Search
Search
About
Log in
Join
Experiences with
Gaucher disease
Posts
Communities
43,715 public posts
Filter results
Specialist appointment
Hi I was diagnosed with compensated cirrhosis in August last year and ended up in ICU for due to contracting sepsis while being admitted to hospital and as such had intensive care for sepsis and lmy liver. I have had 2 visits to the specialist luver nurse and was reassessed to compensated irrhodis
Hi I was diagnosed with compensated cirrhosis in August last year and ended up in ICU for due to contracting sepsis while being admitted to hospital and as such had intensive care for sepsis and lmy liver. I have had 2 visits to the specialist luver nurse and was reassessed to compensated irrhodis
Oasisman
in
British Liver Trust
8 months ago
night cramps
Hi everyone, I’m new on this forum. I was diagnosed with Rheumatoid Arthritis 3 years ago, in the family genes!, I’m currently on Methotrexate (25mg). Seem to be ok until about 2 weeks ago when I started to experience severe night cramps in my legs and feet. My consultant tells me it wasn’t a symptom
Hi everyone, I’m new on this forum. I was diagnosed with Rheumatoid Arthritis 3 years ago, in the family genes!, I’m currently on Methotrexate (25mg). Seem to be ok until about 2 weeks ago when I started to experience severe night cramps in my legs and feet. My consultant tells me it wasn’t a symptom
sussiewong22
in
NRAS
6 months ago
Father with Stage 4 prostate cancer in 8 bones.
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
lgutman
in
Advanced Prostate Cancer
8 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Graves disease and Pregnancy
Hi guys, so I was diagnosed with graves disease causing hyperthyroidism and celiac disease in June last year. I have been on 40mg carbimazole per day and 80mg propanalol per day since. I had a consultation with my endocrinologist yesterday, she has now reduced my dose to 30mg carbimazole per day. I expressed
Hi guys, so I was diagnosed with graves disease causing hyperthyroidism and celiac disease in June last year. I have been on 40mg carbimazole per day and 80mg propanalol per day since. I had a consultation with my endocrinologist yesterday, she has now reduced my dose to 30mg carbimazole per day. I expressed
Candice197
in
Thyroid UK
8 months ago
Successful Pluvicto Treatment
I completed six Pluvicto treatments in December 2023 and returned to Mayo in Rochester on January 31, 2024 for a Choline Pet scan to see if it would reveal any non-PSMA PCa. My doctor reviewed the report and scans and informed me that my cancer appears to be in complete remission. The findings of the
I completed six Pluvicto treatments in December 2023 and returned to Mayo in Rochester on January 31, 2024 for a Choline Pet scan to see if it would reveal any non-PSMA PCa. My doctor reviewed the report and scans and informed me that my cancer appears to be in complete remission. The findings of the
Skifanatic
in
Advanced Prostate Cancer
8 months ago
Adenomyosis, Endometriosis and Autoimmune diseases
Hi ladies, this question is just out of curiosity because I see several posts about a lot of us having a combination of Endometriosis/ Adenomyosis and autoimmune disease. Following all my symptoms (that got even worse since I have no therapy but only medication to ease the pain) now I got a possible
Hi ladies, this question is just out of curiosity because I see several posts about a lot of us having a combination of Endometriosis/ Adenomyosis and autoimmune disease. Following all my symptoms (that got even worse since I have no therapy but only medication to ease the pain) now I got a possible
Taikaei
in
Endometriosis UK
6 months ago
Ventricular ectopic runs
Just been to the GP over the palpitations I've been having for a year or so and he said they are (from the way I described them to him) "ventricular ectopic runs" and I'm wondering what this community has to say about them...? They do feel ectopic as I get a 'missed' beat followed by a bigger one and
Just been to the GP over the palpitations I've been having for a year or so and he said they are (from the way I described them to him) "ventricular ectopic runs" and I'm wondering what this community has to say about them...? They do feel ectopic as I get a 'missed' beat followed by a bigger one and
stoneyhouse
in
Atrial Fibrillation Support
5 months ago
May - Vasculitis awareness month
May - Day 3 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA (former Wegener's) is an ANCA assosiated vasculitis and can be severe, even fatal if not treated early and correctly. Nothing is more empowering than #patient stories. This is Emma's story. To donate to #VasculitisUK
May - Day 3 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA (former Wegener's) is an ANCA assosiated vasculitis and can be severe, even fatal if not treated early and correctly. Nothing is more empowering than #patient stories. This is Emma's story. To donate to #VasculitisUK
zoe69
Vasculitis UK
in
Vasculitis UK
5 months ago
frustrated
another frustrating night…intermittent heart palpitations from 5-530 pm and then more from 11pm until 1245am…nothing fast but all skipping, like every other beat to every 20th beat….had bad day at work as I am an er nurse….wondering if that cause the arrhythmia today….im currently on no medications and
another frustrating night…intermittent heart palpitations from 5-530 pm and then more from 11pm until 1245am…nothing fast but all skipping, like every other beat to every 20th beat….had bad day at work as I am an er nurse….wondering if that cause the arrhythmia today….im currently on no medications and
Rdiehl01
in
Atrial Fibrillation Support
5 months ago
Post Transplant Fatigue
Hello, I had my liver transplant just over 6 years ago now and apart from an issue right at the beginning, I have been well. I’ve not even had covid! Recently though I’ve begun to feel very tired again, almost as if I’d never had the transplant at all. My question is, has anyone else experienced chronic
Hello, I had my liver transplant just over 6 years ago now and apart from an issue right at the beginning, I have been well. I’ve not even had covid! Recently though I’ve begun to feel very tired again, almost as if I’d never had the transplant at all. My question is, has anyone else experienced chronic
Dawnejoy
in
British Liver Trust
8 months ago
Ramadan Autoimmune Health Survey (including vasculitis)
https://www.vasculitis.org.uk/news/ramadan-autoimmune-health-survey Please follow the above link for more details 👆
https://www.vasculitis.org.uk/news/ramadan-autoimmune-health-survey Please follow the above link for more details 👆
Suzi70
Administrator
in
Vasculitis UK
6 months ago
Treatment for low-PSA mHSPCa
Does anyone have a clue for treatment of low-PSA metastatic PCa? For neuroendocrine PCa? The only study I can find on treatment for low-PSA: "Mortality Risk for Docetaxel-Treated, High-Grade Prostate Cancer With Low PSA Levels: A Meta-Analysis | Oncology | JAMA Network Open" | indicates that
Does anyone have a clue for treatment of low-PSA metastatic PCa? For neuroendocrine PCa? The only study I can find on treatment for low-PSA: "Mortality Risk for Docetaxel-Treated, High-Grade Prostate Cancer With Low PSA Levels: A Meta-Analysis | Oncology | JAMA Network Open" | indicates that
Purple-Bike
in
Advanced Prostate Cancer
8 months ago
Mets to lungs and lymph nodes need some advice
Hi there, i was diagnosed with oligometastatic pca 6 years ago,51 yo psa was 25, tried to go on a curative path and went for prostatectomy followed with radiotherapy +sbrt to ilium bone suspicion for bone met and pelvic lymph nodes +adt and abiraterone for 24 months.I have refused to chemo along
Hi there, i was diagnosed with oligometastatic pca 6 years ago,51 yo psa was 25, tried to go on a curative path and went for prostatectomy followed with radiotherapy +sbrt to ilium bone suspicion for bone met and pelvic lymph nodes +adt and abiraterone for 24 months.I have refused to chemo along
Niso
in
Advanced Prostate Cancer
8 months ago
Flecainide (again)
Very interesting post by FraserB earlier. My problem is the opposite. Cardiologist raised my dose to 100mg x2 per day after being on 50mg x2 per day for a year and a half. After the third dose of the 100mg 2 hours before bed I felt terrible. The 2nd dose in morning I felt good with no reaction. Was worried
Very interesting post by FraserB earlier. My problem is the opposite. Cardiologist raised my dose to 100mg x2 per day after being on 50mg x2 per day for a year and a half. After the third dose of the 100mg 2 hours before bed I felt terrible. The 2nd dose in morning I felt good with no reaction. Was worried
Afibtastic
in
Atrial Fibrillation Support
5 months ago
Lupus centre of excellence
Morning all, can anyone advise if they have been referred to a Lupus centre of excellence outside their area? If so was the referral done by GP?Many thanks
Morning all, can anyone advise if they have been referred to a Lupus centre of excellence outside their area? If so was the referral done by GP?Many thanks
Jenfy34
in
LUPUS UK
6 months ago
Eliquis and AF symptoms
Hi all, I've been following the posts on this forum and have received helpful feedback re blood thinners and AF. I was recently diagnosed with AF and was put on Eliquis, which I've not yet started because of what I heard about the side effects. I have bradycardia and experience flutters and lightheadedness
Hi all, I've been following the posts on this forum and have received helpful feedback re blood thinners and AF. I was recently diagnosed with AF and was put on Eliquis, which I've not yet started because of what I heard about the side effects. I have bradycardia and experience flutters and lightheadedness
Calypso76
in
Atrial Fibrillation Support
5 months ago
Bedranol
I have been prescribed Bedranol ( propranolol hydrochloride) for my anxiety. Just to use as and when I feel anxious . Has anyone else used this beta blocker ? I suffer from IBS - D and I’m worried it might cause diarrhoea. This would defeat the object of taking it completely!
I have been prescribed Bedranol ( propranolol hydrochloride) for my anxiety. Just to use as and when I feel anxious . Has anyone else used this beta blocker ? I suffer from IBS - D and I’m worried it might cause diarrhoea. This would defeat the object of taking it completely!
Jess54
in
IBS Network
5 months ago
Peginterferon and platelets
I started taking peginterferon 45 mg in November 2023 with a platelet count of 860. Since then, my bloods have been checked monthly, and my dose gradually increased. On Monday I will start 180 mg, alternating the dose weekly with 135 mg for a month, as my platelet count is now 665 and my Haematologist
I started taking peginterferon 45 mg in November 2023 with a platelet count of 860. Since then, my bloods have been checked monthly, and my dose gradually increased. On Monday I will start 180 mg, alternating the dose weekly with 135 mg for a month, as my platelet count is now 665 and my Haematologist
Lyndjs
in
MPN Voice
5 months ago
Decipher this cholesterol reading please
I know there are plenty of knowledgeable people reading these posts so can you decipher this please Chol 3.5 mmol/L, LDL , HDL 1.78 mmol/L,Chol:HDL ratio , Tri 0.51 mmol/L. I don’t understand this. I’m guessing my cholesterol reading is 3.5, but what are HDL and LDL readings individually?
I know there are plenty of knowledgeable people reading these posts so can you decipher this please Chol 3.5 mmol/L, LDL , HDL 1.78 mmol/L,Chol:HDL ratio , Tri 0.51 mmol/L. I don’t understand this. I’m guessing my cholesterol reading is 3.5, but what are HDL and LDL readings individually?
IsleofWight1
in
LUPUS UK
5 months ago
Hello everyone, question about gluten and globus (feeling of lump in throat) ?
Hello everyone, question about gluten and globus (feeling of lump in throat) I also have painful tongue, chronic constipation, bouts of diarrhoea, I've had rashes that look like little spots/patches over the years, burning mouth, tongue, oesophagus, sore stomach, and tingling/vibrating in stomach and
Hello everyone, question about gluten and globus (feeling of lump in throat) I also have painful tongue, chronic constipation, bouts of diarrhoea, I've had rashes that look like little spots/patches over the years, burning mouth, tongue, oesophagus, sore stomach, and tingling/vibrating in stomach and
Suffering_sunny
in
Gluten Free Guerrillas
6 months ago
1
...
83
84
85
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5727 results
British Liver Trust
4582 results
Advanced Prostate Cancer
4542 results
View top 10 communities
Sort by
Most Relevant
Newest