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PALB2 mutation.
From a piece in today's New York Times Health section [1]: [i]"For years, women with breast cancer in their families have been getting tested for mutations in two genes, known as BRCA1 and BRCA2, to determine whether they have a sharply elevated risk of the disease.[/i] [i] [/i] [i]"Now, doctors are
From a piece in today's New York Times Health section [1]: [i]"For years, women with breast cancer in their families have been getting tested for mutations in two genes, known as BRCA1 and BRCA2, to determine whether they have a sharply elevated risk of the disease.[/i] [i] [/i] [i]"Now, doctors are
pjoshea13
in
Advanced Prostate Cancer
3 years ago
Mastectomy questions
I am having a mastectomy in another 10 days on one side. with no reconstruction. Previously I had had a lumpectony, chemo and radiation 4 yrs ago, I'm just wondering how long the recovery period usually is and can you wear pullover shirts or do you need button down ones? Have people been restricted
I am having a mastectomy in another 10 days on one side. with no reconstruction. Previously I had had a lumpectony, chemo and radiation 4 yrs ago, I'm just wondering how long the recovery period usually is and can you wear pullover shirts or do you need button down ones? Have people been restricted
macor
in
SHARE Breast Cancer Support
3 years ago
Experience with Lynparza?
First off, thanks to all the amazing women in this community. I have learned so much about the disease and the amazing stories of courage and perseverance. Very inspiring. This is my first post, I apologize in advance if I ramble. It is my 84 year old father dealing with MBC and I am along for the ride
First off, thanks to all the amazing women in this community. I have learned so much about the disease and the amazing stories of courage and perseverance. Very inspiring. This is my first post, I apologize in advance if I ramble. It is my 84 year old father dealing with MBC and I am along for the ride
Greenwhite63
in
SHARE Metastatic Breast Cancer
3 years ago
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Medicinal experiences
Hi all Following all the recent conversations about various meds people are being prescribed I thought I would add my experiences to the mix. Might be helpful. I was diagnosed with osteopenia several years ago and put on bisphosphonates. These eventually caused a hiatus hernia so I stopped taking them
Hi all Following all the recent conversations about various meds people are being prescribed I thought I would add my experiences to the mix. Might be helpful. I was diagnosed with osteopenia several years ago and put on bisphosphonates. These eventually caused a hiatus hernia so I stopped taking them
Ana-16
in
PMRGCAuk
3 years ago
Evista to prevent recurrence of IDC?
I am 4 months after bilateral mastectomy for invasive ductal carcinoma (IDC). Have had 25 radiation treatments. Now considering Letrozole vs Tamoxifen vs Evista. Don't like the side effects of Letrozole or Tamoxifen. I favor Evista due to recent diagnosis of osteopenia. Has anyone else had experience
I am 4 months after bilateral mastectomy for invasive ductal carcinoma (IDC). Have had 25 radiation treatments. Now considering Letrozole vs Tamoxifen vs Evista. Don't like the side effects of Letrozole or Tamoxifen. I favor Evista due to recent diagnosis of osteopenia. Has anyone else had experience
D-321
in
My Breast Cancer Community
3 years ago
Non-standard Ibrance schedule
Hi everyone, Great forum and so happy I found it! I was diagnosed with MBC in my liver last summer, 19+ years after initial diagnosis Stage IIB, bilateral mastectomy, chemo, and radiation. WTF??? I had surgery to remove tumor and have no other mets that they can find . Anyway, started Ibrance in October
Hi everyone, Great forum and so happy I found it! I was diagnosed with MBC in my liver last summer, 19+ years after initial diagnosis Stage IIB, bilateral mastectomy, chemo, and radiation. WTF??? I had surgery to remove tumor and have no other mets that they can find . Anyway, started Ibrance in October
MoUtOrWaNc
in
SHARE Metastatic Breast Cancer
3 years ago
PARP inhibitors
Dear Friends, I was first diagnosed with breast cancer in 2004. I am brca1 positive. Initially I had double mastectomy and did well until 2016 when I had metastasis to axillilary lymph nodes and left lung. Had full course of ACT, radiation and more lymph node dissection. Have been on xeloda, capacetabine
Dear Friends, I was first diagnosed with breast cancer in 2004. I am brca1 positive. Initially I had double mastectomy and did well until 2016 when I had metastasis to axillilary lymph nodes and left lung. Had full course of ACT, radiation and more lymph node dissection. Have been on xeloda, capacetabine
Sejj
in
SHARE Breast Cancer Support
3 years ago
Bariatric surgery and PD
I had Vertical sleeve
gastrectomy
and was diagnosed 3 years later with PD anyone else?
I had Vertical sleeve
gastrectomy
and was diagnosed 3 years later with PD anyone else?
Boomercd
in
Cure Parkinson's
3 years ago
Help convincing surgeon
When I was officially diagnosed in sept 2019 with breast cancer ER negative HER2 positive and positive nodes. I had 4 months neojuvent chemo then due to lockdown had left breast and lymph nodes removed. This followed by a further 10 months of chemo and 20 sessions of radiotherapy. I know they removed
When I was officially diagnosed in sept 2019 with breast cancer ER negative HER2 positive and positive nodes. I had 4 months neojuvent chemo then due to lockdown had left breast and lymph nodes removed. This followed by a further 10 months of chemo and 20 sessions of radiotherapy. I know they removed
Corfu7
in
My Breast Cancer Community
3 years ago
Getting a Diep flap
Hi there..I'm about to get a Diep flap in a few weeks..and am a bit worried about it..because I do a very physical and demanding job and am a single parent..I'm worried will I get my stomach muscles back after surgery..they doctor never really give you a straight answer..its delayed surgery as I had
Hi there..I'm about to get a Diep flap in a few weeks..and am a bit worried about it..because I do a very physical and demanding job and am a single parent..I'm worried will I get my stomach muscles back after surgery..they doctor never really give you a straight answer..its delayed surgery as I had
Redhill88
in
SHARE Breast Cancer Support
3 years ago
High grade dcis advice
Recently diagnosed with high grade DCIS in right breast. Yet to receive results rom second biopsy so don't know how widespread it is. Is there anything you wishyou'd known when deciding on lumpectomy v's mastectomy?
Recently diagnosed with high grade DCIS in right breast. Yet to receive results rom second biopsy so don't know how widespread it is. Is there anything you wishyou'd known when deciding on lumpectomy v's mastectomy?
Narwhal7
in
My Breast Cancer Community
3 years ago
Mastectomy update
Hi ladies, just going to give you a quick update. Had my mastectomy 2 weeks ago and am feeling great. Saw surgeon yesterday who advised of 6 nodes they removed 1 was affected, disease was ductal not vascular and the 7cm monster had been incinerated yayyyy. So pleased I had it done and as long as remain
Hi ladies, just going to give you a quick update. Had my mastectomy 2 weeks ago and am feeling great. Saw surgeon yesterday who advised of 6 nodes they removed 1 was affected, disease was ductal not vascular and the 7cm monster had been incinerated yayyyy. So pleased I had it done and as long as remain
Archiedog
in
SHARE Metastatic Breast Cancer
3 years ago
Who else was shocked!!
I'm new here but thought I would add me current experience with MBC. I was diagnosed with BC back in 2014, had a mastectomy and only had to take Letrozole for 5 years. I thought it was a fluke and thought nothing more about it. Well, low and behold it is back!! I thought I had pulled a muscle from
I'm new here but thought I would add me current experience with MBC. I was diagnosed with BC back in 2014, had a mastectomy and only had to take Letrozole for 5 years. I thought it was a fluke and thought nothing more about it. Well, low and behold it is back!! I thought I had pulled a muscle from
peggylz
in
SHARE Metastatic Breast Cancer
3 years ago
Rash
My hand started to ache one evening then the next evening I found a rash on my arm which has secondary lymphoedema I immediately thought cellulitis and started antibiotics, but I never had fever or went downhill as on other occasions. My question is, is this grumbling cellulitis?Or no infection and just
My hand started to ache one evening then the next evening I found a rash on my arm which has secondary lymphoedema I immediately thought cellulitis and started antibiotics, but I never had fever or went downhill as on other occasions. My question is, is this grumbling cellulitis?Or no infection and just
ameliapond
in
LSN
3 years ago
Normocytic Anemia,.
I have had 12 weekly B12 injections for a few years now. In February I discovered I have Normocytic anemia, and my gp told me that it occurs due to blood loss and my red cell count is low. I had a FIT test wwhich came back negative, which is great. But I am having a colonoscopy and gastrostomy
I have had 12 weekly B12 injections for a few years now. In February I discovered I have Normocytic anemia, and my gp told me that it occurs due to blood loss and my red cell count is low. I had a FIT test wwhich came back negative, which is great. But I am having a colonoscopy and gastrostomy
Brookey
in
Pernicious Anaemia Society
3 years ago
Advice needed
My Aunt had a mastectomy 4 years ago, she recently developed horrible weeping areas on the scar & a rash. The oncologist says it’s breast cancer cells but not melanoma. She has been having hormone injections for it but the area is spreading. Has anyone else experienced this & if so what was the best
My Aunt had a mastectomy 4 years ago, she recently developed horrible weeping areas on the scar & a rash. The oncologist says it’s breast cancer cells but not melanoma. She has been having hormone injections for it but the area is spreading. Has anyone else experienced this & if so what was the best
KT22
in
My Breast Cancer Community
3 years ago
Triple negative breast cancer with bone only mets
Anyone else out there with TNBC and oligometastatic bone Mets? What treatment did you get? I had 3 x stereotactic radiation and now nothing. Doctor says I have no “measurable disease “ so not eligible for any trials. Originally had 4 x TC chemo + double mastectomy and then 6 x gemcitabine + carboplatin
Anyone else out there with TNBC and oligometastatic bone Mets? What treatment did you get? I had 3 x stereotactic radiation and now nothing. Doctor says I have no “measurable disease “ so not eligible for any trials. Originally had 4 x TC chemo + double mastectomy and then 6 x gemcitabine + carboplatin
Sadie321
in
SHARE Metastatic Breast Cancer
3 years ago
Lymphodoema in torso
Appear to have lymphodoema in my torso following diep flap & mastectomy surgery three years ago (as well as mildly in my arm). To have it in your torso (above bikini line) seems very unusual, does anyone else have this?
Appear to have lymphodoema in my torso following diep flap & mastectomy surgery three years ago (as well as mildly in my arm). To have it in your torso (above bikini line) seems very unusual, does anyone else have this?
Savagebread
in
LSN
3 years ago
alcohol and hair colouring
Hi there, I'm asking a couple of questions on behalf of my wife who has just been re diagnosed with cancer, 4 years after a mastectomy. She's been put on fulvestrant and paleociclib and wanted to know if a) she can still get her hair coloured and b) what's the groups advice on alcohol consumption. It's
Hi there, I'm asking a couple of questions on behalf of my wife who has just been re diagnosed with cancer, 4 years after a mastectomy. She's been put on fulvestrant and paleociclib and wanted to know if a) she can still get her hair coloured and b) what's the groups advice on alcohol consumption. It's
scousehusband
in
SHARE Metastatic Breast Cancer
3 years ago
Mastectomy or not?
Hi all, this is my first post. Have had OC for 19 months and I have also tested positive for the brca 2 gene. I think that I want to go for a preventative double mastectomy but I am dithering. I havent even mentioned this to my doctor but I am of the opinion that I should try and help myself as much
Hi all, this is my first post. Have had OC for 19 months and I have also tested positive for the brca 2 gene. I think that I want to go for a preventative double mastectomy but I am dithering. I havent even mentioned this to my doctor but I am of the opinion that I should try and help myself as much
ayrtonhenry
in
My Ovacome
3 years ago
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