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Ongoing with Avastin
Hello lovely ladies.. Just got home from having blood tests for my 5th chemo tomorrow and the Oncology Dr has said I'd have after my 6th chemo I will have a further 12 cycles of Avastin every 3 weeks...currently having Paclitaxel, Carboplatin and Avastin - I was diagnosed 3C at Christmas. I was somewhat
Hello lovely ladies.. Just got home from having blood tests for my 5th chemo tomorrow and the Oncology Dr has said I'd have after my 6th chemo I will have a further 12 cycles of Avastin every 3 weeks...currently having Paclitaxel, Carboplatin and Avastin - I was diagnosed 3C at Christmas. I was somewhat
GBIRVMIC
in
My Ovacome
8 years ago
Professor Graham Hughes' March Blog 2016
There is a link to a paper in this, (I will put the actual paper underneath). Monthly Blog March 2016 Easter weekend. A warm, sunny Good Friday after three months of grey skies. Time to return to my ‘blog’ and for me a long awaited return after illness. Last year, before my illness and operations
There is a link to a paper in this, (I will put the actual paper underneath). Monthly Blog March 2016 Easter weekend. A warm, sunny Good Friday after three months of grey skies. Time to return to my ‘blog’ and for me a long awaited return after illness. Last year, before my illness and operations
MaryF
Administrator
in
Hughes Syndrome APS Forum
8 years ago
A question about Thyroid?
Hi everyone. I know that some of you have suggested in the past that I have my thyroid checked. Over the past few months my condition has been stable, the riveroxaban has made a large difference from injecting fragmin and I have been feeling better. I always suffer from pins and needles and memory loss
Hi everyone. I know that some of you have suggested in the past that I have my thyroid checked. Over the past few months my condition has been stable, the riveroxaban has made a large difference from injecting fragmin and I have been feeling better. I always suffer from pins and needles and memory loss
Kittybaker
in
Hughes Syndrome APS Forum
8 years ago
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Confused!!
I was diagnosed with aps 6 years ago through my miscarriage clinic following miscarriage and a still birth. I was told treatment of aspirin and fragmin injections during pregnancy and after c section. I was not referred anywhere else and no other treatment since then. Is this the correct procedure??
I was diagnosed with aps 6 years ago through my miscarriage clinic following miscarriage and a still birth. I was told treatment of aspirin and fragmin injections during pregnancy and after c section. I was not referred anywhere else and no other treatment since then. Is this the correct procedure??
hibble
in
Hughes Syndrome APS Forum
8 years ago
dizzie-wh
Re Iressa/Gefitinib. I was diagnosed as stage 4 nsclc with pleural effusion in January 2014.Tested egfr positive following a talc pleurodosis. Have been on Iressa since then with remarkable results - one scan not even being able to spot the primary! However, have had a chest infection (klebsiella pneumonia
Re Iressa/Gefitinib. I was diagnosed as stage 4 nsclc with pleural effusion in January 2014.Tested egfr positive following a talc pleurodosis. Have been on Iressa since then with remarkable results - one scan not even being able to spot the primary! However, have had a chest infection (klebsiella pneumonia
dizzie-wh
in
The Roy Castle Lung Cancer Foundation
8 years ago
I've now been told ok to stop Fragmin at 12 weeks pregnant due to second test being negative.... Nervous
Brief background: I have one 5 year old boy and one 2 year old boy-no problems getting pregnant with them. Then had 1 miscarriage at 10 weeks (stopped developing by 6 though) and 2 chemical pregnancies, both which ended by 5 weeks. Tested high positive (64) for IgM cardiolipin antibodies. Got pregnant
Brief background: I have one 5 year old boy and one 2 year old boy-no problems getting pregnant with them. Then had 1 miscarriage at 10 weeks (stopped developing by 6 though) and 2 chemical pregnancies, both which ended by 5 weeks. Tested high positive (64) for IgM cardiolipin antibodies. Got pregnant
Pregnantk
in
Hughes Syndrome APS Forum
8 years ago
Is it ok to fly 19 weeks pregnant with APS?
What do you reckon? It is only a short haul flight from London to Belfast. I am on Fragmin nightly injections and aspirin. I will be 19 weeks pregnant. Any advice greatly received. Thank you
What do you reckon? It is only a short haul flight from London to Belfast. I am on Fragmin nightly injections and aspirin. I will be 19 weeks pregnant. Any advice greatly received. Thank you
Pregnantk
in
Hughes Syndrome APS Forum
8 years ago
1 positive test, pregnant -advice please...!
Hi all, I am fairly new to all this and would love some advice on my current situation. I have a 5 year old son and a 2 year old son. I then had 3 miscarriages (one at 10 weeks, but not developed past 5-6 weeks, then 2 v. Early at 5 weeks). I was tested and results came back positive for anti cardiolipin
Hi all, I am fairly new to all this and would love some advice on my current situation. I have a 5 year old son and a 2 year old son. I then had 3 miscarriages (one at 10 weeks, but not developed past 5-6 weeks, then 2 v. Early at 5 weeks). I was tested and results came back positive for anti cardiolipin
Pregnantk
in
Hughes Syndrome APS Forum
8 years ago
APS during pregnancy: treatment and monitoring
Hello all, I am delighted to find this site and wondering if someone might be able to help. I have been prescribed asprin, progesterone, fragmin and steroids from the moment I found out I was pregnant as the consultant suspects I have APS. I am currently 10 weeks pregnant, I've already had 3 scans and
Hello all, I am delighted to find this site and wondering if someone might be able to help. I have been prescribed asprin, progesterone, fragmin and steroids from the moment I found out I was pregnant as the consultant suspects I have APS. I am currently 10 weeks pregnant, I've already had 3 scans and
pregnancy2016
in
Hughes Syndrome APS Forum
8 years ago
Happy New Year, 3 years and still wondering
Happy New Year everyone. This is just a quick update and to see if anyone else has been in the same boat. Since my last post I have had a Endometrial ablation, which has worked 50%. It has made life somewhat more bearable. I was referred to the Nuerology department in April as my memory has been progressively
Happy New Year everyone. This is just a quick update and to see if anyone else has been in the same boat. Since my last post I have had a Endometrial ablation, which has worked 50%. It has made life somewhat more bearable. I was referred to the Nuerology department in April as my memory has been progressively
Kittybaker
in
Hughes Syndrome APS Forum
8 years ago
APS
Well been Manchester Royal hospital today rheumatology lupus clinic seen speclist doctor called Rachela Gorodkin very nice lady she asked me lots of questions about wots been going on and about my family and examined me and took lots of blood test she sied that lupus and APS go together most time but
Well been Manchester Royal hospital today rheumatology lupus clinic seen speclist doctor called Rachela Gorodkin very nice lady she asked me lots of questions about wots been going on and about my family and examined me and took lots of blood test she sied that lupus and APS go together most time but
Lesley61
in
Hughes Syndrome APS Forum
9 years ago
good evening all
no longer seeing any doctors for my aps., dizziness. no one is willing to try anything to stop or slow it, so i see no reason to see them anymore. it is unfortunate that the doc's here in the U.S. know so little about aps. I am more at ease now, still take fragmin but my abdomen is black and blue and
no longer seeing any doctors for my aps., dizziness. no one is willing to try anything to stop or slow it, so i see no reason to see them anymore. it is unfortunate that the doc's here in the U.S. know so little about aps. I am more at ease now, still take fragmin but my abdomen is black and blue and
packerfan
in
Hughes Syndrome APS Forum
9 years ago
APS specialist in Hull?
Hi all Don't post often but do read all the posts, people a lot more knowledgable than I am! After being seriously ill earlier this year, and spending 10 days in ITU, nothing to do with Hughes, had an op that was supposed to be 2 hours and turned into 6. This resulted in peunomia and on a ventilater
Hi all Don't post often but do read all the posts, people a lot more knowledgable than I am! After being seriously ill earlier this year, and spending 10 days in ITU, nothing to do with Hughes, had an op that was supposed to be 2 hours and turned into 6. This resulted in peunomia and on a ventilater
judes
in
Hughes Syndrome APS Forum
9 years ago
Professor Graham Hughes' Blog October 2015
October 2015 Late October. The countryside is ablaze with colour. This autumn’s technicolour display is exceptional. For the past two months I have been on the receiving end of medical treatment, having had surgery in late August. This month has brought home to me two widely known truths – firstly,
October 2015 Late October. The countryside is ablaze with colour. This autumn’s technicolour display is exceptional. For the past two months I have been on the receiving end of medical treatment, having had surgery in late August. This month has brought home to me two widely known truths – firstly,
MaryF
Administrator
in
Hughes Syndrome APS Forum
9 years ago
Really Worried !
After seeing professor D'Cruz yesterday I am left feeling really scared. He said my APS levels are low and thinks long term fragmin use could result in a brain bleed ! He wants me to see Beverly Hunt at St Thomas to review and change my treatment but im not sure how long I will have to wait. He has
After seeing professor D'Cruz yesterday I am left feeling really scared. He said my APS levels are low and thinks long term fragmin use could result in a brain bleed ! He wants me to see Beverly Hunt at St Thomas to review and change my treatment but im not sure how long I will have to wait. He has
jessie68
in
Hughes Syndrome APS Forum
9 years ago
Just seen Professor Cruz with a result I think ?
Hi there have just seen prof D'Cruz after last month being sold by Dr Sangle I no longer have APS. Prof D'Cruz looked at all my blood work and history and decided I have APS without doubt but because of low levels he is worried about keeping me on the Heparin as their is a risk of brain bleeds e.c.t.
Hi there have just seen prof D'Cruz after last month being sold by Dr Sangle I no longer have APS. Prof D'Cruz looked at all my blood work and history and decided I have APS without doubt but because of low levels he is worried about keeping me on the Heparin as their is a risk of brain bleeds e.c.t.
jessie68
in
Hughes Syndrome APS Forum
9 years ago
Ablation , Riveroxaban and neurology
It has been a while since I wrote a post catching up on here, Glad to see everyone seems to be getting great treatment regarding their Hughes. At the start of the year I was put back on Fragmin injections as it was thought I had a suspected PE ( Anad E sent me home and I was scanned then 5 days later
It has been a while since I wrote a post catching up on here, Glad to see everyone seems to be getting great treatment regarding their Hughes. At the start of the year I was put back on Fragmin injections as it was thought I had a suspected PE ( Anad E sent me home and I was scanned then 5 days later
Kittybaker
in
Hughes Syndrome APS Forum
9 years ago
Help Advice Needed
Ive had 7 PE's even while taking warfarin. Had a stroke and a number of TIA's and a Heart attack. But i also have a number of other health issues. Angina, Coronary heart disease, Murmur of Pulmonary Valve, High Blood Pressure, High Cholesterol, Irritable bowel syndrome, Hiatus hernia and Oesophagitis
Ive had 7 PE's even while taking warfarin. Had a stroke and a number of TIA's and a Heart attack. But i also have a number of other health issues. Angina, Coronary heart disease, Murmur of Pulmonary Valve, High Blood Pressure, High Cholesterol, Irritable bowel syndrome, Hiatus hernia and Oesophagitis
Rose4u
in
Hughes Syndrome APS Forum
9 years ago
Discharged from Lupus unit !
Hi there I was diagnosed with APS three years ago by Professor Khamashta. I was put on daily Fragmin injections which really helped with my symptoms ! I went to my appointment last week and seen by a Dr Sangle who I haven't seen before because Professor Khamashta is on a years leave. Dr Sangle basically
Hi there I was diagnosed with APS three years ago by Professor Khamashta. I was put on daily Fragmin injections which really helped with my symptoms ! I went to my appointment last week and seen by a Dr Sangle who I haven't seen before because Professor Khamashta is on a years leave. Dr Sangle basically
jessie68
in
Hughes Syndrome APS Forum
9 years ago
You cannot make up the week I have had!
Sorry I have not been around much... You all won't believe the week I have had! It started Tuesday when I went to hospital, my GP sent me to get checked out, they did lots of tests including a chest X-ray.... where I found out I had pneumonia, what with my PE's breathing was a bit tricky. So I was
Sorry I have not been around much... You all won't believe the week I have had! It started Tuesday when I went to hospital, my GP sent me to get checked out, they did lots of tests including a chest X-ray.... where I found out I had pneumonia, what with my PE's breathing was a bit tricky. So I was
Hidden
in
Lung Conditions Community Forum
9 years ago
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