Im stuck and feel no-one will help me

[Kdrw]

I was told at 22 i had endometriosis after i had bled and was in constant pain for a full 5 years since i was 18 with only 26 days break during that time. I continued to suffer having tests with no relief,I had 2 lap surgeries that the hospital has lost the records of, i had migrated cells burned away from my vagina and cervix area and some of the lining of my womb removed. Finally at the age of 27 i was put on the prostap 3 monthly injections to help stop the pain and bleeding, it did help at the time! After having the injections for 2 years my gp told me i couldn't have anymore as i had already had too many and that my only option was an hysterectomy. My gynecology consultant refused calling my fat telling me i dont have endometriosis as they have no evidence due to lost records and said i was too young for the procedure. So i have been left to suffer with no help! While on the injections i was having the normal side effects of menopause such as hot flushes mood swings ect so i was put on hrt, these helped the side effects but caused problems of there own such as migraines and high blood pressure, these subsided after about 8 weeks once prostap was ended and i was able to stop the hrt. My body hasnt been the same since im now 31 its been 2 years since my last injection ive only had 1 real period since stoping the prostap i loose the odd spots of "dead blood" for a day every 6 -12 weeks, I have started having the hot flushes and mood swings again, the pain in my stomach is still there but the doctor is now refusing prescribed pain relief due ti being on the high strength for so long, im loosing my hair in clumps, one of my breast have shrank two cup sizes smaller than the other and is very painful, i feel like im falling apart, my gums bleed yet are very healthy, i have migrains, blackouts and rosacea and all i keep being told by doctors is "its all hormone related" yet none are willing to test my hormone levels to find out why im suffering, they keeps doing different tests scans, cameras, bloodtests ect testing various different things that all come back as normal but still they wont test the very thing they keep blaming my symptoms on. I was told by the breast consultant i saw that my problems could be caused by damage due to the prostap but can't be sure what other damage it may have caused she also thinks my body may have gone into premature menopause due to the prostap messing up my hormone levels. So she thinks my doctor is scared to do the tests on my hormones as if the injection is to blame she said they would be at fault for giving them to me for longer than i was prescribed. Im stuck as i feel shit im in pain all the time but the doctors won't help me. Has anyone had anything similar after stopping prostap?

[Heloo85]

That sound horrific. Have you thought about getting a private blood test done?

I’m not sure what the cost would be however!

I have read of people being on prostrap long term! But it is only supposed to be prescribed for 6 months! It can take a long time for things to settle back again! So I wouldn’t give up hope, that things may sort themselves out!

Best of luck xx

[Peenie123]

You need to change GP or see if there is an emergency gynae clinic at your hospital- your health must come first. Can you ask someone to help you do this as I know I get stressed and tearful when trying to advocate for myself and get anywhere with medical problems/ keep pushing to get better treatment xx