic taste in their mouth immediately following
Cons10s
in
Cure Parkinson's
2 years ago
IBS Symptoms After Antidepressants
Hi, Bit of a newbie here but just after advice and general common experiences. So around July 2020 I went to the doctors for low mood and possible depression had no IBS Symptoms at this time, I was prescribed 20mg of Citalpram (SSRI) which i proceeded to take along side CBT. During the time taking
Hi, Bit of a newbie here but just after advice and general common experiences. So around July 2020 I went to the doctors for low mood and possible depression had no IBS Symptoms at this time, I was prescribed 20mg of Citalpram (SSRI) which i proceeded to take along side CBT. During the time taking
123beansprout123
in
IBS Network
2 years ago
Maize starch, Sodium Metabisuphate and validation at home
Blimey what a week! After months of elimination diet, AI diet and feeling really well on it. I’ve had a recurrence of gastro symptoms, IBS type looseness, scared to fart type days. Heightened anxiety. Aches and pains. First bout followed some Kokos coconut yogurt that we can only assume the maize
Blimey what a week! After months of elimination diet, AI diet and feeling really well on it. I’ve had a recurrence of gastro symptoms, IBS type looseness, scared to fart type days. Heightened anxiety. Aches and pains. First bout followed some Kokos coconut yogurt that we can only assume the maize
Regenallotment
in
Thyroid UK
2 years ago
Mything the point: Some Thoughts on Living Well with PD
This sort of thing is a tough sell in the sense that people running the show at PD websites are worried that submissions that aren't predictably positive or upbeat in tone might upset regular readers. In some cases, fundraising' may come into play. As noted in the piece, I'm not trying to stir up a
This sort of thing is a tough sell in the sense that people running the show at PD websites are worried that submissions that aren't predictably positive or upbeat in tone might upset regular readers. In some cases, fundraising' may come into play. As noted in the piece, I'm not trying to stir up a
slapdasch4
in
Cure Parkinson's
2 years ago
What Does Everyone Do For Diet?
I am going to start the Mediterranean diet, with some modifications because I need lower sodium. if you do it, please let me know how its going for you. I have to drop 50 pounds, most of which I gained back :( I got lazy.
I am going to start the Mediterranean diet, with some modifications because I need lower sodium. if you do it, please let me know how its going for you. I have to drop 50 pounds, most of which I gained back :( I got lazy.
Elsie1955
in
Atrial Fibrillation Support
2 years ago
Suspected Erythromelalgia - boiling red hands, began in early 2021. Urgent advice needed - feel very poorly
Hi I’m a 25 yo female from London, UK. I have hashimotos and hypothyroidism, both diagnosed and I am on treatment. I began to experience sudden hot and achy hands in early 2021 - characteristics were similar to that of erythromelalgia but GP reluctant to diagnose despite seeing photos - tested uric
Hi I’m a 25 yo female from London, UK. I have hashimotos and hypothyroidism, both diagnosed and I am on treatment. I began to experience sudden hot and achy hands in early 2021 - characteristics were similar to that of erythromelalgia but GP reluctant to diagnose despite seeing photos - tested uric
Hanna_josef
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Availability of Sodium Cromoglicate
Hi, is anyone else having supply issues with Sodium Cromoglicate at the moment? It’s been a bit hit or miss the last couple of months, but today the pharmacy attached to our GP said they can’t get it. They are having one more try and then suggest we take the prescription around pharmacists to see if
Hi, is anyone else having supply issues with Sodium Cromoglicate at the moment? It’s been a bit hit or miss the last couple of months, but today the pharmacy attached to our GP said they can’t get it. They are having one more try and then suggest we take the prescription around pharmacists to see if
PCAD
in
The UK Mastocytosis Support Group
2 years ago
IBS or .......
Am a long term IBS sufferer but nothing like this. I've suffered with diarrhea since February this year, some days spent on the pot, have been waiting for a colonoscopy since March. 1st Stool test came back ok but to fiddle the waiting times for the the colonoscopy I was given another stool test to
Am a long term IBS sufferer but nothing like this. I've suffered with diarrhea since February this year, some days spent on the pot, have been waiting for a colonoscopy since March. 1st Stool test came back ok but to fiddle the waiting times for the the colonoscopy I was given another stool test to
Bumpity
in
IBS Network
2 years ago
Lamotrigine and Sodium Valproate.
My neurologist is now talking about adding Sodium Valproate to my current 400mg daily dose of Lamotrigine. Does anyone else take that combination and if so how has it been? And what other drugs are people taking along with Lamotrigine?
My neurologist is now talking about adding Sodium Valproate to my current 400mg daily dose of Lamotrigine. Does anyone else take that combination and if so how has it been? And what other drugs are people taking along with Lamotrigine?
Michael_M
in
Epilepsy Action
2 years ago
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