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PMR since July 2018 and down to 1mg. Enter GCA
My Bio is pretty well up to date, until a week ago. Quick summary of things is: I'm ok, vision ok, diagnosed with GCA, and I've gone from 1mg (nearly done...or so I thought) to 60mg. Now on my third day of 60mg and waiting on new bloods I did today and a call from the consultant tomorrow to discuss
My Bio is pretty well up to date, until a week ago. Quick summary of things is: I'm ok, vision ok, diagnosed with GCA, and I've gone from 1mg (nearly done...or so I thought) to 60mg. Now on my third day of 60mg and waiting on new bloods I did today and a call from the consultant tomorrow to discuss
pata63
in
PMRGCAuk
4 months ago
Confusing Lab Test Results
I had a recent PMR flare that necessitated my temporarily going up from the 5mg I had tapered down to to a much higher dose. 20mg for 2 weeks, followed by 15mg for one week and then a drop to 10mg, where I have stayed for almost a month before I resume DL’s slow 5 week taper. Fortunately, my increased
I had a recent PMR flare that necessitated my temporarily going up from the 5mg I had tapered down to to a much higher dose. 20mg for 2 weeks, followed by 15mg for one week and then a drop to 10mg, where I have stayed for almost a month before I resume DL’s slow 5 week taper. Fortunately, my increased
Donna5658
in
PMRGCAuk
4 months ago
Interpreting blood tests
I've been on ADT for 4 months in preparation for RT and then HDR BT. I have localised G8 with an initial PSA of 8.1 Prior to commencing ADT, my PSA inexplicably dropped to 4.94 but then rose to 5.37 within 2 months. Anyway, here are my test results before starting ADT; These are Aussie measurements
I've been on ADT for 4 months in preparation for RT and then HDR BT. I have localised G8 with an initial PSA of 8.1 Prior to commencing ADT, my PSA inexplicably dropped to 4.94 but then rose to 5.37 within 2 months. Anyway, here are my test results before starting ADT; These are Aussie measurements
Mike58
in
Advanced Prostate Cancer
4 months ago
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Silent Reflux? Is yours scary?
Initially I could just be having a drink of water from a bottle and suddenly spray the water straight back out of my mouth. No warning. No previous symptoms either. After a scan and blood tests that were fine, in a week it stopped. 3 months down the track, the left hand side of tongue and under tongue
Initially I could just be having a drink of water from a bottle and suddenly spray the water straight back out of my mouth. No warning. No previous symptoms either. After a scan and blood tests that were fine, in a week it stopped. 3 months down the track, the left hand side of tongue and under tongue
MeeMawMea
in
Acid Reflux Support
4 months ago
B vits
I think I need to start taking b vits again as feeling very foggy brained, apathetic etc. I stopped as ineggus b complex seemed to be exacerbating a pain under my right rib. I stopped taking them and the pain ceased. I tried one tablet again last week and the pain returned. I’ve had a chest x ray and
I think I need to start taking b vits again as feeling very foggy brained, apathetic etc. I stopped as ineggus b complex seemed to be exacerbating a pain under my right rib. I stopped taking them and the pain ceased. I tried one tablet again last week and the pain returned. I’ve had a chest x ray and
Fizzwhizz
in
Thyroid UK
4 months ago
experiences with seasonal changes?
If you have taken thyroid hormone replacement for some time and your levels are pretty much settled please can you share your experiences with seasonal changes? Do you find you need to reduce/increase your doses seasonally? What signs apart from blood test results indicate this if so?
If you have taken thyroid hormone replacement for some time and your levels are pretty much settled please can you share your experiences with seasonal changes? Do you find you need to reduce/increase your doses seasonally? What signs apart from blood test results indicate this if so?
Regenallotment
in
Thyroid UK
4 months ago
Red Cell Distribution Width
Hi…my blood tests have been showing ‘normal’ fr Crp Esr …everything except a consistently high Red cell distribution width above 18 I have been diagnosed with GCA but could this mean more likely Vasculitis am worried
Hi…my blood tests have been showing ‘normal’ fr Crp Esr …everything except a consistently high Red cell distribution width above 18 I have been diagnosed with GCA but could this mean more likely Vasculitis am worried
Havanahula
in
PMRGCAuk
4 months ago
Positive mitochondrial antibodies m2 but normal liver enzymes
Hi members, just after a bit of advice please. I have hashimoto's and due to blood tests which were requested by my endocrinologist, positive mitochondrial antibodies m2 were found which he says could mean it is primary biliary cholangitis. I went for an ultrasound and I am due to have a consultation
Hi members, just after a bit of advice please. I have hashimoto's and due to blood tests which were requested by my endocrinologist, positive mitochondrial antibodies m2 were found which he says could mean it is primary biliary cholangitis. I went for an ultrasound and I am due to have a consultation
Ladysmith53
in
PBC Foundation
4 months ago
Thoughts on T3 dosing please.
I take T4, alternating days with 100 and 125ug. Also T3 15ug each day. All in one go at 5am (I set an alarm). I know you guys have said consistency is key with T3, because it has a short half life. However quartering the tablets to get 15ug (3/4 of a tablet) is awkward. So I was thinking, cogitating
I take T4, alternating days with 100 and 125ug. Also T3 15ug each day. All in one go at 5am (I set an alarm). I know you guys have said consistency is key with T3, because it has a short half life. However quartering the tablets to get 15ug (3/4 of a tablet) is awkward. So I was thinking, cogitating
Beads
in
Thyroid UK
4 months ago
DA withdrawal progress
Hi F58 UK Update on withdrawing from Ropinirole tablets. I have had RLS for over 10 yrs and tried Pramipexol, then changed to Ropinirole. After visiting consultant they recommended Gabapentin. After advice from this forum I am reducing my Ropinirole. My Ropinirole dose was 1.5mg 3 x day. Gabapentin
Hi F58 UK Update on withdrawing from Ropinirole tablets. I have had RLS for over 10 yrs and tried Pramipexol, then changed to Ropinirole. After visiting consultant they recommended Gabapentin. After advice from this forum I am reducing my Ropinirole. My Ropinirole dose was 1.5mg 3 x day. Gabapentin
Louless9
in
Restless Legs Syndrome
4 months ago
Advice on Blood Test Results
Hi Everyone Sorry for long post. I am so confused now. These are my thyroid blood test results, unfortunately I never know when the district nurse if coming out to do the blood test so I can’t leave the recommended 24hrs between Levothyroxine and blood test. I took my Levothyroxine at between
Hi Everyone Sorry for long post. I am so confused now. These are my thyroid blood test results, unfortunately I never know when the district nurse if coming out to do the blood test so I can’t leave the recommended 24hrs between Levothyroxine and blood test. I took my Levothyroxine at between
AlphaWolf5195
in
Thyroid UK
4 months ago
More test results to understand
I have now seen an endocrinologist and had another set of tests. My TSH is not measurable at < 0.02, my FT4 is within range at 20.9 (11-22.7) and my FT3 is 5.9 (3.5 -6.5), much higher than it has ever been before. My previous results on 15/04 were TSH 0.02, FT4 23.6 (12-22), FT3 4.7 (3.1-6.8). These
I have now seen an endocrinologist and had another set of tests. My TSH is not measurable at < 0.02, my FT4 is within range at 20.9 (11-22.7) and my FT3 is 5.9 (3.5 -6.5), much higher than it has ever been before. My previous results on 15/04 were TSH 0.02, FT4 23.6 (12-22), FT3 4.7 (3.1-6.8). These
Jasper79
in
Thyroid UK
4 months ago
B12 and feet
Hi all, Have posted before. I have been on 3 monthly B12 injections for a long time, and recently been put on 2 monthly injections after a blood test due to symptoms getting worse. One symptom that seems to be getting worse, very hot feet, pins & needles really painful to walk on. Any suggestions
Hi all, Have posted before. I have been on 3 monthly B12 injections for a long time, and recently been put on 2 monthly injections after a blood test due to symptoms getting worse. One symptom that seems to be getting worse, very hot feet, pins & needles really painful to walk on. Any suggestions
Spick
in
Pernicious Anaemia Society
4 months ago
Thyroid test results
I’ve been taking 200mg of thyroxine for most of my adult life. Now the doctors have reduced to 150mg I returned to the doctors to say I felt awful. All my symptoms were returning. So they issued another blood test. They have came back saying my TSH level is too low and reduced my dose even more.
I’ve been taking 200mg of thyroxine for most of my adult life. Now the doctors have reduced to 150mg I returned to the doctors to say I felt awful. All my symptoms were returning. So they issued another blood test. They have came back saying my TSH level is too low and reduced my dose even more.
Deborahdance
in
Thyroid UK
4 months ago
Low phosphate levels linked to hypothyroidism?
Hi all, I am under close monitoring for my kidneys by a renal consultant. I had severe acute kidney injury (AKI) caused by sepsis last year and am very slowly improving. At my recent six monthly blood test, my phosphate levels had dropped and they are now below range. The trend for this has been dropping
Hi all, I am under close monitoring for my kidneys by a renal consultant. I had severe acute kidney injury (AKI) caused by sepsis last year and am very slowly improving. At my recent six monthly blood test, my phosphate levels had dropped and they are now below range. The trend for this has been dropping
helen_m
in
Thyroid UK
4 months ago
Graves - blood test
I bit the bullet and have messaged the GP this morning and requested a blood test ... I'll wait and see if they'll allow it. I realised whilst crying AGAIN in the shower this morning that something was very wrong, as I was struggling to get up again this morning, unable to go for my usual walk and crying
I bit the bullet and have messaged the GP this morning and requested a blood test ... I'll wait and see if they'll allow it. I realised whilst crying AGAIN in the shower this morning that something was very wrong, as I was struggling to get up again this morning, unable to go for my usual walk and crying
nooneimportant
in
Thyroid UK
4 months ago
Low salt levels
Is there a private thyroid blood test recognised by the NHS because my GP will only test for TSH. I had quite a heated discussion with him but he still said it wasn't necessary!! I went to see the GP because of itching on my arms and torso . I think this is quite common with thyroid problems ?Also has
Is there a private thyroid blood test recognised by the NHS because my GP will only test for TSH. I had quite a heated discussion with him but he still said it wasn't necessary!! I went to see the GP because of itching on my arms and torso . I think this is quite common with thyroid problems ?Also has
GREENcard13
in
Thyroid UK
4 months ago
GP App
so I had an echocardiogram in February and they said if I don’t hear anything they will review me in 12 months re my AF with a view to discharging me. This sounded great and I haven’t heard anything. However, I’ve just gone on my GP app tonight to check a blood test and I couldn’t believe my eyes when
so I had an echocardiogram in February and they said if I don’t hear anything they will review me in 12 months re my AF with a view to discharging me. This sounded great and I haven’t heard anything. However, I’ve just gone on my GP app tonight to check a blood test and I couldn’t believe my eyes when
Nanaeli
in
British Heart Foundation
4 months ago
Blood test results
Hi w and w six years, numbers I am concerned about lymphocyte count 72.7 platelet 123 rbc 4.38 monocyte 2.5 wbc 79,2 slowly increased every 6 months love to know your feelings, am I getting near treatment, thanks in advance
Hi w and w six years, numbers I am concerned about lymphocyte count 72.7 platelet 123 rbc 4.38 monocyte 2.5 wbc 79,2 slowly increased every 6 months love to know your feelings, am I getting near treatment, thanks in advance
Feavers
in
CLL Support
4 months ago
Bruising
Sudden bruising on legs and arms. Blood test is ok but I still have this. It can be an effect of levothyroxine?
Sudden bruising on legs and arms. Blood test is ok but I still have this. It can be an effect of levothyroxine?
Graziella78
in
Thyroid UK
4 months ago
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