Experiences with

Immunoglobulin

No. 4 years ago, I developed a bleeding problem while in ibrutinib and they were going to give me a different medicine. When they screened me for the new meducine, they discovered my cancer was gone, so, I didn’t need to continue with any cancer medicine. I do, though, get IVIG and I take Bactrim and

The hemotologist reported that if the next lab isn't good, it may be time to look at bone marrow because that's 'where the blood is formed'. But you all are talking about b12 and other things. 8/30/18 gastro doctor: mcv 75 and mch 24 ((low) and rdw 16.3 (high). 9/7 immune doctor: igg 1,2,3, and 4

I’m on the GCA/PMR site for two years and on prednisone all that time. Was not getting rid of pain and now possible diagnosed Sjögren’s/Lupus. However all tests are positive abnormal and my symptoms are obvious. Don’t know why they are not as sure as I am about the diagnosis. I also receive monthly

Hello Friends, I haven’t posted in quite a while. I have had ongoing sinus and kidney infections since October 2018. I’m limited with types of antibiotics because of various allergic reactions. I had an IVIG treatment a few years ago (different oncologist) and although I had a significant reaction, once

Hi I'm currently on my 4th day of stims on my first IVF cycle. We're only doing egg collection this round because we're having them pgs tested. We'll take next cycle off too to detox from the stims. We then plan to do a FET the following cycle (late May). Been TTC since August 2017 and I've had two

Hello All, I’ve just had my latest bloods and my Immunoglobulin A (Iga) is 5.9!!! Normal range I believe is 0.8-3. Anyone had the same for fatty liver or NASH. Seeing a consultant on Tuesday and though I would try and get some info beforehand. Thanks everyone!

I am a 59 year old male and was diagnosed with CLL in July of 2016 and have been experienced Major mood swings lately that I had never had in the past. Anyone else have similar mood swings ? I am on watch and wait and doing ivig every 8 weeks along with Testosterone pellets to increase my testosterone

Originally my lovely consultant wanted me to have immunoglobulin therapy but there is such a national shortage that’s not going to happen but to be quite honest I don’t want to have to go to hospital 5 days on the trot every month to sit on a drip for hours anyway lol.

I’m at hospital again today, waiting in line to see my cardiologist to discuss my recently diagnosed Amyloidosis. Same time last week I was with my Oncologist discussing CLL and the week before that my Neurologist discussing my Polyneuropathy. Is it a stretch of the imagination that everything is related

In my 20's I had guillan barre (GBS) type episodes x 3 - immunoglobulin helped restore my leg function and got me walking (so autoimmune in nature), but it was always a bit odd as it effected a different part of my nerves to what they'd expect (axon not myelin sheath- hence the hesitancy to call it GBS

Hello everyone and best wishes. I have been told the scleroderma is much worse which is depressing.Does anyone else feel fatigued all the time and now my legs feel weak with pins and needles. Having osteoporosis as well means I am bent over.Does anyone have osteoporosis too? I have IVIG infusions twice

Anyone out there been diagnosed with Lymphoplasmacytic lymphoma ... a bone marrow and lymph circulating IGM blood cancer? I'm trying to do as much as I can naturally - already been thru 4 Rituxan infusions May 2018 and now blood results (IGM going up again, hemoglobin going down, WBC very low at 1.5

G = 10.74 g/L (6.2-14.4) Immunoglobulin A = 4.46 g/L (.6-3.96)*** Immunoglobulin M = 1.6 g/L (0.48-3.04) Immunoglobulin E = 101 IU/mL (<100)*** Allergy Serology Cat epithelium = <0.01 kU/L Class 0 = Negative Dog dander = <0.01 kU/L Class 0 = Negative Grass Pollen = 0.34 kU/L Class 0 = Negative

I have been seeing my rheumatologist since August 2017 and I have a working diagnosis of Behçet’s. I was started on colchicine which I tolerated for 5 months before having to stop due to severe gastric symptoms and weight loss. I was started on Imuran at the start of January and recently had my dose

I was diagnosed with Pulse Tinnitus 2 years ago. I have the sensation of hearing the whoosh sound of blood in my head all the time, it’s worse at rest and after a heavy meal. It’s not a major deal, but it’s an annoyance. I have received a CT scan which was unremarkable and a Ultrasound Doppler test

I'm particularly perplexed about Immunoglobulin results. I'll post results below.

I'm particularly perplexed about Immunoglobulin results. I'll post results below.

G = 10.74 g/L (6.2-14.4) Immunoglobulin A = 4.46 g/L (.6-3.96)*** Immunoglobulin M = 1.6 g/L (0.48-3.04) Immunoglobulin E = 101 IU/mL (<100)*** Allergy Serology Cat epithelium = <0.01 kU/L Class 0 = Negative Dog dander = <0.01 kU/L Class 0 = Negative Grass Pollen = 0.34 kU/L Class 0 = Negative Dustmite

Hi All, I'm facing mild rejection. Does anyone know the cost of single session of Plasmapheresis in India? Also the cost of IVIG and Rituximab? Thanks

Several of you were helpful enough to comment on my previous posts, where my rheum had dismissed by two positive LA results, as I don’t have a history of clotting. I do have a history of extreme fatigue, increasingly bad headaches, eye problems, skin rashes, Yada yada yada. Anyway, long story short I