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Rheumatologist advices no reduction of prednisolone while adrenal glands not working and has issued emergency hydrocortisone kit
I've had PMR since October 2020 and managed to get down to 2.5mg of prednisolone in February 2023. But after a flare, I had to raise it to 5mg and have been pain-free since then. I started on methotrexate weekly injections (15mg) in December 2023, with the hope of being able to reduce the prednisolone
I've had PMR since October 2020 and managed to get down to 2.5mg of prednisolone in February 2023. But after a flare, I had to raise it to 5mg and have been pain-free since then. I started on methotrexate weekly injections (15mg) in December 2023, with the hope of being able to reduce the prednisolone
harpsichor
in
PMRGCAuk
5 months ago
balanitis returns after adult circumcision
3 years ago I was diagnosis with Zoon's balanitis.After a 4 month course with Tracolimus without success, I had an adult circumsion. 8 months ago, the balanitis returned, this time symptoms were different: there is no pain, no burning and no itch, just a blotch of redness which becomes redder as the
3 years ago I was diagnosis with Zoon's balanitis.After a 4 month course with Tracolimus without success, I had an adult circumsion. 8 months ago, the balanitis returned, this time symptoms were different: there is no pain, no burning and no itch, just a blotch of redness which becomes redder as the
Bartoliniglans88
in
Men's Health Forum (Penis Health)
6 months ago
low blood pressure
I have GCA and I have been tapering prednisone for 3 years. I am on my second attempt at tapering prednisone and just got to 4mg. Last year I actually got down to 3 mg but suffered a 4th and acute diverticulitis attack which was too much for my sputtering adrenals. While in the ER the PA didn’t
I have GCA and I have been tapering prednisone for 3 years. I am on my second attempt at tapering prednisone and just got to 4mg. Last year I actually got down to 3 mg but suffered a 4th and acute diverticulitis attack which was too much for my sputtering adrenals. While in the ER the PA didn’t
pmac22
in
PMRGCAuk
6 months ago
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Beyond frustrated
Back in the end of November/early December of 2023 I started having rectal bleeding. The bleeding I’m having is EVERY TIME I sit on the toilet, even without a BM, I have blood and clots from my rectum and have also been having what looks like clumps of tissue or mucus. I have also been having pain in
Back in the end of November/early December of 2023 I started having rectal bleeding. The bleeding I’m having is EVERY TIME I sit on the toilet, even without a BM, I have blood and clots from my rectum and have also been having what looks like clumps of tissue or mucus. I have also been having pain in
Yuckypoo
in
Colon Cancer Connected
6 months ago
Whoops! I made a boo-boo.
A week ago I visited the rheumatologist, who prescribed reducing Prednisone from 5mg to 4g daily and adding 20mg hydrocortisone. All part of the wean-off steroids.Stupidly, and because I was massively distracted by life circumstances, I didn't take in her instructions properly and reduced overnight
A week ago I visited the rheumatologist, who prescribed reducing Prednisone from 5mg to 4g daily and adding 20mg hydrocortisone. All part of the wean-off steroids.Stupidly, and because I was massively distracted by life circumstances, I didn't take in her instructions properly and reduced overnight
HarmonyGranny
in
PMRGCAuk
6 months ago
Addissons disease
Good afternoon. I was diagnosed with Adison's disease in 2022. Prescribed Prednisolone 5 mg. Now I take hydrocortisone tablets 20 mg per day. Fludrocortisone 0.1 mg. Once a year there is an Adrinal crisis, I end up in intensive care... Constant weakness, no vitality, I sleep a lot... I am only 43
Good afternoon. I was diagnosed with Adison's disease in 2022. Prescribed Prednisolone 5 mg. Now I take hydrocortisone tablets 20 mg per day. Fludrocortisone 0.1 mg. Once a year there is an Adrinal crisis, I end up in intensive care... Constant weakness, no vitality, I sleep a lot... I am only 43
Mariupol
in
PMRGCAuk
6 months ago
Addissons disease
Good afternoon. I was diagnosed with Adison's disease in 2022. Prescribed Prednisolone 5 mg. Now I take hydrocortisone tablets 20 mg per day. Fludrocortisone 0.1 mg. Once a year there is an Adrinal crisis, I end up in intensive care... Constant weakness, no vitality, I sleep a lot... I am only 43
Good afternoon. I was diagnosed with Adison's disease in 2022. Prescribed Prednisolone 5 mg. Now I take hydrocortisone tablets 20 mg per day. Fludrocortisone 0.1 mg. Once a year there is an Adrinal crisis, I end up in intensive care... Constant weakness, no vitality, I sleep a lot... I am only 43
Mariupol
in
PMRGCAuk
6 months ago
Advice needed
Down to 6.5mg of prednislone after 10 years of PMR. Suffering with severe anxiety no PMR symptoms. Endocologist has advised adding in 10mg of Hydrocortisone but haven’t started yet I have been on 6.5mg for 10 days and intend to stay at that dose in hope I will stabilise. Been having basal cortisol
Down to 6.5mg of prednislone after 10 years of PMR. Suffering with severe anxiety no PMR symptoms. Endocologist has advised adding in 10mg of Hydrocortisone but haven’t started yet I have been on 6.5mg for 10 days and intend to stay at that dose in hope I will stabilise. Been having basal cortisol
Oscarsnan
in
PMRGCAuk
6 months ago
HC - making me feel worse
Hi everyone,. From May year i reluctantly self medicated with hydrocortisone 20mg after saliva test showed really low in all 4 points. I initially felt well , drowsiness and feeling groggily in the mornings disappeared along with headaches and yawning all day long. I still needed naps here and there
Hi everyone,. From May year i reluctantly self medicated with hydrocortisone 20mg after saliva test showed really low in all 4 points. I initially felt well , drowsiness and feeling groggily in the mornings disappeared along with headaches and yawning all day long. I still needed naps here and there
Maya_83
in
Thyroid UK
7 months ago
Hypo after all?
Hello everyone, this is my first post, though I’ve been gleaning pearls of wisdom from this site for a couple of years, so thank you all! I’m a 60-year-old male. I’ve had chronic fatigue since 1988; tight forehead pain and a horrible “saturated brain” feeling since the late 1990s (brought on by reading
Hello everyone, this is my first post, though I’ve been gleaning pearls of wisdom from this site for a couple of years, so thank you all! I’m a 60-year-old male. I’ve had chronic fatigue since 1988; tight forehead pain and a horrible “saturated brain” feeling since the late 1990s (brought on by reading
KingJohnVII
in
Thyroid UK
7 months ago
Swap from 4mg pred
dear all I have been prescribed 10 mg hydrocortisone swapping from 4mg pred as from yesterday. things are a bit of a struggle anyway as I’m 3weeks post total reverse shoulder replacement - in a sling for another 3 weeks when more intensive physio will start. I experienced a bit of a crisis a week
dear all I have been prescribed 10 mg hydrocortisone swapping from 4mg pred as from yesterday. things are a bit of a struggle anyway as I’m 3weeks post total reverse shoulder replacement - in a sling for another 3 weeks when more intensive physio will start. I experienced a bit of a crisis a week
AnniesRyder5
in
PMRGCAuk
7 months ago
Adrenal Insufficiency and reducing steroid inhaler
Hi,I was diagnosed with adrenal insufficiency last year and have been stable on 20mg of hydrocortisone. My respiratory consultant has reduced me from 2 puffs twice a day of 160 Alvesco to 3 puffs once a day. Now I'm feeling unwell. Could the reduction in my inhaler be impacting my adrenal insuffiency
Hi,I was diagnosed with adrenal insufficiency last year and have been stable on 20mg of hydrocortisone. My respiratory consultant has reduced me from 2 puffs twice a day of 160 Alvesco to 3 puffs once a day. Now I'm feeling unwell. Could the reduction in my inhaler be impacting my adrenal insuffiency
Kodimp
in
Asthma Community Forum
7 months ago
Itching with blood thinners (Apixaban and Edoxapan)
Had to change from Apixaban to Edoxapan due to severe reaction of itching all over the body, it was really bad. The Edoxapan is much better, but still get the occasional real itches on back and legs . but they gave me E45 anti itch cream that REALLY works well and often stops after a few minutes after
Had to change from Apixaban to Edoxapan due to severe reaction of itching all over the body, it was really bad. The Edoxapan is much better, but still get the occasional real itches on back and legs . but they gave me E45 anti itch cream that REALLY works well and often stops after a few minutes after
Quovadisuk
in
Atrial Fibrillation Support
7 months ago
referral - why?
My rheumatologist referred me to an endocrinologist because like many others I was struggling a bit reducing. I was on 4mg of pred. Apparently my synacthen test showed a normal basal level and a post of 432 - suboptimal but near normal. However the endocrinologist said he was “unsure whether it would
My rheumatologist referred me to an endocrinologist because like many others I was struggling a bit reducing. I was on 4mg of pred. Apparently my synacthen test showed a normal basal level and a post of 432 - suboptimal but near normal. However the endocrinologist said he was “unsure whether it would
AnniesRyder5
in
PMRGCAuk
8 months ago
Fatigue, coma naps and pituitary
Hey everyone, Has anyone experienced such bouts of fatigue where you fall asleep and you just have to fall asleep that given moment and you are gone for an hour? This started happening to me in July last year, but got increasingly worse over time. I thought it was my iron, but I fixed that with iron
Hey everyone, Has anyone experienced such bouts of fatigue where you fall asleep and you just have to fall asleep that given moment and you are gone for an hour? This started happening to me in July last year, but got increasingly worse over time. I thought it was my iron, but I fixed that with iron
Incoguto
in
Thyroid UK
8 months ago
Anxiety/worry and extreme itching
I need to vent because this thing is driving me crazy. I've had anxiety off and for most of my life and am used to the symptoms and the ways to deal with them. The last three weeks or so, I've been under a lot of stress and starting having random, intense itching. It started as just my hands, then my
I need to vent because this thing is driving me crazy. I've had anxiety off and for most of my life and am used to the symptoms and the ways to deal with them. The last three weeks or so, I've been under a lot of stress and starting having random, intense itching. It started as just my hands, then my
Grandmaof3
in
Anxiety and Depression Support
8 months ago
Another update on potential meds intolerance
Hey everyone,I have trouble tolerating thyroid meds despite trying different combos, even different NDT med types etc, while it hasn't been a problem before, it was smooth sailing on Armour and great increasing, until I crashed mid 2017. Currently on 2.375 gr Armour and 5 mcg Thybon t3. My salivary cortisol
Hey everyone,I have trouble tolerating thyroid meds despite trying different combos, even different NDT med types etc, while it hasn't been a problem before, it was smooth sailing on Armour and great increasing, until I crashed mid 2017. Currently on 2.375 gr Armour and 5 mcg Thybon t3. My salivary cortisol
Incoguto
in
Thyroid UK
8 months ago
Bitter Taste In Mouth
I have had a persistent bitter taste in my mouth since the end of December and the only respite that I get from it is either when I am sleeping, eating or drinking! It’s so bad that it is making me feel quite unwell! I am doing everything that has been advised eg drinking lots of water, brushing teeth
I have had a persistent bitter taste in my mouth since the end of December and the only respite that I get from it is either when I am sleeping, eating or drinking! It’s so bad that it is making me feel quite unwell! I am doing everything that has been advised eg drinking lots of water, brushing teeth
LizMitchell
in
PMRGCAuk
8 months ago
anyone with Churg Strauss come off all medication?
hello I have a dilemma as I see 2 consultants from different hospitals- one is a rheumatologist from my local hospital and the other is a Vasculitis specialist from the rheumatology team at Manchester Royal. They both have very different opinions about whether I should come off my medication. I am
hello I have a dilemma as I see 2 consultants from different hospitals- one is a rheumatologist from my local hospital and the other is a Vasculitis specialist from the rheumatology team at Manchester Royal. They both have very different opinions about whether I should come off my medication. I am
Katie18
in
Vasculitis UK
8 months ago
Update on my journey of elimination
Hello everyone, I'm a 39 yrs old female. Some months ago I started my elimination process. I haven't been feeling well for the last 6.5 years, in and out of jobs and life in general. I was doing great on 3 gr of Armour for 2 years up until mid 2017 and then crashed. Trying to resolve the mystery of
Hello everyone, I'm a 39 yrs old female. Some months ago I started my elimination process. I haven't been feeling well for the last 6.5 years, in and out of jobs and life in general. I was doing great on 3 gr of Armour for 2 years up until mid 2017 and then crashed. Trying to resolve the mystery of
Incoguto
in
Thyroid UK
8 months ago
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