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Experiences with
Hydroxycarbamide
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scalp problem in Hydroxy
very dry scalp on
Hydroxycarbamide
! Any one else with Et/PV have scalp problems? my scalp is very crusty and I’m sure it’s the drug Hydroxy that’s caused this. Any advise welcome. Haze.
very dry scalp on
Hydroxycarbamide
! Any one else with Et/PV have scalp problems? my scalp is very crusty and I’m sure it’s the drug Hydroxy that’s caused this. Any advise welcome. Haze.
HazeBlue
in
MPN Voice
2 years ago
ET & Covid
Hi all..I was diagnosrd with ET and Jak2 positive and prescribed daily 500mg
Hydroxycarbamide
and 75mg aspirin..platelets 6 weeks ago at 565. I have just tested positive for Covid and.await a NHS call regarding antivirals.
Hi all..I was diagnosrd with ET and Jak2 positive and prescribed daily 500mg
Hydroxycarbamide
and 75mg aspirin..platelets 6 weeks ago at 565. I have just tested positive for Covid and.await a NHS call regarding antivirals.
Alfiesarah
in
MPN Voice
2 years ago
MF from ET
I have early stage MF from ET, and I‘ve had a headache for 12 days, with pressure over the left eye, and lightning flashes in the left eye. I just wondered if anyone else has had this? My doctor wants me to start taking aspirin twice a day now, & if that doesn’t work he will start me on hydroxyurea.
I have early stage MF from ET, and I‘ve had a headache for 12 days, with pressure over the left eye, and lightning flashes in the left eye. I just wondered if anyone else has had this? My doctor wants me to start taking aspirin twice a day now, & if that doesn’t work he will start me on hydroxyurea.
Arthandiwe
in
Fight MPN
2 years ago
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Essential Thrombocythaemia
Hi, I have just been diagnosed with a rear blood condition called Essential Thrombocythaemia (ET The courses of treatment offered to me are
Hydroxycarbamide
and Pegasys.
Hi, I have just been diagnosed with a rear blood condition called Essential Thrombocythaemia (ET The courses of treatment offered to me are
Hydroxycarbamide
and Pegasys.
Snowking
in
Leukaemia Support
2 years ago
Taking Hydroxycarbamide?…
My Doctor now prescribed me
Hydroxycarbamide
(alongside aspirin 75 mg) to avoid risk of thrombosis. This medicine is pure poison and I’d rather take only the aspirin. I’m also looking for any natural substance to help. Any ideas or opinions would be appreciated.
My Doctor now prescribed me
Hydroxycarbamide
(alongside aspirin 75 mg) to avoid risk of thrombosis. This medicine is pure poison and I’d rather take only the aspirin. I’m also looking for any natural substance to help. Any ideas or opinions would be appreciated.
Holden65
in
MPN Voice
2 years ago
Is ET hereditary ?
I currently take
hydroxycarbamide
, but it seems that he isn't on any medication for it. I understand this is a very rare condition, so alarm bells are ringing as to whether it is hereditary. Thank you .
I currently take
hydroxycarbamide
, but it seems that he isn't on any medication for it. I understand this is a very rare condition, so alarm bells are ringing as to whether it is hereditary. Thank you .
Catbells66
in
MPN Voice
2 years ago
Choice of treatment
I have chosen venesection rather than increase
hydroxycarbamide
which was advised. I asked option of going onto interferon having read the posts here over the last few months but was advised by the consultant that there are more adverse side affects interferon? Is she correct?
I have chosen venesection rather than increase
hydroxycarbamide
which was advised. I asked option of going onto interferon having read the posts here over the last few months but was advised by the consultant that there are more adverse side affects interferon? Is she correct?
Swim360
in
MPN Voice
2 years ago
Relief for Liver?
Have ET / JAK which treatment has been interrupted due to very high (4x) liver enzyme values. I have been on 2 mg anagrelide per day for several months with cautious results lowering platelets to 800,000. That caution allowed liver and kidneys to calm down from high values after 2 months on hydroxyurea
Have ET / JAK which treatment has been interrupted due to very high (4x) liver enzyme values. I have been on 2 mg anagrelide per day for several months with cautious results lowering platelets to 800,000. That caution allowed liver and kidneys to calm down from high values after 2 months on hydroxyurea
Mishie14
in
MPN Voice
2 years ago
Increased wbc
I have ET and had lab tests yesterday. My platelets are at 584000 and my wbcs are up to 9500. I take hydroxyurea once a day, have been for 2 years. This is the highest my wbcs have been, slowly creeping up. Is this a progression to something?
I have ET and had lab tests yesterday. My platelets are at 584000 and my wbcs are up to 9500. I take hydroxyurea once a day, have been for 2 years. This is the highest my wbcs have been, slowly creeping up. Is this a progression to something?
Whitehair51
in
MPN Voice
2 years ago
Hydroxyurea
Does this medication help shrink spleen
Does this medication help shrink spleen
Rainyday22
in
MPN Voice
2 years ago
Anybody healed their gut from acid reflux caused by aspirin?
Hi, I have PV and taking Hydroxyurea and aspirin. My heamatocrit level is around .45 - .47. I take 200mg aspiring once a day without the film/sugar coating. I was having acid reflux after eating and also during sleep. Sometimes it was so severe that it was difficult to sleep and I had to take those
Hi, I have PV and taking Hydroxyurea and aspirin. My heamatocrit level is around .45 - .47. I take 200mg aspiring once a day without the film/sugar coating. I was having acid reflux after eating and also during sleep. Sometimes it was so severe that it was difficult to sleep and I had to take those
bd_97
in
MPN Voice
2 years ago
Pv and itchy
Hydroxyurea and itchyp
Hydroxyurea and itchyp
JoeOeil
in
MPN Voice
2 years ago
Does an enlarged spleen cause nausea
Hi, all. I’m post Et Mf and have been taking hydroxyurea for years. Only in the past several months, I have been experiencing frequent nausea. The last time they checked my spleen in March, it was only mildly enlarged at 13.2. But recently, I seem to have mild pain on my left side when I take a deep
Hi, all. I’m post Et Mf and have been taking hydroxyurea for years. Only in the past several months, I have been experiencing frequent nausea. The last time they checked my spleen in March, it was only mildly enlarged at 13.2. But recently, I seem to have mild pain on my left side when I take a deep
Cja1956
in
MPN Voice
2 years ago
Recommendations for travel sickness tablets to settle stomach before flying or journeys
I have Polycythaemia Vera and take
Hydroxycarbamide
always suffer from tummy problems before travelling on any form of transport . Sometimes a need to go to loo mainly to poo and at times force myself to go.
I have Polycythaemia Vera and take
Hydroxycarbamide
always suffer from tummy problems before travelling on any form of transport . Sometimes a need to go to loo mainly to poo and at times force myself to go.
Edinburgh1953
in
MPN Voice
2 years ago
Nausea from Hydroxyurea
Anyone experience constant nausea from hydroxyurea and if yes, what did you do to stop the nausea? I've been on hydroxyurea for about year now. I started experiencing nausea about 6 months ago that has gotten progressively worse. I stopped it 2 days for a test I was taking and it went away. I then
Anyone experience constant nausea from hydroxyurea and if yes, what did you do to stop the nausea? I've been on hydroxyurea for about year now. I started experiencing nausea about 6 months ago that has gotten progressively worse. I stopped it 2 days for a test I was taking and it went away. I then
ERei
in
MPN Voice
2 years ago
hydroxycarbamide and working any tips and suggestions.
Good afternoon I am looking for tips and some advice on how to manage side effects of
hydroxycarbamide
and working full time. I currently work within the NHS as a midwife and finding it very difficult to manage my body especially extreme fatigue, nausea and pain.
Good afternoon I am looking for tips and some advice on how to manage side effects of
hydroxycarbamide
and working full time. I currently work within the NHS as a midwife and finding it very difficult to manage my body especially extreme fatigue, nausea and pain.
cheeks1
in
MPN Voice
2 years ago
abdominal pain at night
I have been worried as I’ve just been back 2 weeks from holiday on a long hall flight I’m thinking should I try eating earlier in the evening and also taking the
Hydroxycarbamide
earlier too as this might help !?
I have been worried as I’ve just been back 2 weeks from holiday on a long hall flight I’m thinking should I try eating earlier in the evening and also taking the
Hydroxycarbamide
earlier too as this might help !?
Kizzy03
in
MPN Voice
2 years ago
MPN ET and random low leg swelling
My husband was diagnosed with MPN, ET in 2018 aged 59 and has taken daily
Hydroxycarbamide
and alternate day aspirin. Physically we have bumbled along with the odd excessive nose bleed, no major physical changes although he did suffer with his mental health but thats improving.
My husband was diagnosed with MPN, ET in 2018 aged 59 and has taken daily
Hydroxycarbamide
and alternate day aspirin. Physically we have bumbled along with the odd excessive nose bleed, no major physical changes although he did suffer with his mental health but thats improving.
jyah
in
MPN Voice
2 years ago
Do you blame your fatigue and brain fog more on hydroxyurea or ET (high platelet count)... which one and why?
Do you blame your fatigue and brain fog more on hydroxyurea or ET (high-platelet count)... which one and why? Hi I'm just starting on this site. I'm trying to figure out how to be less fatigued and more clear-headed so I can do my desk job well. I would like your advice on what would make me less tired
Do you blame your fatigue and brain fog more on hydroxyurea or ET (high-platelet count)... which one and why? Hi I'm just starting on this site. I'm trying to figure out how to be less fatigued and more clear-headed so I can do my desk job well. I would like your advice on what would make me less tired
industrial
in
MPN Voice
2 years ago
Durability of Ruxolitinib for PV, Dr V in Targeted Oncology interview
A few weeks ago there was some discussion on there was some discussion on her re the durability of Rux for PV. Below is a answer to that from Dr V in a interview with Targeted Oncolgy in Nov 2022 In polycythemia vera, ruxolitinib is valuable as a second-line choice when things don't go well with hydroxyurea
A few weeks ago there was some discussion on there was some discussion on her re the durability of Rux for PV. Below is a answer to that from Dr V in a interview with Targeted Oncolgy in Nov 2022 In polycythemia vera, ruxolitinib is valuable as a second-line choice when things don't go well with hydroxyurea
ainslie
in
MPN Voice
2 years ago
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