It has been a while since I wrote a post catching up on here, Glad to see everyone seems to be getting great treatment regarding their Hughes. At the start of the year I was put back on Fragmin injections as it was thought I had a suspected PE ( Anad E sent me home and I was scanned then 5 days later to see if it was a PE, not the best treatment to be sent away from A and E but it was a friday evening so i am afraid it was more a case of not enough bodies around to treat people)
I had been suffering terrible pins and needles on the Riveroxaban, so I have carried on injecting for 6 months to see of the problems have alleviated, unfortunately the pins and needles are still very bad and the sight in my left eye is still blurry So I am awaiting to see a Neurologist now
I went back on the Riveroxaban on monday, it is such a relief to not be injecting daily anymore!
Nearly two month I also had an ablation as I have been suffering terrible heavy periods and bloodclots, the operation was a partial success as the bleeding is a bit lighter but it wasn't the result the specialist was hoping for. I can have another ablation but I intend to see what the next 6 months turn out like, rather than going through another op. I definitely don't want a Hysterectomy at 35 so I intend to put that one off for as long as possible.
This isn't really asking a question in this post just seeing others experiences. My memory has deteriorated greatly and the pins and needles are a daily nuisance, so I am just looking to see if others have had experiences of this?