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Hi all, Bit of background about me: After 17 years of miss-diagnosis and me just 'powering on through' I finally had a diagnostic lap in August 2016. During the op they found endo all down my left side which they burnt off. They left a tricky section which is sticking the tube which runs from my kidney
Hi all, Bit of background about me: After 17 years of miss-diagnosis and me just 'powering on through' I finally had a diagnostic lap in August 2016. During the op they found endo all down my left side which they burnt off. They left a tricky section which is sticking the tube which runs from my kidney
lowris
in
Endometriosis UK
7 years ago
1st Prostap injection today
I had my 1st prostap injection today. The 1st of approx 3 my consultant wants me to have before he does a lap and hysterectomy in january. Bit of a delay in getting the injection due to no info or letter about how to get it. Didnt realise i had to book a prescription through my own gp then book an appointment
I had my 1st prostap injection today. The 1st of approx 3 my consultant wants me to have before he does a lap and hysterectomy in january. Bit of a delay in getting the injection due to no info or letter about how to get it. Didnt realise i had to book a prescription through my own gp then book an appointment
Jack44
in
Endometriosis UK
7 years ago
2 weeks of bleeding on prostap
Hi all So I have been diagnosed with end and had the keyhole surgery at the end of September. On the first day of my cycle I had my first injection of prostap. Since then I have been bleeding. It’s no longer period bleeding, it’s just an annoying, lasting, light bleeding. What will that stop? Should
Hi all So I have been diagnosed with end and had the keyhole surgery at the end of September. On the first day of my cycle I had my first injection of prostap. Since then I have been bleeding. It’s no longer period bleeding, it’s just an annoying, lasting, light bleeding. What will that stop? Should
Buisquits
in
Endometriosis UK
7 years ago
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Initial increase in pain after first Prostap injection
Hi there! I was just wondering if anybody else had had an increase in their pain following their first prostap injection? I had awful pains! It seemed like all of my pain that I experience on a daily basis because of Endo was magnified, especially on my right ovary (I have an endometrioma on there).
Hi there! I was just wondering if anybody else had had an increase in their pain following their first prostap injection? I had awful pains! It seemed like all of my pain that I experience on a daily basis because of Endo was magnified, especially on my right ovary (I have an endometrioma on there).
Loulou857
in
Endometriosis UK
7 years ago
Prostap injection
Hi ladies I’m coming to the end of my prostap injections. Symptoms have eased with it. Just wanted to know how people felt after it, did symptoms come back? What pill you used after to stop periods? I have had 2 operations for endo and have tried the mirena coil but that failed. Just dreading the pain
Hi ladies I’m coming to the end of my prostap injections. Symptoms have eased with it. Just wanted to know how people felt after it, did symptoms come back? What pill you used after to stop periods? I have had 2 operations for endo and have tried the mirena coil but that failed. Just dreading the pain
Laura_T
in
Endometriosis UK
7 years ago
Horrible abdominal and lower back pain after prostap injection.
Hi ladies. Did anyone experienced painful cramps and lower back pain when coming off prostap injection. I was put on prostap injection for 6 months for my 2nd ivf treatment last injection was about 5 weeks ago and I have horrible cramps and lower back pain. Just wondering if this is normal?
Hi ladies. Did anyone experienced painful cramps and lower back pain when coming off prostap injection. I was put on prostap injection for 6 months for my 2nd ivf treatment last injection was about 5 weeks ago and I have horrible cramps and lower back pain. Just wondering if this is normal?
Abbie25
in
Fertility Network UK
7 years ago
15 weeks post op from full hysterectomy
Hi all I've commented a few times on here with my journey. I had the prostap injection in april and my operation in july. I have only just finished with the hot sweats side effects. Which caused my stress as i wasn't t sleeping and embarrassment as my tops were always wet through. Like i said this
Hi all I've commented a few times on here with my journey. I had the prostap injection in april and my operation in july. I have only just finished with the hot sweats side effects. Which caused my stress as i wasn't t sleeping and embarrassment as my tops were always wet through. Like i said this
Lallya
in
Endometriosis UK
7 years ago
Please help me, nothing seems to be working.
Hello I was disgnosed last year with 'mild' endometriosis and have since been and tried every hormone possible including and currently on my second round of prostap injections but have continued to bleed and if not worse then ever before. I am now bleeding one week then off one week then starting again
Hello I was disgnosed last year with 'mild' endometriosis and have since been and tried every hormone possible including and currently on my second round of prostap injections but have continued to bleed and if not worse then ever before. I am now bleeding one week then off one week then starting again
Lcag
in
Endometriosis UK
7 years ago
Hair loss
Hi everyone, I have been losing alot of hair since my 2nd injection of prostap to the point where there are now visible bald patches in my hair when it's up, I'm just wondering if anyone else has experienced this and if there is anything I can do to stop it? It's really getting to me and my mood is
Hi everyone, I have been losing alot of hair since my 2nd injection of prostap to the point where there are now visible bald patches in my hair when it's up, I'm just wondering if anyone else has experienced this and if there is anything I can do to stop it? It's really getting to me and my mood is
Pips_vw
in
Endometriosis UK
7 years ago
7 months post op - HRT
Hi everyone. I had a TLH +BSO back in march for endometriosis, and also had excision from my bowel/bladder/ureter at the same time. I had 9 weeks on prostap without HRT prior to the surgery, then 13 weeks post op with no HRT before being started on tibolone which I have now been taking for just over
Hi everyone. I had a TLH +BSO back in march for endometriosis, and also had excision from my bowel/bladder/ureter at the same time. I had 9 weeks on prostap without HRT prior to the surgery, then 13 weeks post op with no HRT before being started on tibolone which I have now been taking for just over
Hidden
in
Healthy Happy Woman
7 years ago
Feeling down
I am currently on my second injection of prostap and feel completely and utterly fed up. I can't sleep on a night due to night sweats and hot flushes and every little moment I make creates a hot flush. My hair is falling out in chuncks and my mood is very low. The only good thing about it is that I have
I am currently on my second injection of prostap and feel completely and utterly fed up. I can't sleep on a night due to night sweats and hot flushes and every little moment I make creates a hot flush. My hair is falling out in chuncks and my mood is very low. The only good thing about it is that I have
Pips_vw
in
Endometriosis UK
7 years ago
Prostap and ivf
Hi, i had surgery on Tuesday to remove a tube, drain a cyst and have a prostap injection. I am recovering well, it was my 2nd lap so was more prepared this time. My question is when will my period come? Is it like zoladex that it will be 2 weeks post injection? I was due my period on the day of surgery
Hi, i had surgery on Tuesday to remove a tube, drain a cyst and have a prostap injection. I am recovering well, it was my 2nd lap so was more prepared this time. My question is when will my period come? Is it like zoladex that it will be 2 weeks post injection? I was due my period on the day of surgery
SEB88
in
Endometriosis UK
7 years ago
After prostap, how long till you have a period?
I had 3 months of prostap injection and HRT. I am having a bad day with the pain and feel like I need a period but I know I aren’t due to have one for a while. So just wondering how long till other women started to have periods again after the prostap x
I had 3 months of prostap injection and HRT. I am having a bad day with the pain and feel like I need a period but I know I aren’t due to have one for a while. So just wondering how long till other women started to have periods again after the prostap x
Summer_3
in
Endometriosis UK
7 years ago
Mirena coil issues! Please help!
Hi, I have had the mirena coil for almost 3 years, since insertion I have 2 week long HEAVY periods a month (2 weeks on 2 weeks off) and over the last 8 months the 2 weeks that I’m not bleeding I suffer from recurring thrush. Has any one experienced this? I want to remove it but I’m cautious as Doctors
Hi, I have had the mirena coil for almost 3 years, since insertion I have 2 week long HEAVY periods a month (2 weeks on 2 weeks off) and over the last 8 months the 2 weeks that I’m not bleeding I suffer from recurring thrush. Has any one experienced this? I want to remove it but I’m cautious as Doctors
cejay-wiffen
in
Endometriosis UK
7 years ago
Prostap SR and tibolone
Hi everyone, I wonder if anyone can help. I've got severe endo and have just started my first prostap injection alongside tibolone in prep for my surgery in January. I kind of feel ok so far but am waiting for side effects to kick in. This morning I had some quite severe pain and just wondered if anyone
Hi everyone, I wonder if anyone can help. I've got severe endo and have just started my first prostap injection alongside tibolone in prep for my surgery in January. I kind of feel ok so far but am waiting for side effects to kick in. This morning I had some quite severe pain and just wondered if anyone
Cleo1986
in
Endometriosis UK
7 years ago
Being spoken to like you are not there.
Hi, it’s my first time on here. I’ve been prompted to join to get some insight into others experiences of endometriosis after attending a consultation yesterday with an “Endometriosis specialist”. Long story short, two doctors stood discussing me and what treatment I need whilst I’m sat there, unable
Hi, it’s my first time on here. I’ve been prompted to join to get some insight into others experiences of endometriosis after attending a consultation yesterday with an “Endometriosis specialist”. Long story short, two doctors stood discussing me and what treatment I need whilst I’m sat there, unable
Loulou857
in
Endometriosis UK
7 years ago
Help and Advice needed
I started with endemetriosis 4 years ago during the first year i was given a hormone drug called Prostap which in my opinion started a whole host of stomach problems the biggest being acid reflux. I saw numerous GIs who did numerous tests (endoscopies, colonoscopy, CTs, US, 24hr PH monitoring and hundreds
I started with endemetriosis 4 years ago during the first year i was given a hormone drug called Prostap which in my opinion started a whole host of stomach problems the biggest being acid reflux. I saw numerous GIs who did numerous tests (endoscopies, colonoscopy, CTs, US, 24hr PH monitoring and hundreds
nicolajones63
in
Endometriosis UK
7 years ago
Post-lap gp follow-up, prostap??
Okay, so I've had horrific period pain ever since I started them when I was 12. Surpressed it with contraceptives since I was 14, but them came off them in 2015 at 19. My periods became errictic for about a year, so I had an ultrasound and blood tests. Blood tests came back fine, but ultrasound showed
Okay, so I've had horrific period pain ever since I started them when I was 12. Surpressed it with contraceptives since I was 14, but them came off them in 2015 at 19. My periods became errictic for about a year, so I had an ultrasound and blood tests. Blood tests came back fine, but ultrasound showed
Bryonie22
in
Endometriosis UK
7 years ago
Miracles can happen..
Hi ladies I was diagnosed at the age of 17 with PCOS and then diagnosed with endometriosis at aged 25. I have had it lasered 3 times had 6 laparoscopic procedures prostap and zoladex injections and nothing worked so at the age of 30 myself and consultant opted for a hysterectomy filled out my consent
Hi ladies I was diagnosed at the age of 17 with PCOS and then diagnosed with endometriosis at aged 25. I have had it lasered 3 times had 6 laparoscopic procedures prostap and zoladex injections and nothing worked so at the age of 30 myself and consultant opted for a hysterectomy filled out my consent
Kirstphil
in
Endometriosis UK
7 years ago
Total meltdown at the doctors
I have been suffering with pain on and off for nearly 6 years now and no answer from the doctors the cause. But when reading on the internet my symptoms sound like endo :/ Since early April this year my pain flared up again and has not gone. I have lost my job as I struggle to get dressed as the pain
I have been suffering with pain on and off for nearly 6 years now and no answer from the doctors the cause. But when reading on the internet my symptoms sound like endo :/ Since early April this year my pain flared up again and has not gone. I have lost my job as I struggle to get dressed as the pain
Summer_3
in
Endometriosis UK
7 years ago
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