Search
Search
About
Log in
Join
Experiences with
Gallium 68 PSMA-11
Posts
Communities
17,190 public posts
Filter results
Breathing problem.
Even though 6 months ago I was told I was stage 4 and Gleason 9 the use of Orgovyx and Zytiga have brought my PSA from 72 to 0.4, and my numerous cancer hot spots appear under control. My PSA continues to go down and I'm without pain. However, I find myself breathing very hard just climbing a flight
Even though 6 months ago I was told I was stage 4 and Gleason 9 the use of Orgovyx and Zytiga have brought my PSA from 72 to 0.4, and my numerous cancer hot spots appear under control. My PSA continues to go down and I'm without pain. However, I find myself breathing very hard just climbing a flight
Poollover
in
Advanced Prostate Cancer
5 months ago
first timer
just received diagnosis mets to bone 3wks ago. i am on xtandi and orgovyx the psa droped from 70 to 4.6 after 2wks. any thoughts?
just received diagnosis mets to bone 3wks ago. i am on xtandi and orgovyx the psa droped from 70 to 4.6 after 2wks. any thoughts?
billsfan
in
Advanced Prostate Cancer
5 months ago
What should your resting heart rate be?
From the podcast from Dr. John Day (https://drjohnday.com) , with the title:
"What Should Your Resting Heart Rate Be?
If you consult online with the Mayo Clinic, they will tell you that a normal resting heart rate is 60 to 100 bpm. While this may be a typical resting heart rate, it is certainly
From the podcast from Dr. John Day (https://drjohnday.com) , with the title:
"What Should Your Resting Heart Rate Be?
If you consult online with the Mayo Clinic, they will tell you that a normal resting heart rate is 60 to 100 bpm. While this may be a typical resting heart rate, it is certainly
Hidden
in
AF Association
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
PSA update
DX Nov 2020. PSA 960 high volume metastatic. Lowest PSA nadir 0.1 Aug 2022. Slowly rising Nov. 2023 was 0.21, Feb 2024 0.41....Doubling time 3.1 months . On Lupron and 1000 mg Abiraterone with 0.5 Dexamethasone . Darn.
DX Nov 2020. PSA 960 high volume metastatic. Lowest PSA nadir 0.1 Aug 2022. Slowly rising Nov. 2023 was 0.21, Feb 2024 0.41....Doubling time 3.1 months . On Lupron and 1000 mg Abiraterone with 0.5 Dexamethasone . Darn.
wolverine11
in
Advanced Prostate Cancer
5 months ago
What's different between Xtandi vs NUBEQA® (darolutamide) vs ERLEADA® (apalutamide)
Hello Everyone, zytiga didn’t work so move to xtandi After two months, Xtandi did not work, and PSA started going up; I suggested to the doctor to prescribe other medicine ( NUBEQA® (darolutamide) or ERLEADA® (apalutamide) based on this group's recommendations. Dr keeps telling me NO and tells
Hello Everyone, zytiga didn’t work so move to xtandi After two months, Xtandi did not work, and PSA started going up; I suggested to the doctor to prescribe other medicine ( NUBEQA® (darolutamide) or ERLEADA® (apalutamide) based on this group's recommendations. Dr keeps telling me NO and tells
God_Loves_Me
in
Advanced Prostate Cancer
5 months ago
Update for kestrel5
Diagnosed in Spring 2010 (Stage IIB - pT2c, N0, M0). Lung mets confirmed in September 2015. I am, as they say, heavily pre-treated. Recent scans and bloodwork: no evidence of cancer, three years of undetectable PSA. Never say 'cured,' but I am enjoying a period of durable treatment effects.
Diagnosed in Spring 2010 (Stage IIB - pT2c, N0, M0). Lung mets confirmed in September 2015. I am, as they say, heavily pre-treated. Recent scans and bloodwork: no evidence of cancer, three years of undetectable PSA. Never say 'cured,' but I am enjoying a period of durable treatment effects.
Kestrel5
in
Advanced Prostate Cancer
5 months ago
Treatment going forward
Boyfriend is 73 was on AS after TRUS bx with decipher score 3.0. Bx 3+4 after downgrade from JH. Now one year later Saturation Biopsy reports 3+5=8 one core and 4+5=9 two cores between 5 and 20% pattern 5. PSA remains about 3.4. Total of 9/30 positive mostly 3+4=7 20% pattern 4. PSMA PET/CT reports
Boyfriend is 73 was on AS after TRUS bx with decipher score 3.0. Bx 3+4 after downgrade from JH. Now one year later Saturation Biopsy reports 3+5=8 one core and 4+5=9 two cores between 5 and 20% pattern 5. PSA remains about 3.4. Total of 9/30 positive mostly 3+4=7 20% pattern 4. PSMA PET/CT reports
good2go
in
Advanced Prostate Cancer
5 months ago
Pluvicto still working well
Am coming to my fifth injection and I see I neglected to post my results after #3 & #4 so they are here, too. So far: Aug 16: PSA
99.7
Aug 21: Pluvicto
#1
Sep 11: PSA
106
Sep 28: PSA
91.8
Oct 05: Pluvicto
#2
Oct 25: PSA
57.8
Nov
Am coming to my fifth injection and I see I neglected to post my results after #3 & #4 so they are here, too. So far: Aug 16: PSA
99.7
Aug 21: Pluvicto
#1
Sep 11: PSA
106
Sep 28: PSA
91.8
Oct 05: Pluvicto
#2
Oct 25: PSA
57.8
Nov
Miccoman
in
Advanced Prostate Cancer
5 months ago
Rising PSA
Year 7… No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA. Casodex/Lupron/39 Rounds Radiation. Presently on Lupron/Nubeqa PSA rising PSMA Scan Clear CT scan with Contrast today plus Fractionated Blood Biopsy. PSA 10.8 Waiting on CT results but Dr. Aggarwal wants
Year 7… No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA. Casodex/Lupron/39 Rounds Radiation. Presently on Lupron/Nubeqa PSA rising PSMA Scan Clear CT scan with Contrast today plus Fractionated Blood Biopsy. PSA 10.8 Waiting on CT results but Dr. Aggarwal wants
JolleySprings
in
Advanced Prostate Cancer
5 months ago
Rising PSA on ADT
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
MGBman
in
Advanced Prostate Cancer
5 months ago
Advice/assistance regarding starting T3.
Most recent results, Monitor my health 24/7/2023 TSH 0.3 (0.27-4.2) FT4 20 (12-22) FT3 4.2 (3.1-6.8) Vit D 117 - their ranges are just lines on a graph but it’s in the excess category. VitB12/folate/ferritin- I have a replacement kit (which I forgot to do this morning) due to blood clotting so they
Most recent results, Monitor my health 24/7/2023 TSH 0.3 (0.27-4.2) FT4 20 (12-22) FT3 4.2 (3.1-6.8) Vit D 117 - their ranges are just lines on a graph but it’s in the excess category. VitB12/folate/ferritin- I have a replacement kit (which I forgot to do this morning) due to blood clotting so they
Beads
in
Thyroid UK
11 months ago
Serum Essential Elements and Survival after Cancer Diagnosis
New Polish-Canadian study below [1]. The elements were selenium (Se), zinc (Zn) and copper (Cu). "In a prospective study, we measured the associations between three serum elements (Se, Zn and Cu) and the prognosis of 1475 patients with four different types of cancer (breast, prostate, lung and larynx
New Polish-Canadian study below [1]. The elements were selenium (Se), zinc (Zn) and copper (Cu). "In a prospective study, we measured the associations between three serum elements (Se, Zn and Cu) and the prognosis of 1475 patients with four different types of cancer (breast, prostate, lung and larynx
pca2004
in
Fight Prostate Cancer
1 year ago
considering stopping adt/abiraterone to see what happens
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
Nowhereman9
in
Advanced Prostate Cancer
5 months ago
Does anyone take Vit K2 to help with bones?
I have had a slightly raised calcium level for more than 20 years. Consultant is not perturbed, as it never 'spikes' and is tested regularly. I do not take calcium along with Pred for the above reason. I understand that vit K2 helps to put calcium into bones and not leave it in blood vessels etc. When
I have had a slightly raised calcium level for more than 20 years. Consultant is not perturbed, as it never 'spikes' and is tested regularly. I do not take calcium along with Pred for the above reason. I understand that vit K2 helps to put calcium into bones and not leave it in blood vessels etc. When
Francesbarbara
in
PMRGCAuk
1 year ago
PMR or PsA or both
My Rheumatologist left the practice and I meet with a new one last week. He says that he is not sure I have PsA but maybe only PMR. Wants me to stop methotrexate immediately and try reducing prednisone my 1 mg a month. Currently are 12.0 mg. Happy about this nut scared too. If he is wrong, when and
My Rheumatologist left the practice and I meet with a new one last week. He says that he is not sure I have PsA but maybe only PMR. Wants me to stop methotrexate immediately and try reducing prednisone my 1 mg a month. Currently are 12.0 mg. Happy about this nut scared too. If he is wrong, when and
Seal49
in
Beyond Psoriasis
5 months ago
Fatigue after eating
Husband is getting very sleepy after all meals. His sugar is always below 100 when tested, he takes levothyroxine for low thyroid (waiting for over 2 weeks now on latest blood work and TSH results from PCP. *sigh* He's taking a statin (can't remember the name) and Tamsulosin. Current cancer treatment
Husband is getting very sleepy after all meals. His sugar is always below 100 when tested, he takes levothyroxine for low thyroid (waiting for over 2 weeks now on latest blood work and TSH results from PCP. *sigh* He's taking a statin (can't remember the name) and Tamsulosin. Current cancer treatment
Union98
in
Advanced Prostate Cancer
5 months ago
suspected epidural tumour
Hi all! Hope you are all doing well. My dad just got his scans back, and to go along with his rising PSA (over 260 now), the said they suspect he has an epidural tumour. Our MO typically glazes past his scan results as she doesn’t seem them significant, I want to make sure I am right to be worried here
Hi all! Hope you are all doing well. My dad just got his scans back, and to go along with his rising PSA (over 260 now), the said they suspect he has an epidural tumour. Our MO typically glazes past his scan results as she doesn’t seem them significant, I want to make sure I am right to be worried here
StayingSTRNG
in
Advanced Prostate Cancer
5 months ago
switching to a carnivore diet has put my PMR into total remission
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
benhemp
in
PMRGCAuk
5 months ago
Is a false-positive biopsy possible?
I have a history of prostate cancer in my family. My father had it, and my brother had it and he had his prostate removed. As a result, for the last 13 years, I've had my PSA checked every six months. I typically run a very low PSA, historically .5 or .6. About 18 months ago I noticed that my PSA was
I have a history of prostate cancer in my family. My father had it, and my brother had it and he had his prostate removed. As a result, for the last 13 years, I've had my PSA checked every six months. I typically run a very low PSA, historically .5 or .6. About 18 months ago I noticed that my PSA was
CBRD
in
Advanced Prostate Cancer
5 months ago
Should I sell and retire with PSA at 0.1 following 9 months undetectable?
Diagnosed early 2022, Gleason 4+4. Metastasis to multiple sites on the pelvis, no other detectable spread. Triplet therapy with ongoing goserelin and abiraterone with prednisone. Abiraterone is once per day with a low fat meal. Following nine months of undetectable PSA results, I recently received
Diagnosed early 2022, Gleason 4+4. Metastasis to multiple sites on the pelvis, no other detectable spread. Triplet therapy with ongoing goserelin and abiraterone with prednisone. Abiraterone is once per day with a low fat meal. Following nine months of undetectable PSA results, I recently received
LakeT
in
Advanced Prostate Cancer
5 months ago
1
...
60
61
62
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
9018 results
Thyroid UK
2207 results
Prostate Cancer Network
1093 results
View top 10 communities
Sort by
Most Relevant
Newest