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Foraminotomy
has anybody had a posterior endoscopic foraminotomy? In particular for bone spurs. I could be looking at this surgery once injections have been exhausted. Would be interested in hearing from people about how they found it, did it work, and crucially what was your post op experience like, pain levels,
has anybody had a posterior endoscopic foraminotomy? In particular for bone spurs. I could be looking at this surgery once injections have been exhausted. Would be interested in hearing from people about how they found it, did it work, and crucially what was your post op experience like, pain levels,
yorkshirelad1
in
Pain Concern
7 months ago
ADT- Low Total Cholesterol- Low Serotonin in the brain = cause of Anxiety and Depression?
I have been experiencing short bursts of anxiety about topics that seem very irrational to me . They come and go in a period of 12-18 hours. I have had about 6 episodes during the last year. In the beginning my "Scout" voice tried to over ride the negative thinking with rational thinking. During the
I have been experiencing short bursts of anxiety about topics that seem very irrational to me . They come and go in a period of 12-18 hours. I have had about 6 episodes during the last year. In the beginning my "Scout" voice tried to over ride the negative thinking with rational thinking. During the
Scout4answers
in
Advanced Prostate Cancer
9 months ago
Xmas worries?
Yet another one fast approaching as normal I am not full of festive cheer IBD/Diverticular Disease is my main problem just as well it's only myself and husband here 2 cater 4 thank you but that is bad enough!!! So I am just doing a chicken this year and my safe(ish) veg that I think that I will be
Yet another one fast approaching as normal I am not full of festive cheer IBD/Diverticular Disease is my main problem just as well it's only myself and husband here 2 cater 4 thank you but that is bad enough!!! So I am just doing a chicken this year and my safe(ish) veg that I think that I will be
bungi1961
in
Bowel Disease Support
7 months ago
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New member - Post ET MF (Australia)
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
Hatchie
in
MPN Voice
3 months ago
Panic Attack Advice
Does anyone have any panic attack advice? mean I got seriously spooked and feeling major dizziness. I am a bit of afraid if My blood pressure is super high. At the moment I am away from my anxiety medications.
Does anyone have any panic attack advice? mean I got seriously spooked and feeling major dizziness. I am a bit of afraid if My blood pressure is super high. At the moment I am away from my anxiety medications.
jwhitleyjr
in
Anxiety and Depression Support
5 months ago
Two recent FDA Approvals
Hi everyone, I just wanted to share about two recent approvals. Sorry for my delaying in posting this. On October 11th the FDA made an approval for those with stage IV NSCLC with a BRAF V600E mutation. Here is a link to read more: https://go2.org/blog/fda-approves-combination-braftovi-and-mektovi-for-metastatic-non-small-cell-lung-cancer-for-individuals-with-a-braf-v600e-mutation
Hi everyone, I just wanted to share about two recent approvals. Sorry for my delaying in posting this. On October 11th the FDA made an approval for those with stage IV NSCLC with a BRAF V600E mutation. Here is a link to read more: https://go2.org/blog/fda-approves-combination-braftovi-and-mektovi-for-metastatic-non-small-cell-lung-cancer-for-individuals-with-a-braf-v600e-mutation
Miranda_GO2
Partner
in
Lung Cancer Support
9 months ago
cancer marker 15-3
My moms marker went up from 163 to 332 . She started her second line treatment about 7 weeks ago after being on Ibrance and Femara for around 2 and half years. She is now on faslodex and anfintor. Does this mean its not working ? And if it’s not will they change both meds or just one of them? Thank
My moms marker went up from 163 to 332 . She started her second line treatment about 7 weeks ago after being on Ibrance and Femara for around 2 and half years. She is now on faslodex and anfintor. Does this mean its not working ? And if it’s not will they change both meds or just one of them? Thank
Flower1513
in
SHARE Metastatic Breast Cancer
9 months ago
First SI, the pain, ouch!
Hello everyone, Asking for help again on my SI journey please 🙏 Yesterday I did my first IM injection into the thigh following a video by a UK GP. It hurt much less than the one I had done in the arm at a clinic 2 weeks ago (to check no allergic reaction) so I thought great, this is the way to go
Hello everyone, Asking for help again on my SI journey please 🙏 Yesterday I did my first IM injection into the thigh following a video by a UK GP. It hurt much less than the one I had done in the arm at a clinic 2 weeks ago (to check no allergic reaction) so I thought great, this is the way to go
Bertiepuss
in
Pernicious Anaemia Society
7 months ago
Stem cell transplant (SCT) 15 months on
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
Scaredy_cat
in
MPN Voice
3 months ago
Good Morning Monday People
Good morning all, I haven't posted in a while since getting my ESA and starting EMDR. I've experienced a lot of improvement and have adjusted well to the Citalopram which leaves me feeling more alive than the Sertraline I was on. I've been feeling contemplative lately about motivation. What are some
Good morning all, I haven't posted in a while since getting my ESA and starting EMDR. I've experienced a lot of improvement and have adjusted well to the Citalopram which leaves me feeling more alive than the Sertraline I was on. I've been feeling contemplative lately about motivation. What are some
ClassicalBlueKitty
in
Anxiety and Depression Support
4 months ago
weird mouth symptoms on Sulfasalazine
Has anyone experienced anything like the following? I’ve been on Sulf for 7 weeks, max dose from 4 weeks. In the last 3 days I’ve had a sore tongue which has now settled but I’ve completely lost my sense of taste. I’ve tested and am negative for covid. I can’t think what else it could be!
Has anyone experienced anything like the following? I’ve been on Sulf for 7 weeks, max dose from 4 weeks. In the last 3 days I’ve had a sore tongue which has now settled but I’ve completely lost my sense of taste. I’ve tested and am negative for covid. I can’t think what else it could be!
Charlongo79
in
NRAS
8 months ago
Movicol/colonoscopy prep for IBS relief
Hi all, I have predominantly IBS-D but occasionally I have bouts of horrific IBS-C (I can go up to a week without any bowel movements). This is accompanied by horrific bloating/acid reflux and uncontrollable eggy gas. It can go from a few days to months. I’ve had to be signed off work before because
Hi all, I have predominantly IBS-D but occasionally I have bouts of horrific IBS-C (I can go up to a week without any bowel movements). This is accompanied by horrific bloating/acid reflux and uncontrollable eggy gas. It can go from a few days to months. I’ve had to be signed off work before because
Book_Worm5
in
IBS Network
8 months ago
Going round in circles
Following my gastroscopy this is on the report: THE GASTRIC MAPPING SHOW MODERATE CHRONIC INFLAMMATION. THERE IS MULTIFOCAL INTESTINAL METAPLASIA THROUGHOUT THESE BIOPSIES. THERE IS ALSO SEVERE GLANDULAR ATROPHY WITH NEUROENDOCRINE HYPERPLASIA. NO MUCOSAL ULCERATION OR ACTIVE INFAMMATION SEEN.
Following my gastroscopy this is on the report: THE GASTRIC MAPPING SHOW MODERATE CHRONIC INFLAMMATION. THERE IS MULTIFOCAL INTESTINAL METAPLASIA THROUGHOUT THESE BIOPSIES. THERE IS ALSO SEVERE GLANDULAR ATROPHY WITH NEUROENDOCRINE HYPERPLASIA. NO MUCOSAL ULCERATION OR ACTIVE INFAMMATION SEEN.
Helliborous
in
Pernicious Anaemia Society
8 months ago
Not where I expected to be
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hoehn
in
SHARE Metastatic Breast Cancer
9 months ago
Supplement Guidance
Hello all So after years of a tummy that reacted to certain foods, being diagnosed as gluten intolerant in 2016, really suffering in 2021 and 2022, following a FODMAP diet recommended by my doctor (don’t recommend) and getting to a point where I only ate the same plain things everyday, I finally paid
Hello all So after years of a tummy that reacted to certain foods, being diagnosed as gluten intolerant in 2016, really suffering in 2021 and 2022, following a FODMAP diet recommended by my doctor (don’t recommend) and getting to a point where I only ate the same plain things everyday, I finally paid
Kimsy17
in
IBS Network
8 months ago
Update - friend with bronchogenic adenocarcinoma
Hello all, Thanks again for your replies to my original post as a newbie for a friend. She saw her rad/onc today and the PET results are encouraging! No cancer showed up outside the lungs. He recommends she see a thoracic surgeon for her 5 cm mass (golf-tennis ball size) to see if she is a candidate
Hello all, Thanks again for your replies to my original post as a newbie for a friend. She saw her rad/onc today and the PET results are encouraging! No cancer showed up outside the lungs. He recommends she see a thoracic surgeon for her 5 cm mass (golf-tennis ball size) to see if she is a candidate
marcyh
in
Lung Cancer Support
9 months ago
stem cell transplant survival with MF
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
Scaredy_cat
in
MPN Voice
3 months ago
pinching on left side of abdomen
does anyone else have a pinching feeling on left side of abdomen more do when leaning over. I think everything is settling after a flare up but something else starts I’m taking buscopan and mebeverine for pain/spasms any help appreciated
does anyone else have a pinching feeling on left side of abdomen more do when leaning over. I think everything is settling after a flare up but something else starts I’m taking buscopan and mebeverine for pain/spasms any help appreciated
finsbury
in
IBS Network
8 months ago
looking for reassurance or advice
Hello warriors, After exactly 2 years of happily dropping PSA numbers on triplet therapy, my husbands PSA went up this month from .91. To .94 I know MO will say to wait for 3 months of rising PSA before we should panic, but that’s easy for him to say… looking for reassurance as we wait for next months
Hello warriors, After exactly 2 years of happily dropping PSA numbers on triplet therapy, my husbands PSA went up this month from .91. To .94 I know MO will say to wait for 3 months of rising PSA before we should panic, but that’s easy for him to say… looking for reassurance as we wait for next months
Bspouse
in
Advanced Prostate Cancer
9 months ago
Things, regimens,etc that are probably RLS worthless.
THINGS THAT DO NOT WORK FOR RLS All of us with RLS/PLMD have slightly different symptoms. We have tried various 'remedies' to try to relieve our RLS symptoms. We have read articles, some interesting, some ridiculous (bar of soap) that make amazing promises. And there is an entire array of things to
THINGS THAT DO NOT WORK FOR RLS All of us with RLS/PLMD have slightly different symptoms. We have tried various 'remedies' to try to relieve our RLS symptoms. We have read articles, some interesting, some ridiculous (bar of soap) that make amazing promises. And there is an entire array of things to
fritz34
in
Restless Legs Syndrome
5 months ago
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