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Pernicious Anaemia is the worst
Hi Newbie here. Was diagnosed with PA this Sept gone after years of weird symptoms . Have congenital heart disease too and after having complex heart surgery two years ago my health got critical. I have reduced kidney function too. Yikes. Anyone else got similar health issues. Am being treated for PA
Hi Newbie here. Was diagnosed with PA this Sept gone after years of weird symptoms . Have congenital heart disease too and after having complex heart surgery two years ago my health got critical. I have reduced kidney function too. Yikes. Anyone else got similar health issues. Am being treated for PA
Sea-blue
in
Pernicious Anaemia Society
1 year ago
Left atrial enlargement
Hello!I was wondering if anyone has experience of this. What can be done about it, is it reversible with optimal levo? For context, I have Hashi's, I'm 51 and currently experiencing another bout of terrible anxiety ( last time was 5 years ago). Tests have discovered the enlarged LA. I don't have any
Hello!I was wondering if anyone has experience of this. What can be done about it, is it reversible with optimal levo? For context, I have Hashi's, I'm 51 and currently experiencing another bout of terrible anxiety ( last time was 5 years ago). Tests have discovered the enlarged LA. I don't have any
MPG1972
in
Thyroid UK
1 year ago
Flying to Australia
Hi! I’m looking to fly to Australia to see my daughter. I am 58 and had double heart bypass in July last year, with full recovery. I wonder if anyone can recommend a reasonable travel insurance? Many Thanks 🙏
Hi! I’m looking to fly to Australia to see my daughter. I am 58 and had double heart bypass in July last year, with full recovery. I wonder if anyone can recommend a reasonable travel insurance? Many Thanks 🙏
HeartForever
in
British Heart Foundation
1 year ago
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Atrial Tachycardia ablation
Has anyone here had an ablation for atrial tachycardia after they’ve had afib ablations? I’m curious to know if that ablation was any different than your afib ablation? I’ve had 3 afib ablations and it seems they’ve resolved the afib and flutter (knock on wood). But they’ve left me with more regular
Has anyone here had an ablation for atrial tachycardia after they’ve had afib ablations? I’m curious to know if that ablation was any different than your afib ablation? I’ve had 3 afib ablations and it seems they’ve resolved the afib and flutter (knock on wood). But they’ve left me with more regular
lovetogarden
in
Atrial Fibrillation Support
1 year ago
Life beyond Myelofibrosis
I progressed from ET to Myelofibrosis a couple of years ago. I had an enlarged spleen and ruxolitinib lowered the platelets too much so I was switched to fedratinib. Depending on what predictive tool was used, I had a median predicted life span of between 2 and 14 years - not terribly helpful! I was
I progressed from ET to Myelofibrosis a couple of years ago. I had an enlarged spleen and ruxolitinib lowered the platelets too much so I was switched to fedratinib. Depending on what predictive tool was used, I had a median predicted life span of between 2 and 14 years - not terribly helpful! I was
Scaredy_cat
in
MPN Voice
1 year ago
PIP assessment
Hi all, I have a video PIP assessment in a few weeks time and was wondering if anyone had any tips or advice for this? I do not have issues with mobility but suffer with chronic fatigue and pain due to my illness and am signed off work for the foreseeable. Waiting for a multi organ transplant. It
Hi all, I have a video PIP assessment in a few weeks time and was wondering if anyone had any tips or advice for this? I do not have issues with mobility but suffer with chronic fatigue and pain due to my illness and am signed off work for the foreseeable. Waiting for a multi organ transplant. It
GEMMA1991
in
British Liver Trust
2 years ago
Hello gang. HNY. I received my donor liver transplant!!!!!!!!
A call came during the night calling me to Birmingham and I was transplanted on December 16th.
Wow!!!
I'm
the luckiest person in the world. Thank you all for your communications through the years. God bless you all xxxxx🥰 🙏✨️🐌🐾🐈⬛
A call came during the night calling me to Birmingham and I was transplanted on December 16th.
Wow!!!
I'm
the luckiest person in the world. Thank you all for your communications through the years. God bless you all xxxxx🥰 🙏✨️🐌🐾🐈⬛
Charlie-legs
in
British Liver Trust
2 years ago
introducing myself...
hello all, i'm new to this community and happy to be a part. i was diagnosed with AML in late august of last year and just underwent a Stem Cell Transplant at sloan kettering hospital in new york city in late march. i'm wondering if anyone out there has experienced the same? looking forward to hearing
hello all, i'm new to this community and happy to be a part. i was diagnosed with AML in late august of last year and just underwent a Stem Cell Transplant at sloan kettering hospital in new york city in late march. i'm wondering if anyone out there has experienced the same? looking forward to hearing
jmcasbar
in
Leukaemia Support
1 year ago
QoL and personal decision-making
I came across this article, which was published in a general interest magazine, written by a noted researcher in Medical Ethics who is also a long time practicing oncologist. The title given to the article was the publication's and the author made pains in an interview to say it is somewhat misleading
I came across this article, which was published in a general interest magazine, written by a noted researcher in Medical Ethics who is also a long time practicing oncologist. The title given to the article was the publication's and the author made pains in an interview to say it is somewhat misleading
maggiedrum
in
Advanced Prostate Cancer
2 years ago
44 yrs old diabetic lab results showing protein in urine very scared
I am 44 years old Chronic Diabetic for 10 years egfr 117 but recent lab showed protein in urine in next set of tests it came negative but I am so scared now as my father got kidney transplant his sister donated but I am not sure if I am that much lucky. if I take more protein my blood
I am 44 years old Chronic Diabetic for 10 years egfr 117 but recent lab showed protein in urine in next set of tests it came negative but I am so scared now as my father got kidney transplant his sister donated but I am not sure if I am that much lucky. if I take more protein my blood
herc1979
in
Kidney Disease
2 years ago
Almost 1 year after heart attack and this happened........
Hi, so last February I had a minor heart attack and had a stent fitted. It was a shock as I was only 45. I've had the odd twinge every now and then but generally things are ok. Last week I was driving in my car when I felt a sudden bout of chest pain - it was quite specifically in one area and
Hi, so last February I had a minor heart attack and had a stent fitted. It was a shock as I was only 45. I've had the odd twinge every now and then but generally things are ok. Last week I was driving in my car when I felt a sudden bout of chest pain - it was quite specifically in one area and
AmboGuy1234
in
Sudden Cardiac Arrest & Heart Attack
2 years ago
New to Forum
hello to everyone from New Mexico, US. I am finding out more about heart issues here on this forum than from my EP and cardiologist combined! Thank you all. I am 69 and had one of the first open heart surgeries done in CA. ( for an ASD) There is still a small leak but mostly corrected. I started
hello to everyone from New Mexico, US. I am finding out more about heart issues here on this forum than from my EP and cardiologist combined! Thank you all. I am 69 and had one of the first open heart surgeries done in CA. ( for an ASD) There is still a small leak but mostly corrected. I started
Petaca
in
AF Association
2 years ago
advice please after reading frightening ECG report
Hello everyone my recent previous post said i’d come back from being taken off a flight in singapore with feeling faint and then afib. was taken off to hospital for few days and now back home. my ablation is on Tuesday next week v anxious but with the help of everyone on here im not backing out!
Hello everyone my recent previous post said i’d come back from being taken off a flight in singapore with feeling faint and then afib. was taken off to hospital for few days and now back home. my ablation is on Tuesday next week v anxious but with the help of everyone on here im not backing out!
foxglove1
in
Atrial Fibrillation Support
2 years ago
Has anyone had Covid post-transplant?
I am finding my anxiety about Covid is impacting the quality of my life. I have periods of generalized anxiety where EVERYTHING scares me: from Global Warming to the drought in the western states to my husband dying and leaving me alone. After much thought, I think it all stems from the onset of Covid
I am finding my anxiety about Covid is impacting the quality of my life. I have periods of generalized anxiety where EVERYTHING scares me: from Global Warming to the drought in the western states to my husband dying and leaving me alone. After much thought, I think it all stems from the onset of Covid
Djangosmom
in
Kidney Transplant
2 years ago
Long story but about to have transplant assessment but really suffering with ascities, odeama and looking for advice re drains
Hi, My husband is going in for a liver transplant assessment next week. He has been very ill with cirrhosis for many years but the past 3 years he has been admitted to hospital with Hepatic Encephalopathy on several occasions and has been continuously jaundiced for over a year now, his quality of
Hi, My husband is going in for a liver transplant assessment next week. He has been very ill with cirrhosis for many years but the past 3 years he has been admitted to hospital with Hepatic Encephalopathy on several occasions and has been continuously jaundiced for over a year now, his quality of
Elvishaslefttheroom
in
British Liver Trust
2 years ago
Anyone with gastroparesis?
Hi all. I have gastroparesis (slow emptying of the stomach). This started when I went into failure in fall 2021, and just after my first and only bout of diverticulitis. I am now even wondering if what I had was that. Anyway, I received a kidney transplant in August 2022 and am doing well except for
Hi all. I have gastroparesis (slow emptying of the stomach). This started when I went into failure in fall 2021, and just after my first and only bout of diverticulitis. I am now even wondering if what I had was that. Anyway, I received a kidney transplant in August 2022 and am doing well except for
Hidden
in
Kidney Transplant
2 years ago
Not exactly ‘in the pink’
Hello everyone. Are there any people out there, that cough up pinkish phlegm. It’s only after lying down for 2 or 3 hours. I’m not quite sure if I’m starting to develop heart failure. I’ve been taking anticoagulants since 2014 and changed onto Apixaban about 16 months ago. Thanks in advance.
Hello everyone. Are there any people out there, that cough up pinkish phlegm. It’s only after lying down for 2 or 3 hours. I’m not quite sure if I’m starting to develop heart failure. I’ve been taking anticoagulants since 2014 and changed onto Apixaban about 16 months ago. Thanks in advance.
Tickerprobs
in
AF Association
2 years ago
new to this forum
hello to everyone from New Mexico, US. I am finding out more about heart issues here on this forum than from my EP and cardiologist combined! Thank you all. I am 69 and had one of the first open heart surgeries done in Los Angeles at 9 years. ( for an ASD) There is still a small leak but mostly corrected
hello to everyone from New Mexico, US. I am finding out more about heart issues here on this forum than from my EP and cardiologist combined! Thank you all. I am 69 and had one of the first open heart surgeries done in Los Angeles at 9 years. ( for an ASD) There is still a small leak but mostly corrected
Petaca
in
Anticoagulation Support
2 years ago
How can I manage persistent AF
I am in UK and have had paroxysmal AF for a few years and was prescribed Flecainide and Bisoprolol but also had a Pacemaker fitted in July 2020 because of a low resting heart rate (normally 50 but loop recorder showed some drop to mid 30s overnight). Any periods of AF I’ve had up to now have been 5/
I am in UK and have had paroxysmal AF for a few years and was prescribed Flecainide and Bisoprolol but also had a Pacemaker fitted in July 2020 because of a low resting heart rate (normally 50 but loop recorder showed some drop to mid 30s overnight). Any periods of AF I’ve had up to now have been 5/
Sorre1
in
AF Association
2 years ago
post lung transplant
I have recently been accepted on the lung transplant list (November). I would value any advise/experience on the subject. I apparently have a very good blood group thus estimated waiting 50% 6 months, 80% 12 months. Thank you in advance Paul.
I have recently been accepted on the lung transplant list (November). I would value any advise/experience on the subject. I apparently have a very good blood group thus estimated waiting 50% 6 months, 80% 12 months. Thank you in advance Paul.
Northernsaul
in
Lung Conditions Community Forum
2 years ago
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