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Hydrochlorothiazide and irbesartan
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Diagnosed with Richters follow up - great news
Late April prior to treatment September after 4 cycles This is an update to my Diagnosed with Richters post a month or so back. I now go to MDA every 28 days and every third visit is a PET/CT scan and bone marrow along with
Late April prior to treatment September after 4 cycles This is an update to my Diagnosed with Richters post a month or so back. I now go to MDA every 28 days and every third visit is a PET/CT scan and bone marrow along with
Louie_CC
in
CLL Support
8 days ago
Finally, weaning off prednisone after 15 years.
I have not posted in a while. About 5 years ago my blood pressure went up (180/110). I was put on over 10 different blood pressure meds. Nothing took it down. Last November I was diagnosed, via kidney biopsy, with something called MGRS (monoclonal gammopathy of renal significance). The illness
I have not posted in a while. About 5 years ago my blood pressure went up (180/110). I was put on over 10 different blood pressure meds. Nothing took it down. Last November I was diagnosed, via kidney biopsy, with something called MGRS (monoclonal gammopathy of renal significance). The illness
phebamom
in
PMRGCAuk
9 days ago
Genetic testing and Second Opinion – A result!
Following on from my post last week about docetaxel not working, I had a frank conversation with my MO during which I said I strongly believe that genetic testing of my liver biopsy sample should be the next step and after some debate, to my surprise, he agreed and has put through the request. It’s still
Following on from my post last week about docetaxel not working, I had a frank conversation with my MO during which I said I strongly believe that genetic testing of my liver biopsy sample should be the next step and after some debate, to my surprise, he agreed and has put through the request. It’s still
Benkaymel
in
Advanced Prostate Cancer
9 months ago
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Lupus or another Autoimmune Disease?
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
Milescircus
in
LUPUS UK
6 months ago
blood tests
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
Tonkie
in
LUPUS UK
6 months ago
First treatment of Taxotere
I haven't posted in a long time. My husband is going to have his first chemo treatment of Taxotere in about a week. He has ben fighting metastatic stage 4 prostate cancer for five years. Thankfully it has stayed in the bones and not spread to any organs. For those who have had this treatment, can
I haven't posted in a long time. My husband is going to have his first chemo treatment of Taxotere in about a week. He has ben fighting metastatic stage 4 prostate cancer for five years. Thankfully it has stayed in the bones and not spread to any organs. For those who have had this treatment, can
MsHope
in
Advanced Prostate Cancer
9 months ago
Road blocks
Hi all,I thought I'd update you all. I went into hospital in the 20/02 to have my second last chemo before the BMT. Upon admission, I had a fever. After 4 days of fevers and a rash from head to toe, the doctors elected to postpone the BMT. So now the search is on to find out what drugs didn't agree
Hi all,I thought I'd update you all. I went into hospital in the 20/02 to have my second last chemo before the BMT. Upon admission, I had a fever. After 4 days of fevers and a rash from head to toe, the doctors elected to postpone the BMT. So now the search is on to find out what drugs didn't agree
Sagiegirl
in
MPN Voice
7 months ago
Beta blockers
I'm 68, female with NASH/ Cirrhosis which is compensated. I have recently been prescribed 1.25 mg of Bisoprolol Fumarate (beta blocker) but I'm so anxious about taking it as my GP seemed unsure about any effect on my liver. I was wondering if any members take beta blockers with no ill effects? I'm also
I'm 68, female with NASH/ Cirrhosis which is compensated. I have recently been prescribed 1.25 mg of Bisoprolol Fumarate (beta blocker) but I'm so anxious about taking it as my GP seemed unsure about any effect on my liver. I was wondering if any members take beta blockers with no ill effects? I'm also
Robert1220
in
British Liver Trust
5 months ago
Indigestion Medications
Hi All Can anyone recommend an effective indigestion tablet/liquid that is gluten free. I tried gaviscon advance recently which worked so well but then I reacted as if I’d eaten gluten, it is listed as gluten free so must have been another ingredient that I’m sensitive to, but don’t want to try it
Hi All Can anyone recommend an effective indigestion tablet/liquid that is gluten free. I tried gaviscon advance recently which worked so well but then I reacted as if I’d eaten gluten, it is listed as gluten free so must have been another ingredient that I’m sensitive to, but don’t want to try it
Galaxy2
in
Gluten Free Guerrillas
7 months ago
Continued Journey
This is day +67 for me since by Bone Marrow Transplant. Happy Labor Day here in the USA. I had been cruising along with a few seemingly minor issues. GI tract at times has been an issue especially with bowel movements. As I was weened off the steroid Prednisone I have recently been put on the steroid
This is day +67 for me since by Bone Marrow Transplant. Happy Labor Day here in the USA. I had been cruising along with a few seemingly minor issues. GI tract at times has been an issue especially with bowel movements. As I was weened off the steroid Prednisone I have recently been put on the steroid
FiArt12X
in
CLL Support
26 days ago
Still Hangin in There
Hi everyone. 9+ years on (take a peek at my bio.) Stage IV pca. I'm still hormone sensitive with undetectable PSA. Living life and enjoying my time with friends and family. In November I will enter year 2 of multiple myeloma DX. Have been through induction but not needing a stem cell transplant
Hi everyone. 9+ years on (take a peek at my bio.) Stage IV pca. I'm still hormone sensitive with undetectable PSA. Living life and enjoying my time with friends and family. In November I will enter year 2 of multiple myeloma DX. Have been through induction but not needing a stem cell transplant
swwags
in
Advanced Prostate Cancer
26 days ago
COLONOSCOPY AND GASTROSCOPY TOMORROW
Hi everyone, having my first colonoscopy and gastroscopy tomorrow, to say I am stressed is an understatement, keep imagining all sorts of things, any advice on how to handle the anxiety would be greatly appreciated.
Hi everyone, having my first colonoscopy and gastroscopy tomorrow, to say I am stressed is an understatement, keep imagining all sorts of things, any advice on how to handle the anxiety would be greatly appreciated.
dojoman59
in
IBS Network
7 months ago
Is it the time for initial treatment?
As I previously stated, my wife was diagnosed with CLL in 2020. Her markers are 13q deletion, 12 trisomy, and TP53, with IGHV muted. She is still in W&W form. So far, I've learned via reading literature and numerous posts about lymphocyte doubling time, lactate dehydrogenase, and lymph nodes. Her lymphocyte
As I previously stated, my wife was diagnosed with CLL in 2020. Her markers are 13q deletion, 12 trisomy, and TP53, with IGHV muted. She is still in W&W form. So far, I've learned via reading literature and numerous posts about lymphocyte doubling time, lactate dehydrogenase, and lymph nodes. Her lymphocyte
Sagarcanada
in
CLL Support
5 months ago
low lobulated lesion of rectum
found large low lesion of rectum after sigmoidoscopy discharged me back to gp So much pain lost weight can’t eat pain all time feels like sitting on golf ball this happened after hospital did manual evacuation after had new hip last Oct Feel so unwell all the time
found large low lesion of rectum after sigmoidoscopy discharged me back to gp So much pain lost weight can’t eat pain all time feels like sitting on golf ball this happened after hospital did manual evacuation after had new hip last Oct Feel so unwell all the time
Perrie46
in
Bowel Disease Support
7 months ago
House legislation aims to close a regulatory loophole to improve patient safety of nuclear medicine diagnostic tests in oncology&cardiology
[i]News to me, but something to think about the next time you go for a PET/CT scan or Pluvicto treatment. An issue that is definitely one our patient community should be aware of and legislation we should all support. Here is the final text of the proposed legislation:[/i] [i]
* * *
[/i] PRO-PATIENT
[i]News to me, but something to think about the next time you go for a PET/CT scan or Pluvicto treatment. An issue that is definitely one our patient community should be aware of and legislation we should all support. Here is the final text of the proposed legislation:[/i] [i]
* * *
[/i] PRO-PATIENT
cujoe
in
Fight Prostate Cancer
9 months ago
immunotherapy
anyone that been on Opdiva/Yervoy combo? May I know side-effects and whether it worked? It’s to control a tumor on my back psoas muscle, which was the spreading of OVCA clear cell 6 years after initial diagnosis. TIA.
anyone that been on Opdiva/Yervoy combo? May I know side-effects and whether it worked? It’s to control a tumor on my back psoas muscle, which was the spreading of OVCA clear cell 6 years after initial diagnosis. TIA.
Leniko
in
My Ovacome
9 months ago
New Year- New Challenges.
Hi all before I begin my 'Saga', I would like to wish you all a 'Better New Year'.😀 I am still waiting for the urgent needle biopsy for the large lump in my stomach, which was discovered in a recent 'Cat Scan'. Until that is completed my Haematologist cannot tell me the exact treatment I need to go
Hi all before I begin my 'Saga', I would like to wish you all a 'Better New Year'.😀 I am still waiting for the urgent needle biopsy for the large lump in my stomach, which was discovered in a recent 'Cat Scan'. Until that is completed my Haematologist cannot tell me the exact treatment I need to go
Vindicatrix
in
CLL Support
9 months ago
stool withholding - dulcosoft liquid an option?
Hi We have a nearly 4 y/o daughter who started withholding about 4 months ago. She point blank refused any mivicol or cosmocol, not even the flavoured ones so we were told to try lactulose. But even then we can only get about 15ml in her a day because she likes water. someone recommended Dulcosoft
Hi We have a nearly 4 y/o daughter who started withholding about 4 months ago. She point blank refused any mivicol or cosmocol, not even the flavoured ones so we were told to try lactulose. But even then we can only get about 15ml in her a day because she likes water. someone recommended Dulcosoft
Sugarrush575
in
ERIC
7 months ago
Prednisalone
I have wrote recently about hydroxychloroquine upsetting my stomach I have tried them three times, each time I have been taken steriods also ,after stopping g hydroxychloroquine agian about a week ago ,I find mystomach still in a mess ,now I'm beginning to wonder if it the steriods that are giving me
I have wrote recently about hydroxychloroquine upsetting my stomach I have tried them three times, each time I have been taken steriods also ,after stopping g hydroxychloroquine agian about a week ago ,I find mystomach still in a mess ,now I'm beginning to wonder if it the steriods that are giving me
Alice70
in
NRAS
7 months ago
Can't increase my iron levels
Hi all, I posted in February 2023 my low iron results and started taking 200 Ferrous Sulphate daily then. My iron results after 3 months were Ferritin 39 (20-204) Serum iron 18.6 (4.4-27.9) Feb 23 was: serum iron 11, ferritin was 29. So not a huge improvement. But now, a year on, even worse! Despite
Hi all, I posted in February 2023 my low iron results and started taking 200 Ferrous Sulphate daily then. My iron results after 3 months were Ferritin 39 (20-204) Serum iron 18.6 (4.4-27.9) Feb 23 was: serum iron 11, ferritin was 29. So not a huge improvement. But now, a year on, even worse! Despite
Suzanneharb
in
Thyroid UK
7 months ago
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