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Broken
I guess I’ve come here today to vent, I have suffered years of pain and got my official stage 4 endo diagnosis just over 5 weeks ago. In the last six months I’ve deteriorated rapidly and in the last 3 in particularly I’ve been off work more days than I’ve been in. Since my lap the pain has been pretty
I guess I’ve come here today to vent, I have suffered years of pain and got my official stage 4 endo diagnosis just over 5 weeks ago. In the last six months I’ve deteriorated rapidly and in the last 3 in particularly I’ve been off work more days than I’ve been in. Since my lap the pain has been pretty
Reen_Bean
in
Endometriosis UK
10 years ago
Still suffering
Hi all, after having endometriosis for 10 years now and having 8 surgerys im back to the beginning working out which is the best route for me. Ive recently been put back onto prostap monthly injections. With only being 23 this is a huge decision on my future with the prostap injections shutting everything
Hi all, after having endometriosis for 10 years now and having 8 surgerys im back to the beginning working out which is the best route for me. Ive recently been put back onto prostap monthly injections. With only being 23 this is a huge decision on my future with the prostap injections shutting everything
Vickey23
in
Endometriosis UK
10 years ago
Scared, prostap, please help me, please
Hi everyone. I really need some advice. I have stage 4 endorsement, I had my first prostap injection 3 weeks ago. Today I had severe endo pain and had to go to A&E, was given morphine at 13:40 and discharged at 15:10. I've just started bleeding, not like a period bleed, like a bright red flow. I'm still
Hi everyone. I really need some advice. I have stage 4 endorsement, I had my first prostap injection 3 weeks ago. Today I had severe endo pain and had to go to A&E, was given morphine at 13:40 and discharged at 15:10. I've just started bleeding, not like a period bleed, like a bright red flow. I'm still
Reen_Bean
in
Endometriosis UK
10 years ago
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Start fet in sept
I have my prostap booked for 5th sept cd21 and scan booked for 22nd sept does anyone know what happens after that and roughly when transfer will be? Xx
I have my prostap booked for 5th sept cd21 and scan booked for 22nd sept does anyone know what happens after that and roughly when transfer will be? Xx
Alc0503
in
Fertility Network UK
10 years ago
Anyone else had this?
Accelerated and amplified hormone and lymph type response? Surely adrenaline or similar hormone driving it. Almost simultaneous symptoms of achey painful armpits, needle jabs in either breast at the side or on top, lumpy throat (ie, around thyroid) sometimes hard to swallow, rock-hard lumps either side
Accelerated and amplified hormone and lymph type response? Surely adrenaline or similar hormone driving it. Almost simultaneous symptoms of achey painful armpits, needle jabs in either breast at the side or on top, lumpy throat (ie, around thyroid) sometimes hard to swallow, rock-hard lumps either side
lazylanc
in
Endometriosis UK
10 years ago
Anyone else had this?
Accelerated and amplified hormone and lymph type response? Surely adrenaline or similar hormone driving it. Almost simultaneous symptoms of achey painful armpits, needle jabs in either breast at the side or on top, lumpy throat (ie, around thyroid) sometimes hard to swallow, rock-hard lumps either
Accelerated and amplified hormone and lymph type response? Surely adrenaline or similar hormone driving it. Almost simultaneous symptoms of achey painful armpits, needle jabs in either breast at the side or on top, lumpy throat (ie, around thyroid) sometimes hard to swallow, rock-hard lumps either
lazylanc
in
Thyroid UK
10 years ago
Adenomyosis / endo & prostap
Hi, I have just been diagnosed with suspected adenomyosis. I have endometriosis too. This year I have had two laps for endo and adhesions and an ovary removed. To try and treat the burning pain that feels like my abdomen / womb is on fire nearly everyday we have decided to try a six month course of
Hi, I have just been diagnosed with suspected adenomyosis. I have endometriosis too. This year I have had two laps for endo and adhesions and an ovary removed. To try and treat the burning pain that feels like my abdomen / womb is on fire nearly everyday we have decided to try a six month course of
Hidden
in
Endometriosis UK
10 years ago
Any advice greatly appreciated
Ok I will try to keep this brief, I was diagnosed with endo after lap in December 2013, was found to be very severe and my surgeon decided it was too diffuse to lazer anything, so I was fitted with the coil. This didn't help with the pain, although it has now stopped my periods, witch is quite nice
Ok I will try to keep this brief, I was diagnosed with endo after lap in December 2013, was found to be very severe and my surgeon decided it was too diffuse to lazer anything, so I was fitted with the coil. This didn't help with the pain, although it has now stopped my periods, witch is quite nice
charlmarie
in
Endometriosis UK
10 years ago
Can Prostap Cause Long Term Joint Problems?
Hi everyone, I have had two courses of prostap, one for 6 months and the other for approx 18 months. My last injection was about 6 months ago when I had a total hyst and I still have very bad bone and joint pain. I am waiting to see a Rheumatologist. Has anyone else suffered from long term joint pain
Hi everyone, I have had two courses of prostap, one for 6 months and the other for approx 18 months. My last injection was about 6 months ago when I had a total hyst and I still have very bad bone and joint pain. I am waiting to see a Rheumatologist. Has anyone else suffered from long term joint pain
Eggcustard
in
Endometriosis UK
10 years ago
Trapped wind? Is it an endo symptom?
Hi Ladies I seem to have developed another possible endo symptom this week and wondered if anyone else has had it? My stomach has been a bit off all week, odd bit of diarrhea (sorry!) and feeling nauseous. Then yesterday I had to walk further than normal from my car to work (1/4 mile) carrying heavy
Hi Ladies I seem to have developed another possible endo symptom this week and wondered if anyone else has had it? My stomach has been a bit off all week, odd bit of diarrhea (sorry!) and feeling nauseous. Then yesterday I had to walk further than normal from my car to work (1/4 mile) carrying heavy
CharlieSays
in
Endometriosis UK
10 years ago
Knowing "where" your endmetriosis is
The more I explore this forum, the more I see people referring to having certain types of endo/in certain places ie "on the uterus wall" or "recto-vaginal" or whatever and referring to their endo as being a certain stage. I was originally diagnosed just over two years ago, when I was still a student
The more I explore this forum, the more I see people referring to having certain types of endo/in certain places ie "on the uterus wall" or "recto-vaginal" or whatever and referring to their endo as being a certain stage. I was originally diagnosed just over two years ago, when I was still a student
Jaypalf
in
Endometriosis UK
10 years ago
Prostap
Got my prostap injections not having a lot of side effects is it still early as was just a few days ago . Only feeling a little emotional . Has it worked ?
Got my prostap injections not having a lot of side effects is it still early as was just a few days ago . Only feeling a little emotional . Has it worked ?
Melaineh
in
Fertility Network UK
10 years ago
Consultant wants me to repeatedly go on/off prostap?
Hi, I'm new here but was diagnosed with endometriosis two years ago, when I was 22, after suffering for about 8 years. There's a tonne of stuff I just want to get off my chest because I feel like none of my friends/family/fiance truly understand some of the things, and I need to know that other people
Hi, I'm new here but was diagnosed with endometriosis two years ago, when I was 22, after suffering for about 8 years. There's a tonne of stuff I just want to get off my chest because I feel like none of my friends/family/fiance truly understand some of the things, and I need to know that other people
Jaypalf
in
Endometriosis UK
10 years ago
3 months Prostap and 3 months mini pill before ttc.
Hi Everyone. Some of you may have read my previous posts...I've recently had an op to remove a rather large nodule of endo from my bladder. (Was in between bladder and uterus) Surgery was a success, and thankfully no endo else where, ovaries and tubes all normal. The advice from my gynae was 3 months
Hi Everyone. Some of you may have read my previous posts...I've recently had an op to remove a rather large nodule of endo from my bladder. (Was in between bladder and uterus) Surgery was a success, and thankfully no endo else where, ovaries and tubes all normal. The advice from my gynae was 3 months
Joey_Eds13
in
Endometriosis UK
10 years ago
Pros tap injections help please!!
Hey, I'm just trying to gather more information about prostap injection that I've started to see if it will help the symptoms of endometriosis. I had my first injection on the 28th of June and within two days my bleeding stopped and I felt absolutely fine. But a week later I bled again but it didn't
Hey, I'm just trying to gather more information about prostap injection that I've started to see if it will help the symptoms of endometriosis. I had my first injection on the 28th of June and within two days my bleeding stopped and I felt absolutely fine. But a week later I bled again but it didn't
Nflanagan1
in
Endometriosis UK
10 years ago
Pain, pain, pain
Hi guys, I've been on prostap injections for the last 3 years with livial addback and I've had absolutely no pain or endo symptoms at all. On the 28th June I got a sudden onset of pain and was admitted to hospital, I had a week of intravenous antibiotics and then a laparoscopy in which they removed
Hi guys, I've been on prostap injections for the last 3 years with livial addback and I've had absolutely no pain or endo symptoms at all. On the 28th June I got a sudden onset of pain and was admitted to hospital, I had a week of intravenous antibiotics and then a laparoscopy in which they removed
lucii
in
Endometriosis UK
10 years ago
Has anyone had prostap/ zoladex immediately before ivf?
I will be having my 5th lap to treat stage 4 endo in Oct. Ive been advised to have zoladex straight after surgery for 6 months, then straight into ivf. Ive previously had 6 months prostap and felt awful, but then a gap before the trials and tribulations of ivf. Just wondering about the benefits of doing
I will be having my 5th lap to treat stage 4 endo in Oct. Ive been advised to have zoladex straight after surgery for 6 months, then straight into ivf. Ive previously had 6 months prostap and felt awful, but then a gap before the trials and tribulations of ivf. Just wondering about the benefits of doing
Poppy12
in
Endometriosis UK
10 years ago
Can prostap cause long term joint pain even after stopping the injections?
Hi everyone, I have had two courses of prostap, one for 6 months and the other for approx 18 months. My last injection was about 6 months ago a when I had a total hyst and I still have very bad bone and joint pain. A blood test has shown low calcium levels and I am waiting for the results of a vitamin
Hi everyone, I have had two courses of prostap, one for 6 months and the other for approx 18 months. My last injection was about 6 months ago a when I had a total hyst and I still have very bad bone and joint pain. A blood test has shown low calcium levels and I am waiting for the results of a vitamin
Eggcustard
in
Endometriosis UK
10 years ago
What's the difference between prostap and depapeptyl?
I am on the gnrh monthly injections and was told before I started them that I would be having prostap. Just had 3rd injection and found out I'm actually on decapeptyl. Are they similar does anyone know of any differences apart from the cost
I am on the gnrh monthly injections and was told before I started them that I would be having prostap. Just had 3rd injection and found out I'm actually on decapeptyl. Are they similar does anyone know of any differences apart from the cost
K_ay
in
Endometriosis UK
10 years ago
Endo symptoms without periods?
I may be clutching at straws, but would value feedback. I was diagnosed in 1989 having a laparoscopy, and had ovarian cysts too, given male hormone tablets, then again in 1994 had severe Endo, has prostap, a treatment given by injection for 6 months, which is a prostate treatment, I was then on the
I may be clutching at straws, but would value feedback. I was diagnosed in 1989 having a laparoscopy, and had ovarian cysts too, given male hormone tablets, then again in 1994 had severe Endo, has prostap, a treatment given by injection for 6 months, which is a prostate treatment, I was then on the
Debbip
in
Endometriosis UK
10 years ago
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