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Experiences with
Hydroxycarbamide
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Cream
Hi MPN family anyone got advice on a cream that works for dry skin with being on
hydroxycarbamide
,tried coconut creams ,aveeno not working any advice would be good
Hi MPN family anyone got advice on a cream that works for dry skin with being on
hydroxycarbamide
,tried coconut creams ,aveeno not working any advice would be good
ChillyAsh34
in
MPN Voice
2 years ago
HYdroxyurea side effects
Hydroxyurea related hearing loss?
Hydroxyurea related hearing loss?
My1pass
in
Thyroid UK
2 years ago
P V diagnosed January 2022
So started me on
Hydroxycarbamide
500mg per day. Suffered headaches and nausea. 2 nd blood test platelets dropped to 560 but red and white still raised. So upped my medication to 2 x 500mg per day then 1x 500mg next day.
So started me on
Hydroxycarbamide
500mg per day. Suffered headaches and nausea. 2 nd blood test platelets dropped to 560 but red and white still raised. So upped my medication to 2 x 500mg per day then 1x 500mg next day.
Mandz12
in
MPN Voice
2 years ago
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Do these results suggest that the MF is progressing?
For the past 3.5 years my wife has been stable platelet wise with her counts at around 300 while on
hydroxycarbamide
every other day and Anagrelide 3 times a day, when things have gone awry it's been because of major bleeds or "experimentation" by her haematologist consultant.
For the past 3.5 years my wife has been stable platelet wise with her counts at around 300 while on
hydroxycarbamide
every other day and Anagrelide 3 times a day, when things have gone awry it's been because of major bleeds or "experimentation" by her haematologist consultant.
jointpain
in
MPN Voice
2 years ago
Hydroxyurea and aspirin.
Who else taking hydroxyurea and aspiriN for treatment et? Is it safe taking both.
Who else taking hydroxyurea and aspiriN for treatment et? Is it safe taking both.
shiela23
in
MPN Voice
2 years ago
Feeling so tired and fed up
Hello all you lovely people, I have not been on here for a while so just a wee update on what's happening in my life with MF: really not much change still on
Hydroxycarbamide
my platelet levels are ok had a scan on my spleen that's ok but my symptoms of pain and fatigue mouth ulcers are just as bad
Hello all you lovely people, I have not been on here for a while so just a wee update on what's happening in my life with MF: really not much change still on
Hydroxycarbamide
my platelet levels are ok had a scan on my spleen that's ok but my symptoms of pain and fatigue mouth ulcers are just as bad
indy22
in
MPN Voice
2 years ago
Request for my views on rux
Hi there I received a request re ruxilitinib. I have to admit that I consider it to have been my “life saver” I was on hydroxyurea from 2007 to 2016 and had dreadful symptoms, constant itching, swollen spleen night sweats, and the most dreadful mouth ulcers and swollen tongue. That was so bad that
Hi there I received a request re ruxilitinib. I have to admit that I consider it to have been my “life saver” I was on hydroxyurea from 2007 to 2016 and had dreadful symptoms, constant itching, swollen spleen night sweats, and the most dreadful mouth ulcers and swollen tongue. That was so bad that
bruddery
in
MPN Voice
2 years ago
What is the maximum safe dose of hydroxyurea/hydroxycarbamide?
I received my first MPN diagnosis about 7 weeks ago: PMF, stage 2, calreticulin positive (52-bp deletion mutant) without other somatic mutations. Initial platelet levels of 950-1200 (prior to Dx) were not reduced significantly by taking 500 mg HU/day, so nearly 2 weeks ago that was increased to 1 g/day
I received my first MPN diagnosis about 7 weeks ago: PMF, stage 2, calreticulin positive (52-bp deletion mutant) without other somatic mutations. Initial platelet levels of 950-1200 (prior to Dx) were not reduced significantly by taking 500 mg HU/day, so nearly 2 weeks ago that was increased to 1 g/day
TLJ-1
in
MPN Voice
2 years ago
no successful with accessing local CMDU for antivirals
I have ET and take
hydroxycarbamide
so I contacted 111 after logging my positive LFT on the NHS website. I followed all the advice on MPN voice and blood cancer UK.
I have ET and take
hydroxycarbamide
so I contacted 111 after logging my positive LFT on the NHS website. I followed all the advice on MPN voice and blood cancer UK.
JabON
in
MPN Voice
2 years ago
New Member
Treated initially with
hydroxycarbamide
and then anagrelide . Really struggled with the side effects of these and I was offered interferon. At this point I just stopped going to the hospital.
Treated initially with
hydroxycarbamide
and then anagrelide . Really struggled with the side effects of these and I was offered interferon. At this point I just stopped going to the hospital.
jacquelineruth2000
in
MPN Voice
2 years ago
Are there any older people with Essential thrombocythemia and Jak2 not taking Hydroxyurea or other similar drug?
Essential thrombocythemia and medications
Essential thrombocythemia and medications
NibsNanna
in
MPN Voice
2 years ago
Questions about switching from hydroxyurea to interferon
I am ET Jak 2 positive, age 71. I have been taking a low-dose, 500 mg of hydroxyurea every three days, for the last year and prior to that I took the same dose every other day. I reduced the dosage even though my platelets have not gone below 600, because I was just too tired with the higher dose.
I am ET Jak 2 positive, age 71. I have been taking a low-dose, 500 mg of hydroxyurea every three days, for the last year and prior to that I took the same dose every other day. I reduced the dosage even though my platelets have not gone below 600, because I was just too tired with the higher dose.
Island-Lady
in
MPN Voice
2 years ago
Second malignancies side effects in hydroxyurea
Hydrea is still considered by many practitioners as the first choice therapy for ET and PV: Patients treated with HU had a significantly higher risk of developing all second malignancies.. https://onlinelibrary.wiley.com/doi/10.1111/ejh.12787 And https://pubmed.ncbi.nlm.nih.gov/24778065/ This again
Hydrea is still considered by many practitioners as the first choice therapy for ET and PV: Patients treated with HU had a significantly higher risk of developing all second malignancies.. https://onlinelibrary.wiley.com/doi/10.1111/ejh.12787 And https://pubmed.ncbi.nlm.nih.gov/24778065/ This again
Paul1993et
in
MPN Voice
2 years ago
Is there a world outside of Hydroxycarbamide for PV?
I had the impression that
Hydroxycarbamide
is the answer and that abdominal symptoms are to be expected and lived with by eating “little and often”. (Doesn’t really help). I feel that I need to catch up a bit!
I had the impression that
Hydroxycarbamide
is the answer and that abdominal symptoms are to be expected and lived with by eating “little and often”. (Doesn’t really help). I feel that I need to catch up a bit!
Barb17
in
MPN Voice
2 years ago
Combining Hydroxy with Anagrelid
Hi, my husband has ET and recently started taking Anagrelid in combination with Hydroxyurea. We noticed today after the lab test that his white blood cells have jumped to 16.93 and I'm kind of worried. Pls I need a clue thanks Thessy
Hi, my husband has ET and recently started taking Anagrelid in combination with Hydroxyurea. We noticed today after the lab test that his white blood cells have jumped to 16.93 and I'm kind of worried. Pls I need a clue thanks Thessy
AdaJesus_Uk
in
MPN Voice
2 years ago
Pneumococcal vaccination
I have ET with Jac2 and take
hydroxycarbamide
and aspirin. Does anyone know, is it ok to have this Pneumococcal Polysaccharide Vaccine? My thanks in advance for your replies. David
I have ET with Jac2 and take
hydroxycarbamide
and aspirin. Does anyone know, is it ok to have this Pneumococcal Polysaccharide Vaccine? My thanks in advance for your replies. David
dabs121
in
MPN Voice
2 years ago
Skin rash
Has anyone suffered with skin rash on
hydroxycarbamide
?
Has anyone suffered with skin rash on
hydroxycarbamide
?
PhilReade
in
MPN Voice
3 years ago
Covid Anti-viral Treatment - Scotland
I have PV and am on
Hydroxycarbamide
. I tested positive for Covid on Tuesday:( Symptoms so far are flu like; cough, runny nose, sore head and neck, fatigue.
I have PV and am on
Hydroxycarbamide
. I tested positive for Covid on Tuesday:( Symptoms so far are flu like; cough, runny nose, sore head and neck, fatigue.
Clara_Bella
in
MPN Voice
2 years ago
Is weight reduction possible whilst taking hydroxycarbamide for ET?
Even though this is a vanity question, but for those of us who stress out over gaining weight on this drug, I do hope there is a solution to my problem. I'm almost 70, but still very proactive in weight maintenance and exercise. After 15 mths on the hydroxy, and despite adequate exercise and weight watching
Even though this is a vanity question, but for those of us who stress out over gaining weight on this drug, I do hope there is a solution to my problem. I'm almost 70, but still very proactive in weight maintenance and exercise. After 15 mths on the hydroxy, and despite adequate exercise and weight watching
Hidden
in
MPN Voice
2 years ago
Meds queries
Has anyone noticed any difference with their red blood cell count whilst on
Hydroxycarbamide
? I’ve just had a phone call from my nurse , saying my red blood cells are low 116. and she said she would be happier if they were around 100.Thanks
Has anyone noticed any difference with their red blood cell count whilst on
Hydroxycarbamide
? I’ve just had a phone call from my nurse , saying my red blood cells are low 116. and she said she would be happier if they were around 100.Thanks
10061950
in
MPN Voice
3 years ago
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