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Hydrea
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Those who have Essential Thrombocythemia
I was on
Hydrea
for a month and starting getting them so I assumed it was a side effect of the drug. I recently went off the
Hydrea
for 6 weeks and continued to get chills. So now it looks like they may be symptom of the ET itself and I am wondering if anyone else here has the same experience?
I was on
Hydrea
for a month and starting getting them so I assumed it was a side effect of the drug. I recently went off the
Hydrea
for 6 weeks and continued to get chills. So now it looks like they may be symptom of the ET itself and I am wondering if anyone else here has the same experience?
lindabomba
in
MPN Voice
2 years ago
Give it a try
They all said the same thing: aspirin and
hydrea
. I have done well on the medication , no real side effects to speak of , and when I feel tired I take a nap. This is scary and new but I did it and blood work has been pretty stable now. I get blood drawn about every three months.
They all said the same thing: aspirin and
hydrea
. I have done well on the medication , no real side effects to speak of , and when I feel tired I take a nap. This is scary and new but I did it and blood work has been pretty stable now. I get blood drawn about every three months.
Sunnylesser
in
MPN Voice
2 years ago
Questions on Hydrea usage
Quite scared about taking
Hydrea
which I will have to start very soon. Few days ago I had bleeding (quite scary ) related to Diverticulosis. Platelets currently at 1198.... on low dose aspirin only. Has anyone with Diverticulosis currently taking
Hydrea
and low dose aspirin?
Quite scared about taking
Hydrea
which I will have to start very soon. Few days ago I had bleeding (quite scary ) related to Diverticulosis. Platelets currently at 1198.... on low dose aspirin only. Has anyone with Diverticulosis currently taking
Hydrea
and low dose aspirin?
georgevanier
in
MPN Voice
2 years ago
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Excellent results of Bomedemstat in the Phase 2 study’s ET and Myelofibrosis..
I think finally a very good successor for
Hydrea
.. This drug is not carcinogenetic and induces the mpn mutations to cell death. (See conference posters downloadlinks) on: https://imagobio.com/our-science/#pubs
I think finally a very good successor for
Hydrea
.. This drug is not carcinogenetic and induces the mpn mutations to cell death. (See conference posters downloadlinks) on: https://imagobio.com/our-science/#pubs
Paul1993et
in
MPN Voice
2 years ago
Very bad headache when I wake up!
Hi all I have ET Jak2+ at 8% platelets 415 diagnosed 2020 and have been taking
Hydrea
plus aspirin daily. Recently due to side effects of
Hydrea
my consultant said I could come off the
Hydrea
for 3 months to see how I felt and then consider retaking it or other options.
Hi all I have ET Jak2+ at 8% platelets 415 diagnosed 2020 and have been taking
Hydrea
plus aspirin daily. Recently due to side effects of
Hydrea
my consultant said I could come off the
Hydrea
for 3 months to see how I felt and then consider retaking it or other options.
Fairbank
in
MPN Voice
2 years ago
Peginterferon with Anagrelide?
Until about 6 mths ago I was taking a mixture of
Hydrea
and Anagrelide but it was no longer working so well so I switched to interferon. I’m on the max dose of 180 weekly but platelets are still 650ish and as an active person I’m struggling with the tiredness and fatigue.
Until about 6 mths ago I was taking a mixture of
Hydrea
and Anagrelide but it was no longer working so well so I switched to interferon. I’m on the max dose of 180 weekly but platelets are still 650ish and as an active person I’m struggling with the tiredness and fatigue.
R_Watson
in
MPN Voice
2 years ago
Second malignancies side effects in hydroxyurea
Hydrea
is still considered by many practitioners as the first choice therapy for ET and PV: Patients treated with HU had a significantly higher risk of developing all second malignancies.. https://onlinelibrary.wiley.com/doi/10.1111/ejh.12787 And https://pubmed.ncbi.nlm.nih.gov/24778065/ This again
Hydrea
is still considered by many practitioners as the first choice therapy for ET and PV: Patients treated with HU had a significantly higher risk of developing all second malignancies.. https://onlinelibrary.wiley.com/doi/10.1111/ejh.12787 And https://pubmed.ncbi.nlm.nih.gov/24778065/ This again
Paul1993et
in
MPN Voice
2 years ago
Anyone out there living with Polycythaemia Rubra Vera + Multiple Myeloma?
Polycythaemia Rubra Vera since c2005 (well-controlled with
Hydrea
) Multiple Myeloma (more specifically: Multiple Plasmacytoma) diagnosed 2018/2019. PRV remains in remission but MM relapsed some months ago.
Polycythaemia Rubra Vera since c2005 (well-controlled with
Hydrea
) Multiple Myeloma (more specifically: Multiple Plasmacytoma) diagnosed 2018/2019. PRV remains in remission but MM relapsed some months ago.
SolasChoir
in
MPN Voice
2 years ago
Hypothyroidism from Hydrea
I'm curious if anyone has developed hypothyroidism since starting treatment with hydroxycarbamide. I'm about to have a blood test to check this, but I have gained some weight and feel tired a lot . Incidentally, I saw my haemo today . He's happy with the platelet count (now 284,000) . I quizzed him about
I'm curious if anyone has developed hypothyroidism since starting treatment with hydroxycarbamide. I'm about to have a blood test to check this, but I have gained some weight and feel tired a lot . Incidentally, I saw my haemo today . He's happy with the platelet count (now 284,000) . I quizzed him about
Hidden
in
MPN Voice
2 years ago
Alternative to Hydrea ?
Finally, has anyone been told why
Hydrea
causes a weight gain? Does it slow metabolism or cause water retention? Cheers for now...
Finally, has anyone been told why
Hydrea
causes a weight gain? Does it slow metabolism or cause water retention? Cheers for now...
Hidden
in
MPN Voice
2 years ago
On to Vonjo
My wife was diagnosed with ET in the early 90's and started on
Hydrea
then moved to Anagrelide. Then it progressed to MF and she was on Jakafi and then Inrebic which stopped because of very low platelets and hemoglobin.
My wife was diagnosed with ET in the early 90's and started on
Hydrea
then moved to Anagrelide. Then it progressed to MF and she was on Jakafi and then Inrebic which stopped because of very low platelets and hemoglobin.
Pte82
in
MPN Voice
2 years ago
Leg cramps
I’ve been taking
Hydrea
for ET for a year now. My platelets are staying in the 500’s. Over the last couple of months my legs are hurting super bad. Aching all the time. I’m getting a lot of Charlie horses at night. I am standing at my job and on my feet for 6-8 hours a day.
I’ve been taking
Hydrea
for ET for a year now. My platelets are staying in the 500’s. Over the last couple of months my legs are hurting super bad. Aching all the time. I’m getting a lot of Charlie horses at night. I am standing at my job and on my feet for 6-8 hours a day.
Tingle20
in
MPN Voice
2 years ago
I am hoping this can help someone
Hi, I was recently diagnosed with ET and started taking
Hydrea
on December 1st 2021. I was already having fatigue which I feel got worse after I starting taking the medication. I was on the medication for about a month and starting getting chills everyday.
Hi, I was recently diagnosed with ET and started taking
Hydrea
on December 1st 2021. I was already having fatigue which I feel got worse after I starting taking the medication. I was on the medication for about a month and starting getting chills everyday.
lindabomba
in
MPN Voice
2 years ago
Hydrea vs weight
For curiosity I looked into weight gain via HU. This very old and small study for sickle cell looked into it. There should be larger studies I would think but interesting: https://pubmed.ncbi.nlm.nih.gov/9176021/ shows there is a connection, but not entirely a bad one. <<At 18 months, the hydroxyurea-treated
For curiosity I looked into weight gain via HU. This very old and small study for sickle cell looked into it. There should be larger studies I would think but interesting: https://pubmed.ncbi.nlm.nih.gov/9176021/ shows there is a connection, but not entirely a bad one. <<At 18 months, the hydroxyurea-treated
EPguy
in
MPN Voice
2 years ago
Paper on Misc Mutations
. -- On the point of HU resistance etc: << ...p53-dependent mechanisms were identified as a resistance mechanism to hydroxyurea in colon cancer cells, highlighting the importance of DNA damage pathways in hydroxyurea sensitivity>> Dr Golib's statement on risk of
Hydrea
resistance/tolerance may relate
. -- On the point of HU resistance etc: << ...p53-dependent mechanisms were identified as a resistance mechanism to hydroxyurea in colon cancer cells, highlighting the importance of DNA damage pathways in hydroxyurea sensitivity>> Dr Golib's statement on risk of
Hydrea
resistance/tolerance may relate
EPguy
in
MPN Voice
2 years ago
Booster vs third dose
I am taking
Hydrea
and have received 2 doses of Moderna. My MPN specialist said all I need is a Moderna booster.
I am taking
Hydrea
and have received 2 doses of Moderna. My MPN specialist said all I need is a Moderna booster.
Ashtin
in
MPN Voice
3 years ago
Second opinion
At my intial consultation I was imprescribed 500mg
hydrea
daily. On a later consultation Dr Conneally subsequently upped this to 1000 mg three days a week & 500 mg for the other four days days. My platelets, as of last week are now down in the 200s 🙂😄🌟 .
At my intial consultation I was imprescribed 500mg
hydrea
daily. On a later consultation Dr Conneally subsequently upped this to 1000 mg three days a week & 500 mg for the other four days days. My platelets, as of last week are now down in the 200s 🙂😄🌟 .
Woodlandgarden
in
MPN Voice
2 years ago
Bloods spike
So bloods last week and Doctor called red count has spiked so
hydrea
500 increased to double for 8 weeks So hope for a good result Frank
So bloods last week and Doctor called red count has spiked so
hydrea
500 increased to double for 8 weeks So hope for a good result Frank
Hughesf
in
MPN Voice
3 years ago
Castle Walt Disney designed the castle he built at Disney Land. This castle welcomes you to the outskirts of the diamond village of Toledo.
I have been on
Hydrea
500mg once daily and 100mg Aspirin for my MPN and pain medication for neuropathic pain. I started to become symptomatic following a dreadful viral flu that quickly developed into a condition called Polymyositis. On
Hydrea
I maintain platelet counts between 500 and 600.
I have been on
Hydrea
500mg once daily and 100mg Aspirin for my MPN and pain medication for neuropathic pain. I started to become symptomatic following a dreadful viral flu that quickly developed into a condition called Polymyositis. On
Hydrea
I maintain platelet counts between 500 and 600.
Gordito
in
MPN Voice
3 years ago
Should I take Hydrea for 7 days?
I was prescribed a week of
Hydrea
but am reluctant to take it. My hematologist is on vacation till next week. Meanwhile I am in a dilemma, do I just take an aspirin a day and not take
Hydrea
till I get another blood work next week or take the
Hydrea
?
I was prescribed a week of
Hydrea
but am reluctant to take it. My hematologist is on vacation till next week. Meanwhile I am in a dilemma, do I just take an aspirin a day and not take
Hydrea
till I get another blood work next week or take the
Hydrea
?
Hazelnut2020
in
MPN Voice
3 years ago
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