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Rheumy and Urology , definite connection but they won’t talk to each other .
Sorry if a bit long winded but I need this off my chest as I’m banging my head off the wall at the moment . I keep a very precise diary on my meds and symptoms . I have been taking pred at different doses for 8 years currently on 3mg , 10 months ago I started MTX injections currently in 10mg I hoped
Sorry if a bit long winded but I need this off my chest as I’m banging my head off the wall at the moment . I keep a very precise diary on my meds and symptoms . I have been taking pred at different doses for 8 years currently on 3mg , 10 months ago I started MTX injections currently in 10mg I hoped
Gaz227
in
PMRGCAuk
2 years ago
Jelly legs……..
Hi All. Had to stop Filgotinib three weeks ago as have been felled by bronchitis. Don’t normally -and luckily - suffer any chest infections or colds but this has been really vicious. Am getting over it but have legs like jelly and a head like a sponge if I attempt to do anything very much. Tried going
Hi All. Had to stop Filgotinib three weeks ago as have been felled by bronchitis. Don’t normally -and luckily - suffer any chest infections or colds but this has been really vicious. Am getting over it but have legs like jelly and a head like a sponge if I attempt to do anything very much. Tried going
Amnesiac3637
in
NRAS
1 year ago
paracetamol
Not sure if it’s a bad cold or flu I have . I know NSAIDs are a very bad idea ( my first episode was triggered by Celebrex). Has anyone been triggered by Paracetamol ? Are there any safe pain killers ? Thanks
Not sure if it’s a bad cold or flu I have . I know NSAIDs are a very bad idea ( my first episode was triggered by Celebrex). Has anyone been triggered by Paracetamol ? Are there any safe pain killers ? Thanks
Peony4575
in
Atrial Fibrillation Support
1 year ago
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Teva levothyroxine
I was sent the TEVA brand of thyroxine last year after always having accord . I have read that TEVA has mannitol instead of lactose in the ingredients . Since taking TEVA I have had swollen wrists and strange bloating symptoms . I asked to go back on the accord brand and the symptoms seem to be subsiding
I was sent the TEVA brand of thyroxine last year after always having accord . I have read that TEVA has mannitol instead of lactose in the ingredients . Since taking TEVA I have had swollen wrists and strange bloating symptoms . I asked to go back on the accord brand and the symptoms seem to be subsiding
Kristina60
in
Thyroid UK
2 years ago
Buprenorphine
I am writing this to highlight how miraculous Buprenorphine has been for me and many others on this site. My sleep app shows how good my sleep is. I had never heard of buprenorphine until Shumbah posted that it had resolved her severe, refractory RLS. No neurologist has ever mentioned it. Like Shumbah
I am writing this to highlight how miraculous Buprenorphine has been for me and many others on this site. My sleep app shows how good my sleep is. I had never heard of buprenorphine until Shumbah posted that it had resolved her severe, refractory RLS. No neurologist has ever mentioned it. Like Shumbah
Joolsg
in
Restless Legs Syndrome
2 years ago
Cold Showers and Wim Hof
I’ve been trying Cold Showers with the Wim Hof method breathing. I seem to feel great for. 3-4 days and then worsen. I get stiffness in my lower back. I’ve read it might get worse before it gets better? I’ve read 3 weeks to reset your nervous system? Any input would be great!
I’ve been trying Cold Showers with the Wim Hof method breathing. I seem to feel great for. 3-4 days and then worsen. I get stiffness in my lower back. I’ve read it might get worse before it gets better? I’ve read 3 weeks to reset your nervous system? Any input would be great!
38yroldmale
in
Cure Parkinson's
1 year ago
Little bumps on my fingers
Hello guys..Since 4 months while I am having Benepali I am getting something on my fingers some bumps without any fluid and not painful unless pressed on it which disappears within 1-2 days..My GP said it’s because of cold whether but now it’s not cold and I am still getting it🤷🏻♀️It’s anyone got
Hello guys..Since 4 months while I am having Benepali I am getting something on my fingers some bumps without any fluid and not painful unless pressed on it which disappears within 1-2 days..My GP said it’s because of cold whether but now it’s not cold and I am still getting it🤷🏻♀️It’s anyone got
Benepali2022
in
NRAS
1 year ago
Timings of meds.
Can anyone advise me on taking Levo .I take statins at night.Levo and lansoperazol before breakfast.Apixaban 12 hours apart 8.30 am and pm .with the 8.30 Apixaban in the morning I take blood pressure meds.Its just impossible to have 4 hour gaps with this lot of meds ,I'm so confused.I have had this regime
Can anyone advise me on taking Levo .I take statins at night.Levo and lansoperazol before breakfast.Apixaban 12 hours apart 8.30 am and pm .with the 8.30 Apixaban in the morning I take blood pressure meds.Its just impossible to have 4 hour gaps with this lot of meds ,I'm so confused.I have had this regime
ETHEL103
in
Thyroid UK
2 years ago
unusual cough with phlegm, maybe it’s nothing?
for the past 5 months or so I’ve had a cough that has produced a bit of phlegm (I’d say maybe the size of a pea every hour as I cough). The cough sounds dry and not like something very phlegmy. This all started because of covid that I caught at the start of December last year. The phlegm progressed from
for the past 5 months or so I’ve had a cough that has produced a bit of phlegm (I’d say maybe the size of a pea every hour as I cough). The cough sounds dry and not like something very phlegmy. This all started because of covid that I caught at the start of December last year. The phlegm progressed from
Quamewithak
in
Lung Conditions Community Forum
1 year ago
Covid Pneumonia - Recovery!
This is maybe my final post, and its now around 18 months since I was landed in hospital with covid pneumonia. Please read my other posts for my journey. I was recently featured on BBC look north, so hope the message gets out there that you can recover. Since Christmas i've been cycling and doing lots
This is maybe my final post, and its now around 18 months since I was landed in hospital with covid pneumonia. Please read my other posts for my journey. I was recently featured on BBC look north, so hope the message gets out there that you can recover. Since Christmas i've been cycling and doing lots
natswright
in
Lung Conditions Community Forum
1 year ago
hair loss
I was put in an induced coma on Christmas Day 2022 due to having double pneumonia, sepsis, strep b, flu and a plural infusion! I spend two weeks in an induced coma and followed by 3 weeks in hospital a total of 5 weeks. I am now suffering with ptsd which I am managing but the main thing I am struggling
I was put in an induced coma on Christmas Day 2022 due to having double pneumonia, sepsis, strep b, flu and a plural infusion! I spend two weeks in an induced coma and followed by 3 weeks in hospital a total of 5 weeks. I am now suffering with ptsd which I am managing but the main thing I am struggling
Ferndav
in
ICUsteps
1 year ago
CT SCAN - more bad news
Hi Everyone, Well after having pneumonia and in critical care over Christmas I know have had a CT Lung scan and have been informed I have Emphysema, COPD, and hardening of the arteries as well as my usual asthma, Thyroid and Depression. The letter states its not urgent and the GP will be in touch..
Hi Everyone, Well after having pneumonia and in critical care over Christmas I know have had a CT Lung scan and have been informed I have Emphysema, COPD, and hardening of the arteries as well as my usual asthma, Thyroid and Depression. The letter states its not urgent and the GP will be in touch..
Winnie00
in
Lung Conditions Community Forum
1 year ago
Scared I might have lung cancer
Home About Cancer Cancer Chat Post I have a cough most of my life, but just lately I have had a horrible, relentless tickly cough, to the point I gag, and pee myself! I went to AnE in February for a cough that was really hurting my ribs.... They saw me and sent me to ambulatory care. They did test
Home About Cancer Cancer Chat Post I have a cough most of my life, but just lately I have had a horrible, relentless tickly cough, to the point I gag, and pee myself! I went to AnE in February for a cough that was really hurting my ribs.... They saw me and sent me to ambulatory care. They did test
Loosygoosey7
in
The Roy Castle Lung Cancer Foundation
1 year ago
Cough and cold
HI all,couldn't answer a question my friend asked me knowing I also have PMR, she asked me if she should use sick day rules for bad cold and cough.she was going to up pred but I wasn't so sure she needed to. Mayb someone else can answer that , x
HI all,couldn't answer a question my friend asked me knowing I also have PMR, she asked me if she should use sick day rules for bad cold and cough.she was going to up pred but I wasn't so sure she needed to. Mayb someone else can answer that , x
Harrywogan
in
PMRGCAuk
1 year ago
Advice on Block & Replace please
Hi all, Finally had my Endo appointment yesterday. A reasonably positive appointment. She gave me time to speak and ask all the questions I wanted to. This was the best but there nearly an hour. She looked at all my results and suggested I’ve Been unstable for a long time. No way! When she got to
Hi all, Finally had my Endo appointment yesterday. A reasonably positive appointment. She gave me time to speak and ask all the questions I wanted to. This was the best but there nearly an hour. She looked at all my results and suggested I’ve Been unstable for a long time. No way! When she got to
Allie20
in
Thyroid UK
2 years ago
Vitamin D3 and Levothyroxine
In October I had blood tests from Blue Horizon which picked up that My Vitamin D level was low at 46 (Optimal 75-200). My TSH was 1.71 (0.27-4.20), T4 Total 96,7 (66-181) Free T4 16.6 (12.0-22.0) and Free T3 4.71 (3.1-6.8) Ferritin high at 279.0 (13-150) Vitamin B12 high at 580 (145-569), Cortisol
In October I had blood tests from Blue Horizon which picked up that My Vitamin D level was low at 46 (Optimal 75-200). My TSH was 1.71 (0.27-4.20), T4 Total 96,7 (66-181) Free T4 16.6 (12.0-22.0) and Free T3 4.71 (3.1-6.8) Ferritin high at 279.0 (13-150) Vitamin B12 high at 580 (145-569), Cortisol
JigsawJill
in
Thyroid UK
2 years ago
ICU to home
Dad was admitted to a&e due to diabetes but turned out he had pneumonia and out of the blue his best chance of survival would be to transfer him to icu & put him in an induced coma. He thankfully came back to us after3 weeks he was talking & understood after a brief spell of delirium. He was then transferred
Dad was admitted to a&e due to diabetes but turned out he had pneumonia and out of the blue his best chance of survival would be to transfer him to icu & put him in an induced coma. He thankfully came back to us after3 weeks he was talking & understood after a brief spell of delirium. He was then transferred
Liv44
in
ICUsteps
1 year ago
Reaching out.
Hello. This may be familiar to others, I commiserate, and appreciate any tips/insights. I am struggling with moderate/severe COPD with asthma overlap, which can be awkward to treat, as reacting to tree pollen. Using Trelegy at present, as experience reduction in horrible wet wheeze. Have rescue packs
Hello. This may be familiar to others, I commiserate, and appreciate any tips/insights. I am struggling with moderate/severe COPD with asthma overlap, which can be awkward to treat, as reacting to tree pollen. Using Trelegy at present, as experience reduction in horrible wet wheeze. Have rescue packs
Hobbledehoy
in
COPD Friends
2 years ago
Dose increased with Teva tablets
I have been given 25 Teva Levothyroxine after endo has upped my dose from 100 daily to 100/125 alternate days. So I will take Accord 100 daily and a 25 Teva tablet every other day. I was warned about being given different brands on my very first post and I read the links - so now I am worried if I
I have been given 25 Teva Levothyroxine after endo has upped my dose from 100 daily to 100/125 alternate days. So I will take Accord 100 daily and a 25 Teva tablet every other day. I was warned about being given different brands on my very first post and I read the links - so now I am worried if I
JUUJOO
in
Thyroid UK
2 years ago
Worried about consistent blood in urine
I’m wondering if anyone else has consistent blood in urine only picked up by a urine test? For the last few months I seem to get symptoms of a urine infection regularly, however when my urine is tested all that comes back is traces of blood? Feeling so anxious about it.
I’m wondering if anyone else has consistent blood in urine only picked up by a urine test? For the last few months I seem to get symptoms of a urine infection regularly, however when my urine is tested all that comes back is traces of blood? Feeling so anxious about it.
Knic
in
Women's Health
2 years ago
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