Search
Search
About
Log in
Join
Experiences with
Hydroxycarbamide
Posts
Communities
1,147 public posts
Filter results
Anyone else turned down Hydroxycarbamide?
Hi Again, I've now hit 60, and have decided to turn down the Hydroxy recommendation - don't want to take a a chemo drug. Will continue aspirin and 6 monthly monitoring. Feeling fine. Platelets still steady around 570, JAK2+ve. I understand they only start at 65 years age in New Zealand - is it 60 in
Hi Again, I've now hit 60, and have decided to turn down the Hydroxy recommendation - don't want to take a a chemo drug. Will continue aspirin and 6 monthly monitoring. Feeling fine. Platelets still steady around 570, JAK2+ve. I understand they only start at 65 years age in New Zealand - is it 60 in
rdevans
in
MPN Voice
6 years ago
Is This Medical Negligence. High Platlet count unknown to myself for 10 years causing mini stroke & Being diagnosed with ET.
After having the mini stroke i was then diagnosed in the last 2 weeks with ET and now on Clopedogral &
Hydroxycarbamide
.
After having the mini stroke i was then diagnosed in the last 2 weeks with ET and now on Clopedogral &
Hydroxycarbamide
.
Mycancerconcern1
in
MPN Voice
6 years ago
Looking for an alternative hematology specialist.
My wife is back in hospital due to the ineptitude of the hematologist. It is a long contorted story. But to shorten it quickly this hematologist stopped the heparin and replaced it with aspirin, since when she had a bleed into the digestive tract. After visit to A&E and five units of blood her portal
My wife is back in hospital due to the ineptitude of the hematologist. It is a long contorted story. But to shorten it quickly this hematologist stopped the heparin and replaced it with aspirin, since when she had a bleed into the digestive tract. After visit to A&E and five units of blood her portal
jointpain
in
MPN Voice
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Painful teeth
I started
Hydroxycarbamide
in December 500mg weekdays and 1000mg sat and sun. I also take aspirin and have been taking citalopram 20mg since last August. I have now finished the citalopram. Since January I have developed very painful teeth.
I started
Hydroxycarbamide
in December 500mg weekdays and 1000mg sat and sun. I also take aspirin and have been taking citalopram 20mg since last August. I have now finished the citalopram. Since January I have developed very painful teeth.
samwoolrich
in
MPN Voice
6 years ago
Hair loss and hydroxy
I know this should be the least of my concerns about taking hydroxyurea, but .... What are others’ experiences with hair loss, taking 1 capsule per day? I’m crossing all fingers that that dosage doesn’t cause hair to fall out, but that may be just wishful thinking.
I know this should be the least of my concerns about taking hydroxyurea, but .... What are others’ experiences with hair loss, taking 1 capsule per day? I’m crossing all fingers that that dosage doesn’t cause hair to fall out, but that may be just wishful thinking.
WileyFrench
in
MPN Voice
6 years ago
Just took first hydroxy
Well, I did it. After spending most of yesterday worried and anxious, and going back and forth between “I’m not going to take it” and “I’m going to die” (okay, a bit extreme I grant you), I got up this morning, had a bunch of water, which I do anyway, and took the Clopidogrel — and then the Hydroxyurea
Well, I did it. After spending most of yesterday worried and anxious, and going back and forth between “I’m not going to take it” and “I’m going to die” (okay, a bit extreme I grant you), I got up this morning, had a bunch of water, which I do anyway, and took the Clopidogrel — and then the Hydroxyurea
WileyFrench
in
MPN Voice
6 years ago
To hydroxy or not to hydroxy
I’m sorry to keep asking questions as I try to come to terms with what you already have done, but just one more: is there anyone here like me, ET diagnosis with platelets in mid 600s for past year and a half, early 60s, healthy, active and asymptomatic, no plaque build-up in arteries, one mild TIA and
I’m sorry to keep asking questions as I try to come to terms with what you already have done, but just one more: is there anyone here like me, ET diagnosis with platelets in mid 600s for past year and a half, early 60s, healthy, active and asymptomatic, no plaque build-up in arteries, one mild TIA and
WileyFrench
in
MPN Voice
6 years ago
Clopidogrel w/Hydroxyurea
I’m prescribed 1X daily Hydroxyurea for ET. I’m supposed to begin it tomorrow. I’m also now taking the antiplatelet med Clopidogrel. I know it won’t reduce the number of platelets (mid-600s for over a year) but it’s intended to prevent the “stickiness” of the platelets so they can’t clump and form a
I’m prescribed 1X daily Hydroxyurea for ET. I’m supposed to begin it tomorrow. I’m also now taking the antiplatelet med Clopidogrel. I know it won’t reduce the number of platelets (mid-600s for over a year) but it’s intended to prevent the “stickiness” of the platelets so they can’t clump and form a
WileyFrench
in
MPN Voice
6 years ago
Three day headaches.
Been on
Hydroxycarbamide
and aspirin since last October with no real side effects until this. Have others had this and did you get something that worked? Thank you.
Been on
Hydroxycarbamide
and aspirin since last October with no real side effects until this. Have others had this and did you get something that worked? Thank you.
Mica11
in
MPN Voice
6 years ago
Hydroxycarbamide
Hello everyone just a question I have ET, I restarted
Hydroxycarbamide
2 weeks ago I only take it Monday to Friday, I was diagnosed last year but it didn't agree with me, and was put on other meds. So far so good this time. Any way I have a question, I have been to my daughters today.
Hello everyone just a question I have ET, I restarted
Hydroxycarbamide
2 weeks ago I only take it Monday to Friday, I was diagnosed last year but it didn't agree with me, and was put on other meds. So far so good this time. Any way I have a question, I have been to my daughters today.
linphy
in
MPN Voice
6 years ago
Hydroxycarbamide and platelets
Morning everyone. I have PRV Jak 2 + and am due to start on hydroxy next month to control my HCT as it's always raised and regular venesections are causing low ferritin. I read on here often that hydroxy is used to lower platelets in ET patients. However my platelet count ranges from 279 to 379 (normal
Morning everyone. I have PRV Jak 2 + and am due to start on hydroxy next month to control my HCT as it's always raised and regular venesections are causing low ferritin. I read on here often that hydroxy is used to lower platelets in ET patients. However my platelet count ranges from 279 to 379 (normal
Kari1961
in
MPN Voice
6 years ago
Chest infection and cold !
Am I right in thinking that this is because of taking
hydroxycarbamide
and the fact that my immune system is lowered. ? Or am I making that up ?How can I try and boost my immune system? Feeling wretched ! Thankyou☹️
Am I right in thinking that this is because of taking
hydroxycarbamide
and the fact that my immune system is lowered. ? Or am I making that up ?How can I try and boost my immune system? Feeling wretched ! Thankyou☹️
Juliet46
in
MPN Voice
6 years ago
Hydroxy, Midgie and Mozzie bites
This is my first summer since diagnosis and I was just curious having always been breakfast, lunch and dinner to the voracious little Scottish midgie and the foreign mozzie if being on
Hydroxycarbamide
stops them biting you? I have not been bitten yet and that is very unusual.
This is my first summer since diagnosis and I was just curious having always been breakfast, lunch and dinner to the voracious little Scottish midgie and the foreign mozzie if being on
Hydroxycarbamide
stops them biting you? I have not been bitten yet and that is very unusual.
Mica11
in
MPN Voice
6 years ago
ET not cancer, and dental issues
Hi everyone! I am in the USA. I was diagnosed with JAK2+ ET a little over 2 years ago. I saw my new oncologist today and when I mentioned the word “cancer” he became very adamant that ET is not a blood cancer, but a “blood disorder”. He also said that I would be on Hydroxyurea and baby aspirin for the
Hi everyone! I am in the USA. I was diagnosed with JAK2+ ET a little over 2 years ago. I saw my new oncologist today and when I mentioned the word “cancer” he became very adamant that ET is not a blood cancer, but a “blood disorder”. He also said that I would be on Hydroxyurea and baby aspirin for the
BonnieJ
in
MPN Voice
6 years ago
3 Day Headaches
I have been on
Hydroxycarbamide
since I was diagnosed with ET Jak2+ last October. My platelets were measured at a healthy 314 two weeks ago and overall things are good. Week before last I had a 3 day headache, paracetamol didn't touch it.
I have been on
Hydroxycarbamide
since I was diagnosed with ET Jak2+ last October. My platelets were measured at a healthy 314 two weeks ago and overall things are good. Week before last I had a 3 day headache, paracetamol didn't touch it.
Mica11
in
MPN Voice
6 years ago
MF , ET JAK2
Given
Hydroxycarbamide
1000mg daily and Allopurinol for 14 days. My fear is I have just read on McMillon site that the life expectancy of 55yrs plus is approximately 3 years I have been reading on here many of you have MF but not seen anything about life expectancy.
Given
Hydroxycarbamide
1000mg daily and Allopurinol for 14 days. My fear is I have just read on McMillon site that the life expectancy of 55yrs plus is approximately 3 years I have been reading on here many of you have MF but not seen anything about life expectancy.
pontygirl
in
MPN Voice
6 years ago
WHEN TO TAKE PREDNISOLONE
I tried it at the week-end and the symptoms appeared to have decreased a lot but unfortunately the other problem I have is the other medication I have to take first thing in the morning (
hydroxycarbamide
). This gives me symptoms worse than the Prednisolone.
I tried it at the week-end and the symptoms appeared to have decreased a lot but unfortunately the other problem I have is the other medication I have to take first thing in the morning (
hydroxycarbamide
). This gives me symptoms worse than the Prednisolone.
Heather270240
in
PMRGCAuk
6 years ago
High blood pressure
Three months ago I started
Hydroxycarbamide
500 mg daily and Allopurinol 300mg. I had four venesections in total, before the consultant stopped them and increased the dose of Hydroxy to 1000mg mon,wed,fri, and 500mg the remaining days.
Three months ago I started
Hydroxycarbamide
500 mg daily and Allopurinol 300mg. I had four venesections in total, before the consultant stopped them and increased the dose of Hydroxy to 1000mg mon,wed,fri, and 500mg the remaining days.
paddy67
in
MPN Voice
6 years ago
Colouring your hair whiles on hydro
Pls Can you let me know if you can colour your hair whiles on
hydroxycarbamide
? I am on 1 tablet a day. Manu thanks Ela
Pls Can you let me know if you can colour your hair whiles on
hydroxycarbamide
? I am on 1 tablet a day. Manu thanks Ela
Elab
in
MPN Voice
6 years ago
Curcumin tried?
Hi, I'm first time responder. ET since 2006 w/no meds until 2012 when I moved to another state and because platelets were 758K, my new hematologist started me on Anegrilide. After 5 years. I've now been changed to Hydroxyurea (because long-term Anreg can cause bone marrow scarring). So far (6 mos)no
Hi, I'm first time responder. ET since 2006 w/no meds until 2012 when I moved to another state and because platelets were 758K, my new hematologist started me on Anegrilide. After 5 years. I've now been changed to Hydroxyurea (because long-term Anreg can cause bone marrow scarring). So far (6 mos)no
Saine1
in
MPN Voice
6 years ago
1
...
42
43
44
...
58
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
MPN Voice
1094 results
Leukaemia Support
11 results
Sickle Cell Society
10 results
View top 10 communities
Sort by
Most Relevant
Newest