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Gorlin syndrome
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Anyone else with EDS have severe asthma?
I’m just wondering if anyone else is in the same situation as me and has EDS and severe, uncontrolled asthma? Now I know that the two aren’t linked but I’m just curious. I have many other health issues that aren’t related to EDS and are very rare so I rarely find anyone to talk to that has similar
I’m just wondering if anyone else is in the same situation as me and has EDS and severe, uncontrolled asthma? Now I know that the two aren’t linked but I’m just curious. I have many other health issues that aren’t related to EDS and are very rare so I rarely find anyone to talk to that has similar
WheezyZebra
in
Ehlers-Danlos Support UK
3 years ago
RLS and Magnesium
Has anyone experienced this? I started taking Magnesium for my RLS but each time I take it I get terrible cramps in my legs and toes several times a night. Yet Magnesium is used to get rid of cramp. I am not subject to cramp normally. Perhaps it’s the same mechanism as Homeopathic remedies whereby a
Has anyone experienced this? I started taking Magnesium for my RLS but each time I take it I get terrible cramps in my legs and toes several times a night. Yet Magnesium is used to get rid of cramp. I am not subject to cramp normally. Perhaps it’s the same mechanism as Homeopathic remedies whereby a
Bruxelles
in
Restless Legs Syndrome
3 years ago
Any thoughts here?
My husband was put on GABApentin, stilnox and madopar. He only used madopar once. He’s afraid to continue it. Although he did notice last night his legs were more restless without it . This process is so frustrating as he’s been withdrawing from opiates since one month. Any feedback from anyone is helpful
My husband was put on GABApentin, stilnox and madopar. He only used madopar once. He’s afraid to continue it. Although he did notice last night his legs were more restless without it . This process is so frustrating as he’s been withdrawing from opiates since one month. Any feedback from anyone is helpful
RCHD
in
Restless Legs Syndrome
3 years ago
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Codeine
I have been taking one 15mg codeine phosphate before bed and I have slept all night with no restless legs.
I have been taking one 15mg codeine phosphate before bed and I have slept all night with no restless legs.
Bridall
in
Restless Legs Syndrome
3 years ago
Postnatal thyroiditis ??? Test results
Hi im looking for some help. I have been getting thyroid symptoms for many years on and off never have I been medicated. I have had 4 children in 5 years and become unwel after giving birth with my previous children but I had my little boy 10 weeks ago and 6 weeks ago I became ill with all thyroid
Hi im looking for some help. I have been getting thyroid symptoms for many years on and off never have I been medicated. I have had 4 children in 5 years and become unwel after giving birth with my previous children but I had my little boy 10 weeks ago and 6 weeks ago I became ill with all thyroid
Youngandbroken
in
Thyroid UK
3 years ago
Get woken up by Restless Legs
So whilst I tend to have fidgety legs during the day, I'm not bothered by them. However, night times are a different matter. I have no problems falling asleep but approx. 90 mins into my sleep I'm awoken by me restless legs and am often then awake for 2-4 hours before falling asleep again. I was originally
So whilst I tend to have fidgety legs during the day, I'm not bothered by them. However, night times are a different matter. I have no problems falling asleep but approx. 90 mins into my sleep I'm awoken by me restless legs and am often then awake for 2-4 hours before falling asleep again. I was originally
Mchmav
in
Restless Legs Syndrome
3 years ago
More advice please prior to GP consultation
Hi experts. I upped my pred dose to 20 mg 2 weeks ago believing I had PMR flare after dropping to 15 for 2 weeks. But with your knowledge and experience you suggested Piriformis syndrome - am still struggling with the PS pains but am fortunately having some sports therapy massage and stretching and exercising
Hi experts. I upped my pred dose to 20 mg 2 weeks ago believing I had PMR flare after dropping to 15 for 2 weeks. But with your knowledge and experience you suggested Piriformis syndrome - am still struggling with the PS pains but am fortunately having some sports therapy massage and stretching and exercising
Pocketdog
in
PMRGCAuk
3 years ago
Nebivolol timing and low blood pressure
I take 2.5mg Nebivolol and 200mg Flecainide daily, taking the Nebivolol in the mornings. I have low normal BP but recently have had readings in the 80/50 range which make me feel pretty bad. I drink water and keep my salt level up but every day down it goes about 2 hours after I take the Nebivolol
I take 2.5mg Nebivolol and 200mg Flecainide daily, taking the Nebivolol in the mornings. I have low normal BP but recently have had readings in the 80/50 range which make me feel pretty bad. I drink water and keep my salt level up but every day down it goes about 2 hours after I take the Nebivolol
Finvola
in
AF Association
3 years ago
Dry mouth
Hi all , please can you help me , I have APS (diagnosed 3 years ago ) now I have a very dry mouth , I am pretty sure it's going to be Sjorgrens as I am very achey and tired too , waiting for a referral! I do know that these rotten Immune diseases seem to multiply with time , 7 years I'm told and that
Hi all , please can you help me , I have APS (diagnosed 3 years ago ) now I have a very dry mouth , I am pretty sure it's going to be Sjorgrens as I am very achey and tired too , waiting for a referral! I do know that these rotten Immune diseases seem to multiply with time , 7 years I'm told and that
Sevenstar
in
The Australian Sjögren's Syndrome Association
3 years ago
Emerging concepts on bradykinesia in non‐parkinsonian conditions
Bradykinesia is one of the cardinal motor symptoms of Parkinson’s disease. However, clinical and experimental studies indicate that bradykinesia may also be observed in various neurological diseases not primarily characterized by parkinsonism. These conditions include hyperkinetic movement disorders,
Bradykinesia is one of the cardinal motor symptoms of Parkinson’s disease. However, clinical and experimental studies indicate that bradykinesia may also be observed in various neurological diseases not primarily characterized by parkinsonism. These conditions include hyperkinetic movement disorders,
Farooqji
in
Cure Parkinson's
3 years ago
Please advise!
Things don't seem to be getting better at night. While I have foot tightening and spasm like sensations during the day, I get an irresistible urge to stretch my legs at night so I can never get comfortable in bed. Sometimes I have to lie on top of the blankets to get any relief. I had a chat with my
Things don't seem to be getting better at night. While I have foot tightening and spasm like sensations during the day, I get an irresistible urge to stretch my legs at night so I can never get comfortable in bed. Sometimes I have to lie on top of the blankets to get any relief. I had a chat with my
Boomerang83
in
Restless Legs Syndrome
3 years ago
Total shock re operation
Hi everyone, I’ve just been asked to attend a pre op appt for 26th April . My last op was cancelled just as lockdown started. The op is for muscle reattachment of my hip, I’ve had nothing but trouble with a metal on metal which was first done 1999, it was fine for 6 years and from then on I’ve had
Hi everyone, I’ve just been asked to attend a pre op appt for 26th April . My last op was cancelled just as lockdown started. The op is for muscle reattachment of my hip, I’ve had nothing but trouble with a metal on metal which was first done 1999, it was fine for 6 years and from then on I’ve had
2013mayo
in
PMRGCAuk
3 years ago
Possible Polychondritis and RA
Hello, I’m having investigations into what is going on with me, they think it’s possibly RA and want to start me on hydroxychloroquine. My bloods only showed a positive for ANA. Other than aching swollen joints, lumps and tingling, my other biggest symptom is the cartilage in my nose is slowly deteriorating
Hello, I’m having investigations into what is going on with me, they think it’s possibly RA and want to start me on hydroxychloroquine. My bloods only showed a positive for ANA. Other than aching swollen joints, lumps and tingling, my other biggest symptom is the cartilage in my nose is slowly deteriorating
Antonia39
in
NRAS
3 years ago
General anaesthetic recovery period
I have a problem in that I have to have a hysteroscopy under general anaesthetic the day after tomorrow and it had been arranged that my daughter would stay with me for 24 hours as advised by hospital. She now finds that she can't do this - for reasons I don't fully understand - and that she would stay
I have a problem in that I have to have a hysteroscopy under general anaesthetic the day after tomorrow and it had been arranged that my daughter would stay with me for 24 hours as advised by hospital. She now finds that she can't do this - for reasons I don't fully understand - and that she would stay
maria40
in
PMRGCAuk
3 years ago
Cyst Aspiration - has anyone had?
I’ve 12 days into down regulation, I had my baseline yesterday and I have a large cyst on my left ovary :( - I was so ready to start stims yesterday but it is what it is and I want the best outcome this cycle as it’s my 3rd! I have another scan on Monday and I am praying it has gone itself but if it
I’ve 12 days into down regulation, I had my baseline yesterday and I have a large cyst on my left ovary :( - I was so ready to start stims yesterday but it is what it is and I want the best outcome this cycle as it’s my 3rd! I have another scan on Monday and I am praying it has gone itself but if it
Amy1122
in
Fertility Network UK
3 years ago
Next steps after Clomid?
I wanted to see if anyone had advice / been through a similar treatment pathway. Background: 32 y/o and been trying for two years (on pill / implant before then). No luck after one year so went through standard GP testing as my cycles had been long and irregular after the implant, but tests / scans
I wanted to see if anyone had advice / been through a similar treatment pathway. Background: 32 y/o and been trying for two years (on pill / implant before then). No luck after one year so went through standard GP testing as my cycles had been long and irregular after the implant, but tests / scans
Daisy_Blue
in
Fertility Network UK
3 years ago
Apnea due to opioid use?
I read that one of the causes of central sleep apnea is opioid use. That puts the person at risk for stroke or heart issues. There apparently is no treatment for refractory RLS that doesn't have serious side effects. My question is this: Has anyone with RLS developed apnea as a probable result of opioids
I read that one of the causes of central sleep apnea is opioid use. That puts the person at risk for stroke or heart issues. There apparently is no treatment for refractory RLS that doesn't have serious side effects. My question is this: Has anyone with RLS developed apnea as a probable result of opioids
grandpianoman
in
Restless Legs Syndrome
3 years ago
Magnesium stearate
Is it best to avoid magnesium stearate if you have Hashimotos? I need to buy more vitamins once my blood test comes back and will avoid MS if necessary. I do however have plenty of vitamins in my cabinet that contain it and I’m tempted to take them.
Is it best to avoid magnesium stearate if you have Hashimotos? I need to buy more vitamins once my blood test comes back and will avoid MS if necessary. I do however have plenty of vitamins in my cabinet that contain it and I’m tempted to take them.
Hidden
in
Thyroid UK
3 years ago
What's your experience with gabapentin side effects going away?
I have read that gabapentin side effects can go away after one or two weeks. I was taking 600 mg of gabapentin while coming off ropinirole which I am now off of. It helped me sleep at night but did not stop my restless legs, nor the pain I had in my legs during the day. So experimenting, I tried 900
I have read that gabapentin side effects can go away after one or two weeks. I was taking 600 mg of gabapentin while coming off ropinirole which I am now off of. It helped me sleep at night but did not stop my restless legs, nor the pain I had in my legs during the day. So experimenting, I tried 900
SueJohnson
in
Restless Legs Syndrome
3 years ago
Poor sleep hygiene
Before the age of 20 when I started making sense of RLS I think I learned to violate every rule or guideline they suggest for a good nights sleep. I was too young and clueless to know these bad habits and coping mechanisms would become hard wired and difficult to overcome. I remember trying to be distracted
Before the age of 20 when I started making sense of RLS I think I learned to violate every rule or guideline they suggest for a good nights sleep. I was too young and clueless to know these bad habits and coping mechanisms would become hard wired and difficult to overcome. I remember trying to be distracted
ziggypiggy
in
Restless Legs Syndrome
3 years ago
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