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infusion Side Effects
good morning fellow warriors. My PSA continues to move up so my oncologist ordered 20 sessions of radiation. The radiation was a walk in the park compared to the 1030-1048 Zometa infused Wednesday morning. Holy cow ! Peed (a few dribbles) every half hour. Chills then sweats. Bone ache throughout and
good morning fellow warriors. My PSA continues to move up so my oncologist ordered 20 sessions of radiation. The radiation was a walk in the park compared to the 1030-1048 Zometa infused Wednesday morning. Holy cow ! Peed (a few dribbles) every half hour. Chills then sweats. Bone ache throughout and
3putt
in
Advanced Prostate Cancer
7 months ago
Mucus back again
Hi all. As some may remember I suffer from ongoing mucus discharge from rectum. I had a colonoscopy done year and 3/4 ago and clear. All tests.I went gluten dairy free. It worked and did stop it happening everyday but for some weird reason past 3 weeks I've had all my symtoms back again with vengeance
Hi all. As some may remember I suffer from ongoing mucus discharge from rectum. I had a colonoscopy done year and 3/4 ago and clear. All tests.I went gluten dairy free. It worked and did stop it happening everyday but for some weird reason past 3 weeks I've had all my symtoms back again with vengeance
mal444
in
IBS Network
6 months ago
Doing well on Taxol. TM down by half!
I'm a long timer (20 years on 3/1/24, with bone mets since first diagnosis) and have done extremely well. Lobular bc, E + P + her2neu - at diagnosis. In 2023, it became triple negative and I was on Xeloda for a few months. It stopped working and I've been on Taxol for about 5 or 6 infusions. CA 27
I'm a long timer (20 years on 3/1/24, with bone mets since first diagnosis) and have done extremely well. Lobular bc, E + P + her2neu - at diagnosis. In 2023, it became triple negative and I was on Xeloda for a few months. It stopped working and I've been on Taxol for about 5 or 6 infusions. CA 27
PJBinMI
in
SHARE Metastatic Breast Cancer
7 months ago
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Gastritis
Hi all! Had my endoscopy last Friday.. my follow up (awaiting biopsies) I have mild erosive Gastritis which I understand can prevent B12 from absorbing? My Gastroenterologist says I haven’t got B12 deficiency ( before endoscopy) last test was 6 months ago! 226 ng/l (178ng/L - 2000ng/L (I did quote
Hi all! Had my endoscopy last Friday.. my follow up (awaiting biopsies) I have mild erosive Gastritis which I understand can prevent B12 from absorbing? My Gastroenterologist says I haven’t got B12 deficiency ( before endoscopy) last test was 6 months ago! 226 ng/l (178ng/L - 2000ng/L (I did quote
Doris11
in
Pernicious Anaemia Society
5 months ago
supplements
I am on various medication and unsure when the best time to take each are, any ideas? Levothyroxine B12 injections Starting iron heme tablets shortly Vitamin d Folate
I am on various medication and unsure when the best time to take each are, any ideas? Levothyroxine B12 injections Starting iron heme tablets shortly Vitamin d Folate
Lilymayjean
in
Thyroid UK
5 months ago
New to the form
hello, My mum sent me this information with the hopes that I can find support and information as I’m starting out my journey. I had been having irregular periods and lower back pain for a few months. I would take medication and just push on. In December, I had such severe pain I called my husband
hello, My mum sent me this information with the hopes that I can find support and information as I’m starting out my journey. I had been having irregular periods and lower back pain for a few months. I would take medication and just push on. In December, I had such severe pain I called my husband
Trixie-boo
in
My Ovacome
7 months ago
Hip pain
Been diagnosed with IBS but from reading other posts I realise I am getting off lightly with symptoms. Possibly microscopic colitis. I just want to know if anyone else gets a lot of pain in area of right hip? Could this be IBS or just OA? Thanks
Been diagnosed with IBS but from reading other posts I realise I am getting off lightly with symptoms. Possibly microscopic colitis. I just want to know if anyone else gets a lot of pain in area of right hip? Could this be IBS or just OA? Thanks
Scoobiedoobie
in
IBS Network
5 months ago
Any advice
Hi I’ve gone down a very long road of years of pain swelling but Ana negative. Over a year ago I started with pleural effusion bilateral then pericardial effusion, respiratory kept saying connective tissue disease. February rheumatologist got involved and started me on 20mg prednisone, I’m now on 10mg
Hi I’ve gone down a very long road of years of pain swelling but Ana negative. Over a year ago I started with pleural effusion bilateral then pericardial effusion, respiratory kept saying connective tissue disease. February rheumatologist got involved and started me on 20mg prednisone, I’m now on 10mg
Numptybrain
in
NRAS
5 months ago
Scan shows spreading despite chemo but surgery going ahead..confused 🤔
Hello alI I have stage 4 clear cell carcinoma, had a scan this week and got the results today. My gynae nurse said she could only tell me what was written on a scrap bit of paper which left me with more questions than answers (not impressed with this). I will call again next week but meantime wondered
Hello alI I have stage 4 clear cell carcinoma, had a scan this week and got the results today. My gynae nurse said she could only tell me what was written on a scrap bit of paper which left me with more questions than answers (not impressed with this). I will call again next week but meantime wondered
Kazzh
in
My Ovacome
7 months ago
low b12 - When will this improve?
I have low B12 - 188 Iron Serum- 11 ( just under normal) Folate is 3.6 Iron serum 110 Vitamin D - 65 Went to doctor due to pins and needles in feet and hands and some fatigue, some headaches and waves of sadness . Suspected it was low Vitamin d or b12 as I had low b12 back in 2021 ( 101)
I have low B12 - 188 Iron Serum- 11 ( just under normal) Folate is 3.6 Iron serum 110 Vitamin D - 65 Went to doctor due to pins and needles in feet and hands and some fatigue, some headaches and waves of sadness . Suspected it was low Vitamin d or b12 as I had low b12 back in 2021 ( 101)
Damacian
in
Pernicious Anaemia Society
5 months ago
New member
New member here. Looking to commiserate with other IBS sufferers about how they are dealing with symptoms. I’ve been told that a lot of this (bloating, constipation) is brought on by stress. But then you start “doomscrolling” to better understand your symptoms and you see all kinds of stories of people
New member here. Looking to commiserate with other IBS sufferers about how they are dealing with symptoms. I’ve been told that a lot of this (bloating, constipation) is brought on by stress. But then you start “doomscrolling” to better understand your symptoms and you see all kinds of stories of people
AgateGuy
in
IBS Network
5 months ago
confused
Hi ladies So….. I had my scan results from 23rd December yesterday . I was told by Onc nurse that the cancer was stable ( it is inoperable) My CA125 at diagnosis back in March 23 was 9000 but during chemo treatment there was a steady decline and prior to the scan it stood at 2000. I don’t understand
Hi ladies So….. I had my scan results from 23rd December yesterday . I was told by Onc nurse that the cancer was stable ( it is inoperable) My CA125 at diagnosis back in March 23 was 9000 but during chemo treatment there was a steady decline and prior to the scan it stood at 2000. I don’t understand
Beaver54
in
My Ovacome
7 months ago
QoL: Moonrise at a liminal place No. 2
I painted three versions of this mixed media work, being drawn repeatedly to the reference photograph. It is a place called Cwmtudu (pronounced Coom-ti-di to my American and, I imagine, most of my English friends here), and here we are looking down jnto the valley from a rocky outcrop on some clifftops
I painted three versions of this mixed media work, being drawn repeatedly to the reference photograph. It is a place called Cwmtudu (pronounced Coom-ti-di to my American and, I imagine, most of my English friends here), and here we are looking down jnto the valley from a rocky outcrop on some clifftops
BrentW
in
Advanced Prostate Cancer
5 months ago
B12 Side effects
At my last blood take the Serum & Folate B12 reading was 278 ng/L and have been prescribed Cyanoco B12 100mcg tablets one per day Since taking B12 my skin has been alive with irritation, in particular my back - is this usual?
At my last blood take the Serum & Folate B12 reading was 278 ng/L and have been prescribed Cyanoco B12 100mcg tablets one per day Since taking B12 my skin has been alive with irritation, in particular my back - is this usual?
LONGEATON
in
Thyroid UK
5 months ago
Intrinsic factor
I seem to be at a sticking point with the findings of the intrinsic factor test. This is due to the way they now interpret the test results. My test result was Au/ml 1.63 ... Which I jumped with joy over as I thought "at last, this proves I have been telling the truth". How wrong I was. It is no longer
I seem to be at a sticking point with the findings of the intrinsic factor test. This is due to the way they now interpret the test results. My test result was Au/ml 1.63 ... Which I jumped with joy over as I thought "at last, this proves I have been telling the truth". How wrong I was. It is no longer
Allywales8663
in
Pernicious Anaemia Society
4 months ago
Itchy red rash on stomach under breasts on back and hips
Hi there I'm still waiting on thyroid bloods, but just so I if anyone has ever experienced this? I have had this happen to me alot over the past 2 years as recently as yesterday.. Its starting to fade now. Some are spots like hives but mostly red itchy rash. Thanks x
Hi there I'm still waiting on thyroid bloods, but just so I if anyone has ever experienced this? I have had this happen to me alot over the past 2 years as recently as yesterday.. Its starting to fade now. Some are spots like hives but mostly red itchy rash. Thanks x
madeline05
in
Thyroid UK
7 months ago
ANA test results
Hi, I’m reaching out in the hope someone is able to help me translate my ANA blood tests. I’ve had symptoms for over a year, predominantly fatigue/exhaustion, painful joints, mouth sores, feet that turn purple when cold (I also have a coeliac disease diagnosis from 2015). My results are back on
Hi, I’m reaching out in the hope someone is able to help me translate my ANA blood tests. I’ve had symptoms for over a year, predominantly fatigue/exhaustion, painful joints, mouth sores, feet that turn purple when cold (I also have a coeliac disease diagnosis from 2015). My results are back on
PurpleKoala24
in
LUPUS UK
4 months ago
Sacituzumab govitecan
I recently had more scans and unfortunately my cancer has spread to my lungs and more in my liver.My bone mets are not to bad but two active ones in my T2 and Right hip even though I had recently had radiotherapy on them again for palliative pain relief. I have been on four lines of treatment in 17 months
I recently had more scans and unfortunately my cancer has spread to my lungs and more in my liver.My bone mets are not to bad but two active ones in my T2 and Right hip even though I had recently had radiotherapy on them again for palliative pain relief. I have been on four lines of treatment in 17 months
Cherry38
in
SHARE Metastatic Breast Cancer
7 months ago
Xeloda Anxiety
I was supposed to begin Xeloda today. For some reason, I am paranoid. First, I'm thinking my dose is too high. I weigh 168 pounds, 5’4” and my team has me scheduled to take 2000 mg twice a day. I think that’s a lot. Anyone else similar in size to me taking this high of a dose? Am I just paranoid. I
I was supposed to begin Xeloda today. For some reason, I am paranoid. First, I'm thinking my dose is too high. I weigh 168 pounds, 5’4” and my team has me scheduled to take 2000 mg twice a day. I think that’s a lot. Anyone else similar in size to me taking this high of a dose? Am I just paranoid. I
CTGirl1962
in
SHARE Metastatic Breast Cancer
7 months ago
Polyps and IUI
At my baseline scan last week a 3mm polyp was found on my lining, it wasn't there on my first round of IUI, which resulted in a BFN, but has appeared this time round. I am now in the difficult position of deciding whether to carry on with round two, due to surge tomorrow or Saturday, or to stop and investigate
At my baseline scan last week a 3mm polyp was found on my lining, it wasn't there on my first round of IUI, which resulted in a BFN, but has appeared this time round. I am now in the difficult position of deciding whether to carry on with round two, due to surge tomorrow or Saturday, or to stop and investigate
Lostinmaze
in
Fertility Network UK
5 months ago
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