I was just wondering if anybody on here had experience with the injections to bring on menopause. I have just started these injections last Thursday and I'm being kept on them for 4months they are then going to decide whether to give me another laporoscopy or a hysterectomy. Did anybody else suffer with there endo pains more after getting the injection? Also have they helped with anyone's pains?I appreciate any info thank you
injections to start menopause - Endometriosis UK
injections to start menopause
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Hello, I had the menopause injections too for the same amount of time,my Endo pain was so bad throughout as well as the menopause side effects my GP actually took me off them sooner as it was causing more problems than good x
Hiya. I was on Zoladex for 12months, with addback HRT (Tibolone) for the last 7 months. The menopausal symptoms were not pleasant, but for me my quality of life was much improved. Not all pain went away but it was much much easier to manage. I've been off the injections since April and my cycle came back fairly quickly - I've had 3 periods now. Been a real struggle and my gynae wants me to go back on Zoladex for 6 months while I wait for my referral to an endo specialist. I'm not thrilled at the prospect but I'm struggling at the mo so it's probably my best option.
The chemical menopause has it's downsides and people react differently to it. I had a generally good experience though, it helped give me a break and a bit of my life back. I was able to do more consistent exercise, got on top of some of my gut issues and was promoted at work (despite having menopause brain at times!).... now I'm taking time off sick each month, constantly chasing my tail and feeling awful.
Hope my perspective helps a little. Good luck and take care xx
Hi honey, I was on zoladex implant injection for three months initially it helped with the pain a little but by my third injection I was having a partial allergic reaction to the zoladex got a really itchy rash all over my body in month three, my hair started falling out. Luckily I was taken off it, my hair grew back thankfully but due to all the stress my hair turned white, I had a bit of greying before hand but it's bright white now although they think that is due to the stress of the pain. I'm just about to have a laparoscopic investigation & double bilateral cystectomy and biopsy of peritoneum. I have two endometriomas on my ovaries that they have seen on ultrasound but they have not given me an mri scan at any point.
I have extreme levels of pain, currently on 14 different prescriptions including liquid morphine for break through pain I'm on a shed load of dihydrocodeine and naproxen and anti sickness- cyclizine buscopan -stomach as well as a stomach liner and also on baclofen - this can be an alternative when some of the opiate based pain killers are not working so well - it's actually a medication for MS but because my endo causes so much muscle and tissue cramping and tensing it really helps ease the tension when I get huge abdominal swelling and incredibly severe pain. Alot of the medications don't work well by themselves but my pharmacist has found a combination that helps a little. I'm still in agony most days but my operation is on the 16/08/2022.
My problems started about 5 years ago noticeably but when I think back the pains worsened initially probably before then but my gp wouldn't refer me to gynaecology and my ultrasounds kept coming back blank until just after the pandemic hit then suddenly I had an endometrioma that needed removing via operation on the scan and then another one appeared about 3months later on another ultrasound. I only found out it was endometriosis about 2 years ago when my pains got really bad as I kept getting dismissed by the GP before that last Ultrasound. I hope the injections start to work for you like I said 1st month was useful,2nd was worse and 3rd was awful but people react to zoladex implant injections in all sorts of ways. Some people get none of the side effects and ir works really well others like me have bodys that reject it over time. I don't know if any of this is useful for you but I hope you get your pain under control I wouldn't wish this pain on anybody.
Best Wishes for the future and you are not alone.
Many women struggle with this condition and can help support you through it. Keep fighting, you can overcome this. xx
Hi for posting this because iv been offered to take them but yes I won't be now wasnt considering it but yes my consultant said u will get roses and thorns so just prepare yourself .
HiiI understand your fears and hesitations
I had my 4th Decapeptyl injection ( Brand name Dipheraline) abt 10 days ago. So far the boldest side effect is hot flashes, to a point sometimes that I think I have fever and occasionally accompany with chills but compare to Lupron injections I had 4 yrs ago these are a breeze!
The first month I started dipheraline back in April I had two periods 15 days apart and lots of endo pain and but after that no period and no pain.
Dr gave me these injections to help reducing size or bleeding before my myomectomy/ adenomyomectomy/ cystectomy and endo removal operation which I had recently! It’s not all of it they did also fimbrioplasty( yes 5 operations in 1) huh
But so far everything’s good although I have to do another 5 injections still, total of 9, dr says it needs to be done to help get rid of all endo - he said despite removing almost all of it there might be still some adherent to my bowel which wud need a bowel surgery he does not recommend to have it.
I was so afraid of the horrible experience I had with Lupron I tried to avoid these injections I thought they are similar but do far other than terrible hot flashes I am good for most part.
I havent started ad back yet dr gave me Diane for the last three month of injections only. I tried to find similar approaches using Diane as ad back but so far couldn’t.
With Lupron I got another ad back named notthindrone.
I hope you get good results as well.