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York mum in limbo.
Hi Here I am introducing myself. My 12 year old son took ill in may this year. He had haematuria an enlarged spleen, portal hypertension , varacies in the portal vein and one kidney smaller than the other. As yet I still don't know why this is happening ? His biopsy didn't look
Hi Here I am introducing myself. My 12 year old son took ill in may this year. He had haematuria an enlarged spleen, portal hypertension , varacies in the portal vein and one kidney smaller than the other. As yet I still don't know why this is happening ? His biopsy didn't look
Yorkmum
in
Children's Liver Disease Foundation
12 years ago
Lipid Clinic Confusion (again!).
Today I had my lipid clinic appointment. I was nervous about this one as I have made a decision not to take any more statins. Long story about side effects and a family history of muscle disorder had finally convinced me that this is the right decision for me. I was sorry if I appeared hostile when I
Today I had my lipid clinic appointment. I was nervous about this one as I have made a decision not to take any more statins. Long story about side effects and a family history of muscle disorder had finally convinced me that this is the right decision for me. I was sorry if I appeared hostile when I
Aliwally
in
Cholesterol Support
12 years ago
Lipid clinic Hell!
The lipid clinic I attend is so completely dire! I arrived this morning after a cancellation appointment was offered to me over the phone on Wed. Appointment time 9.45. I got there for 9, as usually there is a massive que for bloods, today, no que and I went straight through. No organisation to be weighed
The lipid clinic I attend is so completely dire! I arrived this morning after a cancellation appointment was offered to me over the phone on Wed. Appointment time 9.45. I got there for 9, as usually there is a massive que for bloods, today, no que and I went straight through. No organisation to be weighed
goldie
in
Cholesterol Support
12 years ago
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My visit to the lipid clinic
I went last Thursday to get the results of a blood test and the doctor confirmed that I do have Type 111 hyperlipidaemia. so he changed my medication form Bezalip mon which I have been on for years and relaced it with Fenofibrate and soluble aspirin (both once daily). My cholesterol figer has reduced
I went last Thursday to get the results of a blood test and the doctor confirmed that I do have Type 111 hyperlipidaemia. so he changed my medication form Bezalip mon which I have been on for years and relaced it with Fenofibrate and soluble aspirin (both once daily). My cholesterol figer has reduced
Hidden
in
Cholesterol Support
12 years ago
have to stop reading tablet side affects
went to the doctor today and had a good chat with him .he has giving me haloperidol serenace 500 micrograms but i read the possible side affects and one was sudden death so not taking these id rather be anxious
went to the doctor today and had a good chat with him .he has giving me haloperidol serenace 500 micrograms but i read the possible side affects and one was sudden death so not taking these id rather be anxious
andy37
in
Anxiety Support
12 years ago
hello
Hi my name is Jackie and my son's name is Aaron he has Portal Hypertension, varacis and blocked splenic vein, we only found out in April of this year, Aaron is 9. Sadly Aaron cannot have the shunt done due to the blocked splenic vein and now sadly we are investigating if this is genetic. My first son
Hi my name is Jackie and my son's name is Aaron he has Portal Hypertension, varacis and blocked splenic vein, we only found out in April of this year, Aaron is 9. Sadly Aaron cannot have the shunt done due to the blocked splenic vein and now sadly we are investigating if this is genetic. My first son
cookies897
in
Children's Liver Disease Foundation
12 years ago
Drugs advice for Type III Hyperlipoproteinaemia.
I have recently been diagnosed with the above after genetic testing (I am 51 year old female.) I am otherwise fit, slim and healthy but have ridiculous levels of cholesterol, though the ratios are good. I am reluctantly beginning to see the ned for medication and discussions are beginning. The possibilities
I have recently been diagnosed with the above after genetic testing (I am 51 year old female.) I am otherwise fit, slim and healthy but have ridiculous levels of cholesterol, though the ratios are good. I am reluctantly beginning to see the ned for medication and discussions are beginning. The possibilities
Miggins
in
Cholesterol Support
12 years ago
start of Pravastatin 10mg - not good!
After a fantastic and relaxing holiday, I thought I would bite the bullet and go back to my GP to see if we can start again on lowering my Cholesterol. I started 10mg of Pravastatin at 10pm last night. 4am this morning my knees, thighs and fingers were aching terribly, it is so bad that you just do
After a fantastic and relaxing holiday, I thought I would bite the bullet and go back to my GP to see if we can start again on lowering my Cholesterol. I started 10mg of Pravastatin at 10pm last night. 4am this morning my knees, thighs and fingers were aching terribly, it is so bad that you just do
goldie
in
Cholesterol Support
12 years ago
How did you get referred to a lipid clinic?
I'm breaking in a new GP ;-) and he definitely won't refer before my notes arrive from the last GP and I feel like he's going to be reluctant even then. The last GP never referred me - I was referred when I saw a locum after 5 years of increasing problems while taking Atorvastatin. So, how did you get
I'm breaking in a new GP ;-) and he definitely won't refer before my notes arrive from the last GP and I feel like he's going to be reluctant even then. The last GP never referred me - I was referred when I saw a locum after 5 years of increasing problems while taking Atorvastatin. So, how did you get
DakCB-UK
in
Cholesterol Support
12 years ago
Exercise Treadmill Test
When I went for my last lipid assessment, I was advised to take the ETT which I am doing next Monday pending my next clinic appointment in early August. They will then tell me my cholesterol type and prescribe the correct medication. I was last diagnosed 25 years ago with hyperlipidaemia and am taking
When I went for my last lipid assessment, I was advised to take the ETT which I am doing next Monday pending my next clinic appointment in early August. They will then tell me my cholesterol type and prescribe the correct medication. I was last diagnosed 25 years ago with hyperlipidaemia and am taking
Hidden
in
Cholesterol Support
12 years ago
Lipid Clinic Appointment
Had my most disappointing lipid clinic appointment in 16 years of attending. Saw a different consultant from the usual ones. When I raised concerns about angina he said "You are a 46 year old woman who doesn't smoke. I can confidently say you do not have heart disease and I am a heart doctor". How arrogant
Had my most disappointing lipid clinic appointment in 16 years of attending. Saw a different consultant from the usual ones. When I raised concerns about angina he said "You are a 46 year old woman who doesn't smoke. I can confidently say you do not have heart disease and I am a heart doctor". How arrogant
Seahorse
in
Cholesterol Support
12 years ago
petition for pudendal neuralgia recognition (and All pelvic nerve problems)
Hi all, Here is the petition for spreading awareness of pudendal neuralgia (principally) and other pelvic nerve problems. Everyone needs to sign it. There is a donation request at the end but that is totally up to you. . . We just want you to sign the petition please.
Hi all, Here is the petition for spreading awareness of pudendal neuralgia (principally) and other pelvic nerve problems. Everyone needs to sign it. There is a donation request at the end but that is totally up to you. . . We just want you to sign the petition please.
helenlegs11
Volunteer
in
Pelvic Pain Support Network
12 years ago
Diagnosis and Cholesterol
Hello, I was diagnosed with type 2 Diabetes today and came out with so many questions about this but of course once I had left the doctors but I have another appointment with the nurse next week. He also said that my cholesterol was 8.4 and has referred me to a Lipid clinic. How long do you usually have
Hello, I was diagnosed with type 2 Diabetes today and came out with so many questions about this but of course once I had left the doctors but I have another appointment with the nurse next week. He also said that my cholesterol was 8.4 and has referred me to a Lipid clinic. How long do you usually have
Jakster
in
Cholesterol Support
12 years ago
high cholesterol and have a statin intolerance. What to do?
I have been visiting the Lipid clinic for years, it is always a different registrar and I always need to go through the same scenario. I cannot take any of the statins or ezetimes. I have FH and my cholesterol level at the present time is 11. My theory is that the statins target where I have Cholesterol
I have been visiting the Lipid clinic for years, it is always a different registrar and I always need to go through the same scenario. I cannot take any of the statins or ezetimes. I have FH and my cholesterol level at the present time is 11. My theory is that the statins target where I have Cholesterol
goldie
in
Cholesterol Support
12 years ago
Virtigo
Hi all Just been DX with BPPV = Benign Paroxysmal Positional Vertigo I get so dizzy when I bend or turn my head I loose my hearing and sight feel very sick and fainty it's all over in a few minutes but it's horrible anyone got it or have any advice for me x
Hi all Just been DX with BPPV = Benign Paroxysmal Positional Vertigo I get so dizzy when I bend or turn my head I loose my hearing and sight feel very sick and fainty it's all over in a few minutes but it's horrible anyone got it or have any advice for me x
taffydaffy
in
Hughes Syndrome APS Forum
12 years ago
What to do Next.
The present state of my cholesterol saga is that I have been taking pravastatin 20mg for about six weeks. I have been OK with it, just a couple of very painful cramps and a bit of muscle twitching at night. Latest results are TC 6.5, LDL 4.1, trigs 0.84 and HDL 2. I know this will not be good enough
The present state of my cholesterol saga is that I have been taking pravastatin 20mg for about six weeks. I have been OK with it, just a couple of very painful cramps and a bit of muscle twitching at night. Latest results are TC 6.5, LDL 4.1, trigs 0.84 and HDL 2. I know this will not be good enough
Aliwally
in
Cholesterol Support
12 years ago
some good news!
Hi everyone , after 3 appointments in the same week I feel like I am a step closer to the transplant list. I spoke to a cardiologist who specialises in heart transplants on friday who told me my pulmonary hypertension is purely down to my IPF and has not damaged the chambers in my heart although there
Hi everyone , after 3 appointments in the same week I feel like I am a step closer to the transplant list. I spoke to a cardiologist who specialises in heart transplants on friday who told me my pulmonary hypertension is purely down to my IPF and has not damaged the chambers in my heart although there
mrWheezy
in
Lung Conditions Community Forum
12 years ago
I have FH and am in a quandary regarding diet following recent revelation that there's no link between high cholesterol & heart disease?!
I was diagnosed with familial hypercholestrolaemia (FH) when I was 4. I have never really done much to actively help my FH (as a child I was on a low fat diet and I've always been very sporty and fit) but as my levels are now very high (in the 8's I think, and I have a large fat deposit on my eyelid)
I was diagnosed with familial hypercholestrolaemia (FH) when I was 4. I have never really done much to actively help my FH (as a child I was on a low fat diet and I've always been very sporty and fit) but as my levels are now very high (in the 8's I think, and I have a large fat deposit on my eyelid)
littleowl
in
Cholesterol Support
12 years ago
I have sugar & cholesterol of about 7.2; HDl of 1.7.Doc put me on 40mg statin but i had liver probs on Lamisil. Can i do it with diet?
nutritionnut
in
Cholesterol Support
12 years ago
GP Confuses Me (again).
I went to the GP to get a prescription for pravastatin as ordered by the lipid clinic. I saw another GP in the practice who I could describe as being either realistic or anti statin. He described pravastatin as being the "cleanest statin", said he sees side effects all the time and totally believed the
I went to the GP to get a prescription for pravastatin as ordered by the lipid clinic. I saw another GP in the practice who I could describe as being either realistic or anti statin. He described pravastatin as being the "cleanest statin", said he sees side effects all the time and totally believed the
Aliwally
in
Cholesterol Support
12 years ago
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