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Experiences with
Hydroxycarbamide
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Heat and tiredness
On
hydroxycarbamide
medication, 3 then 2 tablets rotated each day. Really felt it today whilst out walking in the park. Temperature not really hot, but enough to make me feel drained. Thanks Mark
On
hydroxycarbamide
medication, 3 then 2 tablets rotated each day. Really felt it today whilst out walking in the park. Temperature not really hot, but enough to make me feel drained. Thanks Mark
Smudger0122
in
MPN Voice
2 years ago
Hydroxycarbamide and hair dye and perfume
Just wondered if
hydroxycarbamide
has anything to do with it? Thank you for reading
Just wondered if
hydroxycarbamide
has anything to do with it? Thank you for reading
Cokopops
in
MPN Voice
2 years ago
increased effects of hydroxycarbamide and Anagrelide due to CKD
My wife has MF and now CKD of the one kidney she has left, the drugs for her MF are affecting the FBC more so than previously.i asked her hematologist if it was the reduced function of her kidney causing dramatic reduction in platelets and Hgb , while her white cells are four times normal count.
My wife has MF and now CKD of the one kidney she has left, the drugs for her MF are affecting the FBC more so than previously.i asked her hematologist if it was the reduced function of her kidney causing dramatic reduction in platelets and Hgb , while her white cells are four times normal count.
jointpain
in
MPN Voice
2 years ago
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Is taking vitamin D3 5000 everyday lowering RBC , HCT ?
I stopped taking thromboreductin 2 months ago, still taking hydroxyurea 3 perday ( was 2 and 3 alternately when combined with thromboreductin) and started taking 5000mg vit D3. My cbc this month, RBC down to 3.46 ( was normal 4,46) , HCT down to 38.9 ( was 46,9) , platelet 516 ( was 676), Lekocyte
I stopped taking thromboreductin 2 months ago, still taking hydroxyurea 3 perday ( was 2 and 3 alternately when combined with thromboreductin) and started taking 5000mg vit D3. My cbc this month, RBC down to 3.46 ( was normal 4,46) , HCT down to 38.9 ( was 46,9) , platelet 516 ( was 676), Lekocyte
askforlife
in
MPN Voice
2 years ago
My Story
Hello everyone, I have been reading random posts on MPN voice but have not posted yet. So, this is my first post. Here goes. I always go for regular checkups with my Primary doctor. Starting in early 2021 my doctor told me that he was a little concerned about my platelet count. For about 9 months
Hello everyone, I have been reading random posts on MPN voice but have not posted yet. So, this is my first post. Here goes. I always go for regular checkups with my Primary doctor. Starting in early 2021 my doctor told me that he was a little concerned about my platelet count. For about 9 months
Director1157
in
MPN Voice
2 years ago
Sleepless in Sussex
What I’d like to know is, does anyone know if when platelets go down to normal level, I’ll be able to stop
hydroxycarbamide
? I’ve got a appointment in a couple of weeks so will ask my haematologist..but just want to know if anyone has stopped hydroxy after normal platelets Thank you
What I’d like to know is, does anyone know if when platelets go down to normal level, I’ll be able to stop
hydroxycarbamide
? I’ve got a appointment in a couple of weeks so will ask my haematologist..but just want to know if anyone has stopped hydroxy after normal platelets Thank you
Cokopops
in
MPN Voice
2 years ago
NHS Services and Hydroxycarbamide
Have been using
hydroxycarbamide
for twenty years, diagnosed living in London and received NHS exemption for perception's, dental and eye care. Moved to Glasgow eleven years ago and have had no issues until today.
Have been using
hydroxycarbamide
for twenty years, diagnosed living in London and received NHS exemption for perception's, dental and eye care. Moved to Glasgow eleven years ago and have had no issues until today.
Scotishtaffy
in
MPN Voice
2 years ago
Busulfan
Everytime l complain about hydroxy side effects to the medics lt feels like lm threatened with Busulfan as the only other treatment option available other than
Hydroxycarbamide
which has many bad side effects for me.
Everytime l complain about hydroxy side effects to the medics lt feels like lm threatened with Busulfan as the only other treatment option available other than
Hydroxycarbamide
which has many bad side effects for me.
Hidden
in
MPN Voice
2 years ago
Medixation
Hello, Is anyone on rivaroxaban and bisoprolol and
hydroxycarbamide
and have any side effects.? I feel tired and breathless all the time with back pain and I’m not sure if it’s a reaction to the medication. Any comments would be appreciated , Thankyou.
Hello, Is anyone on rivaroxaban and bisoprolol and
hydroxycarbamide
and have any side effects.? I feel tired and breathless all the time with back pain and I’m not sure if it’s a reaction to the medication. Any comments would be appreciated , Thankyou.
Juliet46
in
MPN Voice
2 years ago
Hydroxy and The Sun
I started
hydroxycarbamide
a week ago - so far so good (apart from insane fatigue!). I understand my skin will be more sensitive and that I could be more susceptible to skin cancer. Does this mean I need to slather on factor 50 even if I am just pegging out the washing?
I started
hydroxycarbamide
a week ago - so far so good (apart from insane fatigue!). I understand my skin will be more sensitive and that I could be more susceptible to skin cancer. Does this mean I need to slather on factor 50 even if I am just pegging out the washing?
AgnethaF
in
MPN Voice
2 years ago
Just started hydroxyurea..
Only taken for 2 nights and feeling a little dizzy and slight nausea. For polycythemia Vera. Blood counts are all high and also had my first phlebotomy! Any comments?
Only taken for 2 nights and feeling a little dizzy and slight nausea. For polycythemia Vera. Blood counts are all high and also had my first phlebotomy! Any comments?
Ginger1017
in
MPN Voice
2 years ago
Recommended safe vitamins
I have Polycythaemia Vera and take
Hydroxycarbamide
2x500mg daily. Any recommendations for vitamins that are safe to take
I have Polycythaemia Vera and take
Hydroxycarbamide
2x500mg daily. Any recommendations for vitamins that are safe to take
Edinburgh1953
in
MPN Voice
2 years ago
hip replacement soon
my hematologist wants me to get my platelets under 400 for my surgery so I had to up my hydroxyurea to every day instead of 4 a week. He’s ok with them in the 500 range but thinks it’s better for them to be lower for surgery. He says I can cut back after a month after surgery. I really want to stay
my hematologist wants me to get my platelets under 400 for my surgery so I had to up my hydroxyurea to every day instead of 4 a week. He’s ok with them in the 500 range but thinks it’s better for them to be lower for surgery. He says I can cut back after a month after surgery. I really want to stay
Pounds11
in
MPN Voice
2 years ago
Besremi
anyone else on besremi and being weaned off hydroxyurea then the numbers are creeping up? Finally after nine months of besremi my platelets were in the normal range then climbed 600s two weeks later now 700s after another two weeks i’m so disappointed I keep crying
anyone else on besremi and being weaned off hydroxyurea then the numbers are creeping up? Finally after nine months of besremi my platelets were in the normal range then climbed 600s two weeks later now 700s after another two weeks i’m so disappointed I keep crying
Ggrana3192
in
MPN Voice
2 years ago
CBD Isolate Oil
I am also on
hydroxycarbamide
. Any help be great. Smudger
I am also on
hydroxycarbamide
. Any help be great. Smudger
Smudger0122
in
MPN Voice
2 years ago
Pegasys dosage question
I have ET and am Jak 2 positive. I was on hydroxyurea for two years, but the last six months were difficult because I was extremely nauseous and tired. I am extremely light weight to medication‘s effects and so was on hydroxy once every three days before it became too much for me. I switched to Pegasys
I have ET and am Jak 2 positive. I was on hydroxyurea for two years, but the last six months were difficult because I was extremely nauseous and tired. I am extremely light weight to medication‘s effects and so was on hydroxy once every three days before it became too much for me. I switched to Pegasys
Island-Lady
in
MPN Voice
2 years ago
fatigue
I understand from information on the internet this a symptom of both my illness and taking
Hydroxycarbamide
. Is my understanding correct? My haematologist doesn’t seem to recognise this as a symptom. I am currently going through the worse bout I’ve ever had and no amount of sleep is helping.
I understand from information on the internet this a symptom of both my illness and taking
Hydroxycarbamide
. Is my understanding correct? My haematologist doesn’t seem to recognise this as a symptom. I am currently going through the worse bout I’ve ever had and no amount of sleep is helping.
YBSx
in
MPN Voice
2 years ago
Unbearable itching! Any ideas to calm it down?
Hello all, I started with ET but now have PV and have been on Peg for about 6 weeks with phlebotomies occasionally. My Hematocrit has gone down but my platelets are going up so the MPN Dr wants me to take Hydroxyurea at 500 2-3 times a week with low dose of Peg at 60. He really wants me back on hydrea
Hello all, I started with ET but now have PV and have been on Peg for about 6 weeks with phlebotomies occasionally. My Hematocrit has gone down but my platelets are going up so the MPN Dr wants me to take Hydroxyurea at 500 2-3 times a week with low dose of Peg at 60. He really wants me back on hydrea
Airslie
in
MPN Voice
2 years ago
periferal neuropathy advice
Hi ET diagnosed Feb 2015 I take 1500 mgms of
Hydroxycarbamide
5 days 1000 mgms on Sat and 500 mgms on Sunday & Asprin I am being investigated for a periferal neuropathy diagnosis. My Haematologist says not related to Hydro. your thoughts please. ynne
Hi ET diagnosed Feb 2015 I take 1500 mgms of
Hydroxycarbamide
5 days 1000 mgms on Sat and 500 mgms on Sunday & Asprin I am being investigated for a periferal neuropathy diagnosis. My Haematologist says not related to Hydro. your thoughts please. ynne
Lynne-G
in
MPN Voice
2 years ago
Hydroxyurea Dosage
After many many years of no health concerns, my wife at 68yrs old last December, 2021 had a routine cbc and the platelets were at 2200 on the usual 150-350 scale and confirmed with a blood smear. No other blood parameters were interesting and all the typical genetic tests including the over 50 ngs genetics
After many many years of no health concerns, my wife at 68yrs old last December, 2021 had a routine cbc and the platelets were at 2200 on the usual 150-350 scale and confirmed with a blood smear. No other blood parameters were interesting and all the typical genetic tests including the over 50 ngs genetics
Kame279
in
MPN Voice
2 years ago
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