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Anybody had multiple surgeries to remove endo, then total hysterectomy?
I'm trying to get some advice from any ladies who have had multiple laparoscopies to remove endometriosis and then ended up eventually having a total hysterectomy (uterus + ovaries removed). How did you decide when it was enough and then decide to have the hysterectomy? At what age did you decide on
I'm trying to get some advice from any ladies who have had multiple laparoscopies to remove endometriosis and then ended up eventually having a total hysterectomy (uterus + ovaries removed). How did you decide when it was enough and then decide to have the hysterectomy? At what age did you decide on
ciaotuffy
in
Endometriosis UK
3 years ago
Adenomyosis pre op help.
Hi, I’m new on here but have suffered with endo for a long time. I’ve had 3 ops to date and my 4th is fast approaching. This time they are going to take away affected tissue and muscle inside my womb. There is a chance I could end up with a hysterectomy. I’m approaching 30 and have one child. I’ve spent
Hi, I’m new on here but have suffered with endo for a long time. I’ve had 3 ops to date and my 4th is fast approaching. This time they are going to take away affected tissue and muscle inside my womb. There is a chance I could end up with a hysterectomy. I’m approaching 30 and have one child. I’ve spent
Chantss
in
Endometriosis UK
3 years ago
Endo adhesion advice
Hi I had a laparoscopy in October last year to remove adhesions from my bowel and uterus area my consultant also did a partial hysterectomy It’s now nearly 6 months on my consultant said u should be fully recovered from October op by now But I now have the following symptoms daily : Constant pain
Hi I had a laparoscopy in October last year to remove adhesions from my bowel and uterus area my consultant also did a partial hysterectomy It’s now nearly 6 months on my consultant said u should be fully recovered from October op by now But I now have the following symptoms daily : Constant pain
cathhomer
in
Endometriosis UK
3 years ago
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Surgical Menopause - Estradiol gel dose???
Hi all, Anyone who takes estradiol gel for menopause, please may I ask how many pumps you apply each day? I had a total hysterectomy a year ago (everything removed including tubes ovaries cervix) which of course meant I started surgical menopause straight away. After 6 weeks I was prescribed Estradiol
Hi all, Anyone who takes estradiol gel for menopause, please may I ask how many pumps you apply each day? I had a total hysterectomy a year ago (everything removed including tubes ovaries cervix) which of course meant I started surgical menopause straight away. After 6 weeks I was prescribed Estradiol
Mashtikka
in
Endometriosis UK
3 years ago
Can adenomyosis hurt all the time?
So I’ve been diagnosed with adenomyosis. I’ve always had bad periods but since November the pain is intense and it’s all the time. It got so bad that I couldn’t walk. Now I’m on nerve blockers it is slightly easier, but every evening I’m in so much pain, and when I turn in my sleep it wakes me up with
So I’ve been diagnosed with adenomyosis. I’ve always had bad periods but since November the pain is intense and it’s all the time. It got so bad that I couldn’t walk. Now I’m on nerve blockers it is slightly easier, but every evening I’m in so much pain, and when I turn in my sleep it wakes me up with
Jasmineleah
in
Endometriosis UK
3 years ago
Im stuck and feel no-one will help me
I was told at 22 i had endometriosis after i had bled and was in constant pain for a full 5 years since i was 18 with only 26 days break during that time. I continued to suffer having tests with no relief,I had 2 lap surgeries that the hospital has lost the records of, i had migrated cells burned away
I was told at 22 i had endometriosis after i had bled and was in constant pain for a full 5 years since i was 18 with only 26 days break during that time. I continued to suffer having tests with no relief,I had 2 lap surgeries that the hospital has lost the records of, i had migrated cells burned away
Kdrw
in
Endometriosis UK
3 years ago
Endo after hysterectomy
I am 14 mths post hysterectomy and still getting endo flare ups. My consultant says it’s phantom organ syndrome- I’m struggling to manage the pain. Can anyone offer me some advice?
I am 14 mths post hysterectomy and still getting endo flare ups. My consultant says it’s phantom organ syndrome- I’m struggling to manage the pain. Can anyone offer me some advice?
Snowstorm81
in
Endometriosis UK
3 years ago
What treatments have you had for endometriosis?
I was diagnosed with endometriosis last year after a laparoscopy and ablation. I was advised after to take the mini pill as I get migraines and can't take the combined. My symptoms kept getting worse and it was decided by me and my GP to try the Mirena coil. I had it fitted 3 weeks ago and know I need
I was diagnosed with endometriosis last year after a laparoscopy and ablation. I was advised after to take the mini pill as I get migraines and can't take the combined. My symptoms kept getting worse and it was decided by me and my GP to try the Mirena coil. I had it fitted 3 weeks ago and know I need
YorkieNiko
in
Endometriosis UK
3 years ago
After effects of Prostap, the menopause or codeine withdrawal? 🤦🏼♀️
Hi everyone, I’m struggling to work out what’s going on with my symptoms as they seem to be possible for all of the above! I had a total hysterectomy (kept my ovaries) on 13th March, my last Prostap injection two weeks before that and I’m working my way off 240mg of codeine. I get the worst hot sweats
Hi everyone, I’m struggling to work out what’s going on with my symptoms as they seem to be possible for all of the above! I had a total hysterectomy (kept my ovaries) on 13th March, my last Prostap injection two weeks before that and I’m working my way off 240mg of codeine. I get the worst hot sweats
Vickster23
in
Endometriosis UK
3 years ago
I had a hysterectomy about four years ago as was in so much pain both day and night . I was told after this operation I had endometriosis.
This is attached to scar tissue so not easy to improve as could do more damage than relief???
This is attached to scar tissue so not easy to improve as could do more damage than relief???
Tmoon69
in
Endometriosis UK
3 years ago
Can I request a hysterectomy?
I have deep infiltrating endo on my bowel as well as a 5cm endometrioma on my left ovary and a polyp on my womb. I went to see an endo specialist this week who was very helpful and understanding and is going to put me forward for a laparoscopy. She is however waiting to have meeting this coming week
I have deep infiltrating endo on my bowel as well as a 5cm endometrioma on my left ovary and a polyp on my womb. I went to see an endo specialist this week who was very helpful and understanding and is going to put me forward for a laparoscopy. She is however waiting to have meeting this coming week
Emma-Hold
in
Endometriosis UK
3 years ago
Hysterectomy in Dec 20 bowel issues and right side pain since just a loss what to do next
I had a hysterectomy full one in December 2020 confirming adenmyosis. Two weeks after surgery severe right hand side pain occurred and after an X-ray and ct bowels confirmed as impacted. Lots of hospital stays and distended bowel. Colonoscopy done 20 biopsies all clear and some inflammation in top and
I had a hysterectomy full one in December 2020 confirming adenmyosis. Two weeks after surgery severe right hand side pain occurred and after an X-ray and ct bowels confirmed as impacted. Lots of hospital stays and distended bowel. Colonoscopy done 20 biopsies all clear and some inflammation in top and
Rainbowblues
in
Pelvic Pain Support Network
3 years ago
Hormone treatment
Hello guys, hope everyone is okay. I've been suffering with endometriosis symptoms for the past 13 years, and finally I'm having it looked into. I've been told that they wanna switch me from the pill to the mirena coil as this will help symptoms, they don't want to do surgery as I don't have children
Hello guys, hope everyone is okay. I've been suffering with endometriosis symptoms for the past 13 years, and finally I'm having it looked into. I've been told that they wanna switch me from the pill to the mirena coil as this will help symptoms, they don't want to do surgery as I don't have children
Mam1993
in
Endometriosis UK
3 years ago
Zoladex and Mirena question? Need help.
Okay so I’ve been on zoladex for two years awaiting a hysterectomy but due to covid the waiting list is so long they have taken me off the zoladex as the gynae doesn’t want me on it any more. So I had a Mirena fitted a week ago with the hope it will keep my periods away. My next zoladex would have been
Okay so I’ve been on zoladex for two years awaiting a hysterectomy but due to covid the waiting list is so long they have taken me off the zoladex as the gynae doesn’t want me on it any more. So I had a Mirena fitted a week ago with the hope it will keep my periods away. My next zoladex would have been
MiyazakiGirl
in
Endometriosis UK
3 years ago
Bulky uterus - Adenomyosis?
Hi, I have a question you might be able to help me with. From the last ultrasound I had, the gynaecologist who did the scan wrote in the follow up letter that I have a "bulky uterus". I've looked that up online, and as far as I can understand it, I think that means I'm likely to have adenomyosis. I
Hi, I have a question you might be able to help me with. From the last ultrasound I had, the gynaecologist who did the scan wrote in the follow up letter that I have a "bulky uterus". I've looked that up online, and as far as I can understand it, I think that means I'm likely to have adenomyosis. I
Hidden
in
Adenomyosis Advice Association
3 years ago
Monitoring while on prostap and awaiting surgery?
It's coming up to 6 months of being on prostap and 3 months on Tibolone and my consultant wants me to continue on them. I am on the waiting list for a hysterectomy and my ovaries removed due to stage 4 endo, adenomyosis and an endometrioma, with bowel involvement (7 months on waiting list). I'm wondering
It's coming up to 6 months of being on prostap and 3 months on Tibolone and my consultant wants me to continue on them. I am on the waiting list for a hysterectomy and my ovaries removed due to stage 4 endo, adenomyosis and an endometrioma, with bowel involvement (7 months on waiting list). I'm wondering
77yellow
in
Endometriosis UK
3 years ago
Does a hysterectomy work ?
Hi, has anyone else had a hysterectomy for a prolapse ? My GP has said I'm now having a rectocele as well as my prolapsed bladder. I have a ring pessary, which has worked up until now and use Vagifem as well. I'm 68. My question is does a hysterectomy work ?
Hi, has anyone else had a hysterectomy for a prolapse ? My GP has said I'm now having a rectocele as well as my prolapsed bladder. I have a ring pessary, which has worked up until now and use Vagifem as well. I'm 68. My question is does a hysterectomy work ?
Keys2theworld
in
Pelvic Pain Support Network
3 years ago
Can Endometriosis still survive 20 years post hysterectomy if taking Oestrogen ?
I'm new to this group and apologise if this seems a silly question after all this time, but can my endometriosis come back and trouble me if I restart oestrogen? Some basic background re my concern. In 2001 I had an hysterectomy which included removal of my womb, ovaries and most of my cervix. I was
I'm new to this group and apologise if this seems a silly question after all this time, but can my endometriosis come back and trouble me if I restart oestrogen? Some basic background re my concern. In 2001 I had an hysterectomy which included removal of my womb, ovaries and most of my cervix. I was
Annjeo
in
Endometriosis UK
3 years ago
Uterine fibroid condition
Aged 53. Still having heavy painful period. Diagnosed as womb covered in fibroids and will likely need a hysterectomy. Currently on NHS waiting list. Finding condition debilitating physically and emotionally, is this common or just me? So lethargic most of the time abs sometimes feel anxious. I take
Aged 53. Still having heavy painful period. Diagnosed as womb covered in fibroids and will likely need a hysterectomy. Currently on NHS waiting list. Finding condition debilitating physically and emotionally, is this common or just me? So lethargic most of the time abs sometimes feel anxious. I take
Beveridge1
in
Pelvic Pain Support Network
3 years ago
Are these symptoms typical 2 weeks post op?
I had my hysterectomy 2 1/2 weeks ago. I have had my uterus, cervix and fallopian tubes removed. I lost 1/2 litre of blood during surgery so I have been given ferrous sulfate to take for a month. Blood pressure is at the lower end of ok. But still, it's ok :) I have two questions... I am feeling dizzy
I had my hysterectomy 2 1/2 weeks ago. I have had my uterus, cervix and fallopian tubes removed. I lost 1/2 litre of blood during surgery so I have been given ferrous sulfate to take for a month. Blood pressure is at the lower end of ok. But still, it's ok :) I have two questions... I am feeling dizzy
hunnypot93
in
Healthy Happy Woman
3 years ago
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