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Joint pain/motor function loss & mercaptopurine
Since starting these
immunosuppressants
I’ve had to use a cane and noticed a kind of systemic floating pain in my limbs. In the mornings my fingers can be swollen, some of my face and by the evening one of my ankles.
Since starting these
immunosuppressants
I’ve had to use a cane and noticed a kind of systemic floating pain in my limbs. In the mornings my fingers can be swollen, some of my face and by the evening one of my ankles.
Gracey888
in
Crohn's and Colitis Support
5 years ago
How long until this awful moon face goes away??
I don’t have lupus, but other autoimmune disorders. But this is the most active site and I know that many of you have been on the same medications as me. I’ve been on prednisone now for three years. My neurologist finally agreed to add an immunosuppressant (Imuran) and gave me the green light to come
I don’t have lupus, but other autoimmune disorders. But this is the most active site and I know that many of you have been on the same medications as me. I’ve been on prednisone now for three years. My neurologist finally agreed to add an immunosuppressant (Imuran) and gave me the green light to come
Goldyukr
in
LUPUS UK
5 years ago
How long until this awful moon face goes away?
I’ve been on prednisone now for three years. My neurologist finally agreed to add an immunosuppressant (Imuran) and gave me the green light to come off of prednisone. Of course, I’ve had to go really slow since I’ve been on it so long. My question is - I’ve been at 10 mg and below (just came down to
I’ve been on prednisone now for three years. My neurologist finally agreed to add an immunosuppressant (Imuran) and gave me the green light to come off of prednisone. Of course, I’ve had to go really slow since I’ve been on it so long. My question is - I’ve been at 10 mg and below (just came down to
Goldyukr
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
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Lupus, Vasculitis and Blocked Blood Vessels
In serious vasculitis related to autoimmune diseases such as lupus, aggressive therapy with prednisone and other
immunosuppressants
is essential.
In serious vasculitis related to autoimmune diseases such as lupus, aggressive therapy with prednisone and other
immunosuppressants
is essential.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Liver disease with low lymphocytes?
I had this in January and as I am also on
immunosuppressants
for chronic eczema I had to reduce the dosage in case the
immunosuppressants
were causing it although I’ve been on them for years and never had any side effects.
I had this in January and as I am also on
immunosuppressants
for chronic eczema I had to reduce the dosage in case the
immunosuppressants
were causing it although I’ve been on them for years and never had any side effects.
SianJane01
in
British Liver Trust
5 years ago
Treatment options
Hi everyone, I have an appointment on 6th June at the CTD clinic and I'm certain the subject of further treatment will be brought up as this was briefly addressed at my last consultation. I was given an intra muscular steroid injection and told that if this was helpful, Azathioprine would be considered
Hi everyone, I have an appointment on 6th June at the CTD clinic and I'm certain the subject of further treatment will be brought up as this was briefly addressed at my last consultation. I was given an intra muscular steroid injection and told that if this was helpful, Azathioprine would be considered
Happy43
in
LUPUS UK
5 years ago
Question re Shingles vaccination
There have been a couple of posts recently about Shingles. I am over 70 and would therefore normally be advised to have the vaccine, however I know that it is not normally recommended for those on immunosuppresssants. There is an article on the Vasculitis website about this, provided by Prof.Morgan and
There have been a couple of posts recently about Shingles. I am over 70 and would therefore normally be advised to have the vaccine, however I know that it is not normally recommended for those on immunosuppresssants. There is an article on the Vasculitis website about this, provided by Prof.Morgan and
nanaC
in
Vasculitis UK
5 years ago
Shingles mark 2
I’ve got shingles again - last time was in 2010, following chickenpox before in 1998, all when immunosuppressed after my cerebral vasculitis diagnosis in 1997. Anyway this time I’m doing vastly better, and I wonder if it might be because I started anti virals within just a couple of hours of first noticing
I’ve got shingles again - last time was in 2010, following chickenpox before in 1998, all when immunosuppressed after my cerebral vasculitis diagnosis in 1997. Anyway this time I’m doing vastly better, and I wonder if it might be because I started anti virals within just a couple of hours of first noticing
vivdunstan
Volunteer
in
Vasculitis UK
5 years ago
Reason for reduced lung function?
For past few months I noticed I wasn't able to exercise as much as usual. So I had a lung function test in February which showed dclo 69%. I am 49 year old fit non smoking lady. I had a CT scan two weeks ago which showed no scarring on lung or cause for reduced dclo. So respiratory consultant said to
For past few months I noticed I wasn't able to exercise as much as usual. So I had a lung function test in February which showed dclo 69%. I am 49 year old fit non smoking lady. I had a CT scan two weeks ago which showed no scarring on lung or cause for reduced dclo. So respiratory consultant said to
Caitlyn6
in
Lung Conditions Community Forum
5 years ago
Topic Tags
We can add topic tags to posts - but, so far there are only a few topics available. SimoneHU has asked me what topic tags we need? This should be a comprehensive list of the benefits of (intermittent) Fasting, and the conditions it can or might cure or prevent. So, for a start, I suggest: Cancer auto-immune
We can add topic tags to posts - but, so far there are only a few topics available. SimoneHU has asked me what topic tags we need? This should be a comprehensive list of the benefits of (intermittent) Fasting, and the conditions it can or might cure or prevent. So, for a start, I suggest: Cancer auto-immune
S11m
Volunteer 70lb IF20
in
Fasting and Furious
5 years ago
Fun? No, no, no
My poor houndrel has an autoimmune condition affecting his eyes. They are better than they were, but it looks to the vet like he’ll be on immunosuppressant cream and moisturising drops for the rest of his life. Pay your pet insurance chaps: £500 and I’ve already covered the excess. Fortunately he’s otherwise
My poor houndrel has an autoimmune condition affecting his eyes. They are better than they were, but it looks to the vet like he’ll be on immunosuppressant cream and moisturising drops for the rest of his life. Pay your pet insurance chaps: £500 and I’ve already covered the excess. Fortunately he’s otherwise
Lupiknits
in
LUPUS UK
5 years ago
Breast Implants possibly the cause of my Connective Tissue Disease!
I told her how my Rheumatologist said I was likely to be on
immunosuppressants
for the rest of my life, but that I was reading that some people, after explant, were actually getting better. And so I knew I needed to have them removed to give myself a chance.
I told her how my Rheumatologist said I was likely to be on
immunosuppressants
for the rest of my life, but that I was reading that some people, after explant, were actually getting better. And so I knew I needed to have them removed to give myself a chance.
panda2
in
LUPUS UK
5 years ago
GP visit - shocked at response
Hello everyone this is my first time posting on this community although I have been reading for advice and info for some time and you are all very helpful. My journey started in 2014 with investigations for possible PBC (positive Anti-mitochobdrial antibody and elevated liver function tests). I was
Hello everyone this is my first time posting on this community although I have been reading for advice and info for some time and you are all very helpful. My journey started in 2014 with investigations for possible PBC (positive Anti-mitochobdrial antibody and elevated liver function tests). I was
Happy43
in
LUPUS UK
5 years ago
Dlco and kco meaning and ranges
Hi everybody. I saw a respiratory consultant recently following a lung function test. I received a follow up letter from him today copy of letter to gp) which said my dclo was 69.5% and kco 75.3 ( in February). Spirometer parameters were normal. He requested a ct scan which I had today ( no results)
Hi everybody. I saw a respiratory consultant recently following a lung function test. I received a follow up letter from him today copy of letter to gp) which said my dclo was 69.5% and kco 75.3 ( in February). Spirometer parameters were normal. He requested a ct scan which I had today ( no results)
Caitlyn6
in
Lung Conditions Community Forum
5 years ago
Antiphospholipid syndrome associated with autoimmune hearing loss
Due to the long-term complications of steroid treatment the decision was made to commence treatment with
immunosuppressants
. The patient was weaned off steroids. He has responded well to immunosuppressant treatment with azathioprine.
Due to the long-term complications of steroid treatment the decision was made to commence treatment with
immunosuppressants
. The patient was weaned off steroids. He has responded well to immunosuppressant treatment with azathioprine.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Shingles!!!
Rang Dr who told me to go to the surgery (I also have autoimmune hepatitis) so the
immunosuppressants
thst I take weaken the immune system further. Anyway, given me some antiviral meds to stop the virus mutating further.
Rang Dr who told me to go to the surgery (I also have autoimmune hepatitis) so the
immunosuppressants
thst I take weaken the immune system further. Anyway, given me some antiviral meds to stop the virus mutating further.
Loura
in
NRAS
5 years ago
CT scan tomorrow-results?
Hello this is my first post. I had an immunosuppressant treatment for MS in September 2018. I had a viral cough after a month which resolved end of November. In February I had a lung function test. I saw a respiratory consultant two weeks ago and he said the test showed my lung function is about 70%.
Hello this is my first post. I had an immunosuppressant treatment for MS in September 2018. I had a viral cough after a month which resolved end of November. In February I had a lung function test. I saw a respiratory consultant two weeks ago and he said the test showed my lung function is about 70%.
Caitlyn6
in
Lung Conditions Community Forum
5 years ago
Benlysta anyone?
I'm waiting for Benlysta approval. Anyone that has taken this, could you please share any positive and/or negative experience? I'm worried about too much immunosuppression and side effects. My doctor mentioned JK disease and freaked me out.
I'm waiting for Benlysta approval. Anyone that has taken this, could you please share any positive and/or negative experience? I'm worried about too much immunosuppression and side effects. My doctor mentioned JK disease and freaked me out.
miccika1
in
LUPUS UK
5 years ago
M.abcessus treated with phages in 16yo wcf by GOSH
...yet the NHS still appear to be reluctant to undertake further research. The article is on the BBC website, and essentially explains how the girl’s M.abcessus infection re-emerged with immunosuppression post transplant. The teen’s mother researched alternative options when traditional antibiotic therapy
...yet the NHS still appear to be reluctant to undertake further research. The article is on the BBC website, and essentially explains how the girl’s M.abcessus infection re-emerged with immunosuppression post transplant. The teen’s mother researched alternative options when traditional antibiotic therapy
Hidden
in
Lung Conditions Community Forum
5 years ago
Hypothyroidism-related zinc deficiency leads to suppression of T lymphocyte activity
We've seen zinc mentioned quite a few times over the years. [i]Endocrine. 2019 May 5. doi: 10.1007/s12020-019-01936-7. [Epub ahead of print]
Hypothyroidism-related zinc deficiency leads to suppression of T lymphocyte activity.
Paulazo MA1, Klecha AJ1,2, Sterle HA1, Valli E1, Torti H2, Cayrol
We've seen zinc mentioned quite a few times over the years. [i]Endocrine. 2019 May 5. doi: 10.1007/s12020-019-01936-7. [Epub ahead of print]
Hypothyroidism-related zinc deficiency leads to suppression of T lymphocyte activity.
Paulazo MA1, Klecha AJ1,2, Sterle HA1, Valli E1, Torti H2, Cayrol
helvella
Thyroid UK
in
Thyroid UK
5 years ago
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