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Just needing a vent
I am feeling really fed up right now. I got diagnosed about 2 weeks ago with pots and then 2 days later was in hospital with kidney stones. Got released just on time to make a family trip to London so had lots of painkillers to get through it but still managed to enjoy it. I came home and went to gp
I am feeling really fed up right now. I got diagnosed about 2 weeks ago with pots and then 2 days later was in hospital with kidney stones. Got released just on time to make a family trip to London so had lots of painkillers to get through it but still managed to enjoy it. I came home and went to gp
Elizahl
in
Fibromyalgia Action UK
10 months ago
Metastatic PC
First diagnosed in 2017 with high grade PCand put on hormone therapy until Nov. 2019. At that time I had 28 radiation treatments and PSA dropped to 0.05. No therapy from Jan 2023 and ongoing. PSA started rising in early 2023 from 0.05, 0.08, 0.66, to 2.8 in June 2023. PSMA Pet scan shows the cancer
First diagnosed in 2017 with high grade PCand put on hormone therapy until Nov. 2019. At that time I had 28 radiation treatments and PSA dropped to 0.05. No therapy from Jan 2023 and ongoing. PSA started rising in early 2023 from 0.05, 0.08, 0.66, to 2.8 in June 2023. PSMA Pet scan shows the cancer
saniku
in
Advanced Prostate Cancer
10 months ago
Involvement Opportunity - PRaCTicAL Research Project (UK)
The British Liver Trust are excited to be working with NHS Lothian, University of Edinburgh, Scottish National Blood Transfusion Services (SNBTS) and Cell and Gene Therapy Catapult as part of a collaboration to create the first ‘Centre for Precision Cell Therapy for the Liver’ in the world. PRaCTicAL
The British Liver Trust are excited to be working with NHS Lothian, University of Edinburgh, Scottish National Blood Transfusion Services (SNBTS) and Cell and Gene Therapy Catapult as part of a collaboration to create the first ‘Centre for Precision Cell Therapy for the Liver’ in the world. PRaCTicAL
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
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? Ashwagandha and Maca Root If Hypo
Hi.If anyone who regularly uses Ashwagandha and/or Maca Root, I would love to hear of their experience taking these. I have recently read that both Ashwagandha and Maca Root are natural ways to help rebalance hormones in menopausal women. I am not sure though, if they adversely affect thyroid meds.
Hi.If anyone who regularly uses Ashwagandha and/or Maca Root, I would love to hear of their experience taking these. I have recently read that both Ashwagandha and Maca Root are natural ways to help rebalance hormones in menopausal women. I am not sure though, if they adversely affect thyroid meds.
Hidden
in
Thyroid UK
10 months ago
Weight LOSS on ADT
Hey all. I was diagnosed with PCa Oct. 2018. After radiation, Zytiga and Lupron, my PSA dropped to no-detect, where it has stayed for the past 3+ years. All very good news, right? Yes....mostly. Though I've dealt with continuing hot flashes and fatigue, my big concern right now is weight loss. I'm normally
Hey all. I was diagnosed with PCa Oct. 2018. After radiation, Zytiga and Lupron, my PSA dropped to no-detect, where it has stayed for the past 3+ years. All very good news, right? Yes....mostly. Though I've dealt with continuing hot flashes and fatigue, my big concern right now is weight loss. I'm normally
LessPaul
in
Advanced Prostate Cancer
10 months ago
Hrt - 1st try at 60 plus year olds
Advice from ladies in mid 60's first time on hrt purely for anxiety. Side effects, to risk going on it in later life
Advice from ladies in mid 60's first time on hrt purely for anxiety. Side effects, to risk going on it in later life
Chi1504
in
Anxiety and Depression Support
10 months ago
menopause
Decided not to take HRT as it will feed a fibroid I’ve got and also my thyroid has gone under active so need to get that to a good level. I just wanted to ask what supplements you ladies take to help with the menopause and how it’s helped you. Thanks in advance
Decided not to take HRT as it will feed a fibroid I’ve got and also my thyroid has gone under active so need to get that to a good level. I just wanted to ask what supplements you ladies take to help with the menopause and how it’s helped you. Thanks in advance
Sammmy
in
Thyroid UK
10 months ago
Goserelin - side effects profile variability between implants
OK, I know that living with PCa can play havoc with my relationship with reality that uncertainty is about the only sure fire certainty. So I am aware that the side effects of ADT are both real and yet also exacerbated or lessened by my mood, which of course is also subject to the impact of having
OK, I know that living with PCa can play havoc with my relationship with reality that uncertainty is about the only sure fire certainty. So I am aware that the side effects of ADT are both real and yet also exacerbated or lessened by my mood, which of course is also subject to the impact of having
SimMartin
in
Advanced Prostate Cancer
10 months ago
shoulder replacement
hi I am a 72 year old F. and I am down To have a total shoulder replacement shortly,, due to RA eating at the joint specialist says it’s a big op , just enquiring if anyone has had this done recently and any advice for me eg what type of pillow do you need and wat sort of clothes can you recommend
hi I am a 72 year old F. and I am down To have a total shoulder replacement shortly,, due to RA eating at the joint specialist says it’s a big op , just enquiring if anyone has had this done recently and any advice for me eg what type of pillow do you need and wat sort of clothes can you recommend
Tobymax35
in
NRAS
1 year ago
ADT Prostaplan
I have been on this with an implant every 3 months, What is the usa equivalent? I have never seen this mentioned in any discussions and need to know more from anyone on the same treatment. pros and cons
I have been on this with an implant every 3 months, What is the usa equivalent? I have never seen this mentioned in any discussions and need to know more from anyone on the same treatment. pros and cons
Stevegr
in
Advanced Prostate Cancer
10 months ago
Light Therapy for PD
Greetings to you all. I have a question about light therapy. What is the latest research showing? I’m a little overwhelmed by the number of different devices out there, and particularly the different frequencies that are being recommended… 810, 1070, blue light… etc! Can anybody give me some advice
Greetings to you all. I have a question about light therapy. What is the latest research showing? I’m a little overwhelmed by the number of different devices out there, and particularly the different frequencies that are being recommended… 810, 1070, blue light… etc! Can anybody give me some advice
Jojaku123
in
Cure Parkinson's
1 year ago
Total Hip Replacement tomorrow - yay!
So having been in a lot of pain with my right hip since last September and staving it off with injections, finally I am going into hospital tomorrow for a total hip replacement. Feeling grateful but trepidacious. Have read Dorset Lady’s tips - thank you for those - and have taken them onboard. Doing
So having been in a lot of pain with my right hip since last September and staving it off with injections, finally I am going into hospital tomorrow for a total hip replacement. Feeling grateful but trepidacious. Have read Dorset Lady’s tips - thank you for those - and have taken them onboard. Doing
SusyTe
in
PMRGCAuk
10 months ago
Oxygen Therapy
Hi I have. Bronchiectasis/Asthma. I seem to have my asthma attacks reasonably under control at the moment but I do have the odd severe attacks. Often keeping me awake at night and leaving me exhausted in the mornings. I sometimes pant for air and my lung function readings are only 250ish with Blood
Hi I have. Bronchiectasis/Asthma. I seem to have my asthma attacks reasonably under control at the moment but I do have the odd severe attacks. Often keeping me awake at night and leaving me exhausted in the mornings. I sometimes pant for air and my lung function readings are only 250ish with Blood
Batman1313
in
Bronchiectasis Support
2 years ago
Darolutimide as monotherapy
I know there has been a phase 2 trial (EORTC-GUCG 1532 trial) testing the efficacy of Darolutimide as monotherapy and was wondering if anyone outside of the trial has done this. The phase 2 triall seemed to show that it could be very effective in lowering PSA. Since it doesn't actually stop testosterone
I know there has been a phase 2 trial (EORTC-GUCG 1532 trial) testing the efficacy of Darolutimide as monotherapy and was wondering if anyone outside of the trial has done this. The phase 2 triall seemed to show that it could be very effective in lowering PSA. Since it doesn't actually stop testosterone
RugbyVLS
in
Advanced Prostate Cancer
10 months ago
On vacation!
Didn't think I would ever go on an ADT vacation. My new urologist thinks it would be a good idea since I have several SE from my MDS-RS with the worst being fatigue added to my ADT fatigue. Have been on Eligard after radiation for 3 yrs. with PSA undetectable. Am sure in my mind that the radiation
Didn't think I would ever go on an ADT vacation. My new urologist thinks it would be a good idea since I have several SE from my MDS-RS with the worst being fatigue added to my ADT fatigue. Have been on Eligard after radiation for 3 yrs. with PSA undetectable. Am sure in my mind that the radiation
SpencerBoy11
in
Advanced Prostate Cancer
10 months ago
bone strength
Here’s a good detailed explanation of how exercise works to strengthen bones. I’ve always concentrated on muscle building and muscle strength and endurance, but an important part is the bone strengthening that also occurs. Even more important now that I’m on ADT. https://youtu.be/1gToyjm4NNA
Here’s a good detailed explanation of how exercise works to strengthen bones. I’ve always concentrated on muscle building and muscle strength and endurance, but an important part is the bone strengthening that also occurs. Even more important now that I’m on ADT. https://youtu.be/1gToyjm4NNA
Gym-rat
in
Advanced Prostate Cancer
10 months ago
Are PSMA negative mets usually castrate resistant?
I had 2 clear PSMA-PETs (at a PSA of 2 & then 4) so Dr. Scholz recommended I get an FDG PET. Low and behold 3 decent sized mets showed up. In my subsequent research it seems like all the published articles describe the PSMA negative mets as being castrate resistant. Zytiga/Lupron was effective before
I had 2 clear PSMA-PETs (at a PSA of 2 & then 4) so Dr. Scholz recommended I get an FDG PET. Low and behold 3 decent sized mets showed up. In my subsequent research it seems like all the published articles describe the PSMA negative mets as being castrate resistant. Zytiga/Lupron was effective before
V10fanatic
in
Advanced Prostate Cancer
11 months ago
3 years Post-VRMAT-RT & ADT
After 3 years my PSA went from
20.3 μg/L
down to <
0.01 μg/L
and Testosterone from
438.04ng/dL
down to
60.52 ng/dL
🙈🙉🙊. As of July 07, 2023. How much longer do I have to wait for a more normal Testosterone Totale. I like my PSA that low but a little bit higher. Recently
After 3 years my PSA went from
20.3 μg/L
down to <
0.01 μg/L
and Testosterone from
438.04ng/dL
down to
60.52 ng/dL
🙈🙉🙊. As of July 07, 2023. How much longer do I have to wait for a more normal Testosterone Totale. I like my PSA that low but a little bit higher. Recently
doc1947g
in
Advanced Prostate Cancer
11 months ago
Sweet!
Had 2nd of 90 days Lupron Feb 1-23 as adjuvant 6-month ADT therapy with my Salvage IMRT. First PSA test yesterday and T level. Undetectable (less than .006 uPSA) and T level of 30. Here's to hoping it stays down. I know BCR may happen over the long run with SVI, PNI, bladder neck, and surgical margins
Had 2nd of 90 days Lupron Feb 1-23 as adjuvant 6-month ADT therapy with my Salvage IMRT. First PSA test yesterday and T level. Undetectable (less than .006 uPSA) and T level of 30. Here's to hoping it stays down. I know BCR may happen over the long run with SVI, PNI, bladder neck, and surgical margins
runtrails
in
Prostate Cancer Network
10 months ago
strange feeling in leg
hey guys. I know it’s late but I am freaking out!!!! I have a strange feeling in my left leg down the side, almost like pins and needles. I am absolutely assuming the worst ever. Trying my absolute hardest to not google what it could be. I still have feeling and can still put weight on it ect. It’s just
hey guys. I know it’s late but I am freaking out!!!! I have a strange feeling in my left leg down the side, almost like pins and needles. I am absolutely assuming the worst ever. Trying my absolute hardest to not google what it could be. I still have feeling and can still put weight on it ect. It’s just
Littlechopsxo
in
Anxiety and Depression Support
1 year ago
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