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Experiences with
Implantable cardioverter defibrillator (ICD)
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Suspected endo - any advice?
Hey guys, Hope you are all keeping well. I've just had a consultation with a gynaecologist yesterday regarding some fibroids they found last year through an ultrasound. She was really lovely and empathetic, said she has similar issues herself and like me, didn't't get on too well with cerazette, which
Hey guys, Hope you are all keeping well. I've just had a consultation with a gynaecologist yesterday regarding some fibroids they found last year through an ultrasound. She was really lovely and empathetic, said she has similar issues herself and like me, didn't't get on too well with cerazette, which
mdox
in
Endometriosis UK
3 years ago
Hi! First post, can anyone offer any advice please?
Hi! My names Sam, I’ve been on here for a while but first time posting! I got diagnosed with endometriosis in may 2019 after many years of problems. I’ve had 3 laparoscopies within 18 months and tried different pills and stuff to stop my periods, but they never seem to agree with me and my periods still
Hi! My names Sam, I’ve been on here for a while but first time posting! I got diagnosed with endometriosis in may 2019 after many years of problems. I’ve had 3 laparoscopies within 18 months and tried different pills and stuff to stop my periods, but they never seem to agree with me and my periods still
Peppapig123
in
Endometriosis UK
3 years ago
Didn’t get depo injection again...Feel awful
Hello, I am currently on waiting list for lap and was given depo injection to try but i didn’t feel like it did anything for me. As i was still in pain in my hips and back and constant d pain in the inside of my legs in the crotch area. So i decided I wasn’t going to get another one and come of contraception
Hello, I am currently on waiting list for lap and was given depo injection to try but i didn’t feel like it did anything for me. As i was still in pain in my hips and back and constant d pain in the inside of my legs in the crotch area. So i decided I wasn’t going to get another one and come of contraception
Fern4837
in
Endometriosis UK
3 years ago
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Appointment - coil/pills
Hi guys, I’ve got my second gynae telephone appointment this evening. I know they’re going to want me to have the coil but I’m really reluctant to for a couple of reasons. 1. Even having a speculum for smear is very painful so I’m terrified insertion will be excruciating and 2. I’ve heard you can have
Hi guys, I’ve got my second gynae telephone appointment this evening. I know they’re going to want me to have the coil but I’m really reluctant to for a couple of reasons. 1. Even having a speculum for smear is very painful so I’m terrified insertion will be excruciating and 2. I’ve heard you can have
silvercloud2
in
Endometriosis UK
3 years ago
Endometriosis flare up?
Good morning, Just wanted to pick your brains about endometriosis. Back story first... I had a laparoscopy in December 2019 to remove ovarian cyst and zap endometriosis away and then had copper coil fitted as surgeon recommended. 12 months later I still had crippling cramps, daily, heavy periods and
Good morning, Just wanted to pick your brains about endometriosis. Back story first... I had a laparoscopy in December 2019 to remove ovarian cyst and zap endometriosis away and then had copper coil fitted as surgeon recommended. 12 months later I still had crippling cramps, daily, heavy periods and
PelucaPastora83
in
Pelvic Pain Support Network
3 years ago
Icd
Hi has anyone been advised to have a
icd
but lived for years without one or improved only with medication thanks
Hi has anyone been advised to have a
icd
but lived for years without one or improved only with medication thanks
Yasyass
in
British Heart Foundation
4 years ago
Hair loss and acne
I had the copper coil fitted 4 weeks ago because I don't get along with hormones. Since then my hair has been falling out in clumps, im fatigued and I am getting hormonal acne all over my chin which I never get!? I'm at the point where I'm genuinely scared to wash my hair in case it falls out anymore
I had the copper coil fitted 4 weeks ago because I don't get along with hormones. Since then my hair has been falling out in clumps, im fatigued and I am getting hormonal acne all over my chin which I never get!? I'm at the point where I'm genuinely scared to wash my hair in case it falls out anymore
AMILLIE
in
BASHH
3 years ago
Life after a negative lap
Haven't been active on here for a while but thought I'd offer an update, maybe this might be helpful to anyone who has a laparoscopy that finds nothing. Had my lap in September and felt absolutely awful when they told me they didn't find any endo. I felt like if they couldn't identify the problem, it
Haven't been active on here for a while but thought I'd offer an update, maybe this might be helpful to anyone who has a laparoscopy that finds nothing. Had my lap in September and felt absolutely awful when they told me they didn't find any endo. I felt like if they couldn't identify the problem, it
Violet159
in
Endometriosis UK
3 years ago
3 weeks ICD post op
ICD
seems to be fitting like a glove. I'm having some mild chest pain, like a dull ache really, went to hospital tuesday and xray and bloods came back fine. No one can say what it was or wasnt. Wednesday my HF nurse rang to say she noticed I had been in.
ICD
seems to be fitting like a glove. I'm having some mild chest pain, like a dull ache really, went to hospital tuesday and xray and bloods came back fine. No one can say what it was or wasnt. Wednesday my HF nurse rang to say she noticed I had been in.
jmpond90gmailcom
in
British Heart Foundation
3 years ago
ICD delivers a shock when entering the bathroom
Do you think this is as a result of the
ICD
being reset a few days ago. has anyone had the experience the
ICD
triggering due to gas in the stomach.
Do you think this is as a result of the
ICD
being reset a few days ago. has anyone had the experience the
ICD
triggering due to gas in the stomach.
Elonor236
in
British Heart Foundation
4 years ago
HELP... coil and bleeding
Hi, I’m hoping someone came help! I had my first laparoscopic surgery last February and during my surgery I got the marina coil fitted. I had some bleeding for about 3-4 weeks after the surgery but literally nothing since... until about 4 weeks about when I was bleeding for about 2 weeks on and off..
Hi, I’m hoping someone came help! I had my first laparoscopic surgery last February and during my surgery I got the marina coil fitted. I had some bleeding for about 3-4 weeks after the surgery but literally nothing since... until about 4 weeks about when I was bleeding for about 2 weeks on and off..
Fairytale21
in
Endometriosis UK
3 years ago
Feeling lost!
Hello there, Apolgoies in advance for the long post, I'm a bit lost and struggling with what to do next, so thought I would post on here and see what happens. I've been back and forth to the doctor/hospital for the past 9 years with suspected Endometriosis in my bowel area. In the last 2/3 years, a nurse
Hello there, Apolgoies in advance for the long post, I'm a bit lost and struggling with what to do next, so thought I would post on here and see what happens. I've been back and forth to the doctor/hospital for the past 9 years with suspected Endometriosis in my bowel area. In the last 2/3 years, a nurse
SC_92
in
Endometriosis UK
3 years ago
Mirena Coil removal issue
Hi all, Me and partner have decided we want to try for a baby. So I’ve been for my coil removing today at the doctors. But unfortunately the doctor couldn’t remove it as she couldn’t find the strings, I thought this would be an issue as my past smears my strings weren’t located. I had to have ultrasounds
Hi all, Me and partner have decided we want to try for a baby. So I’ve been for my coil removing today at the doctors. But unfortunately the doctor couldn’t remove it as she couldn’t find the strings, I thought this would be an issue as my past smears my strings weren’t located. I had to have ultrasounds
Amy_jane
in
FPA Contraception
3 years ago
ICD fitting today
A few questions, anyone named their
ICD
? I have read that some people do. My favourite so far is Thumper! Would be good to hear a few if you have. All suggestions welcome! Any advice, for living with
ICD
? Particularly keen to learn about the next few days recovery.
A few questions, anyone named their
ICD
? I have read that some people do. My favourite so far is Thumper! Would be good to hear a few if you have. All suggestions welcome! Any advice, for living with
ICD
? Particularly keen to learn about the next few days recovery.
jmpond90gmailcom
in
British Heart Foundation
4 years ago
My ICD - day 2
Feel like I've been on pause since my HA 2.8.2020 Jim x Attached a pic of my
icd
card. Not sure what a lot of it means if anyone can help?
Feel like I've been on pause since my HA 2.8.2020 Jim x Attached a pic of my
icd
card. Not sure what a lot of it means if anyone can help?
jmpond90gmailcom
in
British Heart Foundation
4 years ago
Have I over done it ?
Hi there, I'm 7 months post
icd
fitted, im active and exercicse but am conscious of my abilitys so today for the first time I decided to muck my horse out, using tools and wheelbarrow etc and boy an I paying for it now, the pain on my shoulder, arm, and around my defib is quite sore, I've taken pain
Hi there, I'm 7 months post
icd
fitted, im active and exercicse but am conscious of my abilitys so today for the first time I decided to muck my horse out, using tools and wheelbarrow etc and boy an I paying for it now, the pain on my shoulder, arm, and around my defib is quite sore, I've taken pain
Huskyboobear
in
British Heart Foundation
4 years ago
Adhesions no endo found but said could be in the muscle?!
In 2017 I had my first lap. Found adhesions. Was my ovary stuck to pelvis or something like that. They asked if I had surgery before as that could possibly cause it but this was my first surgery. She said it could be in the muscle and/or could be adeno it wouldn’t be able to say for sure unless it got
In 2017 I had my first lap. Found adhesions. Was my ovary stuck to pelvis or something like that. They asked if I had surgery before as that could possibly cause it but this was my first surgery. She said it could be in the muscle and/or could be adeno it wouldn’t be able to say for sure unless it got
Jb_x
in
Endometriosis UK
3 years ago
Ultrasound with IUD?
Hello, Does anyone know if any of the NHS services will provide an ultrasound scan with IUD fitting? I am considering getting the IUD but don't feel comfortable just guessing that "it all went well" once the procedure is done...
Hello, Does anyone know if any of the NHS services will provide an ultrasound scan with IUD fitting? I am considering getting the IUD but don't feel comfortable just guessing that "it all went well" once the procedure is done...
ongaku666
in
BASHH
3 years ago
Vaginal ultrasound, is pain normal?
Hey guys! I had an abdominal ultrasound yesterday to check on my coil and they asked to do a vaginal scan, I tried but I couldn’t tolerate it, is anyone with endometriosis in the same boat? I feel so pathetic, I just get so scared 😢
Hey guys! I had an abdominal ultrasound yesterday to check on my coil and they asked to do a vaginal scan, I tried but I couldn’t tolerate it, is anyone with endometriosis in the same boat? I feel so pathetic, I just get so scared 😢
Cham1
in
Endometriosis UK
3 years ago
Returning to work after surgery
Hi I had brain aneurysm surgery ( coil and stent repair ) last year , I’ve been signed fit to work but employer won’t allow be back until I have had occupational health assessment which I understand , according to those in the know this now means I am in ‘ medical suspension ‘ until I’ve had assessment
Hi I had brain aneurysm surgery ( coil and stent repair ) last year , I’ve been signed fit to work but employer won’t allow be back until I have had occupational health assessment which I understand , according to those in the know this now means I am in ‘ medical suspension ‘ until I’ve had assessment
Sparkleboo
in
Headway
3 years ago
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