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Serositis
Hi I’m new here, been struggling with bilateral pleural effusion since may last year and now my second bout of pericarditis so my respiratory consultant is sending everything to a rheumatologist as he believes I have lupus but does anyone else have this please and what medication are you on etc.. Any
Hi I’m new here, been struggling with bilateral pleural effusion since may last year and now my second bout of pericarditis so my respiratory consultant is sending everything to a rheumatologist as he believes I have lupus but does anyone else have this please and what medication are you on etc.. Any
Numptybrain
in
LUPUS UK
7 months ago
Cortisol saliva test results
I’ve just had my third cortisol saliva test done and am interested to get advice from the experts on here eg the very knowledgeable humanbean! It basically tells the story of how I feel. Unable to get out of bed without a cup of tea. Able to do some light jobs/activities in the morning. Tired after
I’ve just had my third cortisol saliva test done and am interested to get advice from the experts on here eg the very knowledgeable humanbean! It basically tells the story of how I feel. Unable to get out of bed without a cup of tea. Able to do some light jobs/activities in the morning. Tired after
CornishChick
in
Thyroid UK
6 months ago
Eczema
Hello! My 18-week old daughter was diagnosed with baby eczema last month. Her dad has eczema too. We have been on and off the steroid cream since :( Any tips on how to manage it and what has worked best for your little ones? I am off dairy, eggs and soy, also gluten-intolerant so no wheat and oats either
Hello! My 18-week old daughter was diagnosed with baby eczema last month. Her dad has eczema too. We have been on and off the steroid cream since :( Any tips on how to manage it and what has worked best for your little ones? I am off dairy, eggs and soy, also gluten-intolerant so no wheat and oats either
Eloquentia
in
Pregnancy and Parenting Support
9 months ago
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Brutal Panic/Anxiety
Can anyone provide some advice?? I've dealt with severe anxiety and depression for 30+ years. I had it under control up until 3 weeks ago. Out of nowhere, my anxious stomach came roaring back and is worse than ever. It's 24/7. My Dr just put me on Vilazodone Any advice/help??
Can anyone provide some advice?? I've dealt with severe anxiety and depression for 30+ years. I had it under control up until 3 weeks ago. Out of nowhere, my anxious stomach came roaring back and is worse than ever. It's 24/7. My Dr just put me on Vilazodone Any advice/help??
Goinboating
in
Anxiety and Depression Support
5 months ago
What’s the protocol for GP actioning full iron panel?
It’s become apparent that my daughter’s ferritin levels are deficient and she’s going to put in a request to her GP for a full iron panel. I routinely read here that one shouldn’t supplement with iron based on a low ferritin reading alone but I’d like to know what the supporting information for this
It’s become apparent that my daughter’s ferritin levels are deficient and she’s going to put in a request to her GP for a full iron panel. I routinely read here that one shouldn’t supplement with iron based on a low ferritin reading alone but I’d like to know what the supporting information for this
J972
in
Thyroid UK
7 months ago
STEM CELL TRANSPLANT FINALLY SCHEDULED (WE HOPE)
Hi everyone. As you may know, my husband was diagnosed with CLL back in 2013, treated with six cycles of FCR, and achieved a "full response with incomplete recovery of the bone marrow." He had severe complications after treatment, but the CLL never recurred. In November 2023 he began to experience
Hi everyone. As you may know, my husband was diagnosed with CLL back in 2013, treated with six cycles of FCR, and achieved a "full response with incomplete recovery of the bone marrow." He had severe complications after treatment, but the CLL never recurred. In November 2023 he began to experience
dwolden
in
CLL Support
3 months ago
A Bladder Cancer Update.
I got a telephone call early this morning, I was still in bed. Was a woman offering me a place in a Private Hospital for A 'FLEXY CYSTOSCOPY' Good news but the hospital was miles away in Preston, in fact the other side. So I asked her could I not get in at my local hospital - She then started talking
I got a telephone call early this morning, I was still in bed. Was a woman offering me a place in a Private Hospital for A 'FLEXY CYSTOSCOPY' Good news but the hospital was miles away in Preston, in fact the other side. So I asked her could I not get in at my local hospital - She then started talking
Ern007
in
Lung Conditions Community Forum
9 months ago
Failed on Piqray... off to xeloda I go....
hi friends... so looks like my time piqray is coming to an end... latest pet scan showed a few more spots on liver! I only got 4 months out of it which I guess anytime is better than nothing' o to xeloda I go..... has anyone been on this med and can anyone give me some advice or any side effects they
hi friends... so looks like my time piqray is coming to an end... latest pet scan showed a few more spots on liver! I only got 4 months out of it which I guess anytime is better than nothing' o to xeloda I go..... has anyone been on this med and can anyone give me some advice or any side effects they
DianaSav
in
SHARE Metastatic Breast Cancer
9 months ago
Mother diagnosed with HG Ovarian cancer. Current Chemo not fully responding (reocurrence). Need suggestions/Guidance - Alternate treatments
My Mother was diagnosed with Ovarian Cancer (high grade Serous Carcinoma) in January 2022. Started Chemo in Feb, 2022(medicine used- Inj Paclitaxel (80 mg/ m2) (D1, D8 q 21 days) + Inj Carboplatin (AUC 5)(D1q3) and by April 2022 CA 125 was 9. Got a Full Hysterectomy surgery and received Hipec chemotherapy
My Mother was diagnosed with Ovarian Cancer (high grade Serous Carcinoma) in January 2022. Started Chemo in Feb, 2022(medicine used- Inj Paclitaxel (80 mg/ m2) (D1, D8 q 21 days) + Inj Carboplatin (AUC 5)(D1q3) and by April 2022 CA 125 was 9. Got a Full Hysterectomy surgery and received Hipec chemotherapy
akhilsalwan
in
My Ovacome
9 months ago
Break ups?? Walk in the park
I would like to say , yes break ups are terrible, but I would take a break up over a panic attack attack anyday of the week, I know they are similar , from the time you awake to the time you go to sleep you have that person in your mind, and it's awful and terrible, but time heals those wounds,, try
I would like to say , yes break ups are terrible, but I would take a break up over a panic attack attack anyday of the week, I know they are similar , from the time you awake to the time you go to sleep you have that person in your mind, and it's awful and terrible, but time heals those wounds,, try
detour13
in
Anxiety and Depression Support
5 months ago
Happy New Year
I'm well and coming up to first anniversary of total hysterectomy for grade 1b ovarian cancer. No treatment just 3 monthly follow ups with CA125. I am very emotional and feeling like a bit of a fraud for not just being very grateful that I am still here.Thanks
I'm well and coming up to first anniversary of total hysterectomy for grade 1b ovarian cancer. No treatment just 3 monthly follow ups with CA125. I am very emotional and feeling like a bit of a fraud for not just being very grateful that I am still here.Thanks
10Ronnies
in
My Ovacome
9 months ago
Rectal prolapse - Constipation. Laxido
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
briarhillcat
in
IBS Network
7 months ago
Active B12 levels
I read that : The normal range for active vitamin B12 (holoTC) is around 20 – 134 pmol/L (picomoles per My recent blood test states my active B12 level is 83.2pmol/L but states this is optimal. (medichecks) Do I need to supplement this?
I read that : The normal range for active vitamin B12 (holoTC) is around 20 – 134 pmol/L (picomoles per My recent blood test states my active B12 level is 83.2pmol/L but states this is optimal. (medichecks) Do I need to supplement this?
Fortie
in
Thyroid UK
7 months ago
Coroner: Vitamin D packs should outline ‘serious risks’ after overdose death
Sometimes vitamin D dosing seems to be regarded as being of little importance provided we get enough. [u]This article and the report make it very clear that [/u][u]
excess
[/u][u] vitamin D is very much to be avoided.[/u] The company mentioned in the report offers products up to 5000 IU. But I
Sometimes vitamin D dosing seems to be regarded as being of little importance provided we get enough. [u]This article and the report make it very clear that [/u][u]
excess
[/u][u] vitamin D is very much to be avoided.[/u] The company mentioned in the report offers products up to 5000 IU. But I
helvella
Thyroid UK
in
Thyroid UK
7 months ago
Where's the fire in delaying/pausing chemo?
3 weeks ago I started chemo with the Cabazitaxel/Carboplatin combination (I'd rather not name the hospital for now) I had a bad reaction to the first infusion (it turned out that I had an undetected infection, so my immunity was rock-bottom) As a result of that experience (10 days in hospital, wiped
3 weeks ago I started chemo with the Cabazitaxel/Carboplatin combination (I'd rather not name the hospital for now) I had a bad reaction to the first infusion (it turned out that I had an undetected infection, so my immunity was rock-bottom) As a result of that experience (10 days in hospital, wiped
CrocodileShoes
in
Fight Prostate Cancer
9 months ago
Weird tingling (not just peripheral neuropathy)
Happy New Year to fellow warriors - I hope for your continued good health as we engage in common cause against our common foe. I start the New Year with an odd query: I'm now on Day 21 of a Cabazitaxel/Carboplatin combination chemo. I was due to have infusion #2 today, but because of a bad reaction,
Happy New Year to fellow warriors - I hope for your continued good health as we engage in common cause against our common foe. I start the New Year with an odd query: I'm now on Day 21 of a Cabazitaxel/Carboplatin combination chemo. I was due to have infusion #2 today, but because of a bad reaction,
CrocodileShoes
in
Fight Prostate Cancer
9 months ago
Invasive Breast Cancer her 2 P+ E+1 lymph node Metastatic spread after chemo & Mastectomy
Hi Guys, I’m struggling here. . I was diagnosed with Invasive Breast Cancer her 2 , P+ E+ positive. I had docetaxel carboplatin and ohesgo and straight in for a single mastectomy and a couple of lymph nodes out. 1 came back with a 4mm Metastatic spread after chemo and 3 weeks ago I had a full
Hi Guys, I’m struggling here. . I was diagnosed with Invasive Breast Cancer her 2 , P+ E+ positive. I had docetaxel carboplatin and ohesgo and straight in for a single mastectomy and a couple of lymph nodes out. 1 came back with a 4mm Metastatic spread after chemo and 3 weeks ago I had a full
GillyGangGong
in
SHARE Metastatic Breast Cancer
9 months ago
Wednesday's Word
[u][i]
MRCP -
[/i][/u] This is a type of body scan that examines the bile ducts in great detail. It uses magnetic resonance imaging (MRI). Prior to this test, the examination of the bile ducts for gallstones or some type of blockage was done with the placement of a scope called ERCP. This was
[u][i]
MRCP -
[/i][/u] This is a type of body scan that examines the bile ducts in great detail. It uses magnetic resonance imaging (MRI). Prior to this test, the examination of the bile ducts for gallstones or some type of blockage was done with the placement of a scope called ERCP. This was
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Figuring things out - first year since diagnosis
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
CGSLE
in
LUPUS UK
6 months ago
Seek help for your grief
Whether you are a patient or caregiver, there is grief that comes with a serious diagnosis, especially when it's the "C" word. When your loved one dies, [u]it's a different level and kind of grief[/u]. When my sister Adrienne died, I pretended for far too long that I was okay. I didn't allow myself
Whether you are a patient or caregiver, there is grief that comes with a serious diagnosis, especially when it's the "C" word. When your loved one dies, [u]it's a different level and kind of grief[/u]. When my sister Adrienne died, I pretended for far too long that I was okay. I didn't allow myself
AndreaWilson_Founder
Caregiver
in
Blue Faery Liver Cancer
3 days ago
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