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My first post
This is my first post, as recommended by the MSAA Community. I live in England, so a British MS group covers me. It is the MS Society, and I've joined in on a couple of walks to raise money for them. I've even done an interview on TV about my MS, though it was quite early in the morning and I know a
This is my first post, as recommended by the MSAA Community. I live in England, so a British MS group covers me. It is the MS Society, and I've joined in on a couple of walks to raise money for them. I've even done an interview on TV about my MS, though it was quite early in the morning and I know a
Cwright170994
in
My MSAA Community
1 year ago
Flu Vaccine Study - call for participants
People living with conditions linked to chronic liver disease have higher rates of serious illness from flu. However, this group also tends to have lower rates of flu vaccine uptake. Researchers from the London School of Hygiene and Tropical Medicine are looking for people to take part into a study
People living with conditions linked to chronic liver disease have higher rates of serious illness from flu. However, this group also tends to have lower rates of flu vaccine uptake. Researchers from the London School of Hygiene and Tropical Medicine are looking for people to take part into a study
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
Shingles vaccine is now recommended in Australia for people aged ≥18 years who are immunocompromised
The Australian Government recently updated its advice about vaccination against shingles. The bad news is that the only vaccine funded through the National Immunisation Program is still Zostavax. [i]"Zostavax® is funded under the National Immunisation Program (NIP) at 70 years of age. Shingrix®
The Australian Government recently updated its advice about vaccination against shingles. The bad news is that the only vaccine funded through the National Immunisation Program is still Zostavax. [i]"Zostavax® is funded under the National Immunisation Program (NIP) at 70 years of age. Shingrix®
CLLerinOz
Administrator
in
CLL Support
1 year ago
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A tip for Australians with Chronic Lymphocytic Leukemia trying to access pneumococcal vaccination through the National Immunisation Program
What a morning I've had to get my third pneumococcal vaccine. I'll share the details here as the solution I found could help others with CLL in Australia who are having difficulty accessing these vaccines through the National Immunisation Program (NIP). In Australia, since 1 July 2020, it's standard
What a morning I've had to get my third pneumococcal vaccine. I'll share the details here as the solution I found could help others with CLL in Australia who are having difficulty accessing these vaccines through the National Immunisation Program (NIP). In Australia, since 1 July 2020, it's standard
CLLerinOz
Administrator
in
CLL Support
1 year ago
Rheumatology appointments - where have you gone?!
Has anyone had trouble seeing their Rheumatologist since the first Lockdown? I see a Rheumatologist at Addenbrookes and have done for 7 years. After developing new symptoms I was placed under the care of the Lupus nurse and had 2 telephone consults in late 2020 and early 2021. I also had a telephone
Has anyone had trouble seeing their Rheumatologist since the first Lockdown? I see a Rheumatologist at Addenbrookes and have done for 7 years. After developing new symptoms I was placed under the care of the Lupus nurse and had 2 telephone consults in late 2020 and early 2021. I also had a telephone
Ali_B
in
LUPUS UK
2 years ago
suffering with on going flu
hi , everyone happy new year to you all , just like to ask some advice really, I’ve been suffering with flu since Boxing Day ( had the flu jab too) I’ve felt truly rotten so decided not to take my methotrexate (15mg) on Friday , I was just wondering if I still feel this Ill by the next dose should I
hi , everyone happy new year to you all , just like to ask some advice really, I’ve been suffering with flu since Boxing Day ( had the flu jab too) I’ve felt truly rotten so decided not to take my methotrexate (15mg) on Friday , I was just wondering if I still feel this Ill by the next dose should I
Skyler66
in
NRAS
2 years ago
Flu jab spacing
Should those of us classified as extremely vulnerable have second flu jabs three months after the first?
Should those of us classified as extremely vulnerable have second flu jabs three months after the first?
Paul123456
in
MPN Voice
2 years ago
Celebrating the run
No runs for 12 days, to think that on that last one the NRC app gave me a badge for running 6 weeks in a row... I had good reasons not to run, a painful arm after my flu jab, a wisdom tooth out and of course, all that ice and snow. Husband has been having aches and pains so there's been no peer pressure
No runs for 12 days, to think that on that last one the NRC app gave me a badge for running 6 weeks in a row... I had good reasons not to run, a painful arm after my flu jab, a wisdom tooth out and of course, all that ice and snow. Husband has been having aches and pains so there's been no peer pressure
Yesletsgo
Graduate10
in
Bridge to 10K
2 years ago
FCR-6plus years in remission - am I cured.
Had my 6 monthly telephone consultation yesterday. Still in remission with wbc at 5.7 and all in normal range. Super. So, I get round to the question “I know there is no cure as such but am I heading that way?” Answer; the nature of CLL means I could stay in remission for years or next time be heading
Had my 6 monthly telephone consultation yesterday. Still in remission with wbc at 5.7 and all in normal range. Super. So, I get round to the question “I know there is no cure as such but am I heading that way?” Answer; the nature of CLL means I could stay in remission for years or next time be heading
devonrr
in
CLL Support
2 years ago
Flu jab
Hi lupies I had the flu jab in October and ever since i've had a streaming cold and now a chest infection.The cold goes for a couple of days and then comes back with a vengeance. Has anyone had a reaction to the flu jab? Thanks and wishing everyone a very Happy Christmas x
Hi lupies I had the flu jab in October and ever since i've had a streaming cold and now a chest infection.The cold goes for a couple of days and then comes back with a vengeance. Has anyone had a reaction to the flu jab? Thanks and wishing everyone a very Happy Christmas x
kt11
in
LUPUS UK
2 years ago
Ultrasound for possible temporal arteritis
Well after being on prednisone since Oct, , 2016 , diagnosed origninally by GP, put on 40 mgs, and after over 6 years of treatment, slowly getting down to 4 mgs for last 3 mos, I now am having symptons appearing to be GCA related. I was on 5 mgs for probably almost 2 years, with not a lot of serious
Well after being on prednisone since Oct, , 2016 , diagnosed origninally by GP, put on 40 mgs, and after over 6 years of treatment, slowly getting down to 4 mgs for last 3 mos, I now am having symptons appearing to be GCA related. I was on 5 mgs for probably almost 2 years, with not a lot of serious
arvine
in
PMRGCAuk
2 years ago
PMR/GCA and the Shingles Vaccine
I have seen information with regard to patients who are immunosuppressant that they can be offered the Shingles Vaccine. Ordinarily this vaccine is only offered to patients from age 70 until 79. I am 69.1.2 and have requested this vaccine from my GP but I cannot find the exact wording that says that
I have seen information with regard to patients who are immunosuppressant that they can be offered the Shingles Vaccine. Ordinarily this vaccine is only offered to patients from age 70 until 79. I am 69.1.2 and have requested this vaccine from my GP but I cannot find the exact wording that says that
Sew_And_Sew
in
PMRGCAuk
2 years ago
Flu Vaccine Study - call for participants
People living with conditions linked to chronic liver disease have higher rates of serious illness from flu. However, this group also tends to have lower rates of flu vaccine uptake. Researchers from the London School of Hygiene and Tropical Medicine are looking for people to take part into a study
People living with conditions linked to chronic liver disease have higher rates of serious illness from flu. However, this group also tends to have lower rates of flu vaccine uptake. Researchers from the London School of Hygiene and Tropical Medicine are looking for people to take part into a study
BritishLiverTrust10
British Liver Trust
in
British Liver Trust
2 years ago
almost 200 days post SCT update
Spurred on by Jennie’s update earlier, I thought it was high time that I wrote an update on my progress. I’m almost at 200 days post transplant. I’ve hardly had any issues so far other than my Hb count has sat quite stubbornly at or around 80 for the past couple of months. This has resulted in a good
Spurred on by Jennie’s update earlier, I thought it was high time that I wrote an update on my progress. I’m almost at 200 days post transplant. I’ve hardly had any issues so far other than my Hb count has sat quite stubbornly at or around 80 for the past couple of months. This has resulted in a good
ConniesDad
in
MPN Voice
2 years ago
No sweat!
I haven't been out since Sunday as my flu jab left me with a very painful arm, but hey ho, better than getting ill. I decided it was my body telling me to let the vaccine do its job. Today was a beautiful sunny morning for a run and the pain has more or less gone so no excuses, up and out. Looking
I haven't been out since Sunday as my flu jab left me with a very painful arm, but hey ho, better than getting ill. I decided it was my body telling me to let the vaccine do its job. Today was a beautiful sunny morning for a run and the pain has more or less gone so no excuses, up and out. Looking
Yesletsgo
Graduate10
in
Bridge to 10K
2 years ago
Psych evaluation
Hi! This is for those of you who are either on the liver transplant list or who have had a transplant. What I'd like to know is whether you were given a psychological evaluation or a one-to-one conversion with a trained therapist as to how to deal with serious organ rejection should it occur.
Hi! This is for those of you who are either on the liver transplant list or who have had a transplant. What I'd like to know is whether you were given a psychological evaluation or a one-to-one conversion with a trained therapist as to how to deal with serious organ rejection should it occur.
Bikafella
in
British Liver Trust
2 years ago
So Yet Another Follow Up - Starting I think 2020 - Bizzar,
Well those who know me will know not long ago I had scan including PET Scan for suspected Lung Cancer or TB. In the end was put down to new scarring. Many of you will know in 2020 I got Bladder Cancer symptoms - I was diagnosed with Bladder Cancer in site a year later and was treated with a TURBT to
Well those who know me will know not long ago I had scan including PET Scan for suspected Lung Cancer or TB. In the end was put down to new scarring. Many of you will know in 2020 I got Bladder Cancer symptoms - I was diagnosed with Bladder Cancer in site a year later and was treated with a TURBT to
Ern007
in
Lung Conditions Community Forum
1 year ago
Autoimmune arthritis vs bronchiectasis treatments.
Update on rheumatologist appointment: My rheumatologist has a couple of other patients who have bronchiectasis and came up with a new treatment for me to consider. She wants me off the Brenzys (a version of Embrel) and on daily Rinvoq tablets. It's a Janus Kinase (JAK) inhibitor and the benefit is that
Update on rheumatologist appointment: My rheumatologist has a couple of other patients who have bronchiectasis and came up with a new treatment for me to consider. She wants me off the Brenzys (a version of Embrel) and on daily Rinvoq tablets. It's a Janus Kinase (JAK) inhibitor and the benefit is that
Gloryvine
in
Lung Conditions Community Forum
2 years ago
Flare after two surgeries
Hi, I’m looking for some advice please. I’m just over 2 years with PMR. I’ve had two shoulder surgeries in the past 10 weeks. The first was extensive surgery to repair 3 rotator cuff tears and remove bone spurs and the 2nd, 3 weeks ago was a revision to wash out the shoulder because of healing issues
Hi, I’m looking for some advice please. I’m just over 2 years with PMR. I’ve had two shoulder surgeries in the past 10 weeks. The first was extensive surgery to repair 3 rotator cuff tears and remove bone spurs and the 2nd, 3 weeks ago was a revision to wash out the shoulder because of healing issues
Tiggy70
in
PMRGCAuk
2 years ago
polycystic liver disease
I’ve just been diagnosed. I would like to hear of others experience living with this. To operate or not?
I’ve just been diagnosed. I would like to hear of others experience living with this. To operate or not?
Sep9
in
British Liver Trust
2 years ago
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