Help and Advice needed: I started with... - Endometriosis UK

Endometriosis UK

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Help and Advice needed


I started with endemetriosis 4 years ago during the first year i was given a hormone drug called Prostap which in my opinion started a whole host of stomach problems the biggest being acid reflux. I saw numerous GIs who did numerous tests (endoscopies, colonoscopy, CTs, US, 24hr PH monitoring and hundreds of bloods) all of which came back clear apart from a slight hiatus hernia and a bit of gastritis and oesophagitis. I did intollerance tests which showed an intollerance to wheat and dairy. I was prescribed loads of drugs Omeprazole, Lansoprazole, Ranitidine, Esomeprazole, Sucralfate, Gaviscon Advance all of which just upset my stomach but didnt alleviate the acid reflux. Eventually after about a year the problem seemed to right itself although not sure what had actually worked as tried so many different things

. My problem is i now have it back even worst than before but dont think it is food related as i get it on days when ive eaten small amounts at regular intervals. It is also worst if im sitting down and have taken to laying back in a recliner chair as im in agony if i just sit. I think my problem is more to do with inflammation somewhere and that when im sitting my stomach is being bunched up.

All the doctors ive seen have said its just IBS and that i need to live with it but i think theres more to it than that but dont know where to turn to get answers.

I also get alot of pain in the right groin area that radiates to my lower back and when im walking im in agony and have to keep sitting down. (We've actually just cancelled a family holiday to Florida as i know i wouldnt be able to cope with it)

Please can anyone advise me on what type of doctor i should see as the money from Florida holiday im going to use to go privately as i cant live like this any longer.

BTW the endemetriosis has supposedly gone as i had it removed along with my ovaries a year ago so am nearly through the menopause which i wonder is causing any of my problems

Please can anyone help me

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