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Gallium 68 PSMA-11
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My scans showed spread but......
My scans showed no spread but Sept 1 my right nipple became very sensitive and a 2" diameter hardness formed around it. I applied Clio twice a day and today the hardened area is the size of a dime. The Clio I use is 5-chloro-7-iodoquinolin-8-ol). U of Maryland is the best source of cancer research that
My scans showed no spread but Sept 1 my right nipple became very sensitive and a 2" diameter hardness formed around it. I applied Clio twice a day and today the hardened area is the size of a dime. The Clio I use is 5-chloro-7-iodoquinolin-8-ol). U of Maryland is the best source of cancer research that
agnut
in
Advanced Prostate Cancer
9 months ago
Newly diagnosed
Hi everyone. I was recently diagnosed with non metastatic, but aggressive pc. My psa in March of this year was 8.2 and then 10.1 four months later, so rising quickly. Biopsy was done at end of August, which showed significant tumor development on the right side and a Gleason score of 4,5 or 5,4 in half
Hi everyone. I was recently diagnosed with non metastatic, but aggressive pc. My psa in March of this year was 8.2 and then 10.1 four months later, so rising quickly. Biopsy was done at end of August, which showed significant tumor development on the right side and a Gleason score of 4,5 or 5,4 in half
Quarky
in
Advanced Prostate Cancer
9 months ago
Gleason 6, 1 Yr AS, now Gleason 3+4
Hi, I'm 65, fit, active. , 2 yrs ago noticed PSA doubled to 2.4, last yr 3.5 so had MRI and urine exosome test, "liquid biopsy". Range is 1-100, less than 15 and you are ok, o/w suggest a biopsy. Mine was 48. Oh, the 3 markers in this test are for more aggressive disease. BTW MRI only showed diffuse
Hi, I'm 65, fit, active. , 2 yrs ago noticed PSA doubled to 2.4, last yr 3.5 so had MRI and urine exosome test, "liquid biopsy". Range is 1-100, less than 15 and you are ok, o/w suggest a biopsy. Mine was 48. Oh, the 3 markers in this test are for more aggressive disease. BTW MRI only showed diffuse
Muggs1
in
Prostate Cancer Network
9 months ago
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Another Echolight Scan versus Dexa Numbers
Hello, Like many, I am so torn about meds. My last doctor that did the Echolight Scan said he would not suggest I needed meds, however my primary does. And of course, most doctors only acknowledge the DEXA because they don't know about the Echolight, and don't want to know about it. Sorry but my
Hello, Like many, I am so torn about meds. My last doctor that did the Echolight Scan said he would not suggest I needed meds, however my primary does. And of course, most doctors only acknowledge the DEXA because they don't know about the Echolight, and don't want to know about it. Sorry but my
Pugger
in
Osteoporosis Support
1 year ago
Pluvicto
My brother will go for his second treatment on June 19th. Spoke to the PA yesterday. She said he’ll now get 80% dosage instead of 100%, because they’ve found out it has the same effect. Anyone else hear about this? All labs are good….PSA down from 250 to 215, hemoglobin is at 8.5, calcium is slightly
My brother will go for his second treatment on June 19th. Spoke to the PA yesterday. She said he’ll now get 80% dosage instead of 100%, because they’ve found out it has the same effect. Anyone else hear about this? All labs are good….PSA down from 250 to 215, hemoglobin is at 8.5, calcium is slightly
Jzner
in
Advanced Prostate Cancer
1 year ago
PSMA Results
Well, PSMA Pylarify scan yesterday was basically unremarkable EXCEPT for the following: Lymph Nodes: New radiotracer avid subcentimeter right common iliac node (image266) and a subcentimeter right pelvic sidewall/obturator lymph node (image 295). IMPRESSION: PSMA avid right common iliac and right
Well, PSMA Pylarify scan yesterday was basically unremarkable EXCEPT for the following: Lymph Nodes: New radiotracer avid subcentimeter right common iliac node (image266) and a subcentimeter right pelvic sidewall/obturator lymph node (image 295). IMPRESSION: PSMA avid right common iliac and right
Cancer2x
in
Advanced Prostate Cancer
9 months ago
clioquinol + zinc
PSA 44 started clioquinol +zinc Aug 11. Aug 30 PSA 48 with severe UTI. U of Maryland says Clio + zinc kills cancer cells. They give two cases of prostate cancer terminated. I'm trying it.
PSA 44 started clioquinol +zinc Aug 11. Aug 30 PSA 48 with severe UTI. U of Maryland says Clio + zinc kills cancer cells. They give two cases of prostate cancer terminated. I'm trying it.
agnut
in
Advanced Prostate Cancer
9 months ago
Update to: "Newly detectable PSA after prostatectomy: RT + ADT planned; add Erleada?"
Thanks for all the input to my original post. First, here is an administrative posting/question: am I correct to add this as a new post, or should I have posted this as a reply to my original post? Here are some additional details regarding medication side effects and treatment decision-making for
Thanks for all the input to my original post. First, here is an administrative posting/question: am I correct to add this as a new post, or should I have posted this as a reply to my original post? Here are some additional details regarding medication side effects and treatment decision-making for
Brokedown_Palace
in
Advanced Prostate Cancer
9 months ago
declining psa #6
Gm ladies n gentlemen, I’m here to give my results as I stated after stopping adt, post Rp, radiation n solely using ivermectin, cbd, turmeric n fish oil. My latest reading came in 1.34 down from 1.47 and continues to spiral down from starting this regiment at 1.92. Furthermore, prior to starting ivermectin
Gm ladies n gentlemen, I’m here to give my results as I stated after stopping adt, post Rp, radiation n solely using ivermectin, cbd, turmeric n fish oil. My latest reading came in 1.34 down from 1.47 and continues to spiral down from starting this regiment at 1.92. Furthermore, prior to starting ivermectin
Nfler
in
Advanced Prostate Cancer
9 months ago
PSA up to 150 on Olaprib, any insight on what’s next?
Hi all, my dads history is mostly in my profile but in short he started on Zytiga a year ago. Zytiga worked well but had major side effects and lead to a switch to Erleada. Erleada failed at the time shown in the picture with the orange circle and he switched to Olaprib by the time he got the PSA results
Hi all, my dads history is mostly in my profile but in short he started on Zytiga a year ago. Zytiga worked well but had major side effects and lead to a switch to Erleada. Erleada failed at the time shown in the picture with the orange circle and he switched to Olaprib by the time he got the PSA results
StayingSTRNG
in
Advanced Prostate Cancer
9 months ago
Options when Docetaxel stops working
Hi everyone- My brother was diagnosed with stage 4 prostate cancer in April of 2021. His PSA was 52 at the time of his diagnosis. He went on Lupron and Abiraterone which took his PSA to .03 and kept it low until Oct 2022. It went to 8.9 and his doctor put him on Docetaxel chemo. His PSA has continued
Hi everyone- My brother was diagnosed with stage 4 prostate cancer in April of 2021. His PSA was 52 at the time of his diagnosis. He went on Lupron and Abiraterone which took his PSA to .03 and kept it low until Oct 2022. It went to 8.9 and his doctor put him on Docetaxel chemo. His PSA has continued
TerryR123
in
Advanced Prostate Cancer
9 months ago
Update - strontium citrate
hi I just had a endo lab appt and had 4 blood tubes drawn for secondary causes. I guess it’s a start. I now take strontium citrate and 45 mg of K2 mk4 as my two main lines of defense. I read some research in Australia that said to take the strontium citrate by opening the capsule and mixing it into
hi I just had a endo lab appt and had 4 blood tubes drawn for secondary causes. I guess it’s a start. I now take strontium citrate and 45 mg of K2 mk4 as my two main lines of defense. I read some research in Australia that said to take the strontium citrate by opening the capsule and mixing it into
Raleigh59
in
Osteoporosis Support
1 year ago
Hypothyroidism Confusing test results. Can anyone help please. Are they connected.
Hi Im hoping someone can help. The information you gave last time was very helpful but I still haven't recieved any help from the doctors as they didn't believe the test result were right. They said something was going wrong at the lab but kept sending me back. So I recently paid to get a private test
Hi Im hoping someone can help. The information you gave last time was very helpful but I still haven't recieved any help from the doctors as they didn't believe the test result were right. They said something was going wrong at the lab but kept sending me back. So I recently paid to get a private test
Moviegeek7
in
Thyroid UK
1 year ago
Pluvicto Aftereffects SMART syndrome?
As I've posted here, spouse was pretty much the poster boy for Pluvicto. He had a hiccup with the supply issues, but PSA dropped significantly and his side effects during treatment were perfectly manageable, until .... We were heading to NM via West Texas when he began complaining of bright light and
As I've posted here, spouse was pretty much the poster boy for Pluvicto. He had a hiccup with the supply issues, but PSA dropped significantly and his side effects during treatment were perfectly manageable, until .... We were heading to NM via West Texas when he began complaining of bright light and
Biobro
in
Advanced Prostate Cancer
9 months ago
Radiation Interruption
Hi....all the best to your Dad. I have no idea if stopping radiation for a time would m after. I did 5 on 2 days off for 28 treatments. You did not mention any PSA or Gleason number. Not sure that would matter...but someone here might venture another opinion based on those numbers and If he is metastatic
Hi....all the best to your Dad. I have no idea if stopping radiation for a time would m after. I did 5 on 2 days off for 28 treatments. You did not mention any PSA or Gleason number. Not sure that would matter...but someone here might venture another opinion based on those numbers and If he is metastatic
Poppy1952
in
Advanced Prostate Cancer
9 months ago
How much is too much D3
Any views on taking 10,000 iu d3 daily? There’s evidence that it’s ‘safe and well tolerated’ I went to see my bone consultant today, he wasn’t impressed by me taking this amount but my calcium level is good and my dexa results have gone from -2.6 to -2.1 in 2 years I also take k2 and magnesium ,
Any views on taking 10,000 iu d3 daily? There’s evidence that it’s ‘safe and well tolerated’ I went to see my bone consultant today, he wasn’t impressed by me taking this amount but my calcium level is good and my dexa results have gone from -2.6 to -2.1 in 2 years I also take k2 and magnesium ,
Deee64
in
Bone Health and Osteoporosis UK
1 year ago
Active Surveillance
Hello everyone, I have had 2 biopsies in the last 2 years (the last one was in January 2023) with the latest one showing 1 out of 12 cores positive for Gleason 3+3 and another core suspicious for cancer. It was also noted on my last MRI that I had a bladder outlet obstruction. My PSA went as high as
Hello everyone, I have had 2 biopsies in the last 2 years (the last one was in January 2023) with the latest one showing 1 out of 12 cores positive for Gleason 3+3 and another core suspicious for cancer. It was also noted on my last MRI that I had a bladder outlet obstruction. My PSA went as high as
ironmanburg
in
Active Surveillance - Prostate Cancer
9 months ago
Prostate Biopsy
Hello everyone, I have had 2 biopsies in the last 2 years (the last one was in January 2023) with the latest one showing 1 out of 12 cores positive for Gleason 3+3 and another core suspicious for cancer. It was also noted on my last MRI that I had a bladder outlet obstruction. My PSA went as high as
Hello everyone, I have had 2 biopsies in the last 2 years (the last one was in January 2023) with the latest one showing 1 out of 12 cores positive for Gleason 3+3 and another core suspicious for cancer. It was also noted on my last MRI that I had a bladder outlet obstruction. My PSA went as high as
ironmanburg
in
Prostate Cancer Network
9 months ago
Decision Xtandi or radiation
Many posts proceed this one and I am now at a crossroad. Scans since 7/21 showed uptake in either/or illiac, acetabulum and the ischium. After 2/23 scan I had 35 gys radiation to acetabulum. PSA dropped then started rising, 9/23 scan showed SUV uptake 28.4 at ischium. PSA 4.2 Local radiologist is
Many posts proceed this one and I am now at a crossroad. Scans since 7/21 showed uptake in either/or illiac, acetabulum and the ischium. After 2/23 scan I had 35 gys radiation to acetabulum. PSA dropped then started rising, 9/23 scan showed SUV uptake 28.4 at ischium. PSA 4.2 Local radiologist is
alperk
in
Advanced Prostate Cancer
10 months ago
Help to solve my thyroid mystery!
Dear all, I would greatly appreciate advice on my current thyroid health mystery, which is making me feel miserable. I have the following symptoms: fatigue, chills, sensitive to cold, horizontal ridges in my nails, hair thinning, heart palpitations and terrible anxiety and depression (for which I am
Dear all, I would greatly appreciate advice on my current thyroid health mystery, which is making me feel miserable. I have the following symptoms: fatigue, chills, sensitive to cold, horizontal ridges in my nails, hair thinning, heart palpitations and terrible anxiety and depression (for which I am
Anxiousjojo
in
Thyroid UK
1 year ago
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