I have PV and taking Hydroxyurea and aspirin. My heamatocrit level is around .45 - .47. I take 200mg aspiring once a day without the film/sugar coating. I was having acid reflux after eating and also during sleep. Sometimes it was so severe that it was difficult to sleep and I had to take those gaviscon liquids. My GP prescribed esomeprazole (Nexium) which solved the problem temporarily. I was researching natural options and tried the followings. Its multiple things and I am not sure which one actually helped but wanted to share with the community if anyone tried similar and got benefitted and hope some other people benefit from this too
1. Started intermittent fasting limiting to 2 feeds (sometimes 1) in 4 hours feeding window. I did it for one month but to be honest, some days I had more than 2 feeds but I mostly skipped breakfast. During my feeding window, I ate normal Indian foods which might be spicy for non-Indian people. I had meat, fish but increased veg intake compare to usual. Had kale, broccoli which I was avoiding since diagnosed with PV but during this self-experiment, my platelate and heamatocrit stayed stable.
2. took probiotics, fish oil and vitamin D as only supplement.
3. Dry and steam Sauna once a week.
4. Sun exposure early morning and evening.
5. One hour brisk walking most of the day. Weight lifts 2 times a week.
after all these, I lost some fat ( I was not obese) and felt much healthier than ever.
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bd_97
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This is what I was first advised, also, but with the addition of changing the aspirin to vazelore aspirin capsules that came from cardio. That was a significant positive change for me. Vazelore passes through the stomach altogether for digestion. I was able to stop the baking soda and get down to one low dose omeprazole per day. I had a light case of GERD to start with that quickly got worse after taking hydroxyurea. Further into the journey I also switched to panteprazole for GERD. It’s gentler than omeprazole and is easier to take meaning more compatibility with all the drugs involved with ET.
thanks. I wanted a natural healing without those medicines. so far so good. lets see how it works. I wish I could experiment on my hematocrit level by playing with Hydroxyurea intake as its toxic. But without proper scientific measurement and close eye on the numbers, its too risky.
I have reflux due to a hiatus hernia, have you tried the enteric coated aspirin, I find that these alone help with the reflux and don’t irritate my gut as much. Good tips!
After having a pretty severe return of daily stomach pain and GERD symptoms within a month of having started HU, within about 6 weeks of having discontinued it in favor of Besremi, I have reverted to my prior well-controlled GERD status maintained by taking Omeprazole extended release 20 mg twice daily.
I'm back to only having to avoid certain really acidic foods [some tomato sauces, fresh pineapple, as e.g.] and certain spices- in my case, Jamaican jerk spice, and one of the spices used in making the Italian-spiced roast beef sold only in the deli at a local grocery chain called Wegmans.
In addition, my mouth sores have healed completely- prior to stopping HU, I had at least one and often several aphthous ulcers on my oral mucus membranes throughout thetime I took it. Similarly to my GERD , I'm back to avoiding only really acidic foods- fresh pineapple being the worst in this case.
The only thing that has not seemed to have improved to the pre-HU stage is my oral sensitivity to spicy foods of the capsaicin-variety, and I miss being able to tolerate those spicy foods.
Best of luck with your issues, and please be careful taking Bicarb/Baking soda, it's potentially harmful if overdone, and is way more powerful at altering the body's acid/.base than many people realize:
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