Search
Search
About
Log in
Join
Experiences with
Hydroxycarbamide
Posts
Communities
1,160 public posts
Filter results
hydroxyurea at young age?
Who else is using hydroxyurea at young age? For ET TREATMENT??? Is it okay to use this treatment at young age ??? Thank you ahead for the reply ….
Who else is using hydroxyurea at young age? For ET TREATMENT??? Is it okay to use this treatment at young age ??? Thank you ahead for the reply ….
shiela23
in
MPN Voice
2 years ago
5th vaccine
Took my medication (
Hydroxycarbamide
) and paper work to show. This time I have had Moderna.
Took my medication (
Hydroxycarbamide
) and paper work to show. This time I have had Moderna.
linphy
in
MPN Voice
2 years ago
Overlapping Hydroxycarbamide with Pegasys
I saw on this site that some people kept taking the
hydroxycarbamide
during the initial stages of Pegasys treatment to prevent the counts going up suddenly, as mine have.
I saw on this site that some people kept taking the
hydroxycarbamide
during the initial stages of Pegasys treatment to prevent the counts going up suddenly, as mine have.
LongETinUS
in
MPN Voice
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Covid question -
Diagnosed PV jak2+; take aspirin, BP meds, thyroid meds and
hydroxycarbamide
. I tested positive for Covid last night so far not too bad. Phoned NHS Lanarkshire this morning to try and get the anti virals.
Diagnosed PV jak2+; take aspirin, BP meds, thyroid meds and
hydroxycarbamide
. I tested positive for Covid last night so far not too bad. Phoned NHS Lanarkshire this morning to try and get the anti virals.
2261
in
MPN Voice
2 years ago
ET long term concerns
revealed I had a positive JAK 2 result in 2019, I do not know anyone else who has the condition to talk with, when I see my haematologist i don’t always get the time to speak freely about my concerns, I read that ET can sometimes turn into AML, is this more likely if you have had a blood clot and are on
Hydroxycarbamide
revealed I had a positive JAK 2 result in 2019, I do not know anyone else who has the condition to talk with, when I see my haematologist i don’t always get the time to speak freely about my concerns, I read that ET can sometimes turn into AML, is this more likely if you have had a blood clot and are on
Hydroxycarbamide
Bear111
in
MPN Voice
2 years ago
Hydroxycarbamide, PV and skin cancer
I have been made aware that HU can possibly lead to skin cancer and I know it’s best to keep out of the sun. Does anybody know the precise reason why this medication causes this particular link to the skin?
I have been made aware that HU can possibly lead to skin cancer and I know it’s best to keep out of the sun. Does anybody know the precise reason why this medication causes this particular link to the skin?
Barb17
in
MPN Voice
2 years ago
Do you recognise these symptoms
I have symptoms periodically that I am not sure are linked and wonder if anyone else with ET recognise them, since starting
Hydroxycarbamide
and Warfarin over 2 years ago I get extremely itchy skin, I have night sweats, when I first get up in the morning my ankles/feet feel stiff but improve when I start
I have symptoms periodically that I am not sure are linked and wonder if anyone else with ET recognise them, since starting
Hydroxycarbamide
and Warfarin over 2 years ago I get extremely itchy skin, I have night sweats, when I first get up in the morning my ankles/feet feel stiff but improve when I start
Bear111
in
MPN Voice
2 years ago
Painkillers while on Hydroxycarbamide for treatment of Polycythaemia Vera
Has anyone with PV and taking
Hydroxycarbamide
been advised not to take Ibroprfen or any similar painkillers ending in fen?
Has anyone with PV and taking
Hydroxycarbamide
been advised not to take Ibroprfen or any similar painkillers ending in fen?
Edinburgh1953
in
MPN Voice
2 years ago
Struggling with symptoms
Diagnosed pv November.....on Hydroxyurea, aspirin and venesections...haematocrit is just below target but struggling with symptoms. Haematology nurses recommended using this forum for advice. Still have terrible burning and tingling in my hands and feet ....not as bad as when I had severe attacks pre
Diagnosed pv November.....on Hydroxyurea, aspirin and venesections...haematocrit is just below target but struggling with symptoms. Haematology nurses recommended using this forum for advice. Still have terrible burning and tingling in my hands and feet ....not as bad as when I had severe attacks pre
T1960
in
MPN Voice
2 years ago
Hydroxyurea, PV and itching...
I am a 65 year old male.PV since 2012.Phlebotomies and aspirin only but since last week I commenced on HU.Healthy and fit otherwise.Mainly because WBC count is now 21.1 (after years of relative stability).Post shower Itching was getting intolerable (I stopped showering...for 9months). Has anyone any
I am a 65 year old male.PV since 2012.Phlebotomies and aspirin only but since last week I commenced on HU.Healthy and fit otherwise.Mainly because WBC count is now 21.1 (after years of relative stability).Post shower Itching was getting intolerable (I stopped showering...for 9months). Has anyone any
Innessant
in
MPN Voice
2 years ago
A randomized phase 3 trial of interferon-α vs hydroxyurea in polycythemia vera and essential thrombocythemia
Hello The paper below recently came out in May. I thought member would be interested. Apologies if this is old news. “A randomized phase 3 trial of interferon-α vs hydroxyurea in polycythemia vera and essential thrombocythemia” It is freely downloadable from PubMed at https://pubmed.ncbi.nlm.nih.gov
Hello The paper below recently came out in May. I thought member would be interested. Apologies if this is old news. “A randomized phase 3 trial of interferon-α vs hydroxyurea in polycythemia vera and essential thrombocythemia” It is freely downloadable from PubMed at https://pubmed.ncbi.nlm.nih.gov
LongETinUS
in
MPN Voice
2 years ago
Hi, I'm new here and too scared to start HU
Hi everyone, I have learned a lot from lurking here, so I decided to try my hand at a post. I had a bone marrow biopsy in May and was diagnosed with JAK2 positive ET. My platelets, RBC, Hematocrit and Hemoglobin were all elevated during some routine bloodwork last fall with the platelets at 721. Two
Hi everyone, I have learned a lot from lurking here, so I decided to try my hand at a post. I had a bone marrow biopsy in May and was diagnosed with JAK2 positive ET. My platelets, RBC, Hematocrit and Hemoglobin were all elevated during some routine bloodwork last fall with the platelets at 721. Two
Maximo06
in
MPN Voice
2 years ago
Questions about AEs on Interferons w.r.t. liver enzymes
I have seen erratic liver enzyme levels while attempting to transition from hydroxyurea to Pegasys. I'm not convinced that the Peg is the cause of the issue but my Dr has stopped the Peg and I’m back to 2g of HU with platelets at about 1400 and increasing at a good pace. It is not good. Other than a
I have seen erratic liver enzyme levels while attempting to transition from hydroxyurea to Pegasys. I'm not convinced that the Peg is the cause of the issue but my Dr has stopped the Peg and I’m back to 2g of HU with platelets at about 1400 and increasing at a good pace. It is not good. Other than a
LongETinUS
in
MPN Voice
2 years ago
Jakafi
Hi all, I was diagnosed in jan 22. My platelets were over 1100. I was immediately put on hydroxyurea and phlebotomy’s every 2weeks. Levels started to improve and then Started having an intolerance to the hydroxyurea. Continued with phlebotomy’s only as I can’t take aspirin. Platlets back up to 1100
Hi all, I was diagnosed in jan 22. My platelets were over 1100. I was immediately put on hydroxyurea and phlebotomy’s every 2weeks. Levels started to improve and then Started having an intolerance to the hydroxyurea. Continued with phlebotomy’s only as I can’t take aspirin. Platlets back up to 1100
Mich1234567
in
MPN Voice
2 years ago
Hypothyroidism from Hydrea
I'm curious if anyone has developed hypothyroidism since starting treatment with
hydroxycarbamide
. I'm about to have a blood test to check this, but I have gained some weight and feel tired a lot . Incidentally, I saw my haemo today . He's happy with the platelet count (now 284,000) .
I'm curious if anyone has developed hypothyroidism since starting treatment with
hydroxycarbamide
. I'm about to have a blood test to check this, but I have gained some weight and feel tired a lot . Incidentally, I saw my haemo today . He's happy with the platelet count (now 284,000) .
Hidden
in
MPN Voice
2 years ago
Hair dye and Hydroxycarbamide
I am taking an increased dose of
Hydroxycarbamide
, and I wondered if this was more than a coincidence, or is it just because I have more grey hair these days? 😬
I am taking an increased dose of
Hydroxycarbamide
, and I wondered if this was more than a coincidence, or is it just because I have more grey hair these days? 😬
Cakeface
in
MPN Voice
2 years ago
severe itch when contact with water
hi, does anyone else suffer with severe itch when in contact with water this happens when sweating, im on
hydroxycarbamide
and wonder if this is the cause. this is my first post as new here
hi, does anyone else suffer with severe itch when in contact with water this happens when sweating, im on
hydroxycarbamide
and wonder if this is the cause. this is my first post as new here
miin
in
MPN Voice
2 years ago
Baby it’s cold outside
But I can’t take the cold anymore I’m on
Hydroxycarbamide
(500mg weekdays and 1000mg weekends) Apixaban 5mg per day I’ve got ET Jak 2 . Everyone I work with seem to be fine with low temperatures but I’m SO COLD! Solidarity with any other Mr/Mrs/Ms FREEZE!
But I can’t take the cold anymore I’m on
Hydroxycarbamide
(500mg weekdays and 1000mg weekends) Apixaban 5mg per day I’ve got ET Jak 2 . Everyone I work with seem to be fine with low temperatures but I’m SO COLD! Solidarity with any other Mr/Mrs/Ms FREEZE!
Plavers
in
MPN Voice
2 years ago
Covid - an odd experience ( ET JAK2 Hydroxycarbamide)
So 24 days ago I tested positive for Covid. I have had all three jabs + booster. The wonderful NHS sent the anti- viral drugs around in a taxi and I felt like I had flu: headache, runny nose, aches, cough sore throat etc. After a few days I felt better and finished the 5 day course of drugs. 12 days
So 24 days ago I tested positive for Covid. I have had all three jabs + booster. The wonderful NHS sent the anti- viral drugs around in a taxi and I felt like I had flu: headache, runny nose, aches, cough sore throat etc. After a few days I felt better and finished the 5 day course of drugs. 12 days
Cassandra61
in
MPN Voice
2 years ago
Food after ET diagnosis.
I have read everything on diet re ET &
Hydroxycarbamide
which I take. Can anyone help with anything we can eat instead of the fat & saturates in all on the supermarket shelves. Even vegan spreads have the fats etc. Also None dairy yoghurt contains live culture which is not allowed.
I have read everything on diet re ET &
Hydroxycarbamide
which I take. Can anyone help with anything we can eat instead of the fat & saturates in all on the supermarket shelves. Even vegan spreads have the fats etc. Also None dairy yoghurt contains live culture which is not allowed.
Exeter21
in
MPN Voice
2 years ago
1
...
15
16
17
...
58
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
MPN Voice
1107 results
Leukaemia Support
11 results
Sickle Cell Society
10 results
View top 10 communities
Sort by
Most Relevant
Newest