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6 Years on and I think it's back!
Hi ladies, not been following these groups for a while as had total
hysterectomy
in 2016 removing uterus and ovaries after many years of pain with stage 4 endo on womb, bowel and pouch of douglas. Went on HRT and have gradually got better since -until about 6 months ago.
Hi ladies, not been following these groups for a while as had total
hysterectomy
in 2016 removing uterus and ovaries after many years of pain with stage 4 endo on womb, bowel and pouch of douglas. Went on HRT and have gradually got better since -until about 6 months ago.
KarenBHorrocks
in
Endometriosis UK
2 years ago
feeling lost & hopeless
I begged for a full
hysterectomy
since 2009. Finally had it completed in 2020. However, the pain is still there in the same places. I’ve been to the hospital multiple times with it and no one will listen to me. I keep getting told there’s nothing there. The pain is real.
I begged for a full
hysterectomy
since 2009. Finally had it completed in 2020. However, the pain is still there in the same places. I’ve been to the hospital multiple times with it and no one will listen to me. I keep getting told there’s nothing there. The pain is real.
Comingbackasaman79
in
Endometriosis UK
2 years ago
Avastin...hmmm
I did 6 rounds chemo, & also had a total
hysterectomy
. In fact today is my 1 year anniversary of that surgery, 9/8/ 22. I was then put on Avastin. I've been on Avastin since January 2022, so I am currently in my 9th month of taking this drug. I have had my fits & bouts with Avastin.
I did 6 rounds chemo, & also had a total
hysterectomy
. In fact today is my 1 year anniversary of that surgery, 9/8/ 22. I was then put on Avastin. I've been on Avastin since January 2022, so I am currently in my 9th month of taking this drug. I have had my fits & bouts with Avastin.
gta03
in
SHARE Ovarian Cancer Support
2 years ago
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Unusual symptoms of Endometriosis
I had a
Hysterectomy
in 2014 but due to end cells being left behind, I now have regular "periods" every 25 days. I was wondering if anyone else had had the same! Pain under one arm pit/ribs. Nausea first thing in the morning (like morning sickness) Whole leg aching.
I had a
Hysterectomy
in 2014 but due to end cells being left behind, I now have regular "periods" every 25 days. I was wondering if anyone else had had the same! Pain under one arm pit/ribs. Nausea first thing in the morning (like morning sickness) Whole leg aching.
maestrogirl-79
in
Endometriosis UK
2 years ago
Post surgery intermittent pain
Hi Ladies I had a laprascopic assisted vaginal
hysterectomy
and bilateral salpino oophrectomy 6 weeks ago for OC. Since my operation I have had a lump on my right side where my tumour was the gynae team think it’s a haematoma. I also still get some discomfort on that side.
Hi Ladies I had a laprascopic assisted vaginal
hysterectomy
and bilateral salpino oophrectomy 6 weeks ago for OC. Since my operation I have had a lump on my right side where my tumour was the gynae team think it’s a haematoma. I also still get some discomfort on that side.
Hota
in
My Ovacome
2 years ago
anyone had a interior bladder prolaspe repair and a hysterectomy and have a hiatus hernia?
moring any one had a interior bladder prolapse repair and a haitus hernia and if so how did it go as im a little worryed as how it will effect me if it will cause my hernia to play up etc .
moring any one had a interior bladder prolapse repair and a haitus hernia and if so how did it go as im a little worryed as how it will effect me if it will cause my hernia to play up etc .
Mrshappyme
in
Pelvic Pain Support Network
2 years ago
Hi everyone - meeting my oncologist today
I had an abdominal
hysterectomy
in July and it went well, the surgeon seemed pretty confident it wasn’t cancer at the time and then it hit me pretty hard when he told me 3 weeks later that the results showed cancer had started in my womb and moved to my ovary.
I had an abdominal
hysterectomy
in July and it went well, the surgeon seemed pretty confident it wasn’t cancer at the time and then it hit me pretty hard when he told me 3 weeks later that the results showed cancer had started in my womb and moved to my ovary.
OrdinarySoul
in
My Ovacome
2 years ago
‘pseudo cyst’ post hysterectomy/ovary removal - any experiences?
Im a few years post
hysterectomy
and ovaries removed and been have had bouts of severe pain in my left lower pelvis and bowel issues, resulted in referral to endo specialist again. MRI has shown a ‘pseudo cyst’ (looks to be old debris and blood Incase in scar tissue?) measures 6x4cm.
Im a few years post
hysterectomy
and ovaries removed and been have had bouts of severe pain in my left lower pelvis and bowel issues, resulted in referral to endo specialist again. MRI has shown a ‘pseudo cyst’ (looks to be old debris and blood Incase in scar tissue?) measures 6x4cm.
Rockflower
in
Endometriosis UK
2 years ago
Endo spread to bowel and bladder stage
The surgeon had said a bowel and bladder specialist with have to be at the
hysterectomy
surgery. When you Google full pelivc clearance it can mean the bowel comes out too. Drs have just been very vague so I was wondering has anyone else been threw anything similar? Sorry that's long
The surgeon had said a bowel and bladder specialist with have to be at the
hysterectomy
surgery. When you Google full pelivc clearance it can mean the bowel comes out too. Drs have just been very vague so I was wondering has anyone else been threw anything similar? Sorry that's long
Clairevhet
in
Endometriosis UK
2 years ago
Second opinion
I went back to my gyne non endo specialist and I had a total
hysterectomy
everything removed but the upper right quadrant pain continues.
I went back to my gyne non endo specialist and I had a total
hysterectomy
everything removed but the upper right quadrant pain continues.
MyStar86
in
Endometriosis UK
2 years ago
Prostap advice
Im that fed up i feel like just going for the full
hysterectomy
and having it all took away but scared of side effects
Im that fed up i feel like just going for the full
hysterectomy
and having it all took away but scared of side effects
Ruby14
in
Endometriosis UK
2 years ago
pain at the end of peeing 4 months after op
so I had a abdominal
hysterectomy
leaving overies 4 months ago for endo the daily pain has gone but I'm having pain at the end of urinating and when I've eaten is this normal? ?xx
so I had a abdominal
hysterectomy
leaving overies 4 months ago for endo the daily pain has gone but I'm having pain at the end of urinating and when I've eaten is this normal? ?xx
Bubblepoppy
in
Endometriosis UK
2 years ago
injections to start menopause
I have just started these injections last Thursday and I'm being kept on them for 4months they are then going to decide whether to give me another laporoscopy or a
hysterectomy
. Did anybody else suffer with there endo pains more after getting the injection?
I have just started these injections last Thursday and I'm being kept on them for 4months they are then going to decide whether to give me another laporoscopy or a
hysterectomy
. Did anybody else suffer with there endo pains more after getting the injection?
Lsm90
in
Endometriosis UK
2 years ago
Zoladex for adhesions, cysts and Adeno
My Gynae team are discussing a
hysterectomy
because my symptoms are so bad but are clearly concerned because of all the adhesions, and are doing all they can not to have to operate. Has anyone else been in this situation? Did the zoladex work well enough for you to avoid surgery?
My Gynae team are discussing a
hysterectomy
because my symptoms are so bad but are clearly concerned because of all the adhesions, and are doing all they can not to have to operate. Has anyone else been in this situation? Did the zoladex work well enough for you to avoid surgery?
43runs
in
Endometriosis UK
2 years ago
Laparoscopy
I would like to have one done to find out more of what’s going on and too possibly think about a
hysterectomy
. Would do I have to do to be able to get one done? Thank you☺️x
I would like to have one done to find out more of what’s going on and too possibly think about a
hysterectomy
. Would do I have to do to be able to get one done? Thank you☺️x
Haggis21
in
PCOS UK (Verity)
2 years ago
mirena coil help
My surgeon is reluctant to perform a
hysterectomy
because he said i have too much scaring and the risks are extremely high. He suggested the mirena coil. I have had this previously (about 9 years ago) my mood was so low but the drs said it wasnt to do with the coil.
My surgeon is reluctant to perform a
hysterectomy
because he said i have too much scaring and the risks are extremely high. He suggested the mirena coil. I have had this previously (about 9 years ago) my mood was so low but the drs said it wasnt to do with the coil.
Sapphire2021
in
Endometriosis UK
2 years ago
Hysterectomy on complex ovarian cyst
I had a total
hysterectomy
4 days ago to remove a 13cm complex cyst. My ca125 was 55 I am 57 years old The cyst had twisted and caused severe pain right 2 days before my planned surgery 🙄 Im recovering well but conaultant said can take around 3 weeks for the lab results/pathology of the cyst.
I had a total
hysterectomy
4 days ago to remove a 13cm complex cyst. My ca125 was 55 I am 57 years old The cyst had twisted and caused severe pain right 2 days before my planned surgery 🙄 Im recovering well but conaultant said can take around 3 weeks for the lab results/pathology of the cyst.
Weeworrier
in
My Ovacome
2 years ago
Still swollen tummy 10 months after radical surgery, anyone?
I had a 10 hour, keyhole, OC operation, removing half my stomach, some omentum, appendix, complete
hysterectomy
, and a few other procedures last October. The surgery was miraculous. I am now on 400mg Olaparib.
I had a 10 hour, keyhole, OC operation, removing half my stomach, some omentum, appendix, complete
hysterectomy
, and a few other procedures last October. The surgery was miraculous. I am now on 400mg Olaparib.
Trickysite
in
My Ovacome
2 years ago
Total Hysterectomy Advice
Has anyone had the full
hysterectomy
with ovaries removed??? Did it help with the endometriosis?
Has anyone had the full
hysterectomy
with ovaries removed??? Did it help with the endometriosis?
NeedsHelpx
in
Endometriosis UK
2 years ago
Zoladex
I am currently on Zoladex every 28 days (had 2nd injection) to shrink fibroids before I have a
hysterectomy
. I wanted to ask if anyone had this injection for a similar thing and what symptoms they experienced? am worried because today I ve started bleeding slightly.
I am currently on Zoladex every 28 days (had 2nd injection) to shrink fibroids before I have a
hysterectomy
. I wanted to ask if anyone had this injection for a similar thing and what symptoms they experienced? am worried because today I ve started bleeding slightly.
Bassem1979
in
Menopause and Perimenopause Support
2 years ago
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