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⁹Newbie: can anybody help with local support to me? Surrey/Sussex/South London
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Gm131987
in
LUPUS UK
2 months ago
Thyroid blood test results
I have been on thyroxine since 2017 to treat my underactive thyroid (confirmed Hashimotos).My bloods from this week are in the attached screenshot. I haven't felt like me for many years. I wondered what peples thoughts were on my results?
I have been on thyroxine since 2017 to treat my underactive thyroid (confirmed Hashimotos).My bloods from this week are in the attached screenshot. I haven't felt like me for many years. I wondered what peples thoughts were on my results?
SusieR68
in
Thyroid UK
2 months ago
New NICE guidelines
On the Pernicious Anaemia Society forum, there is a new thread re the newly released NICE guidelines for Pernicious Anaemia/B12 Deficiency Diagnosis and Treatment in Over 16s [i]
New NICE guidelines
[/i] https://healthunlocked.com/pasoc/posts/150619728/new-nice-guidelines Within that thread,
On the Pernicious Anaemia Society forum, there is a new thread re the newly released NICE guidelines for Pernicious Anaemia/B12 Deficiency Diagnosis and Treatment in Over 16s [i]
New NICE guidelines
[/i] https://healthunlocked.com/pasoc/posts/150619728/new-nice-guidelines Within that thread,
helvella
Thyroid UK
in
Thyroid UK
3 months ago
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NICE guideline on B12 Deficiency diagnosis and monitoring in over 16s
The Vitamin B12 Deficiency Guideline in Over 16's has been published.
What does this mean for those with Pernicious Anaemia whether formally diagnosed or not?
What does it mean with those struggling to get sufficiently frequent treatment for their B12 deficiency?
What does
The Vitamin B12 Deficiency Guideline in Over 16's has been published.
What does this mean for those with Pernicious Anaemia whether formally diagnosed or not?
What does it mean with those struggling to get sufficiently frequent treatment for their B12 deficiency?
What does
PAScomms
in
Pernicious Anaemia Society
3 months ago
AF and Heart Parameters
I experienced AF first in 2012. It was recorded in Holter Monitoring. On medication since then. Holter Monitoring done once in a year. No episode recorded. Actually my episodes occur suddenly last for few seconds. ECG sometimes show tachycardia, Echocardiography is normal, TMT recent time is negative
I experienced AF first in 2012. It was recorded in Holter Monitoring. On medication since then. Holter Monitoring done once in a year. No episode recorded. Actually my episodes occur suddenly last for few seconds. ECG sometimes show tachycardia, Echocardiography is normal, TMT recent time is negative
das1234
in
AF Association
9 months ago
atypical trigeminal neuralgia
Recently diagnosed with atypical trigeminal neuralgia, pain on left side of face/eye/head. I also have rheumatoid arthritis which I take methotrexate 20mg once per week for. Does anyone else know anything about this, or what helps, in a lot of pain.
Recently diagnosed with atypical trigeminal neuralgia, pain on left side of face/eye/head. I also have rheumatoid arthritis which I take methotrexate 20mg once per week for. Does anyone else know anything about this, or what helps, in a lot of pain.
PurpleDuckie
in
PMRGCAuk
3 months ago
Newly Diagnosed
Hello, I’m new to this forum and was only diagnosed with SLE in late December. I’ve also got secondary triple positive antiphospholipid antibodies. I’m 26 and I’ve always lived a very active/outgoing lifestyle and have always tried to be healthy so it I’m finding it all a bit difficult to process.
Hello, I’m new to this forum and was only diagnosed with SLE in late December. I’ve also got secondary triple positive antiphospholipid antibodies. I’m 26 and I’ve always lived a very active/outgoing lifestyle and have always tried to be healthy so it I’m finding it all a bit difficult to process.
ChloeScotland
in
LUPUS UK
3 months ago
Lupus Diagnosis
I haven't been online for some times, perhaps years. I don't think I have posted since losing my Mum in August 2021 and then I lost my Dad last year June. My health, not surprisingly, has been all over the place and under the following hospital departments: Lupus Rheumatology, General Rheumatology -
I haven't been online for some times, perhaps years. I don't think I have posted since losing my Mum in August 2021 and then I lost my Dad last year June. My health, not surprisingly, has been all over the place and under the following hospital departments: Lupus Rheumatology, General Rheumatology -
KeepingUpBeat
in
LUPUS UK
3 months ago
Any readers?
Would really appreciate recommendation for books linking autoimmune disease and trauma. Somebody I care about wants to read about it. Thank you. 😊
Would really appreciate recommendation for books linking autoimmune disease and trauma. Somebody I care about wants to read about it. Thank you. 😊
Pawsedagain
in
Thyroid UK
3 months ago
Calf Pain and PAD
Hi, I wasn't sure if this should be posted in a Diabetes forum or on here, after thinking about it I think that this BHF site is the better option. So Peripheral Arterial Disease. I had both Iliac Arteries 'bored' out with balloon angioplasty in May of this year (Left leg fully occulted and Right leg
Hi, I wasn't sure if this should be posted in a Diabetes forum or on here, after thinking about it I think that this BHF site is the better option. So Peripheral Arterial Disease. I had both Iliac Arteries 'bored' out with balloon angioplasty in May of this year (Left leg fully occulted and Right leg
GoldfishPond
in
British Heart Foundation
5 months ago
Obesity Associated With Faster MS Disease Progression
[i]
Obesity in multiple sclerosis (MS) was tied to faster worsening of disability and an increased risk of physical, psychological, and cognitive decline, a prospective cohort study showed.
[/i] [i]
[/i]
https://www.medpagetoday.com/meetingcoverage/actrims/108992?xid=nl_mpt_DHE_2024-03
[i]
Obesity in multiple sclerosis (MS) was tied to faster worsening of disability and an increased risk of physical, psychological, and cognitive decline, a prospective cohort study showed.
[/i] [i]
[/i]
https://www.medpagetoday.com/meetingcoverage/actrims/108992?xid=nl_mpt_DHE_2024-03
BettysMom
in
My MSAA Community
3 months ago
New study indicates that taxifolin "could" reduce chronic inflammation, promote healthy aging and improve healthspan of lupus sufferers.
[i]Linda May-Zhang, PhD, VP Innovation at Blue California and an author on the study told Longevity.Technology that taxifolin shows promise in addressing oxidative stress and alleviating lupus symptoms by inhibiting NETosis. Photographs courtesy of Ramadan Ali and Linda May-Zhang[/i] New study indicates
[i]Linda May-Zhang, PhD, VP Innovation at Blue California and an author on the study told Longevity.Technology that taxifolin shows promise in addressing oxidative stress and alleviating lupus symptoms by inhibiting NETosis. Photographs courtesy of Ramadan Ali and Linda May-Zhang[/i] New study indicates
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 months ago
Rhupus
I have rhupus which is lupus and severe rheumatoid. arthritis having both and it being aggressive there r only 1% to 2% in the world that ever have both I guess I was just the lucky one lol unfortunately this is the most painful disease in the world you get never get over less your bones hurt so bad
I have rhupus which is lupus and severe rheumatoid. arthritis having both and it being aggressive there r only 1% to 2% in the world that ever have both I guess I was just the lucky one lol unfortunately this is the most painful disease in the world you get never get over less your bones hurt so bad
Buglove22
in
LUpus Patients Understanding and Support
3 months ago
Lupus diagnosis after taking hydroxychloriquine for 14 months
Hi guys, hope everyone is well. Since getting diagnosed with lupus last month one thing has been really bothering me... As bit of a back story I was diagnosed with RA a few years ago. Over the last 6-8 months I've been amassing a bunch of other symptoms which last month resulted in my RA diagnosed
Hi guys, hope everyone is well. Since getting diagnosed with lupus last month one thing has been really bothering me... As bit of a back story I was diagnosed with RA a few years ago. Over the last 6-8 months I've been amassing a bunch of other symptoms which last month resulted in my RA diagnosed
Diagnosis_Collector
in
LUPUS UK
3 months ago
Blood Test for MS Activity Gets FDA Breakthrough Designation
The US Food and Drug Administration (FDA) has granted breakthrough device designation to the Elecsys Neurofilament Light Chain (NfL) test for multiple sclerosis (MS). November, 2023
Made by Roche, the test is intended to be used as an aid in detection of disease activity in adults aged 18
The US Food and Drug Administration (FDA) has granted breakthrough device designation to the Elecsys Neurofilament Light Chain (NfL) test for multiple sclerosis (MS). November, 2023
Made by Roche, the test is intended to be used as an aid in detection of disease activity in adults aged 18
BettysMom
in
My MSAA Community
3 months ago
REMINDER! Harrogate Lupus Group - Coffee and Chat meeting - 2nd March 10.30am
REMINDER! Saturday 2nd March, the Harrogate Lupus Group will be meeting at 10.30am, at the Woodlands Methodist Church Hall, 71 Wetherby Road, Harrogate, HG2 7SG. We will be joined by Frances Pearson, who will be talking about her ideas on the Lupus Observatory. Everyone is welcome to join! If you
REMINDER! Saturday 2nd March, the Harrogate Lupus Group will be meeting at 10.30am, at the Woodlands Methodist Church Hall, 71 Wetherby Road, Harrogate, HG2 7SG. We will be joined by Frances Pearson, who will be talking about her ideas on the Lupus Observatory. Everyone is welcome to join! If you
michaellasmith
Administrator
in
LUPUS UK
3 months ago
Dysautonomia in Sjögren's - Genital Sore/dry symptoms
Because of the shame or embarrassment sometimes involved in talking about vulvar or vaginal symptoms, I have not really gone into depth with my Rheumatologist. I am just wondering whether anyone has any tips of how to soothe:- Burning of the vagina or vulvaI Itchy vulva or vagina I am also going through
Because of the shame or embarrassment sometimes involved in talking about vulvar or vaginal symptoms, I have not really gone into depth with my Rheumatologist. I am just wondering whether anyone has any tips of how to soothe:- Burning of the vagina or vulvaI Itchy vulva or vagina I am also going through
Energy14
in
LUPUS UK
7 months ago
2 months post ablation and frequent extrasystoles.
So I'm 2 months from my 1st ablation and supposed to now stop taking Flecainide but I seem to be permanently having extrasystoles, having hardly had them at all previously. They are fairly asymptomatic with me only sometimes feeling palpitations. I've also had a couple of Afib episodes but it's the sudden
So I'm 2 months from my 1st ablation and supposed to now stop taking Flecainide but I seem to be permanently having extrasystoles, having hardly had them at all previously. They are fairly asymptomatic with me only sometimes feeling palpitations. I've also had a couple of Afib episodes but it's the sudden
MisterMagoo
in
AF Association
9 months ago
Laryngitis and lupus
Hi, I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis can be caused by my lupus. Is this correct? Is this something I need to mention to my lupus specialist? I am due to start on methotrexate next
Hi, I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis can be caused by my lupus. Is this correct? Is this something I need to mention to my lupus specialist? I am due to start on methotrexate next
pattypatchwork
in
LUPUS UK
3 months ago
Valve Replacenent
I am awaiting a mitral valve replacement and am in the age bracket where either a mechanical or biologic valve would be suitable. Looked into pro’s and con’s of each but still struggling to make my decision. Any advice please.
I am awaiting a mitral valve replacement and am in the age bracket where either a mechanical or biologic valve would be suitable. Looked into pro’s and con’s of each but still struggling to make my decision. Any advice please.
Sunshine2023_
in
British Heart Foundation
11 months ago
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