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Heparin
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Have decided to start recording and writing my struggle either to look for positive stories or help others if I am successful.
I had stopped the aspirin and had been put on
heparin
during the pregnancy due to my weight and the fact it was twins. Now I know I need both as aspirin crosses the placenta and I have this sticky blood.
I had stopped the aspirin and had been put on
heparin
during the pregnancy due to my weight and the fact it was twins. Now I know I need both as aspirin crosses the placenta and I have this sticky blood.
Hopingforababy
in
Hughes Syndrome APS Forum
11 years ago
How do you get proper treatment when the dr you see at Lupus Unit St T says he will see me in one year!
She gave me a dose of
Heparin
as she felt I really needed to get my INR level up. Fortunately I did not have a clot at the time but I have had a stroke in May and several TIA's as well as falling over and generally feeling really ill all the time.
She gave me a dose of
Heparin
as she felt I really needed to get my INR level up. Fortunately I did not have a clot at the time but I have had a stroke in May and several TIA's as well as falling over and generally feeling really ill all the time.
bluebutterfly101
in
Hughes Syndrome APS Forum
11 years ago
Prednisolone tapering causing rash?
Mums tapering off pred, 5mg a week from 30mg and now on 10mg for the last two days. She has a rash now on her belly, back and under arm area. Is this caused by the pred tapering? Anybody else had this? She went onto septrin profolaxis over a week ago as well.
Mums tapering off pred, 5mg a week from 30mg and now on 10mg for the last two days. She has a rash now on her belly, back and under arm area. Is this caused by the pred tapering? Anybody else had this? She went onto septrin profolaxis over a week ago as well.
luggsey
in
Vasculitis UK
11 years ago
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PCP Pneumonia prophylaxis choice.
After a terrible infection of pcp pneumonia Mums consultant has decided to take her off iv antibiotics, they have to remove her line and don't want to try canulating her again, so an oral antibiotic is required. She had haemolytic reactions to iv septrin (co-trimoxozle) which caused lots of problems
After a terrible infection of pcp pneumonia Mums consultant has decided to take her off iv antibiotics, they have to remove her line and don't want to try canulating her again, so an oral antibiotic is required. She had haemolytic reactions to iv septrin (co-trimoxozle) which caused lots of problems
luggsey
in
Vasculitis UK
11 years ago
Costs of clexane/heparin
Just wondering what the costs are in various parts of the world for clexane/
heparin
? Here in Australia I'm paying just over $36 for 10 syringes of 80mg clexane and I'm taking two shots a day. On the pack it says the full cost is $91
Just wondering what the costs are in various parts of the world for clexane/
heparin
? Here in Australia I'm paying just over $36 for 10 syringes of 80mg clexane and I'm taking two shots a day. On the pack it says the full cost is $91
tassie
in
Hughes Syndrome APS Forum
11 years ago
Another long haul flight question. Help?! I'm so nervous!
I know to get up and move often, but wondering if I should ask Dr to give me
heparin
for the trip only???? I'm a nervous wreck!!
I know to get up and move often, but wondering if I should ask Dr to give me
heparin
for the trip only???? I'm a nervous wreck!!
Hilariew930
in
Hughes Syndrome APS Forum
11 years ago
Another long haul flight question. Help?! I'm so nervous!
I know to get up and move often, but wondering if I should ask Dr to give me
heparin
for the trip only???? I'm a nervous wreck!!
I know to get up and move often, but wondering if I should ask Dr to give me
heparin
for the trip only???? I'm a nervous wreck!!
Hilariew930
in
Hughes Syndrome APS Forum
11 years ago
Hi, Anyone out there got success stories after multiple ivf failures? On 2 week wait test on fri, but had spotting and bad cramps yet again.
On 75mg asprin and
heparin
injections as well this time. Having to use ivf as no tubes was pregnant naturally at 23 went fine to 20wk scan baby had anencephaly so was advised to terminate as would die inside me or live just few hours so ended pregnancy.
On 75mg asprin and
heparin
injections as well this time. Having to use ivf as no tubes was pregnant naturally at 23 went fine to 20wk scan baby had anencephaly so was advised to terminate as would die inside me or live just few hours so ended pregnancy.
babsy123
in
Fertility Network UK
11 years ago
Has anyone taken low molecular weight heparin to help their lymphodema ?
KMDB
in
LSN
11 years ago
Has anyone taken low molecular weight heparin to help their lymphodema ?
KMDB
in
LSN
11 years ago
The story of the discovery of heparin and warfarin
Found this if you have a few minutes to spare great reading. http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2141.2008.07119.x/pdf Be Well Offcut
Found this if you have a few minutes to spare great reading. http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2141.2008.07119.x/pdf Be Well Offcut
Offcut
in
Atrial Fibrillation Support
11 years ago
Human killer cells
Been instructed to have pessarys (progesterone) twice a day and if I fall pregnant to keep having them till 12 weeks, along with
heparin
injections. Has any1 else had these problems and now got children??
Been instructed to have pessarys (progesterone) twice a day and if I fall pregnant to keep having them till 12 weeks, along with
heparin
injections. Has any1 else had these problems and now got children??
Jewles
in
Pregnancy and Parenting Support
11 years ago
Small rant on hearing test!
I went for a pre-hearing test at my local health centre and was told that ear pain is not a symptom of Meneirs disease? I have all the classic symptoms of Meneirs (dizziness, vertigo, nausea and tinnitus) but I also get shooting/stabbing pains in ears occasionally. I was told by the nurse who performed
I went for a pre-hearing test at my local health centre and was told that ear pain is not a symptom of Meneirs disease? I have all the classic symptoms of Meneirs (dizziness, vertigo, nausea and tinnitus) but I also get shooting/stabbing pains in ears occasionally. I was told by the nurse who performed
Hidden
Volunteer
in
Ataxia UK
11 years ago
Never-ending confusion! Positive and negative IGg blood results
I'm sick of them messing with me to be honest, I just want a straight answer, or at least a
heparin
trial to see if it makes a difference! Basically I'm just looking for some advice, what do you do when they can't make their minds up?!
I'm sick of them messing with me to be honest, I just want a straight answer, or at least a
heparin
trial to see if it makes a difference! Basically I'm just looking for some advice, what do you do when they can't make their minds up?!
Fairypies
in
Hughes Syndrome APS Forum
11 years ago
Symptoms fluctuating
I had put the improvement down to the
heparin
as did the haematologist so I am wondering if symptoms fluctuate in APS as they do in MS? My neuro and haemo are now thinking that the MS was probably never as severe symptomatically as it was appearing but was being masked by the APS.
I had put the improvement down to the
heparin
as did the haematologist so I am wondering if symptoms fluctuate in APS as they do in MS? My neuro and haemo are now thinking that the MS was probably never as severe symptomatically as it was appearing but was being masked by the APS.
Hidden
in
Hughes Syndrome APS Forum
11 years ago
To all pregnant ladies....
My
heparin
levels have remained 'perfect' since injecting, I have my 20 week scan scheduled with fetal medicine this Friday and then further scans at 28,32 and 36 weeks.
My
heparin
levels have remained 'perfect' since injecting, I have my 20 week scan scheduled with fetal medicine this Friday and then further scans at 28,32 and 36 weeks.
Maybells
in
Hughes Syndrome APS Forum
11 years ago
Warfarin alternatives
Shortly I will need an operation on my eyelid which may require stopping Warfarin and having
heparin
injections. Leading up to this, I had infections in the eyelid which were treated with antibiotics, again affecting INR. Also I needed weekly blood tests leading up to the cardioversion.
Shortly I will need an operation on my eyelid which may require stopping Warfarin and having
heparin
injections. Leading up to this, I had infections in the eyelid which were treated with antibiotics, again affecting INR. Also I needed weekly blood tests leading up to the cardioversion.
Mrspat
in
Anticoagulation Support
11 years ago
I need help! Prof. Khasmashta treated me with Clexane & since then I have tried other meds, that are not working. Anyone else
I have stopped the warfarin & I am using the Lovenox waiting to start
heparin
. Is anyone else on
heparin
? I spoke to the FDA who explained to me that any biological drug will work differently & because of trade secrets I will not find out the differences. I will try to get Clexane from London.
I have stopped the warfarin & I am using the Lovenox waiting to start
heparin
. Is anyone else on
heparin
? I spoke to the FDA who explained to me that any biological drug will work differently & because of trade secrets I will not find out the differences. I will try to get Clexane from London.
designer16
in
Hughes Syndrome APS Forum
11 years ago
New here and is heparin OK long term?
Is
heparin
OK long term and any other MSers with APS here? Sorry for being greedy! And thanks for running this site; I have a feeling it could be handy. B
Is
heparin
OK long term and any other MSers with APS here? Sorry for being greedy! And thanks for running this site; I have a feeling it could be handy. B
Hidden
in
Hughes Syndrome APS Forum
11 years ago
Advice on power port
it was put in 2 weeks ago my GP tried to access it this morning he managed to put
heparin
into it but no draw back of blood.
it was put in 2 weeks ago my GP tried to access it this morning he managed to put
heparin
into it but no draw back of blood.
rlupus
in
LUPUS UK
11 years ago
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