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Malaria tablets
Hi everyone, am I the process of looking at a holiday. I know yellow fever vaccine is a big no no. Am on hydroxycarbamide and daily aspirin with a diagnosis of ET. Has anyone taken malaria tablets with such a condition? TIA.
Hi everyone, am I the process of looking at a holiday. I know yellow fever vaccine is a big no no. Am on hydroxycarbamide and daily aspirin with a diagnosis of ET. Has anyone taken malaria tablets with such a condition? TIA.
SazzaC
in
MPN Voice
3 months ago
Waiting PMR Diagnosis
Started in September 2023 with stiff hips and buttocks, just woke up like that. Don't know if it was coincidence but this was 3 day's after a flu jab! Gradually over the next few weeks, hip's became stiffer, burning type pain at times down to the knees. Putting on lower half clothes and shoes became
Started in September 2023 with stiff hips and buttocks, just woke up like that. Don't know if it was coincidence but this was 3 day's after a flu jab! Gradually over the next few weeks, hip's became stiffer, burning type pain at times down to the knees. Putting on lower half clothes and shoes became
Grandmaziggy
in
PMRGCAuk
7 months ago
PCB/AIH for 20 years but urine now turned browm
Hi I have lived with this condition for almost 20 years and been on Urso and Azathioprine medication for most of this time. Bezalip added about 5 years ago. I have always considered myself really lucky as l have no real symptoms that others complain of. The past few days l have noticed that l am not
Hi I have lived with this condition for almost 20 years and been on Urso and Azathioprine medication for most of this time. Bezalip added about 5 years ago. I have always considered myself really lucky as l have no real symptoms that others complain of. The past few days l have noticed that l am not
Sandpiperx
in
PBC Foundation
7 months ago
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flu shot
I got the flu shot a month ago and I can barely move my arm it’s so painful
I got the flu shot a month ago and I can barely move my arm it’s so painful
Joanecindy
in
PMRGCAuk
7 months ago
RSV shot
hello, has anyone gotten the RSV shot having PMR and GCA? I am in between doctors so I thought I would ask here. I also need my Covid booster. No problem in the past with that or the flu shot. Thank you for your input!
hello, has anyone gotten the RSV shot having PMR and GCA? I am in between doctors so I thought I would ask here. I also need my Covid booster. No problem in the past with that or the flu shot. Thank you for your input!
Plains
in
PMRGCAuk
7 months ago
Think I've made a big mistake over flu vaccine!
The short story is that I got the flu vaccine in France from the pharmacist as I wasn't well enough to have it at administered at the time. I took it with me in the car to Spain and it was administered at the pharmacy on Saturday. That was 15 days later. I did not realise until yesterday that it should
The short story is that I got the flu vaccine in France from the pharmacist as I wasn't well enough to have it at administered at the time. I took it with me in the car to Spain and it was administered at the pharmacy on Saturday. That was 15 days later. I did not realise until yesterday that it should
Frenchduck
in
PMRGCAuk
7 months ago
flu shot reaction with PMR
I had a flu shot a month ago and I am on 5mg of prednisone for PMR. My arm has been hurting since then. Has anyone else had this problem.
I had a flu shot a month ago and I am on 5mg of prednisone for PMR. My arm has been hurting since then. Has anyone else had this problem.
Joanecindy
in
PMRGCAuk
7 months ago
shingles vaccine
Hi folks This is a brilliant site has keep me steady since my husband’s diagnosis of SLL now CLL. My Husband had been W&W for 6 years, now on acalabrutinib for two years with no side affect and doing well. He has been offered the shingles vaccine but he hasn’t had chickenpox’s, is it safe to get the
Hi folks This is a brilliant site has keep me steady since my husband’s diagnosis of SLL now CLL. My Husband had been W&W for 6 years, now on acalabrutinib for two years with no side affect and doing well. He has been offered the shingles vaccine but he hasn’t had chickenpox’s, is it safe to get the
Charles4
in
CLL Support
8 months ago
Pneumonia vaccination
Hi all. I have recently returned to Spain for the foreseeable future and managed to get my covid vaccination shortly after my arrival a few weeks ago. I had my flu vaccination in the UK just before we came out. I have to say that I have responded well to both vaccinations with no adverse side effects
Hi all. I have recently returned to Spain for the foreseeable future and managed to get my covid vaccination shortly after my arrival a few weeks ago. I had my flu vaccination in the UK just before we came out. I have to say that I have responded well to both vaccinations with no adverse side effects
Elispeth
in
PMRGCAuk
8 months ago
Worried about blood tests
Hi, I have had mildly elevated liver enzymes since 2019. I am female, 45, BMI 24.6 and I suffer from fibroids that cause me to have extremely heavy periods and I am often anaemic. I don’t drink or do drugs. High LFTs were first picked up during routine blood tests and my doctor said not to worry about
Hi, I have had mildly elevated liver enzymes since 2019. I am female, 45, BMI 24.6 and I suffer from fibroids that cause me to have extremely heavy periods and I am often anaemic. I don’t drink or do drugs. High LFTs were first picked up during routine blood tests and my doctor said not to worry about
Jeninthesouth
in
British Liver Trust
1 year ago
Involvement Opportunity - Media Request (UK)
Do you live with NAFLD or Hepatitis C and are you interested in sharing your story?
We’ve been contacted by media outlets who want to interview someone of a healthy weight who was shocked to be diagnosed with NAFLD. They also want to raise awareness of hepatitis C and are looking for women
Do you live with NAFLD or Hepatitis C and are you interested in sharing your story?
We’ve been contacted by media outlets who want to interview someone of a healthy weight who was shocked to be diagnosed with NAFLD. They also want to raise awareness of hepatitis C and are looking for women
BritishLiverTrust1
Partner
in
British Liver Trust
11 months ago
clinical trial vyd222 monoclonal AB against covid update science 37
thought i'd give an update on my experience with this study. i got my first infusion on oct 17th and had no ill effects other than my blood pressure getting super high. but i think that was from the last minute fumbles in planning thru science 37. my infusion medicine was supposed to arrive the afternoon
thought i'd give an update on my experience with this study. i got my first infusion on oct 17th and had no ill effects other than my blood pressure getting super high. but i think that was from the last minute fumbles in planning thru science 37. my infusion medicine was supposed to arrive the afternoon
bachplayer13
in
CLL Support
8 months ago
stop prednisone with flu vaccine?
I was told not to take my prednisone and antiviral to receive flu vaccine. Has anyone heard of that? That it would be less potent. When do we recommence ? Thank you!
I was told not to take my prednisone and antiviral to receive flu vaccine. Has anyone heard of that? That it would be less potent. When do we recommence ? Thank you!
bluegirl7
in
PMRGCAuk
8 months ago
Flu Jab and Heart Failure
Hi All, New on here, just wondering whether anyone has had the flu jab after being diagnosed with Heart Failure? I have an Ejection Fraction between 30%-35%. I had 1 stent in the LAD in July. Had angina as well. Is it advisable to have the flu jab?
Hi All, New on here, just wondering whether anyone has had the flu jab after being diagnosed with Heart Failure? I have an Ejection Fraction between 30%-35%. I had 1 stent in the LAD in July. Had angina as well. Is it advisable to have the flu jab?
Rinah49
in
British Heart Foundation
8 months ago
Timing of flu vaccine when on weekly Tocilizumab
Hello all After an unsuccessful trial of 5 months without Tocilizumab, I am back on weekly injections. It's also time to have my flu jab. In the past when on two-weekly and three-weekly injections it was easy to fit the flu vaccine in not too close to the injections. Now, the best I could do would be
Hello all After an unsuccessful trial of 5 months without Tocilizumab, I am back on weekly injections. It's also time to have my flu jab. In the past when on two-weekly and three-weekly injections it was easy to fit the flu vaccine in not too close to the injections. Now, the best I could do would be
Frenchduck
in
PMRGCAuk
8 months ago
symptoms
hello, I’ve had Covid vaccine last Friday and I still feel rubbish. Tired, nauseous , dizzy and forgetful. It’s like my brain doesn’t work properly. This is vaccine number 5. I had number 4 last year at the same time as the flu vaccine and I was really poorly. But the side effects didn’t last that long
hello, I’ve had Covid vaccine last Friday and I still feel rubbish. Tired, nauseous , dizzy and forgetful. It’s like my brain doesn’t work properly. This is vaccine number 5. I had number 4 last year at the same time as the flu vaccine and I was really poorly. But the side effects didn’t last that long
Idalmis
in
CLL Support
8 months ago
Exercise and PMR
I am posting an update and a question. Since discovering I have PMR in Sept 2023 and starting on Pred at 15 mg, I have had a slightly bumpy start to my PMR journey. Was getting used to being on Pred when I had a visit from the Covid fairy which took a couple of weeks to clear, but I still feel I have
I am posting an update and a question. Since discovering I have PMR in Sept 2023 and starting on Pred at 15 mg, I have had a slightly bumpy start to my PMR journey. Was getting used to being on Pred when I had a visit from the Covid fairy which took a couple of weeks to clear, but I still feel I have
Indigo2417
in
PMRGCAuk
8 months ago
My Grim anniversary, Vaccine Type and Timing
With multiple fall vaccines now in use it seems timely to share our experience and advice on the timing of them. This has been discussed briefly in various threads. I invite comments on the below: In the past there was just an annual flu shot and its timing was just "sometime in the fall". No other
With multiple fall vaccines now in use it seems timely to share our experience and advice on the timing of them. This has been discussed briefly in various threads. I invite comments on the below: In the past there was just an annual flu shot and its timing was just "sometime in the fall". No other
EPguy
in
MPN Voice
8 months ago
I do really try...
But, others have to try my patients! Seriously, some Drs just shouldnt be. I went and saw my PC last month, l told her l needed a TB test, (neuro said to get it) and flu shot. She said she sent them to the pharm. 🤔 Even the TB test? Yup.. ok🤷♀️ thinking its not right.. but?... Called pharm to
But, others have to try my patients! Seriously, some Drs just shouldnt be. I went and saw my PC last month, l told her l needed a TB test, (neuro said to get it) and flu shot. She said she sent them to the pharm. 🤔 Even the TB test? Yup.. ok🤷♀️ thinking its not right.. but?... Called pharm to
Jesmcd2
CommunityAmbassador
in
My MSAA Community
8 months ago
The Cause of my Afib - a short essay but a long post!
Apparently as human beings we are programmed to look for causes. It seems to be a stage many of us Afibbers go through despite the good advice of those with more knowledge and experience. So I thought it could be helpful to share my own journey through the folly of myth making and lost causes. And
Apparently as human beings we are programmed to look for causes. It seems to be a stage many of us Afibbers go through despite the good advice of those with more knowledge and experience. So I thought it could be helpful to share my own journey through the folly of myth making and lost causes. And
Rainfern
in
AF Association
8 months ago
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