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neuropathy source
hi all, Does anyone else on here have Sjögren’s as well as PA? I am experiencing constant tingling and occasional burning/numbness in my fingers and toes. (specific fingers and toes, not all)….It got worse when I did a reloading series of dosages of B12. I’m curious - does neuropathy usually flow from
hi all, Does anyone else on here have Sjögren’s as well as PA? I am experiencing constant tingling and occasional burning/numbness in my fingers and toes. (specific fingers and toes, not all)….It got worse when I did a reloading series of dosages of B12. I’m curious - does neuropathy usually flow from
Lhood08
in
Pernicious Anaemia Society
2 months ago
Spirulina and Chlorella
Hi, i was diagnosed with Rheumatoid arthritis 5 years ago and I'm on methotrexate and hydroxycloroquine. I'm was hoping to start taking spirulina and chlorella as they have so many health benefits but I not sure of any drug interactions. I've tried Google but I'm getting conflicting advice, some say
Hi, i was diagnosed with Rheumatoid arthritis 5 years ago and I'm on methotrexate and hydroxycloroquine. I'm was hoping to start taking spirulina and chlorella as they have so many health benefits but I not sure of any drug interactions. I've tried Google but I'm getting conflicting advice, some say
Maple1981
in
NRAS
6 months ago
Next NoSilverBullet webinar on 22nd of April: Dr M Sexton on “How can medical cannabis help people with Parkinson’s?”
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 22nd of April. Dr Michelle Sexton will be talking to us about “How can medical cannabis help people with Parkinson’s?” Please use the Eventbrite link below to register for
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 22nd of April. Dr Michelle Sexton will be talking to us about “How can medical cannabis help people with Parkinson’s?” Please use the Eventbrite link below to register for
Michel0220
in
Cure Parkinson's
6 months ago
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Teesside Lupus Support group meetings
We are a group in the North East of England. We had a very welcoming and successful Event on Lupus and other associated chronic illnesses awareness on the 20th of July 2024. We are inviting any Lupies within our area who are looking for a place to go and meet and chat and do activities as well as share
We are a group in the North East of England. We had a very welcoming and successful Event on Lupus and other associated chronic illnesses awareness on the 20th of July 2024. We are inviting any Lupies within our area who are looking for a place to go and meet and chat and do activities as well as share
Pipido36
in
LUPUS UK
2 months ago
pernicious anemia diet
is there a certain diet that is recommended for pernicious anemia? I have been advised that even oats can be harmful? thanks
is there a certain diet that is recommended for pernicious anemia? I have been advised that even oats can be harmful? thanks
Damacian
in
Pernicious Anaemia Society
2 months ago
Do you stop Methotrexate whilst you have Covid?
Hi lovely people, I have Covid and am wondering if I should miss my Methotrexate out this week. I was given antivirals, but had to stop because of an allergic reaction after 24 hours. What have you done in the same position please? My Rheumatoid is well controlled at the moment.
Hi lovely people, I have Covid and am wondering if I should miss my Methotrexate out this week. I was given antivirals, but had to stop because of an allergic reaction after 24 hours. What have you done in the same position please? My Rheumatoid is well controlled at the moment.
Lotttie4
in
NRAS
2 months ago
Underactive thyroid
I Was diagnosed with under active thyroid 10 years ago age 50, I have struggled with tiredness my go will not change the 50mg dose of levothyroxine. I have just had it re tested and tsh level is 0.97 I am also anemic come back in the same blood tests so starting iron. Any thoughts please
I Was diagnosed with under active thyroid 10 years ago age 50, I have struggled with tiredness my go will not change the 50mg dose of levothyroxine. I have just had it re tested and tsh level is 0.97 I am also anemic come back in the same blood tests so starting iron. Any thoughts please
JUNEO
in
Thyroid UK
2 months ago
Update May 15, 2024
Hoping all is well with others on this site. UPDATE May 15 2024 I am concerned about results of the Right frontal skull SUV 5.3 previously 0.75. I have researched and really can't find any information that I can understand. Any replies would be greatly appreciated My husband had his PSMA PET/
Hoping all is well with others on this site. UPDATE May 15 2024 I am concerned about results of the Right frontal skull SUV 5.3 previously 0.75. I have researched and really can't find any information that I can understand. Any replies would be greatly appreciated My husband had his PSMA PET/
MsHope
in
Advanced Prostate Cancer
6 months ago
Reference Library of Papers about Dutasteride for Treating Prostate Cancer
Here is a library of 20 papers about using Dutasteride to treat prostate cancer. In one study, Dutasteride monotherapy reduces PSA by 50%, reduces prostate volume by 25%, and reduces tumor volume by 30%, after 6 months of treatment, compared to placebo (Moore, 2017). https://pubmed.ncbi.nlm.nih.gov
Here is a library of 20 papers about using Dutasteride to treat prostate cancer. In one study, Dutasteride monotherapy reduces PSA by 50%, reduces prostate volume by 25%, and reduces tumor volume by 30%, after 6 months of treatment, compared to placebo (Moore, 2017). https://pubmed.ncbi.nlm.nih.gov
janebob99
in
Advanced Prostate Cancer
6 months ago
pigment dispersion syndrome
Hi lovely people 😀 I have EDS, not lupus, but many of my symptoms are similar I’ve recently been dxd with pigment dispersion syndrome by an ophthalmologist at our regional eye hospital. It happens when pigment from the iris sheds onto other parts of the eye, causing inflammation and vision problems
Hi lovely people 😀 I have EDS, not lupus, but many of my symptoms are similar I’ve recently been dxd with pigment dispersion syndrome by an ophthalmologist at our regional eye hospital. It happens when pigment from the iris sheds onto other parts of the eye, causing inflammation and vision problems
MEGS53
in
LUPUS UK
6 months ago
Telephone Consultation Results of:
So, I have just finished my phone consultation. I had my list of questions which I wasn't able to put over to the Consultant without being accused of being rude. This is how it went before I forget: My symptoms as they appear at the moment do not entitle me to any thing other than a 3 day ECG monitor
So, I have just finished my phone consultation. I had my list of questions which I wasn't able to put over to the Consultant without being accused of being rude. This is how it went before I forget: My symptoms as they appear at the moment do not entitle me to any thing other than a 3 day ECG monitor
CavendishCool
in
LUPUS UK
1 month ago
Addison's disease
Spoke with my GP yesterday regarding the extreme fatigue & rollercoaster of crashing following activity. He is now going to test & look at the possibility of Addison's. How does this mesh with PMR and Pred? I'd welcome any advice or better knowledge. Thanks.
Spoke with my GP yesterday regarding the extreme fatigue & rollercoaster of crashing following activity. He is now going to test & look at the possibility of Addison's. How does this mesh with PMR and Pred? I'd welcome any advice or better knowledge. Thanks.
Naim1
in
PMRGCAuk
2 months ago
Excess Folic Acid and Vitamin B12 Deficiency: Clinical Implications?
This is a very recent paper. Some of the areas covered are well-known. Such as not treating B12 deficiency with folic acid. But, in the more speculative parts, I think it does raise questions over the prescribing of high dose (e.g. 5 milligrams a day) of folic acid in those who are currently low in
This is a very recent paper. Some of the areas covered are well-known. Such as not treating B12 deficiency with folic acid. But, in the more speculative parts, I think it does raise questions over the prescribing of high dose (e.g. 5 milligrams a day) of folic acid in those who are currently low in
helvella
in
Pernicious Anaemia Society
2 months ago
Wife of Newly Diagnosed Husband - PSMA questions
Hi Everyone, We found out two weeks ago that my husband has high grade prostate cancer. He is 59. PSA 5.9. Gleason 4+5, 4+3 and 3+4. There was perineural invasion in one sample and intraductal in another. He has had an MRI and a CT scan, as well. He is scheduled for a bone scan next week. No prostate
Hi Everyone, We found out two weeks ago that my husband has high grade prostate cancer. He is 59. PSA 5.9. Gleason 4+5, 4+3 and 3+4. There was perineural invasion in one sample and intraductal in another. He has had an MRI and a CT scan, as well. He is scheduled for a bone scan next week. No prostate
EvFC
in
Advanced Prostate Cancer
6 months ago
Diabetes drug similar to Ozempic helped slow progression of Parkinson’s disease in small trial
https://www.cnbc.com/2024/04/04/drug-similar-to-ozempic-slowed-parkinsons-disease-in-small-trial.html And they are no longer manufacturing this older drug as it would be a "cheap" drug. It will be repurposed and cost $$$. I know I am being cynical. [i]Sanofi pulled lixisenatide from the market
https://www.cnbc.com/2024/04/04/drug-similar-to-ozempic-slowed-parkinsons-disease-in-small-trial.html And they are no longer manufacturing this older drug as it would be a "cheap" drug. It will be repurposed and cost $$$. I know I am being cynical. [i]Sanofi pulled lixisenatide from the market
Sydney75
in
Cure Parkinson's
6 months ago
starting statins and blood thinners
I just found out that I had a silent stroke in the past according to a recent MRA. I am starting a med that keeps platelets from sticking together and a statin. I am scared to death of the side effects. Any advice?
I just found out that I had a silent stroke in the past according to a recent MRA. I am starting a med that keeps platelets from sticking together and a statin. I am scared to death of the side effects. Any advice?
Milynda
in
Anticoagulation Support
6 months ago
Bee venom for the treatment of Parkinson’s disease: How far is it possible? 2017
Bee venom for the treatment of Parkinson’s disease: How far is it possible? 2017 https://sci-hub.st/10.1016/j.biopha.2017.04.065 A woman on FB Parkinson's Alternative Healing posted that wasp venom has made most of her symptoms go away. I am still trying to find out if she stopped her meds.
Bee venom for the treatment of Parkinson’s disease: How far is it possible? 2017 https://sci-hub.st/10.1016/j.biopha.2017.04.065 A woman on FB Parkinson's Alternative Healing posted that wasp venom has made most of her symptoms go away. I am still trying to find out if she stopped her meds.
Bolt_Upright
in
Cure Parkinson's
6 months ago
Good news - After Endo
As we talked and he answered my questions, he looked through my previous records, checked my thyroid, examined me to see if I had any of the symptoms related to
Graves
disease
. I explained that the only symptom I had was my very fast heart rate and nothing else.
As we talked and he answered my questions, he looked through my previous records, checked my thyroid, examined me to see if I had any of the symptoms related to
Graves
disease
. I explained that the only symptom I had was my very fast heart rate and nothing else.
LadyAbash
in
Thyroid UK
9 months ago
GLP1-R agonist improves Parkinson disease symptoms
"Lixisenatide can cross the blood-brain barrier and is known to have neuroprotective properties in https://www.ccjm.org/page/mds-2023/glp1-r-agonist-parkinson#:~:text=Lixisenatide%20can%20cross%20the%20blood,%2C%20University%20Hospital%20Bordeaux%2C%20France.
"Lixisenatide can cross the blood-brain barrier and is known to have neuroprotective properties in https://www.ccjm.org/page/mds-2023/glp1-r-agonist-parkinson#:~:text=Lixisenatide%20can%20cross%20the%20blood,%2C%20University%20Hospital%20Bordeaux%2C%20France.
Gcf51
in
Cure Parkinson's
6 months ago
Meta analysis of Eastern Cooperative Oncology Group(ECOG) PS predicts OS regardless of category, previous chemotherapy, and mPC population
”Overall, 75 studies, comprising 32,298 patients, were included. Most studies (72/75) included patients with mCRPC. Higher ECOG PS was associated with a significant increase in mortality risk, with the highest estimate observed among patients with mCRPC with an ECOG PS of ≥2 versus <2 (hazard ratio [
”Overall, 75 studies, comprising 32,298 patients, were included. Most studies (72/75) included patients with mCRPC. Higher ECOG PS was associated with a significant increase in mortality risk, with the highest estimate observed among patients with mCRPC with an ECOG PS of ≥2 versus <2 (hazard ratio [
Graham49
in
Advanced Prostate Cancer
6 months ago
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