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Do I Poke The Bear?
I had my B12 jab last week, I get these every 2 months and am grateful to have them. I've suffered B12 issues since childhood, have dim memories of blood tests and B12 jabs back in the day. I changed surgeries in the early 90's due to moving and have been with this practice ever since. So I'm not sure
I had my B12 jab last week, I get these every 2 months and am grateful to have them. I've suffered B12 issues since childhood, have dim memories of blood tests and B12 jabs back in the day. I changed surgeries in the early 90's due to moving and have been with this practice ever since. So I'm not sure
Sparklingsunshine
in
Pernicious Anaemia Society
2 months ago
Lupus Diagnosis Experience: Webinar Q&A with Beth, Khiry & Maryann - Tuesday 21st May
On World Lupus Day, we launched a brand new diagnosis awareness video featuring Beth, Khiry and Maryann who kindly shared their experiences receiving a diagnosis for lupus. We are holding a free webinar on Tuesday 21st May at 6:00pm - 7:30pm (BST) featuring Beth, Khiry and Maryann as they discuss their
On World Lupus Day, we launched a brand new diagnosis awareness video featuring Beth, Khiry and Maryann who kindly shared their experiences receiving a diagnosis for lupus. We are holding a free webinar on Tuesday 21st May at 6:00pm - 7:30pm (BST) featuring Beth, Khiry and Maryann as they discuss their
nakita_cambow
Moderator
in
LUPUS UK
2 months ago
Gastro Appointment
hi everyone, I promised I would update you after my gastro appointment, there is not a lot to say really, he told me the past ct scan showed diffuse fatty liver and the ultrasound showed severe liver impairment, he then told me that the fibroscan done by them showed significant scarring, then showed
hi everyone, I promised I would update you after my gastro appointment, there is not a lot to say really, he told me the past ct scan showed diffuse fatty liver and the ultrasound showed severe liver impairment, he then told me that the fibroscan done by them showed significant scarring, then showed
Sophia1968
in
British Liver Trust
6 months ago
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Flare or Adrenal Crisis
During the Christmas period I had a series of very stressful situations , including transatlantic travel. Upon returning I experienced extreme burning pain in my neck, arms, shoulders and groin. I could barely get out of bed. It was the same pain I experienced when I was first diagnosed with PMR 2 1
During the Christmas period I had a series of very stressful situations , including transatlantic travel. Upon returning I experienced extreme burning pain in my neck, arms, shoulders and groin. I could barely get out of bed. It was the same pain I experienced when I was first diagnosed with PMR 2 1
Belfastman
in
PMRGCAuk
6 months ago
How UV affects us
Looking west Isle of Wight, Taken on a local walk a few weeks ago. I found this an internet explanation. Thanks to Striated Cacara. UV rays damage the cells of the skin. When the cells of the skin become damaged from UV light, it causes them to die, in a process known as apoptosis. In a person without
Looking west Isle of Wight, Taken on a local walk a few weeks ago. I found this an internet explanation. Thanks to Striated Cacara. UV rays damage the cells of the skin. When the cells of the skin become damaged from UV light, it causes them to die, in a process known as apoptosis. In a person without
IsleofWight1
in
LUPUS UK
2 months ago
GP wants to put me on statins but reluctant to take due to underactive thyroid and liver issues
hi - I have an underactive thyroid / hashimotos. I’m on 100mg of Levothyroxine my latest results are TSH 0.034 FREE T3 4.6 FREE THYROXINE 17.7 My GP wanted to reduce my thyroxine but I actually feel good at the moment so he’s agreed to keep it at 100mg only after a bit of arguing and having
hi - I have an underactive thyroid / hashimotos. I’m on 100mg of Levothyroxine my latest results are TSH 0.034 FREE T3 4.6 FREE THYROXINE 17.7 My GP wanted to reduce my thyroxine but I actually feel good at the moment so he’s agreed to keep it at 100mg only after a bit of arguing and having
Fergus883782
in
Thyroid UK
2 months ago
Discoid lupus help please!
Hello, I've posted before whilst waiting for dermatology appointment this June for suspected discoid lupus. My initial "thing" was a small scaley patch on my eyebrow, which isn't typical looking of discoid lupus and only came up following biopsy. Well now I have a rather bigger "thing" come up on my
Hello, I've posted before whilst waiting for dermatology appointment this June for suspected discoid lupus. My initial "thing" was a small scaley patch on my eyebrow, which isn't typical looking of discoid lupus and only came up following biopsy. Well now I have a rather bigger "thing" come up on my
Nome11
in
LUPUS UK
2 months ago
Full circle with this disease
Diagnosed 2017 PSA 105 started ADT, 6 rounds Docetaxel and radiation PSA drops to undetectable. Castrate resistant 2022 started Abiraterone and prednisone this failed after 3 months. Start Xgeva and Xofigo 2023. PSA back at 105 November 2023. Start 10 rounds of Docetaxel and PSA starts dropping again
Diagnosed 2017 PSA 105 started ADT, 6 rounds Docetaxel and radiation PSA drops to undetectable. Castrate resistant 2022 started Abiraterone and prednisone this failed after 3 months. Start Xgeva and Xofigo 2023. PSA back at 105 November 2023. Start 10 rounds of Docetaxel and PSA starts dropping again
Islandboy2021
in
Advanced Prostate Cancer
6 months ago
Coffee - links to autoimmune?
Dear PA members - there seems to be many articles about negative and positive impacts of coffee/caffeine on autoimmune diseases. Does anyone know /researched if coffee has a negative or positive impact on AG PA? Its not clear. Many thanks
Dear PA members - there seems to be many articles about negative and positive impacts of coffee/caffeine on autoimmune diseases. Does anyone know /researched if coffee has a negative or positive impact on AG PA? Its not clear. Many thanks
PAapr22
in
Pernicious Anaemia Society
2 months ago
AbbVie announces EU availability of Parkinson's therapy
A cutting-edge skin patch, equipped with a miniature pump, administers a continuous 24-hour subcutaneous infusion of a therapy based on levodopa. My neurologist recommended this innovative approach as a more convenient alternative to managing our medication, eliminating the need for multiple pills throughout
A cutting-edge skin patch, equipped with a miniature pump, administers a continuous 24-hour subcutaneous infusion of a therapy based on levodopa. My neurologist recommended this innovative approach as a more convenient alternative to managing our medication, eliminating the need for multiple pills throughout
LuckyLuke
in
Cure Parkinson's
6 months ago
Help with vitamins
My ferritin and B12 keep going down despite the fact that I take supplements. Since being diagnosed with Hypothyroidism, Coeliac and SIBO they were steadily going up - I got my ferritin from 2 to 75, but in the last year it’s gone down to 39. My B12 is at 318 and was almost 500 a year ago. Does anyone
My ferritin and B12 keep going down despite the fact that I take supplements. Since being diagnosed with Hypothyroidism, Coeliac and SIBO they were steadily going up - I got my ferritin from 2 to 75, but in the last year it’s gone down to 39. My B12 is at 318 and was almost 500 a year ago. Does anyone
Flossiewestie2020
in
Thyroid UK
2 months ago
Supplements to help liver
I had a blood test that showed raised ALT and then stopped drinking for 3 months and the repeat test had gone down to normal levels. I have heard that various things can help the liver, milk thistle, artichoke, dandelion etc. Is there any merit in any of these. I do not drink a lot but the occasional
I had a blood test that showed raised ALT and then stopped drinking for 3 months and the repeat test had gone down to normal levels. I have heard that various things can help the liver, milk thistle, artichoke, dandelion etc. Is there any merit in any of these. I do not drink a lot but the occasional
Catsaresocute
in
British Liver Trust
6 months ago
New experiences of diagnosis video for World Lupus Day
This World Lupus Day we're launching a new video with Khiry, Beth, and Maryann sharing their experiences of receiving a diagnosis of lupus. You can watch the video here: https://www.youtube.com/watch?v=7VxG2WbrsGI You can also read this blog article in which Khiry, Beth, and Maryann talk about their
This World Lupus Day we're launching a new video with Khiry, Beth, and Maryann sharing their experiences of receiving a diagnosis of lupus. You can watch the video here: https://www.youtube.com/watch?v=7VxG2WbrsGI You can also read this blog article in which Khiry, Beth, and Maryann talk about their
Debbie_kinsey
Administrator
in
LUPUS UK
2 months ago
Fibroscan
My Fibroscan score has increased from 5.9 to 7.9 in a year my consultant doesn’t seem concerned as my blood results are normal and a recent ultrasound on my liver hasn’t changed apparently the size is the same. 🤷♀️I also have fatty liver. I was carrying a bit of extra weight but not overly big but
My Fibroscan score has increased from 5.9 to 7.9 in a year my consultant doesn’t seem concerned as my blood results are normal and a recent ultrasound on my liver hasn’t changed apparently the size is the same. 🤷♀️I also have fatty liver. I was carrying a bit of extra weight but not overly big but
kingsnorth
in
PBC Foundation
6 months ago
Article: Exciting time for biological use in Lupus
https://www.healio.com/news/rheumatology/20240425/exciting-time-biologic-use-in-moderate-to-severe-lupus-rose-45-since-2021?utm_source=selligent&utm_medium=email&utm_campaign=news
https://www.healio.com/news/rheumatology/20240425/exciting-time-biologic-use-in-moderate-to-severe-lupus-rose-45-since-2021?utm_source=selligent&utm_medium=email&utm_campaign=news
VeeWat
in
LUPUS UK
2 months ago
PET Brain Scans Find ‘Smoldering’ Inflammation in Multiple Sclerosis Patients
A new study from Brigham and Women’s Hospital suggests PET brain scans could reveal hidden inflammation in patients with multiple sclerosis (MS) who are being treated with highly effective treatments. The findings were published in Clinical Nuclear Medicine.
https://appliedradiology.com/Articles
A new study from Brigham and Women’s Hospital suggests PET brain scans could reveal hidden inflammation in patients with multiple sclerosis (MS) who are being treated with highly effective treatments. The findings were published in Clinical Nuclear Medicine.
https://appliedradiology.com/Articles
BettysMom
in
My MSAA Community
2 months ago
Atarax 25mg...has anyone used it?
It's an antihistamine with sedative effects. My pharmacy suggested it as I sleep very badly and I have hay fever. After checking with my Lupus Specialist it was OK to take with my other meds I also searched online and saw its also used to treat lupus rashes and itchy skin. I'm hoping it might help my
It's an antihistamine with sedative effects. My pharmacy suggested it as I sleep very badly and I have hay fever. After checking with my Lupus Specialist it was OK to take with my other meds I also searched online and saw its also used to treat lupus rashes and itchy skin. I'm hoping it might help my
AnonLupi
in
LUPUS UK
2 months ago
Help - trouble with diagnosis
Hi there, Looking for some help/guidance here as im at a bit of a loss with what to do next. Sorry for the rambling but I feel so defeated Im34 YO Female, and for about 2 years on and off I have had a number of lupus symptoms, Raynaud's in my hands, joint pain, horrendous fatigue that means I sleep
Hi there, Looking for some help/guidance here as im at a bit of a loss with what to do next. Sorry for the rambling but I feel so defeated Im34 YO Female, and for about 2 years on and off I have had a number of lupus symptoms, Raynaud's in my hands, joint pain, horrendous fatigue that means I sleep
Severusisismydog
in
LUPUS UK
2 months ago
Living with lupus in 2024 survey - closing soon!
Lupus Europe is conducting a survey to gather insights into the experiences of individuals living with lupus across Europe. The survey is anonymous and should take approximately 10 minutes to complete. It is available in 19 different languages. To complete the survey, please click the following link
Lupus Europe is conducting a survey to gather insights into the experiences of individuals living with lupus across Europe. The survey is anonymous and should take approximately 10 minutes to complete. It is available in 19 different languages. To complete the survey, please click the following link
nakita_cambow
Moderator
in
LUPUS UK
2 months ago
Lupus Tumidus
Hi All - After months of burning and itching skin, intermittent exhaustion, irritability, on and off leg swelling and joint pain, I have been diagnosed with Lupus Tumidus. Rheumatologist has said it is not SLE and will likely never turn into SLE. (I am not convinced but one battle at a time). Does
Hi All - After months of burning and itching skin, intermittent exhaustion, irritability, on and off leg swelling and joint pain, I have been diagnosed with Lupus Tumidus. Rheumatologist has said it is not SLE and will likely never turn into SLE. (I am not convinced but one battle at a time). Does
TumidusG
in
LUPUS UK
2 months ago
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